Re: Better Breathers Club of Greater Richmond

[Guest guest]

Bernadette

I must issue one warning when we talk about Better Breathers. While some

of their groups may be knowledgeable and helpful with PF, many are

filled with only COPD and Asthma patients and facilitators only

knowledgeable about those diseases. If so, you need to be very careful

regarding any information you receive or anything you're told as there

are significant difference between COPD and PF. Advice given for one

could be quite bad for the other, even life threatening. Not saying that

sharing some of the general issues might not be helpful, just saying be

very careful in both giving and receiving advice and information.

>

> Here is a support group offering education and emotional to improve

quality for those with lung disease, their families and friends.

>

> Date: second monday of every month

Questions about the meeting?

> Time: 1:30-3pm

call the facilitators

> Location: Bosher Auditorium, Chippenham Hospital

:

> 7101 Jahnke Rd

Glover:

> Richmond,Va 23225

You can also reach your local

>

American Lung Association

>

at

> JOIN US

> FREE valet Parking-Refreshments provided

> New topic and speaker each month

>

> Bernadette Sneed

>

[Guest guest]

You are correct about this but in the month of Aug I invited Dr moses to speak

about Pulmonary Fibrosis.

He also was the transplant Dr. for the VA Hospital and MCV when the program was

open and I worked very closely with him and fellow pulmonary docters with these

patients

He also on different boards addressing all patients concerns and addressing

thier needs with dme companies regarding oxygen.

so I thought maybe if anyone was in the nieghborhood they could attend and ask

him any questions. Myself and 2 others have pulmonary fibrosis in this group and

one has had a transplant and he is one of the facilatators.

Just FYI...thanks

> >

> > Here is a support group offering education and emotional to improve

> quality for those with lung disease, their families and friends.

> >

> > Date: second monday of every month

> Questions about the meeting?

> > Time: 1:30-3pm

> call the facilitators

> > Location: Bosher Auditorium, Chippenham Hospital

> :

> > 7101 Jahnke Rd

> Glover:

> > Richmond,Va 23225

> You can also reach your local

> >

> American Lung Association

> >

> at

> > JOIN US

> > FREE valet Parking-Refreshments provided

> > New topic and speaker each month

> >

> > Bernadette Sneed

> >

>

[Guest guest]

Bernadette

That is great. Just cautioning people to be careful in groups, talking

to individuals, or even in some doctors offices and rehab facilities. I

always warn people with COPD (and PF) when they come here that much of

what we say or do, they must not copy.

> > >

> > > Here is a support group offering education and emotional to

improve

> > quality for those with lung disease, their families and friends.

> > >

> > > Date: second monday of every month

> > Questions about the meeting?

> > > Time: 1:30-3pm

> > call the facilitators

> > > Location: Bosher Auditorium, Chippenham Hospital

> > :

> > > 7101 Jahnke Rd

> > Glover:

> > > Richmond,Va 23225

> > You can also reach your local

> > >

> > American Lung Association

> > >

> > at

> > > JOIN US

> > > FREE valet Parking-Refreshments provided

> > > New topic and speaker each month

> > >

> > > Bernadette Sneed

> > >

> >

>