Re: /Len

[Guest guest]

Hi guys

I had this same side-effect while on Folfox - didn't realize it was something

common. I would bite into something - starting from first day of hook-up and

would last about a week - and it would give me a tremendous shock in the jaws

and glands/taste buds. It happened the worst with of course, something cold -

and I couldn't eat or drink anything sweet at all which would produce this

effect. Lasted halfway to next treatment - go away then come back again. At

this point (4 months after end of chemo) I have some peripheral neuropathy -

(toes and fingers - feel like there is cotton wrapped around them) which seems

to be lasting - but the jaw/taste bud thing didn't last.

Take care,

Pat-

In COLD, COLD - Pittsburgh, PA. STEELER COUNTRY!!!!

brencolinmom@... wrote:

Hi Ingrid:

Thanks for the words of encouragement.

In a message dated 12/3/2005 5:30:05 P.M. Pacific Standard Time,

lowenco@... writes:

, Yes, there is a small, VERY small chance that the nerve

damage may be permanent. But not too many have gotten this. Please

don't start thinking that way. More then likely it will all resolve

with time. Ingrid

>

> Len:

> I know how you feel. Today, my neuropathy is in my jaws when I try

to bite

> into something. Also, my toes and fingers are numb. The

oncologist told me

> to count the days of this and if it doesn't recover before the

next

> treatment, they will not give me any more Oxaliplatin. He said

the side effects may

> be permanent.

>

>

>

> [Non-text portions of this message have been removed]