Re: Still available to help-Len/Lydia

[Guest guest]

Oh, Pat, what a great idea. Put an angel tattoo or something like that on

it. It would make great stories, wouldn't it...lol

MP Ford wrote:

Len

I would definitely, definitely, get the port.... I would not have been able to

do it any other way - many times they can not find my veins.. and over the

course of chemo there will be times you don't feel good - or may be

dehyrated....and then it is REALLY hard to find the veins... My husband didn't

want me to get the port - but I thought it best and didn't regret....I had it

taken out in August! YAY! It is now my little battle scar - might put a tattoo

on it (just kidding!)

Pat

Len Henell wrote:

Hi ,

I am not sure why they didn't give me a port. He said

I had good veins, which I did until the chemo, but now

all my veins in my left forearm are burned out. I

guess I look like a heroin junkie. I will call the

doctor and ask how many more of these infusions I have

left. Right now I'm only scheduled for two and the

nurses have been talking about diluting the

oxaliplatin to reduce the toxicity. We'll see what

they decide for next time. I am really sleepy right

now but my hands can type ok. I just can't keep my

eyes open. Good thing I'm a touch typist.

You take care and get some rest yourself. Don't

forget to push the water.

Len

--- brencolinmom@... wrote:

---------------------------------

Thanks for thinking of me today, Lydia. I hope your

spirits are lifted in

the next few days. There is much to be thankful for.

You are in beautiful

Italy in the shopping capitol of the world. I would

love to be there (but when

it is warm).

Len: I also had my chemo infusion today. I was

there at 9 a.m. and didn't

get home until 6:30 p.m. I have a port a cath that

is used for all my blood

work and to administer the chemo. Why didn't they

give you a port? It is so

easy and without pain. The port is used to draw

blood to see if I can have

chemo, then for pre-meds (steroids, anti-nausea meds,

etc.), then to infuse

Avastin, then a 2 hour infusion of Oxaliplatin and

Leucovorin. Then, I am

hooked up to my 48 hour pump of 5FU. I go for

Acupuncture immediately after my

chemo and then a cancer massage at my house. I am

really trying to take care

of myself and the acupuncture helps. Is it too late

to get a port? How

many treatments do you have remaining? I think you

said 3 or so. I had chemo

number 9 of 12 today --- 3 to go!

I feel lousy and I am going off to sleep.

Take care.

[Guest guest]

Len:

I know how you feel. Today, my neuropathy is in my jaws when I try to bite

into something. Also, my toes and fingers are numb. The oncologist told me

to count the days of this and if it doesn't recover before the next

treatment, they will not give me any more Oxaliplatin. He said the side

effects may

be permanent.

[Guest guest]

, Yes, there is a small, VERY small chance that the nerve

damage may be permanent. But not too many have gotten this. Please

don't start thinking that way. More then likely it will all resolve

with time. Ingrid

>

> Len:

> I know how you feel. Today, my neuropathy is in my jaws when I try

to bite

> into something. Also, my toes and fingers are numb. The

oncologist told me

> to count the days of this and if it doesn't recover before the

next

> treatment, they will not give me any more Oxaliplatin. He said

the side effects may

> be permanent.

>

>

>

>

[Guest guest]

Hi Ingrid:

Thanks for the words of encouragement.

In a message dated 12/3/2005 5:30:05 P.M. Pacific Standard Time,

lowenco@... writes:

, Yes, there is a small, VERY small chance that the nerve

damage may be permanent. But not too many have gotten this. Please

don't start thinking that way. More then likely it will all resolve

with time. Ingrid

>

> Len:

> I know how you feel. Today, my neuropathy is in my jaws when I try

to bite

> into something. Also, my toes and fingers are numb. The

oncologist told me

> to count the days of this and if it doesn't recover before the

next

> treatment, they will not give me any more Oxaliplatin. He said

the side effects may

> be permanent.

>

>

>

> [Non-text portions of this message have been removed]

[Guest guest]

Wow! An angel would be a GREAT idea - or how about the blue ribbon of colon

cancer? Any other ideas on the board for a tatoo on the port scar?

MP

Dawson wrote:

Oh, Pat, what a great idea. Put an angel tattoo or something like that

on it. It would make great stories, wouldn't it...lol

MP Ford wrote:

Len

I would definitely, definitely, get the port.... I would not have been able to

do it any other way - many times they can not find my veins.. and over the

course of chemo there will be times you don't feel good - or may be

dehyrated....and then it is REALLY hard to find the veins... My husband didn't

want me to get the port - but I thought it best and didn't regret....I had it

taken out in August! YAY! It is now my little battle scar - might put a tattoo

on it (just kidding!)

Pat

Len Henell wrote:

Hi ,

I am not sure why they didn't give me a port. He said

I had good veins, which I did until the chemo, but now

all my veins in my left forearm are burned out. I

guess I look like a heroin junkie. I will call the

doctor and ask how many more of these infusions I have

left. Right now I'm only scheduled for two and the

nurses have been talking about diluting the

oxaliplatin to reduce the toxicity. We'll see what

they decide for next time. I am really sleepy right

now but my hands can type ok. I just can't keep my

eyes open. Good thing I'm a touch typist.

You take care and get some rest yourself. Don't

forget to push the water.

Len

--- brencolinmom@... wrote:

---------------------------------

Thanks for thinking of me today, Lydia. I hope your

spirits are lifted in

the next few days. There is much to be thankful for.

You are in beautiful

Italy in the shopping capitol of the world. I would

love to be there (but when

it is warm).

Len: I also had my chemo infusion today. I was

there at 9 a.m. and didn't

get home until 6:30 p.m. I have a port a cath that

is used for all my blood

work and to administer the chemo. Why didn't they

give you a port? It is so

easy and without pain. The port is used to draw

blood to see if I can have

chemo, then for pre-meds (steroids, anti-nausea meds,

etc.), then to infuse

Avastin, then a 2 hour infusion of Oxaliplatin and

Leucovorin. Then, I am

hooked up to my 48 hour pump of 5FU. I go for

Acupuncture immediately after my

chemo and then a cancer massage at my house. I am

really trying to take care

of myself and the acupuncture helps. Is it too late

to get a port? How

many treatments do you have remaining? I think you

said 3 or so. I had chemo

number 9 of 12 today --- 3 to go!

I feel lousy and I am going off to sleep.

Take care.