Re: [colorectalcancer] Marty,

[Guest guest]

, I too had those bad reactions with the cold. By my 10th

treatment they started reducing the dosage of the Oxy, Has your

doctor talked of reducing it??? It did help me tremendously. Just a

thought. Love, Ingrid

>

>

> Marty:

> At what point in treatment did the numbness get bad? I am having

it now

> (#9) and the worst part seems to be the sensation when I touch

something cold.

> Do you have that too? When is it too bad to continue? I need to

decide

> whether to continue with the Oxy.

>

> In a message dated 12/5/2005 3:04:16 AM Pacific Standard Time,

> Grandmommyandme@a... writes:

>

>

>

> In a message dated 12/4/2005 11:29:39 PM Eastern Standard Time,

> grogclan@z... writes:

>

> The numbness in the legs and feet is making it VERY hard, but i

am still

> trying to get in 2-3 times per week 3.6 miles of shuffling.

>

> Colonoscopy today....soon will be doing a different kind of

> running...eccchhhhh!!!!

>

> Marty

>

>

>

> BEst of luck, today, Marty!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

> [Non-text portions of this message have been removed]

>

>

>

>

[Guest guest]

Hi Marty and ,

I am not going to say that either of you are wrong but

my experience has been thus.

After the first infusion my cold pricklies went

away in a day.

Then with each treatment they lasted longer until

they almost last the entire three weeks.

I use no crack cream on my hands about 10 times a

day and that really helps my hands. I have to wear

gloves to touch anything less than 67 degrees, though,

so I keep gloves in my pocket.

I found that wearing two thick pair of socks helped

the feet a little. I have one big pair of wool socks

that I wear when they are clean. They last a couple

of days since they are on the outside. I'm on

infusion number 6 and when the onc saw my feet (a real

mess) she reduced my xeloda by one eighth a day. I

agree with you that I thought it was the oxaliplatin

but she didn't. Cream may help on the foot bottoms

but I don't know.

Good luck. I wish there was a good onc on this site

to comment on these things.

Len

--- brencolinmom@... wrote:

---------------------------------

Marty:

At what point in treatment did the numbness get bad?

I am having it now

(#9) and the worst part seems to be the sensation when

I touch something cold.

Do you have that too? When is it too bad to continue?

I need to decide

whether to continue with the Oxy.

In a message dated 12/5/2005 3:04:16 AM Pacific

Standard Time,

Grandmommyandme@... writes:

In a message dated 12/4/2005 11:29:39 PM Eastern

Standard Time,

grogclan@... writes:

The numbness in the legs and feet is making it VERY

hard, but i am still

trying to get in 2-3 times per week 3.6 miles of

shuffling.

Colonoscopy today....soon will be doing a different

kind of

running...eccchhhhh!!!!

Marty

BEst of luck, today, Marty!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Non-text portions of this message have been removed]

[Guest guest]

,

I had the usual (same as you) symptoms from day one of treatment, in fact, the

cold sensitivity and the closing up of my throat started before I even left the

oncology unit..

It did not get REALLY bad, I mean almost totally numb hands and feet until

several weeks AFTER the treatment was completed (all 12 cycles).

The docs never suggested lowering the oxaly dose, even though the nurses did. I

figured, if I was going to go through this Hell, I wanted all the juice they

could give me!!!

Marty

All the best,

Marty

" P.S. Don't miss my sig file below -- the system really is

amazing!!! I built the whole site by myself!!!

Want to build a website that works?

Even I was able to do it with THIS system!!!

http://www.sitesell.com/24.html

Israel News Radio - http://www.Israelnewsradio.net

Audio Blog:

http://www.israelnewsradio.net/the-marty-roberts-show.html

Podcast: http://www.israelnewsradio.net/podcast.html

Re: Re: [colorectalcancer] Marty,

Marty:

At what point in treatment did the numbness get bad? I am having it now

(#9) and the worst part seems to be the sensation when I touch something

cold.

Do you have that too? When is it too bad to continue? I need to decide

whether to continue with the Oxy.

In a message dated 12/5/2005 3:04:16 AM Pacific Standard Time,

Grandmommyandme@... writes:

In a message dated 12/4/2005 11:29:39 PM Eastern Standard Time,

grogclan@... writes:

The numbness in the legs and feet is making it VERY hard, but i am still

trying to get in 2-3 times per week 3.6 miles of shuffling.

Colonoscopy today....soon will be doing a different kind of

running...eccchhhhh!!!!

Marty

BEst of luck, today, Marty!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Non-text portions of this message have been removed]

[Guest guest]

The neuropathy (cold, tingles, numbness) and the hand-and-feet syndrome

(cracking, etc on soles of feet and palms) are two different things, both

attributable to oxalyplatin. That is what all the literature says.

Marty

All the best,

Marty

" P.S. Don't miss my sig file below -- the system really is

amazing!!! I built the whole site by myself!!!

Want to build a website that works?

Even I was able to do it with THIS system!!!

http://www.sitesell.com/24.html

Israel News Radio - http://www.Israelnewsradio.net

Audio Blog:

http://www.israelnewsradio.net/the-marty-roberts-show.html

Podcast: http://www.israelnewsradio.net/podcast.html

Re: Re: [colorectalcancer] Marty,

Hi Marty and ,

I am not going to say that either of you are wrong but

my experience has been thus.

After the first infusion my cold pricklies went

away in a day.

Then with each treatment they lasted longer until

they almost last the entire three weeks.

I use no crack cream on my hands about 10 times a

day and that really helps my hands. I have to wear

gloves to touch anything less than 67 degrees, though,

so I keep gloves in my pocket.

I found that wearing two thick pair of socks helped

the feet a little. I have one big pair of wool socks

that I wear when they are clean. They last a couple

of days since they are on the outside. I'm on

infusion number 6 and when the onc saw my feet (a real

mess) she reduced my xeloda by one eighth a day. I

agree with you that I thought it was the oxaliplatin

but she didn't. Cream may help on the foot bottoms

but I don't know.

Good luck. I wish there was a good onc on this site

to comment on these things.

Len

--- brencolinmom@... wrote:

---------------------------------

Marty:

At what point in treatment did the numbness get bad?

I am having it now

(#9) and the worst part seems to be the sensation when

I touch something cold.

Do you have that too? When is it too bad to continue?

I need to decide

whether to continue with the Oxy.

In a message dated 12/5/2005 3:04:16 AM Pacific

Standard Time,

Grandmommyandme@... writes:

In a message dated 12/4/2005 11:29:39 PM Eastern

Standard Time,

grogclan@... writes:

The numbness in the legs and feet is making it VERY

hard, but i am still

trying to get in 2-3 times per week 3.6 miles of

shuffling.

Colonoscopy today....soon will be doing a different

kind of

running...eccchhhhh!!!!

Marty

BEst of luck, today, Marty!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Non-text portions of this message have been removed]

[Guest guest]

According to the info I got with the Xeloda, it's the Xeloda that causes hand

and foot syndrome and oxaliplatin causes the neuropathy. Either way, they both

suck...lol

Marty and Ellen Grogin wrote:

The neuropathy (cold, tingles, numbness) and the hand-and-feet syndrome

(cracking, etc on soles of feet and palms) are two different things, both

attributable to oxalyplatin. That is what all the literature says.

Marty

All the best,

Marty

" P.S. Don't miss my sig file below -- the system really is

amazing!!! I built the whole site by myself!!!

Want to build a website that works?

Even I was able to do it with THIS system!!!

http://www.sitesell.com/24.html

Israel News Radio - http://www.Israelnewsradio.net

Audio Blog:

http://www.israelnewsradio.net/the-marty-roberts-show.html

Podcast: http://www.israelnewsradio.net/podcast.html

Re: Re: [colorectalcancer] Marty,

Hi Marty and ,

I am not going to say that either of you are wrong but

my experience has been thus.

After the first infusion my cold pricklies went

away in a day.

Then with each treatment they lasted longer until

they almost last the entire three weeks.

I use no crack cream on my hands about 10 times a

day and that really helps my hands. I have to wear

gloves to touch anything less than 67 degrees, though,

so I keep gloves in my pocket.

I found that wearing two thick pair of socks helped

the feet a little. I have one big pair of wool socks

that I wear when they are clean. They last a couple

of days since they are on the outside. I'm on

infusion number 6 and when the onc saw my feet (a real

mess) she reduced my xeloda by one eighth a day. I

agree with you that I thought it was the oxaliplatin

but she didn't. Cream may help on the foot bottoms

but I don't know.

Good luck. I wish there was a good onc on this site

to comment on these things.

Len

--- brencolinmom@... wrote:

---------------------------------

Marty:

At what point in treatment did the numbness get bad?

I am having it now

(#9) and the worst part seems to be the sensation when

I touch something cold.

Do you have that too? When is it too bad to continue?

I need to decide

whether to continue with the Oxy.

In a message dated 12/5/2005 3:04:16 AM Pacific

Standard Time,

Grandmommyandme@... writes:

In a message dated 12/4/2005 11:29:39 PM Eastern

Standard Time,

grogclan@... writes:

The numbness in the legs and feet is making it VERY

hard, but i am still

trying to get in 2-3 times per week 3.6 miles of

shuffling.

Colonoscopy today....soon will be doing a different

kind of

running...eccchhhhh!!!!

Marty

BEst of luck, today, Marty!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Non-text portions of this message have been removed]