Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Hi nne. I was dx with IPF in 05 and have not missed a days work because of it. Sure some days are harder than others but thats when you say it is not going to get the better of you today, just look out and see the beautiful sunrise,take time to see the colour of the flowers,smell them if you can and walk on the grass. It is little things like this that make each day so special. I look forward to each day just to see how much each flower has grown and how long the grass is. I do not post much as I am a newbie to the group but I read as much as I can and your story touched my heart. Stay strong. Merf 61 dx 05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 My thanks to all who wrote to me-I am so glad I joined this group. Someone asked me where I live- I am in East Brunswick New Jersey which is located half way between Philadelphia and New York City. I am feeling so much stronger since reading your messages. I will try to be more optimistic. Thanks again everyone! -- In Breathe-Support , " murphy.patrick10 " wrote: > > Hi nne. I was dx with IPF in 05 and have not missed a days work because of it. Sure some days are harder than others but thats when you say it is not going to get the better of you today, just look out and see the beautiful sunrise,take time to see the colour of the flowers,smell them if you can and walk on the grass. It is little things like this that make each day so special. I look forward to each day just to see how much each flower has grown and how long the grass is. I do not post much as I am a newbie to the group but I read as much as I can and your story touched my heart. Stay strong. > Merf 61 dx 05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 nne, I was diagnosed five years ago. This disease is not for wimps. We fight it plus the stress of family and friends saying "But you look so good or you don't look sick." A lot of us have gone through that type stress. All I can tell you is keep on keepin on.I have advanced this past year so unbelievably fast some days I just wonder what's next. I have known some wonderful people from this Air Family that give me the strength to go on every day. I pray a lot and keep up with the posts and would love to give some good advise to you but I think I have posted so many things over the years I don't even know anymore how to help. I HATE this crappy disease. Just know that we are all here and have been where you are and we are still here.You will find this is the ONLY place where everyone "GETS IT". This is just a membership thing. Take heart and live life to its fullest. Talk about it to your family every chance you get until you see they understand.God Bless you. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Hi nne. I was dx with IPF in 05 and have not missed a days work because of it. Sure some days are harder than others but thats when you say it is not going to get the better of you today, just look out and see the beautiful sunrise,take time to see the colour of the flowers,smell them if you can and walk on the grass. It is little things like this that make each day so special. I look forward to each day just to see how much each flower has grown and how long the grass is. I do not post much as I am a newbie to the group but I read as much as I can and your story touched my heart. Stay strong. Merf 61 dx 05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2009 Report Share Posted July 12, 2009 This is a comment from one of the members consoling another new member on the breathe- support web site. This is how all of us feel that have this "crappy" disease. It is so hard to comprehend until you actually feel the affects of it. These are comments usually given to a "newbee" as we call it. I really enjoy reading comments and especially from newly diagnosed people who just were diagnosed with IPF. I believe anyone having the disease can relate. In a year and a half I have been reading and posting on this site I have seen this or similar comment hundreds of times.I hope in some way exposure to it can be accomplished throughout the world so people afflicted will not be scrutinized as to how it strips you of dignity, and ability to do certain things. It is a real battle. So many people look at a person with it and can in no way understand it. If you say I have cancer , everyone can have a better understanding. Not asking for anything just try to understand what it does and how it makes us feel. Joe   JOE & JOANIE LAMENSKIE IPF JAN. 2008 -- Re: nne recently diagnosed nne, I was diagnosed five years ago. This disease is not for wimps. We fight it plus the stress of family and friends saying "But you look so good or you don't look sick." A lot of us have gone through that type stress. All I can tell you is keep on keepin on. I have advanced this past year so unbelievably fast some days I just wonder what's next. I have known some wonderful people from this Air Family that give me the strength to go on every day. I pray a lot and keep up with the posts and would love to give some good advise to you but I think I have posted so many things over the years I don't even know anymore how to help. I HATE this crappy disease. Just know that we are all here and have been where you are and we are still here. You will find this is the ONLY place where everyone "GETS IT". This is just a membership thing. Take heart and live life to its fullest. Talk about it to your family every chance you get until you see they understand. God Bless you. Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Hi nne. I was dx with IPF in 05 and have not missed a days work because of it. Sure some days are harder than others but thats when you say it is not going to get the better of you today, just look out and see the beautiful sunrise,take time to see the colour of the flowers,smell them if you can and walk on the grass. It is little things like this that make each day so special. I look forward to each day just to see how much each flower has grown and how long the grass is. I do not post much as I am a newbie to the group but I read as much as I can and your story touched my heart. Stay strong.Merf 61 dx 05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2009 Report Share Posted July 12, 2009 Merf. I drove right past you today on my way home from Westfield, NJ My cousin's daughter got engaged and we went to the party last night and stayed over. I have family in New Brunswick too...right near a park on the Rariton river Hey, you are close enough to Philly to be in our Philadelphia Lunch plans... We're still trying for the 25th of July ( Sunday) We'd love to have you! Spouses invited.! Send me an email at the address listed above the message. Hope to meet you soon. Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower teddyspenguins wrote: My thanks to all who wrote to me-I am so glad I joined this group. Someone asked me where I live- I am in East Brunswick New Jersey which is located half way between Philadelphia and New York City. I am feeling so much stronger since reading your messages. I will try to be more optimistic. Thanks again everyone! -- In Breathe-Support , "murphy.patrick10" wrote: > > Hi nne. I was dx with IPF in 05 and have not missed a days work because of it. Sure some days are harder than others but thats when you say it is not going to get the better of you today, just look out and see the beautiful sunrise,take time to see the colour of the flowers,smell them if you can and walk on the grass. It is little things like this that make each day so special. I look forward to each day just to see how much each flower has grown and how long the grass is. I do not post much as I am a newbie to the group but I read as much as I can and your story touched my heart. Stay strong. > Merf 61 dx 05 > Quote Link to comment Share on other sites More sharing options...
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