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In a message dated 11/3/2005 12:03:31 PM Pacific Standard Time,

luvmydane3@... writes:

Hi List,

I have been battling colon cancer since March of 2004. Here's my

story.....On March 23, 2004 I was involved in an head-on collision

with a jackknifed semi truck which was sitting in the middle of the

road. I don't have a lot of memory from that point on but did wake

up in ICU about two days later. While I was in the ICU the doctors

found that I was bleeding from the rectum so they did a colonoscopy

and confirmed that I had colon cancer. I was in such bad shape that

they couldn't do anything about it at that time. In June 2004 I went

in for the colon resection and followed up with six months of

chemotherapy - 4 weeks on with 2 weeks off with FU5 and leucovorian

(sp?). That ended in February 2005.

I went back for my check-up in late May and they found that the

cancer had spread to my liver. I went for surgery in July to have a

liver resection and the surgeon said he was sure he got it all and

there was no cancer found in the margins. He also did a sonogram on

the remaining part of the liver and found no cancer. My oncologist

didn't feel that I needed to follow up with chemo so that's where I'm

at right now.

I will go back in December for a CT scan and am hoping for the best

but am cautiously optimistic. I am having a hard time living with

the fear of the cancer recurring and would like to know how all of

you deal with it.

Many thanks and hope to become a regular on this list.

Sue

Sue:

I am shocked that you did not have chemo after the liver surgery. I have

never heard of not following up when it reappears. Have you had a second

opinion on that one?

[Guest guest]

Hi Sue, I go for my next bloodwork for CEA counts this coming

Thursday. I am quite nervous about it. But am told that this is

normal.

This morning when I took out the trash for the trash day I met the

lady who lives down a block walking her Basset Hound. She is a ten

year Ovarion (sp?) cancer survivor. She told me how she just had a

colonoscopy since she was having hard stools. Said her grandmother

died from colon cancer so she had convinced herself that she now has

colon cancer. She was clean thank God!!!! The point I am trying to

bring across is even after ten years this lady still has fears of it

coming back. We talked of this for a while. She said the fears are

the most difficult the first five years. But the fears are always

there. This is something that we as cancer survivors have to live

with. How we deal with it is beyond me at times. Pray to God. Put

your trust in God.

You have gone through so much from the accident to the cancer

surgery. You are a suvivor!!!!!! God has plans for you and is not

done with you. I feel that!!!!! Love, Ingrid

> > >

> > > Hi List,

> > >

> > > I have been battling colon cancer since March of 2004. Here's

my

> > > story.....On March 23, 2004 I was involved in an head-on

> collision

> > > with a jackknifed semi truck which was sitting in the middle of

> the

> > > road. I don't have a lot of memory from that point on but did

> wake

> > > up in ICU about two days later. While I was in the ICU the

> doctors

> > > found that I was bleeding from the rectum so they did a

> colonoscopy

> > > and confirmed that I had colon cancer. I was in such bad shape

> > that

> > > they couldn't do anything about it at that time. In June 2004

I

> > went

> > > in for the colon resection and followed up with six months of

> > > chemotherapy - 4 weeks on with 2 weeks off with FU5 and

> leucovorian

> > > (sp?). That ended in February 2005.

> > >

> > > I went back for my check-up in late May and they found that the

> > > cancer had spread to my liver. I went for surgery in July to

> have

> > a

> > > liver resection and the surgeon said he was sure he got it all

> and

> > > there was no cancer found in the margins. He also did a

sonogram

> > on

> > > the remaining part of the liver and found no cancer. My

> oncologist

> > > didn't feel that I needed to follow up with chemo so that's

where

> > I'm

> > > at right now.

> > >

> > > I will go back in December for a CT scan and am hoping for the

> best

> > > but am cautiously optimistic. I am having a hard time living

> with

> > > the fear of the cancer recurring and would like to know how all

> of

> > > you deal with it.

> > >

> > > Many thanks and hope to become a regular on this list.

> > >

> > > Sue

> > >

> >

>

[Guest guest]

Hi,

My name is Minna my nick name is Min. I lost my dad due to colon cancer

December 23, 1999 I miss him alot if you'd like to learn more about me my site

is www.angelfire.com/ma4/rockchick2583

Friends are like rainbows, because they brighten your life when you've been

through a storm.

Min

---------------------------------

Yahoo! Personals

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[Guest guest]

Good to hear from you Min. Sorry you lost your dad to cc. It is a wicked

disease. Did you get yourself checked out after he got sick? Best Wishes

Jolene

new here

Hi,

My name is Minna my nick name is Min. I lost my dad due to colon cancer

December 23, 1999 I miss him alot if you'd like to learn more about me my

site is www.angelfire.com/ma4/rockchick2583

Friends are like rainbows, because they brighten your life when you've been

through a storm.

Min

---------------------------------

Yahoo! Personals

Let fate take it's course directly to your email.

See who's waiting for you Yahoo! Personals

[Guest guest]

Dear Lynne, I have just read your story of the awful ordeal your

mother (and you) are having. I don't have any advice i am afraid but

just want you to know that you will both be in my thoughts and

prayers.

Fran

>

> Hello all, I am sorry this is so long but I really need some

> advice.I am new to this board so I'll start by my story or should

I

> say my mom's story. My mom was sick most of the summer with

fatigue

> and lots of bowel trouble. She never would go to the Dr, Until I

> just made her finally in July. He then done a colonostomy On the

29

> th of July and hospitalized her on the 1st of Aug for futher

> test.They then said she had stage 4 colon cancer but that it had

> moved to the bladder and vagina walls( since she has had a

> hysterectomy, she has no female organs there). Well then the race

> was on........ they done every test known to man and decided to

put

> in a port so they could give her pre surgery chemo and radation

for

> 6 weeks cause they couldnt remove it without trying to shrink it.

> and they also did a colostomy because her bowels were draining

into

> her urine, so that caused major infection. well, she did well with

> the port and colostomy and was scheduled to come home and the

night

> before she started running a real high fever and they tested and

> found she had major gallbladder problems as well so they had to

> remove it, she had 32 gallstones and a rotten bladder.Anyway she

got

> thru the 6 weeks of chemo and radation ok and battled this

infection

> as well while she was doing it . They tried all kinds of antibotic

> and nothing worked they found it( the infection) to be a infection

> called " candita krusei " nothing has taken it away so far and she

is

> still fighting major pain with this and the cancer to.well they

are

> trying to schedule surgery but the dr says heis having 4 different

> surgeons in on this operation cause it is so extensive ( he says

10

> to 12 hrs) and they have to get schedules together. But the

> infection is still (shes had it since july) there and they are

> wanting to clear it up some before they go in and " TRY " to get

> this . They are wanting to take out her Colon, Bladder, Vagina,and

> rectum IF that will get it all, he says if he gets in there and

cant

> get it all he will just sew her back up. He also says that there

is

> a big possibilty that she won't make it thru this thing.She is 73

> and I know this goes against her as well. I guess what I really

want

> to know is has anyone ever experienced any operation this major?

and

> if so what were the outcomes?Or has anyone developed this

infection?

> I am just grasping for straws now.I am her sole caregiver and its

> killing me to not help her and watch her hurt. I am so sorry this

is

> so long but I needed to get this out and hope to get some advice

> also...You all are in my prayers.....Lynne

>

[Guest guest]

Hi Min, I am so sorry you lost your dad. I hope you are feeling good.

I went to your site. You are amazing with all you have had to cope

with. Love, ingrid

>

> Hi,

> My name is Minna my nick name is Min. I lost my dad due to colon

cancer December 23, 1999 I miss him alot if you'd like to learn more

about me my site is www.angelfire.com/ma4/rockchick2583

>

>

> Friends are like rainbows, because they brighten your life when

you've been through a storm.

>

> Min

>

>

>

>

> ---------------------------------

> Yahoo! Personals

> Let fate take it's course directly to your email.

> See who's waiting for you Yahoo! Personals

>

>

[Guest guest]

Jolene,

After I had to get an emergency colostomy they did check and I'm fine, if

you're wondering why I needed a colostomy you can go to my site

www.angelfire.com/ma4/rockchick2583

Min

Jolene Ehret wrote:

Good to hear from you Min. Sorry you lost your dad to cc. It is a wicked

disease. Did you get yourself checked out after he got sick? Best Wishes

Jolene

new here

Hi,

My name is Minna my nick name is Min. I lost my dad due to colon cancer

December 23, 1999 I miss him alot if you'd like to learn more about me my

site is www.angelfire.com/ma4/rockchick2583

Friends are like rainbows, because they brighten your life when you've been

through a storm.

Min

---------------------------------

Yahoo! Personals

Let fate take it's course directly to your email.

See who's waiting for you Yahoo! Personals

[Guest guest]

Hi , Yes your Mom does sound the same as mine , But mom is

deadset on the surgery. She says its her only chance for " LIFE " so

were going with it I guess. Did your mom happen to get this

infection too? Thats been a very big downfall for Mom. I am so glad

your Mom's chemo is working for her. She sounds as tough as my mom

( God bless thier hearts). Thanks alot for in info and hang in

there...Lynne

>

> Lynne,

>

> From your post it sounds like the surgery is what they call a

pelvic

> exoneration. My mother is stage IV also and seems to be in the

same situation as your

> mom. Hers also broke through to the vaginal area and invaded the

bladder.

> We spoke to three doctors about this kind of surgery and they felt

that the

> survival rate for this type of surgery is very low, about 25%. My

mom decided

> not to have the surgery and to continue on maintenance chemo

indefinitely.

> Basically, this means she will have chemo until she has had enough

or it stops

> working. Its been a year and so far so good. She still has some

pain but we

> just take each day however we can get it. I wish you guys the

best of luck no

> matter which way you go, I hope your mom does good.

>

>

>

>

>

[Guest guest]

Lynne,

About the infection, no I don't believe she did. Right now she has something

going on but no one seems too concerned. They put a stent in her left kidney

because it was blocked by the tumor and she had a kidney infection, well she

has protein in her urine and most of the time her urine is very bloody. She

is on avastin, which the drug warnings say if you experience these symptoms you

should be off of it. Well, the dr thinks its just from the stent and its

normal, which I of course think is crap but my mom is going with his

opinion..lol. I hope your mom does great and it helps her. I had thought my

mom would go

for the surgery too but she changed her mind.