Re: Re: Playing catch up-Fran & Matt

[Guest guest]

Fran:

I have been out of touch this week and missed your posts. I just noticed

that Matt has a pain in his jaw when he eats. Is he on FOLFOX? I am asking

because I have the same side effect and when I told my oncologist he said it

must be from the Oxaliplatin. It is a form of neuropathy. My oncologist said

it is a rare side effect. I had it even today (day 5 from my first chemo day)

when I was at the Farmer's Market and took a bite of a piece of fruit. The

people around me thought the fruit was bad when I grabbed the sides of my

face and made some kind of sound indicating I was in pain. I told them it was

a chemo side effect.

I am also like Matt in that the third day (when I am unhooked from the 48

hour pump of 5FU) is my worst day and also the following day. I am so sick

that I have a home health nurse come to my house now to unhook me. I used to

have to find someone to drive me the hour drive to Santa just to be

unhooked and I would go in crying because I was so sick. It is so much better

to

have someone come to the house. Ask Matt's doctor about this. My insurance

covers the cost.

[Guest guest]

My husband had that first bite problem throughout most of his chemo. It was

worse on chemo weeks, but he had it all the time. I wouldn't consider it rare

as I have seen it mentioned by many people on FOLFOX. All of his chemo buddies

who were taking the same treatment with him had it.

His worse day was the day after he finished the treatment (Thursday). Friday

wasn't much better and then he progressively got better till ready to start

again. He worked throughout his treatment except for Thursdays and Fridays of

chemo weeks. Sometimes on the Friday he could go in a little while if he had

something pressing.

MA

Re: Re: Playing catch up-Fran & Matt

Fran:

I have been out of touch this week and missed your posts. I just noticed

that Matt has a pain in his jaw when he eats. Is he on FOLFOX? I am asking

because I have the same side effect and when I told my oncologist he said it

must be from the Oxaliplatin. It is a form of neuropathy. My oncologist said

it is a rare side effect. I had it even today (day 5 from my first chemo

day)

when I was at the Farmer's Market and took a bite of a piece of fruit. The

people around me thought the fruit was bad when I grabbed the sides of my

face and made some kind of sound indicating I was in pain. I told them it

was

a chemo side effect.

I am also like Matt in that the third day (when I am unhooked from the 48

hour pump of 5FU) is my worst day and also the following day. I am so sick

that I have a home health nurse come to my house now to unhook me. I used to

have to find someone to drive me the hour drive to Santa just to be

unhooked and I would go in crying because I was so sick. It is so much

better to

have someone come to the house. Ask Matt's doctor about this. My insurance

covers the cost.

[Guest guest]

Oh and Fran

I have had that too, even now but not so bad. Is like that glands behind

ears and in front of my ear all getting together at one and ouch. Oh hurts

like a bugger. Was worse for the short period of time that I had swollen

glands.. Course now neither doc could find anything.To me it still feels

like glad in my neck is slightly swollen. But if docs say no.. Jolene

Re: Re: Playing catch up-Fran & Matt

Fran:

I have been out of touch this week and missed your posts. I just noticed

that Matt has a pain in his jaw when he eats. Is he on FOLFOX? I am

asking

because I have the same side effect and when I told my oncologist he said

it

must be from the Oxaliplatin. It is a form of neuropathy. My oncologist

said

it is a rare side effect. I had it even today (day 5 from my first chemo

day)

when I was at the Farmer's Market and took a bite of a piece of fruit. The

people around me thought the fruit was bad when I grabbed the sides of my

face and made some kind of sound indicating I was in pain. I told them it

was

a chemo side effect.

I am also like Matt in that the third day (when I am unhooked from the 48

hour pump of 5FU) is my worst day and also the following day. I am so sick

that I have a home health nurse come to my house now to unhook me. I used

to

have to find someone to drive me the hour drive to Santa just to be

unhooked and I would go in crying because I was so sick. It is so much

better to

have someone come to the house. Ask Matt's doctor about this. My

insurance

covers the cost.

[Guest guest]

Me, too, but it's gone now

Marty

On 12/4/2005 3:10:36 PM, colon_cancer_support wrote:

> Oh and Fran

>

> I have had that too, even now but not so bad. Is like that glands behind

> ears and in front of my ear all getting together at one and ouch. Oh

> hurts

> like a bugger. Was worse for the short period of time that I had

> swollen

> glands.. Course now neither doc could find anything.To me it still feels

> like glad in my neck is slightly swollen. But if docs say no.. Jolene

>

>

>

> -----Original Message-----

> From: colon_cancer_support

> [mailto:colon_cancer_support ] On Behalf Of

> brencolinmom@...

> Sent: Sunday, December 04, 2005 12:57 AM

> To: colon_cancer_support