Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Sher i am really happy that whatever you is slow Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: peggyTo: Breathe-Support Date: Tuesday, June 9, 2009, 12:32 PM Gosh Patti... I'm just so sorry you have all these things to cope with! Most of the board deals with more than I do... I'm very lucky. I'm getting more and more anxious to get to the UWMC for a complete eval... all docs confirm PF but apparently, after 3 plus years, it's a very slow progressing strain. I'd like to know WHAT it is, not only for me but to share the info w/ others who may be like me and not have the eval at a training hospital. I seem to remember MB mentioning that NSIP is slow...but I may not be remembering info. correctly. Enjoy you day! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: peggy Mama Shertrust me i do understand. i am thankful that the doc allowed me to try decreasing the prednisone.. Now i know i can't be without it.. We do increase it if i have other symptoms going on. My osteopenia grew up to osteoporosis. My left eye has mild glaucoma.. and the other small issues.. i have a great eye doc who is viligent with looking after me.. So now i can rest assure and with the LORD it is going to be okay. One day at a time... It is sad that we all have to go through these different things. But prednisone is something i realize i can't be without so just take a deep breath and chug along.. all is well.. I am finding out that somethings going on is the scleroderma. . So knowledge is good.. thanks to all that help with this, as i find the docs dont have all the answers. have a great day.. GOD bless. patti, 7'06 ipf, 2'07 Pulm.HTN, raynaud's, scleroderma, etc.. > >> > I've been on Pred. for 7 mos and it helped me a great deal. However, > > my MD did mention that I was the exception rather then the rule. The > > side affects are pretty rough, swelling, abdominal cramps, weight gain > > etc. So, I would check into it first before refusing it. I had > > experienced some of the side affects, not all but it is tough to take.> > > > Jim> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Patti... the font I'm using is Lucida Handwriting. I could probably use a 12 pt instead of 14 but this is easier to read. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: peggy> > > > > > Mama Sher> trust me i do understand. i am thankful that the doc allowed me to try decreasing the prednisone..Now i know i can't be without it.. We do increase it if i have other symptoms going on. My osteopenia grew up to osteoporosis. My left eye has mild glaucoma.. and the other small issues.. i have a great eye doc who is viligent with looking after me.. So now i can rest assure and with the LORD it is going to be okay. One day at a time... It is sad that we all have to go through these different things. But prednisone is something i realize i can't be without so just take a deep breath and chug along.. all is well.. I am finding out that somethings going on is the scleroderma.. So knowledge is good.. thanks to all that help with this, as i find the docs dont have all the answers. have a great day.. GOD bless. patti, 7'06 ipf, 2'07 Pulm.HTN, raynaud's, scleroderma, etc.. > > > > >> > > I've been on Pred. for 7 mos and it helped me a great deal. However, > > > my MD did mention that I was the exception rather then the rule. The > > > side affects are pretty rough, swelling, abdominal cramps, weight gain > > > etc. So, I would check into it first before refusing it. I had > > > experienced some of the side affects, not all but it is tough to take.> > > > > > Jim> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Thanks Pink...I'm glad it's slow moving too of course. I used this font for a couple of years and then went to green for about a year...I like this one better. Later. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: peggy Mama Shertrust me i do understand. i am thankful that the doc allowed me to try decreasing the prednisone.. Now i know i can't be without it.. We do increase it if i have other symptoms going on. My osteopenia grew up to osteoporosis. My left eye has mild glaucoma.. and the other small issues.. i have a great eye doc who is viligent with looking after me.. So now i can rest assure and with the LORD it is going to be okay. One day at a time... It is sad that we all have to go through these different things. But prednisone is something i realize i can't be without so just take a deep breath and chug along.. all is well.. I am finding out that somethings going on is the scleroderma. . So knowledge is good.. thanks to all that help with this, as i find the docs dont have all the answers. have a great day.. GOD bless. patti, 7'06 ipf, 2'07 Pulm.HTN, raynaud's, scleroderma, etc.. > >> > I've been on Pred. for 7 mos and it helped me a great deal. However, > > my MD did mention that I was the exception rather then the rule. The > > side affects are pretty rough, swelling, abdominal cramps, weight gain > > etc. So, I would check into it first before refusing it. I had > > experienced some of the side affects, not all but it is tough to take.> > > > Jim> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 Sher I like the font and the 14. Cool.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Patti... the font I'm using is Lucida Handwriting. I could probably use a 12 pt instead of 14 but this is easier to read. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: peggy> > > > > > Mama Sher> trust me i do understand. i am thankful that the doc allowed me to try decreasing the prednisone..Now i know i can't be without it.. We do increase it if i have other symptoms going on. My osteopenia grew up to osteoporosis. My left eye has mild glaucoma.. and the other small issues.. i have a great eye doc who is viligent with looking after me.. So now i can rest assure and with the LORD it is going to be okay. One day at a time... It is sad that we all have to go through these different things. But prednisone is something i realize i can't be without so just take a deep breath and chug along.. all is well.. I am finding out that somethings going on is the scleroderma.. So knowledge is good.. thanks to all that help with this, as i find the docs dont have all the answers. have a great day.. GOD bless. patti, 7'06 ipf, 2'07 Pulm.HTN, raynaud's, scleroderma, etc.. > > > > >> > > I've been on Pred. for 7 mos and it helped me a great deal. However, > > > my MD did mention that I was the exception rather then the rule. The > > > side affects are pretty rough, swelling, abdominal cramps, weight gain > > > etc. So, I would check into it first before refusing it. I had > > > experienced some of the side affects, not all but it is tough to take.> > > > > > Jim> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Peggy Do you have a last name? Is it Dick Nielson? > > wife of Dick IPF patient posted on the care givers board that > he got a double transplant the 5th of July... so far so good. > I think I remember just a post or two from them. > > > > Love and Prayers, Peggy > IPF 2004, Florida > > Worry looks around, > Sorry looks back, > Faith looks up. > > >  > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 I just went and looked.. It was Monika and Dick Hill. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Peggy Do you have a last name? Is it Dick Nielson? > > wife of Dick IPF patient posted on the care givers board that > he got a double transplant the 5th of July... so far so good. > I think I remember just a post or two from them. > > > > Love and Prayers, Peggy > IPF 2004, Florida > > Worry looks around, > Sorry looks back, > Faith looks up. > > >  > Quote Link to comment Share on other sites More sharing options...
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