Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 Hi Geeta & Sher, I'm linking arms too. We'll probably wind up with quite a chain.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. We'll link arms Geeta and keep on keepin' on! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! recently diagnosed with ILD> > > > > > > > > > > > > > > > > > I just joined this site. I am having VAT biopsy 7/22. I work full time and was wondering if I am diagnosed with IPF can I still work. It's office work, very private cubicle, little talking, little walking. I love my job and really want to keep working. Anyone out there able to do this? Also, I am unable to talk with family husband included about what I'm going thru. My husband doesn't want to until after the biopsy confirms diagnosis. I have friends I reached out to and my kids have been helping around house (24,21,17- so they can do a lot). I have SO MANY questions, but I will just start with the ability to work and how to deal with husband in denial. Thanks for being there!> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2009 Report Share Posted July 14, 2009 -Peggy,Sher Yeah , lets span the seas girls!! Geeta -- In Breathe-Support , Peggy wrote: > > Hi Geeta & Sher, I'm linking arms too. We'll probably wind up with > quite a chain.. > > > Love and Prayers, Peggy > IPF 2004, Florida > > Worry looks around, > Sorry looks back, > Faith looks up. > > >  > > > > > > > We'll link arms Geeta and keep on keepin' on! > MamaSher; 70, IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > recently diagnosed with ILD > > > > > > > > > > > > > > > > > > > > > > > > I just joined this site. I am having VAT biopsy 7/22. I work > full time and was wondering if I am diagnosed with IPF can I still > work. It's office work, very private cubicle, little talking, little > walking. I love my job and really want to keep working. Anyone out > there able to do this? Also, I am unable to talk with family husband > included about what I'm going thru. My husband doesn't want to until > after the biopsy confirms diagnosis. I have friends I reached out to > and my kids have been helping around house (24,21,17- so they can do > a lot). I have SO MANY questions, but I will just start with the > ability to work and how to deal with husband in denial. Thanks for > being there! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2009 Report Share Posted July 14, 2009 I'm linking up out in the wild wild west (ok Phoenix Arizona) but hey our dippy gov just past a law we can carry guns in bars, sounds like the wild wild west to me! Dyane Phoenix IPF 02 > > > > > > > > > > Hi teddyspenguins, > > > > > > > > > > What's your name? Mine is Beth and I am the moderator of > > this group. I am 50 years old (as of next Wednesday) and I was > > diagnosed with an ILD (interstitial lung disease) 3 years ago. I'm > > glad that you have joined the group (but sorry you had reason to) and > > I hope you find some of the support that you are looking for. > > > > > > > > > > As to your question about working... that really depends on > > you. If you have the energy and the desire to keep working there is > > no reason for you to stop. From the way you describe your job it > > sounds like you could handle without difficulty. I don't know whether > > or not the doctors will determine that you need oxygen but even if > > you do it's still possible to work. Leanne Storch is the Executive > > Director of the Pulmonary Fibrosis Foundation. She is also a patient > > with an ILD. She uses oxygen at the office and shows no signs of > > wanting to stop working. So it's definitely possible. > > > > > > > > > > We have all dealt with family members and friends in denial. > > This is a huge adjustment for our loved ones to make. I was > > diagnosed 3 years ago and my brothers still don't get what's > > happening to me. They choose to igrore it for the most part. Will he > > read information about this subject? There is a handbook on the group > > homepage that can be downloaded and printed. Here's the link: > > > > > > > > > > http://f1.grp. yahoofs.com/ v1/EMVYSigEjFVFM u6z7WBuAkT7iWfE6 > > WZwwLrnByqJ- ax5356xq88l2HZEb bWYbNGNva1fNbymv 2pA-kU9pldsFQ/ > > patient.pdf > > > > > > > > > > It's going to take time for him to grasp this. As frightening > > as this is for us, it's scary for them also. It's easier and more > > comfortable sometimes for them to just pretend it's not happening. > > Since it's happening in our bodies we don't have that luxury. Others > > who are married will have better advice than me (I'm divorced). I > > would just keep bringing it up, leaving information around for him to > > read etc. > > > > > > > > > > Again, welcome to the board. I'm sorry you had reason to look > > for us but since you did I'm glad you found us. Ask whatever > > questions occur to you. We've all had questions and continue to and > > we're here to help each other. > > > > > > > > > > > > > > > Beth > > > > > Moderator > > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > From: teddyspenguins <teddyspenguins@ ...> > > > > > To: Breathe-Support@ yahoogroups. com > > > > > Sent: Saturday, July 11, 2009 12:59:36 PM > > > > > Subject: recently diagnosed with ILD > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I just joined this site. I am having VAT biopsy 7/22. I work > > full time and was wondering if I am diagnosed with IPF can I still > > work. It's office work, very private cubicle, little talking, little > > walking. I love my job and really want to keep working. Anyone out > > there able to do this? Also, I am unable to talk with family husband > > included about what I'm going thru. My husband doesn't want to until > > after the biopsy confirms diagnosis. I have friends I reached out to > > and my kids have been helping around house (24,21,17- so they can do > > a lot). I have SO MANY questions, but I will just start with the > > ability to work and how to deal with husband in denial. Thanks for > > being there! > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2009 Report Share Posted July 14, 2009 I'll bet'cha we can Geeta! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! recently diagnosed with ILD> > > >> > > >> > > >> > > >> > > >> > > > I just joined this site. I am having VAT biopsy 7/22. I work > full time and was wondering if I am diagnosed with IPF can I still > work. It's office work, very private cubicle, little talking, little > walking. I love my job and really want to keep working. Anyone out > there able to do this? Also, I am unable to talk with family husband > included about what I'm going thru. My husband doesn't want to until > after the biopsy confirms diagnosis. I have friends I reached out to > and my kids have been helping around house (24,21,17- so they can do > a lot). I have SO MANY questions, but I will just start with the > ability to work and how to deal with husband in denial. Thanks for > being there!> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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