Re: Transplant Evaluation!

[Guest guest]

Jan, I know your glad that is all over for a little while. Hope the rest of the process goes as quickly. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. I have just completed (I think) testing for transplant eligibility...it was very interesting and intense! Due to my insurance we have to go to Dallas for anything related to Transplant. We are patients of the Heart and Lung Transplant department at UT Southwest. I can't say enough about every single employee at the hospital and every specialist's office that we have had to visit. They are all very concerned about your comfort, that you do not have to wait for your appointment and that you always have someone right there to help you find whatever you may need ! Even the doctors take their time and visit with you until all your questions are answered. We are very impressed. They are one of the Centers of Excellence, and we can sure see how they got there! Hopefully, my case will be presented to the Committee on Friday of this week...if not then the next week. It has been fun...interesting and the source of greater fatigue, just keeping up with the schedule...lol... I hope you all have a great Wednesday today!

[Guest guest]

Jan,

Congrats - you must be glad this portion is complete. How long is the process? This is going to be my next step after I see the doctor on 8/20.

I didn't realize your insurance would choose the facility that you have to go to. Is that because there is not a transplant hospital near you?

I will keep you in my prayers for approval by the Committee.

Dorothy, Fayetteville, GA

UIP 7/05

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of JanSent: Wednesday, July 15, 2009 11:29 AMTo: Breathe-Support Subject: Transplant Evaluation!

I have just completed (I think) testing for transplant eligibility...it was very interesting and intense!Due to my insurance we have to go to Dallas for anything related to Transplant. We are patients of the Heart and Lung Transplant department at UT Southwest. I can't say enough about every single employee at the hospital and every specialist's office that we have had to visit. They are all very concerned about your comfort, that you do not have to wait for your appointment and that you always have someone right there to help you find whatever you may need ! Even the doctors take their time and visit with you until all your questions are answered. We are very impressed. They are one of the Centers of Excellence, and we can sure see how they got there!Hopefully, my case will be presented to the Committee on Friday of this week...if not then the next week. It has been fun...interesting and the source of greater fatigue, just keeping up with the schedule...lol...I hope you all have a great Wednesday today!

[Guest guest]

Dorothy

The insurances choose for different reasons. Sometimes its because of

their hospital contracts and, when so, thats troublesome as you may not

be able to choose the best or closest. In Jan's case, if I remember

correctly, its a choice based on quality. Methodist Hospital in Houston

had a period during which they considered them not to meet the standard.

I do believe though that they have recovered or are on the way to

recovery.

Jan

Is there a chance down the road, you'll switch to Houston? I see they

are doing far more transplants than UTSW and while their success rate is

lower they are transplanting a much higher percentage of those waiting.

>

> Jan,

> Congrats - you must be glad this portion is complete. How long is the

> process? This is going to be my next step after I see the doctor on

8/20.

>

> I didn't realize your insurance would choose the facility that you

have to

> go to. Is that because there is not a transplant hospital near you?

>

> I will keep you in my prayers for approval by the Committee.

> Dorothy, Fayetteville, GA

> UIP 7/05

>

> _____

>

> From: Breathe-Support

> [mailto:Breathe-Support ] On Behalf Of Jan

> Sent: Wednesday, July 15, 2009 11:29 AM

> To: Breathe-Support

> Subject: Transplant Evaluation!

>

>

>

>

>

> I have just completed (I think) testing for transplant

eligibility...it was

> very interesting and intense!

>

> Due to my insurance we have to go to Dallas for anything related to

> Transplant. We are patients of the Heart and Lung Transplant

department at

> UT Southwest. I can't say enough about every single employee at the

hospital

> and every specialist's office that we have had to visit. They are all

very

> concerned about your comfort, that you do not have to wait for your

> appointment and that you always have someone right there to help you

find

> whatever you may need ! Even the doctors take their time and visit

with you

> until all your questions are answered. We are very impressed. They are

one

> of the Centers of Excellence, and we can sure see how they got there!

>

> Hopefully, my case will be presented to the Committee on Friday of

this

> week...if not then the next week. It has been fun...interesting and

the

> source of greater fatigue, just keeping up with the schedule...lol...

>

> I hope you all have a great Wednesday today!

>

[Guest guest]

Jan, I can not wait to hear that you are breathing like a 20 year-old and running hither and thither. You are special!

JerryWho believes that hard times help us appreciate the good times even more.

Subject: Transplant Evaluation!To: Breathe-Support Date: Wednesday, July 15, 2009, 3:28 PM

I have just completed (I think) testing for transplant eligibility. ..it was very interesting and intense!Due to my insurance we have to go to Dallas for anything related to Transplant. We are patients of the Heart and Lung Transplant department at UT Southwest. I can't say enough about every single employee at the hospital and every specialist's office that we have had to visit. They are all very concerned about your comfort, that you do not have to wait for your appointment and that you always have someone right there to help you find whatever you may need ! Even the doctors take their time and visit with you until all your questions are answered. We are very impressed. They are one of the Centers of Excellence, and we can sure see how they got there!Hopefully, my case will be presented to the Committee on Friday of this week...if not then the next week. It has been fun...interesting and the source of greater fatigue, just keeping

up with the schedule...lol. ..I hope you all have a great Wednesday today!

[Guest guest]

Jan

glad the eval went well

hope the results are what you want to hear

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Transplant Evaluation!To: Breathe-Support Date: Wednesday, July 15, 2009, 11:28 AM

I have just completed (I think) testing for transplant eligibility. ..it was very interesting and intense!Due to my insurance we have to go to Dallas for anything related to Transplant. We are patients of the Heart and Lung Transplant department at UT Southwest. I can't say enough about every single employee at the hospital and every specialist's office that we have had to visit. They are all very concerned about your comfort, that you do not have to wait for your appointment and that you always have someone right there to help you find whatever you may need ! Even the doctors take their time and visit with you until all your questions are answered. We are very impressed. They are one of the Centers of Excellence, and we can sure see how they got there!Hopefully, my case will be presented to the Committee on Friday of this week...if not then the next week. It has been fun...interesting and the source of greater fatigue, just keeping

up with the schedule...lol. ..I hope you all have a great Wednesday today!

[Guest guest]

dorothy

the transplant eval process at U of Penn is 3 days of outpatient testing and meetings

i have learned that there are other places that do the evaluation as an inpatient

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: RE: Transplant Evaluation!To: Breathe-Support Date: Wednesday, July 15, 2009, 12:07 PM

Jan,

Congrats - you must be glad this portion is complete. How long is the process? This is going to be my next step after I see the doctor on 8/20.

I didn't realize your insurance would choose the facility that you have to go to. Is that because there is not a transplant hospital near you?

I will keep you in my prayers for approval by the Committee.

Dorothy, Fayetteville, GA

UIP 7/05

From: Breathe-Support@ yahoogroups. com [mailto:Breathe- Support@yahoogro ups.com] On Behalf Of JanSent: Wednesday, July 15, 2009 11:29 AMTo: Breathe-Support@ yahoogroups. comSubject: Transplant Evaluation!

I have just completed (I think) testing for transplant eligibility. ..it was very interesting and intense!Due to my insurance we have to go to Dallas for anything related to Transplant. We are patients of the Heart and Lung Transplant department at UT Southwest. I can't say enough about every single employee at the hospital and every specialist's office that we have had to visit. They are all very concerned about your comfort, that you do not have to wait for your appointment and that you always have someone right there to help you find whatever you may need ! Even the doctors take their time and visit with you until all your questions are answered. We are very impressed. They are one of the Centers of Excellence, and we can sure see how they got there!Hopefully, my case will be presented to the Committee on Friday of this week...if not then the next week. It has been fun...interesting and the source of greater fatigue, just keeping

up with the schedule...lol. ..I hope you all have a great Wednesday today!

[Guest guest]

Joyce,

Thanks for the info - Since I was told about possibly being a transplant candidate I have been trying to educate myself. Did you know I found that Dr. who performed the first single and double lung transplants is at the Univ. of Penn hospital? That should be great for their program.

We are going to be kind of in your neck of the woods this weekend. I am going to a wedding in Phil., PA this weekend at Hyatt at Penns Landing - My daughter is driving from Boston with her family and taking our 2 3/4 grand daughter and 8 month old to Sesame Place on Friday. Then we are going to stay with friends at their home near Lake Wallenpaupack for a couple of days.

It is so good getting to know all the people on this forum,

Dorothy, Fayetteville, GA

UIP 7/05

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Joyce T RosenbergSent: Wednesday, July 15, 2009 12:57 PMTo: Breathe-Support Subject: RE: Transplant Evaluation!

dorothy

the transplant eval process at U of Penn is 3 days of outpatient testing and meetings

i have learned that there are other places that do the evaluation as an inpatient

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org--- On Wed, 7/15/09, Dorothy Reinecke <atlantadorothy (AT) att (DOT) net> wrote:

From: Dorothy Reinecke <atlantadorothy (AT) att (DOT) net>Subject: RE: Transplant Evaluation!To: Breathe-Support Date: Wednesday, July 15, 2009, 12:07 PM

Jan,

Congrats - you must be glad this portion is complete. How long is the process? This is going to be my next step after I see the doctor on 8/20.

I didn't realize your insurance would choose the facility that you have to go to. Is that because there is not a transplant hospital near you?

I will keep you in my prayers for approval by the Committee.

Dorothy, Fayetteville, GA

UIP 7/05

From: Breathe-Support@ yahoogroups. com [mailto:Breathe- Support@yahoogro ups.com] On Behalf Of JanSent: Wednesday, July 15, 2009 11:29 AMTo: Breathe-Support@ yahoogroups. comSubject: Transplant Evaluation!

I have just completed (I think) testing for transplant eligibility. ..it was very interesting and intense!Due to my insurance we have to go to Dallas for anything related to Transplant. We are patients of the Heart and Lung Transplant department at UT Southwest. I can't say enough about every single employee at the hospital and every specialist's office that we have had to visit. They are all very concerned about your comfort, that you do not have to wait for your appointment and that you always have someone right there to help you find whatever you may need ! Even the doctors take their time and visit with you until all your questions are answered. We are very impressed. They are one of the Centers of Excellence, and we can sure see how they got there!Hopefully, my case will be presented to the Committee on Friday of this week...if not then the next week. It has been fun...interesting and the source of greater fatigue, just keeping up with the schedule...lol. ..I hope you all have a great Wednesday today!

[Guest guest]

Joanie, we don't care just so you print... Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. On Jul 16, 2009, at 10:14 AM, JOE & JOANIE LAMENSKIE wrote: WOW, SORRY FOR THE LARGE PRINT....JOANIE -- Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!> <imstp_animation_monkey_en_020908.gif>

[Guest guest]



Joanie .... I'm the one who uses the cpap in our house and I'm here to tell you, that "snorkel" (as I call mine) can play havoc with a marriage! HAHAHAA.

I caught a glimpse of myself in the bathroom mirror one night and stood there and laughed right outloud!

My hair was sticking out on each side above the straps and looked rather like ears. The strap going across the top of my head flattened my hair totally and added to the look of "ears"...

What with the snorkel hanging down I looked like nothing that my husband should be sleeping with!

I usually remove the entire mask when I get up at night but sometimes I remove only the hose, as I did that particular night. For better or for worse, right?

I posted a few days back about my concentrator....it's a VisionAire...

almost silent. I can easily tolerate this in our bedroom and I'm a light sleeper. Not even a filter to clean...all inside.

Have fun in Chattanooga!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!>

[Guest guest]

Peggy,

The reason I use caps is for the practical purpose of not needing my glasses when I work on the computer. It is just so much clearer to my eyes, anyway...I've had complaints in the past with remarks such as all caps represent anger...well, exscuuuse me! It has simply been personal preference but I am going to try not to do all caps anymore, but may slip up since habits are hard to break. I am not all that techy so I am probably ignorant to protocol, but I am willing to learn and change. Also the keyboard on my laptop is not as comfortable as my desktop keyboard so all caps prevented a lot of errors in spelling and capitalization...

Joanie

JOE & JOANIE

JOE IPF 1/2008

GRIFFIN, GA

-- Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!>

[Guest guest]

I leave mine in the living room and use tyhe long tubing. I'm at my daughters now and I am sleeping in their motorhome so I have to hear it and it puts out a lot of heat. I'll bet I get a good nights sleep when I get home.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Transplant Evaluation!To: Breathe-Support@ yahoogroups. comDate: Wednesday, July 15, 2009, 11:16 AM

DorothyThe insurances choose for different reasons. Sometimes its because oftheir hospital contracts and, when so, thats troublesome as you may notbe able to choose the best or closest. In Jan's case, if I remembercorrectly, its a choice based on quality. Methodist Hospital in Houstonhad a period during which they considered them not to meet the standard.I do believe though that they have recovered or are on the way torecovery.JanIs there a chance down the road, you'll switch to Houston? I see theyare doing far more transplants than UTSW and while their success rate islower they are transplanting a much higher percentage of those waiting.>> Jan,> Congrats - you must be glad this portion is complete. How long is the> process? This is going to be my next step after I see the doctor on8/20.>> I didn't realize your insurance would choose the facility that youhave to> go to. Is that because there is not a transplant hospital near you?>> I will keep you in my prayers for approval by the Committee.> Dorothy, Fayetteville, GA> UIP 7/05>> _____>> From: Breathe-Support@ yahoogroups. com> [mailto:Breathe-Support@ yahoogroups. com] On Behalf Of Jan> Sent: Wednesday, July 15, 2009 11:29 AM> To: Breathe-Support@ yahoogroups. com> Subject: Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!>

[Guest guest]

Hi Bev, I have my concentrator outside. NO NOISE, NO HEAT. You can run the tubing through a window. We have a hard time sleeping with the thing inside. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. I leave mine in the living room and use tyhe long tubing. I'm at my daughters now and I am sleeping in their motorhome so I have to hear it and it puts out a lot of heat. I'll bet I get a good nights sleep when I get home.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Transplant Evaluation!To: Breathe-Support@ yahoogroups. comDate: Wednesday, July 15, 2009, 11:16 AM DorothyThe insurances choose for different reasons. Sometimes its because oftheir hospital contracts and, when so, thats troublesome as you may notbe able to choose the best or closest. In Jan's case, if I remembercorrectly, its a choice based on quality. Methodist Hospital in Houstonhad a period during which they considered them not to meet the standard.I do believe though that they have recovered or are on the way torecovery.JanIs there a chance down the road, you'll switch to Houston? I see theyare doing far more transplants than UTSW and while their success rate islower they are transplanting a much higher percentage of those waiting.>> Jan,> Congrats - you must be glad this portion is complete. How long is the> process? This is going to be my next step after I see the doctor on8/20.>> I didn't realize your insurance would choose the facility that youhave to> go to. Is that because there is not a transplant hospital near you?>> I will keep you in my prayers for approval by the Committee.> Dorothy, Fayetteville, GA> UIP 7/05>> _____>> From: Breathe-Support@ yahoogroups. com> [mailto:Breathe-Support@ yahoogroups. com] On Behalf Of Jan> Sent: Wednesday, July 15, 2009 11:29 AM> To: Breathe-Support@ yahoogroups. com> Subject: Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!>

[Guest guest]

You are in Florida. I couldn't leave it outside in Idaho. At least not in the winter. Summer maybe.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Transplant Evaluation!To: Breathe-Support@ yahoogroups. comDate: Wednesday, July 15, 2009, 11:16 AM DorothyThe insurances choose for

different reasons. Sometimes its because oftheir hospital contracts and, when so, thats troublesome as you may notbe able to choose the best or closest. In Jan's case, if I remembercorrectly, its a choice based on quality. Methodist Hospital in Houstonhad a period during which they considered them not to meet the standard.I do believe though that they have recovered or are on the way torecovery.JanIs there a chance down the road, you'll switch to Houston? I see theyare doing far more transplants than UTSW and while their success rate islower they are transplanting a much higher percentage of those waiting.>> Jan,> Congrats - you must be glad this portion is complete. How long is the> process? This is going to be my next step after I see the doctor on8/20.>> I didn't realize your insurance would choose the facility that youhave to> go to. Is that because there is not a transplant hospital near you?>> I will keep you in my prayers for approval by the Committee.> Dorothy, Fayetteville, GA> UIP 7/05>> _____>> From: Breathe-Support@ yahoogroups. com> [mailto:Breathe-Support@ yahoogroups. com] On Behalf Of Jan> Sent: Wednesday, July 15, 2009 11:29 AM> To: Breathe-Support@ yahoogroups. com> Subject: Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not

have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!>

[Guest guest]

BJ ... I don't know what size your concentrator is but mine goes to 5LPM and is nearly silent.

It's a Visionaire, made by Airsep. Not even a filter to change. Filter is internal. This can easily be in a bedroom.

What's the latest on your house?

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!>

[Guest guest]

BJ... check out this VisionAire, you'll be surprised how quiet it is.

I hope this is the right buyer!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!>

[Guest guest]

Ronnie

I'm assuming you're going to UTSW? Who will you be seeing? Good luck in

your trip there. We've had several who have been there. Jan was there

most recently. Gwynne was there and still goes for follow up post

transplant (even though she had the transplant in San ). I was at

UTSW yesterday although not for transplant evaluation.

> >>>>>>>>

> >>>>>>>> Jan,

> >>>>>>>> Congrats - you must be glad this portion is complete. How

long is the

> >>>>>>>> process? This is going to be my next step after I see the

doctor on

> >>>>>>>8/20.

> >>>>>>>>

> >>>>>>>> I didn't realize your insurance would choose the facility

that you

> >>>>>>>have to

> >>>>>>>> go to. Is that because there is not a transplant hospital

near you?

> >>>>>>>>

> >>>>>>>> I will keep you in my prayers for approval by the Committee.

> >>>>>>>> Dorothy, Fayetteville, GA

> >>>>>>>> UIP 7/05

> >>>>>>>>

> >>>>>>>> _____

> >>>>>>>>

> >>>>>>>> From: Breathe-Support@ yahoogroups. com

> >>>>>>>> [mailto:Breathe-Support@ yahoogroups. com] On Behalf Of Jan

> >>>>>>>> Sent: Wednesday, July 15, 2009 11:29 AM

> >>>>>>>> To: Breathe-Support@ yahoogroups. com

> >>>>>>>> Subject: Transplant Evaluation!

> >>>>>>>>

> >>>>>>>>

> >>>>>>>>

> >>>>>>>>

> >>>>>>>>

> >>>>>>>> I have just completed (I think) testing for transplant

> >>>>>>>eligibility. ..it was

> >>>>>>>> very interesting and intense!

> >>>>>>>>

> >>>>>>>> Due to my insurance we have to go to Dallas for anything

related to

> >>>>>>>> Transplant. We are patients of the Heart and Lung Transplant

> >>>>>>>department at

> >>>>>>>> UT Southwest. I can't say enough about every single employee

at the

> >>>>>>>hospital

> >>>>>>>> and every specialist's office that we have had to visit. They

are all

> >>>>>>>very

> >>>>>>>> concerned about your comfort, that you do not have to wait

for your

> >>>>>>>> appointment and that you always have someone right there to

help you

> >>>>>>>find

> >>>>>>>> whatever you may need ! Even the doctors take their time and

visit

> >>>>>>>with you

> >>>>>>>> until all your questions are answered. We are very impressed.

They are

> >>>>>>>one

> >>>>>>>> of the Centers of Excellence, and we can sure see how they

got there!

> >>>>>>>>

> >>>>>>>> Hopefully, my case will be presented to the Committee on

Friday of

> >>>>>>>this

> >>>>>>>> week...if not then the next week. It has been

fun...interesting and

> >>>>>>>the

> >>>>>>>> source of greater fatigue, just keeping up with the

schedule...lol. ..

> >>>>>>>>

> >>>>>>>> I hope you all have a great Wednesday today!

> >>>>>>>>

> >>>>>>>

> >>>>>>>

> >>>>>>

> >>>>>

> >>>>>

> >>>>

> >>

>

[Guest guest]

My doc is Blewett. I really like him. My family attended a mandatory seminar a couple of weeks ago. It was very informative and we all felt a lot better after going. My evalauation was scdeduled in mid-Aug but moved up to this Wed at my request. Iin past 2 days have gone from 5 to 10 liters and Os level drops a lot on 20 yd walk or coughing episode.

Ronnie

To: Breathe-Support Sent: Saturday, July 25, 2009 9:24:33 AMSubject: Re: Transplant Evaluation!

RonnieI'm assuming you're going to UTSW? Who will you be seeing? Good luck inyour trip there. We've had several who have been there. Jan was theremost recently. Gwynne was there and still goes for follow up posttransplant (even though she had the transplant in San ). I was atUTSW yesterday although not for transplant evaluation.> >>>>>>>>> >>>>>>>> Jan,> >>>>>>>> Congrats - you must be glad this portion is complete. Howlong is the> >>>>>>>> process? This is going to be my next step after I see thedoctor on> >>>>>>>8/20.> >>>>>>>>> >>>>>>>> I didn't realize your insurance would choose the facilitythat you> >>>>>>>have to> >>>>>>>> go to. Is that because there is not a transplant hospitalnear you?> >>>>>>>>> >>>>>>>> I will keep you in my prayers for approval by the Committee.> >>>>>>>> Dorothy, Fayetteville, GA>

>>>>>>>> UIP 7/05> >>>>>>>>> >>>>>>>> _____> >>>>>>>>> >>>>>>>> From: Breathe-Support@ yahoogroups. com> >>>>>>>> [mailto:Breathe- Support@ yahoogroups. com] On Behalf Of Jan> >>>>>>>> Sent: Wednesday, July 15, 2009 11:29 AM> >>>>>>>> To: Breathe-Support@ yahoogroups. com> >>>>>>>> Subject: Transplant Evaluation!> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>> I have just completed (I think) testing for transplant> >>>>>>>eligibility. ..it

was> >>>>>>>> very interesting and intense!> >>>>>>>>> >>>>>>>> Due to my insurance we have to go to Dallas for anythingrelated to> >>>>>>>> Transplant. We are patients of the Heart and Lung Transplant> >>>>>>>department at> >>>>>>>> UT Southwest. I can't say enough about every single employeeat the> >>>>>>>hospital> >>>>>>>> and every specialist's office that we have had to visit. Theyare all> >>>>>>>very> >>>>>>>> concerned about your comfort, that you do not have to waitfor your> >>>>>>>> appointment and that you always have someone right there tohelp you> >>>>>>>find>

>>>>>>>> whatever you may need ! Even the doctors take their time andvisit> >>>>>>>with you> >>>>>>>> until all your questions are answered. We are very impressed.They are> >>>>>>>one> >>>>>>>> of the Centers of Excellence, and we can sure see how theygot there!> >>>>>>>>> >>>>>>>> Hopefully, my case will be presented to the Committee onFriday of> >>>>>>>this> >>>>>>>> week...if not then the next week. It has beenfun...interesting and> >>>>>>>the> >>>>>>>> source of greater fatigue, just keeping up with theschedule...lol. ..> >>>>>>>>> >>>>>>>> I hope

you all have a great Wednesday today!> >>>>>>>>> >>>>>>>> >>>>>>>> >>>>>>> >>>>>> >>>>>> >>>>> >>>

[Guest guest]

Hope i am not repeating myself. UTSW will admit me to St 's hospital for evaluation this Wed. This will be easier on me and my family because i have trouble getting around and this way the hospital can move me place to place. Have been in study at UTSW so my doc in study and my doc at home have all been in touch with Dr Blewett at UTSW and this has been very helpful. If I get on list we will be moving to Dallas

To: Breathe-Support Sent: Saturday, July 25, 2009 2:12:53 PMSubject: Re: Re: Transplant Evaluation!

My doc is Blewett.. I really like him. My family attended a mandatory seminar a couple of weeks ago. It was very informative and we all felt a lot better after going. My evalauation was scdeduled in mid-Aug but moved up to this Wed at my request. Iin past 2 days have gone from 5 to 10 liters and Os level drops a lot on 20 yd walk or coughing episode.

Ronnie

From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Saturday, July 25, 2009 9:24:33 AMSubject: Re: Transplant Evaluation!

RonnieI'm assuming you're going to UTSW? Who will you be seeing? Good luck inyour trip there. We've had several who have been there. Jan was theremost recently. Gwynne was there and still goes for follow up posttransplant (even though she had the transplant in San ). I was atUTSW yesterday although not for transplant evaluation.> >>>>>>>>> >>>>>>>> Jan,> >>>>>>>> Congrats - you must be glad this portion is complete. Howlong is the> >>>>>>>> process? This is going to be my next step after I see thedoctor on> >>>>>>>8/20.> >>>>>>>>> >>>>>>>> I didn't realize your insurance would choose the facilitythat you> >>>>>>>have to> >>>>>>>> go to. Is that because there is not a transplant hospitalnear you?> >>>>>>>>> >>>>>>>> I will keep you in my prayers for approval by the Committee.> >>>>>>>> Dorothy, Fayetteville, GA>

>>>>>>>> UIP 7/05> >>>>>>>>> >>>>>>>> _____> >>>>>>>>> >>>>>>>> From: Breathe-Support@ yahoogroups. com> >>>>>>>> [mailto:Breathe- Support@ yahoogroups. com] On Behalf Of Jan> >>>>>>>> Sent: Wednesday, July 15, 2009 11:29 AM> >>>>>>>> To: Breathe-Support@ yahoogroups. com> >>>>>>>> Subject: Transplant Evaluation!> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>> I have just completed (I think) testing for transplant> >>>>>>>eligibility. ..it

was> >>>>>>>> very interesting and intense!> >>>>>>>>> >>>>>>>> Due to my insurance we have to go to Dallas for anythingrelated to> >>>>>>>> Transplant. We are patients of the Heart and Lung Transplant> >>>>>>>department at> >>>>>>>> UT Southwest. I can't say enough about every single employeeat the> >>>>>>>hospital> >>>>>>>> and every specialist's office that we have had to visit. Theyare all> >>>>>>>very> >>>>>>>> concerned about your comfort, that you do not have to waitfor your> >>>>>>>> appointment and that you always have someone right there tohelp you> >>>>>>>find>

>>>>>>>> whatever you may need ! Even the doctors take their time andvisit> >>>>>>>with you> >>>>>>>> until all your questions are answered. We are very impressed.They are> >>>>>>>one> >>>>>>>> of the Centers of Excellence, and we can sure see how theygot there!> >>>>>>>>> >>>>>>>> Hopefully, my case will be presented to the Committee onFriday of> >>>>>>>this> >>>>>>>> week...if not then the next week. It has beenfun...interesting and> >>>>>>>the> >>>>>>>> source of greater fatigue, just keeping up with theschedule...lol. ..> >>>>>>>>> >>>>>>>> I hope

you all have a great Wednesday today!> >>>>>>>>> >>>>>>>> >>>>>>>> >>>>>>> >>>>>> >>>>>> >>>>> >>>

[Guest guest]

my last echo was about 3 weeks ago and cardio doc said it was normal. pulmonay pressure i do not know. will have heart cath as part of eval this week. doing ok this morning at 10 liters. however if i get up and go to restroom O2 level drops into 70's..

Ronnie

To: Breathe-Support Sent: Saturday, July 25, 2009 10:19:44 PMSubject: Re: Transplant Evaluation!

RonnieWhen was your last echocardiogram and what was your pulmonary pressureon it? Now I ask still knowing that the accuracy of echocardiograms inmeasuring is limited. However, they are an excellent means ofestablishing a need for further study. The means of getting an accuratemeasure is through a right heart catheter.> > > >>>>>>>>> > > >>>>>>>> Jan,> > > >>>>>>>> Congrats - you must be glad this portion

is complete. How> > long is the> > > >>>>>>>> process? This is going to be my next step after I see the> > doctor on> > > >>>>>>>8/20..> > > >>>>>>>>> > > >>>>>>>> I didn't realize your insurance would choose the facility> > that you> > > >>>>>>>have to> > > >>>>>>>> go to. Is that because there is not a transplant hospital> > near you?> > > >>>>>>>>> > > >>>>>>>> I will keep you in my prayers for approval by the> Committee.> > > >>>>>>>> Dorothy, Fayetteville, GA> > > >>>>>>>> UIP 7/05> > > >>>>>>>>> >

> >>>>>>>> _____> > > >>>>>>>>> > > >>>>>>>> From: Breathe-Support@ yahoogroups. com> > > >>>>>>>> [mailto:Breathe- Support@ yahoogroups. com] On Behalf Of> Jan> > > >>>>>>>> Sent: Wednesday, July 15, 2009 11:29 AM> > > >>>>>>>> To: Breathe-Support@ yahoogroups. com> > > >>>>>>>> Subject: Transplant Evaluation!> > > >>>>>>>>> > > >>>>>>>>> > > >>>>>>>>> > > >>>>>>>>> > > >>>>>>>>> > > >>>>>>>> I have just completed (I think) testing for transplant> > >

>>>>>>>eligibility. ..it was> > > >>>>>>>> very interesting and intense!> > > >>>>>>>>> > > >>>>>>>> Due to my insurance we have to go to Dallas for anything> > related to> > > >>>>>>>> Transplant. We are patients of the Heart and Lung> Transplant> > > >>>>>>>department at> > > >>>>>>>> UT Southwest. I can't say enough about every single> employee> > at the> > > >>>>>>>hospital> > > >>>>>>>> and every specialist's office that we have had to visit.> They> > are all> > > >>>>>>>very> > > >>>>>>>> concerned about your comfort, that

you do not have towait> > for your> > > >>>>>>>> appointment and that you always have someone right thereto> > help you> > > >>>>>>>find> > > >>>>>>>> whatever you may need ! Even the doctors take their time> and> > visit> > > >>>>>>>with you> > > >>>>>>>> until all your questions are answered. We are very> impressed.> > They are> > > >>>>>>>one> > > >>>>>>>> of the Centers of Excellence, and we can sure see howthey> > got there!> > > >>>>>>>>> > > >>>>>>>> Hopefully, my case will be presented to the Committee on> > Friday of> > >

>>>>>>>this> > > >>>>>>>> week...if not then the next week.. It has been> > fun....interesting and> > > >>>>>>>the> > > >>>>>>>> source of greater fatigue, just keeping up with the> > schedule...lol. ..> > > >>>>>>>>> > > >>>>>>>> I hope you all have a great Wednesday today!> > > >>>>>>>>> > > >>>>>>>> > > >>>>>>>> > > >>>>>>> > > >>>>>> > > >>>>>> > > >>>>> > > >>> > >> >>

[Guest guest]

I think that's generally very true...anything above 5 liters they say is more effective delivered by a mask. Also 10 liters through a cannula is really hard on the nose.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Sunday, July 26, 2009 12:14:47 PMSubject: Re: Re: Transplant Evaluation!

Spoke with doc and told me at 6 to 10 liters nasal canula does not effectively deliever O2. So this afternoon nose piece will come and we will see if that is more effective. I'll let you know.

Ronnie

From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Saturday, July 25, 2009 10:19:44 PMSubject: Re: Transplant Evaluation!

RonnieWhen was your last echocardiogram and what was your pulmonary pressureon it? Now I ask still knowing that the accuracy of echocardiograms inmeasuring is limited. However, they are an excellent means ofestablishing a need for further study. The means of getting an accuratemeasure is through a right heart catheter.> > > >>>>>>>>> > >

>>>>>>>> Jan,> > > >>>>>>>> Congrats - you must be glad this portion is complete. How> > long is the> > > >>>>>>>> process? This is going to be my next step after I see the> > doctor on> > > >>>>>>>8/20..> > > >>>>>>>>> > > >>>>>>>> I didn't realize your insurance would choose the facility> > that you> > > >>>>>>>have to> > > >>>>>>>> go to. Is that because there is not a transplant hospital> > near you?> > > >>>>>>>>> > > >>>>>>>> I will keep you in my prayers for approval by the> Committee.> > > >>>>>>>> Dorothy,

Fayetteville, GA> > > >>>>>>>> UIP 7/05> > > >>>>>>>>> > > >>>>>>>> _____> > > >>>>>>>>> > > >>>>>>>> From: Breathe-Support@ yahoogroups. com> > > >>>>>>>> [mailto:Breathe- Support@ yahoogroups. com] On Behalf Of> Jan> > > >>>>>>>> Sent: Wednesday, July 15, 2009 11:29 AM> > > >>>>>>>> To: Breathe-Support@ yahoogroups. com> > > >>>>>>>> Subject: Transplant Evaluation!> > > >>>>>>>>> > > >>>>>>>>> > > >>>>>>>>> > > >>>>>>>>> > >

>>>>>>>>> > > >>>>>>>> I have just completed (I think) testing for transplant> > > >>>>>>>eligibility. ..it was> > > >>>>>>>> very interesting and intense!> > > >>>>>>>>> > > >>>>>>>> Due to my insurance we have to go to Dallas for anything> > related to> > > >>>>>>>> Transplant. We are patients of the Heart and Lung> Transplant> > > >>>>>>>department at> > > >>>>>>>> UT Southwest. I can't say enough about every single> employee> > at the> > > >>>>>>>hospital> > > >>>>>>>> and every specialist's office that we have had to visit.>

They> > are all> > > >>>>>>>very> > > >>>>>>>> concerned about your comfort, that you do not have towait> > for your> > > >>>>>>>> appointment and that you always have someone right thereto> > help you> > > >>>>>>>find> > > >>>>>>>> whatever you may need ! Even the doctors take their time> and> > visit> > > >>>>>>>with you> > > >>>>>>>> until all your questions are answered. We are very> impressed.> > They are> > > >>>>>>>one> > > >>>>>>>> of the Centers of Excellence, and we can sure see howthey> > got there!> > >

>>>>>>>>> > > >>>>>>>> Hopefully, my case will be presented to the Committee on> > Friday of> > > >>>>>>>this> > > >>>>>>>> week...if not then the next week.. It has been> > fun....interesting and> > > >>>>>>>the> > > >>>>>>>> source of greater fatigue, just keeping up with the> > schedule...lol. ..> > > >>>>>>>>> > > >>>>>>>> I hope you all have a great Wednesday today!> > > >>>>>>>>> > > >>>>>>>> > > >>>>>>>> > > >>>>>>> > > >>>>>> > > >>>>>> > >

>>>>> > > >>> > >> >>

[Guest guest]

Dyane,

If it was not for a doctor that was on call that explaied so well about mask vs canulla i would not know either. It makes a difference because today I have kept SpO2 in the 90's with no problems. I was also told to use shotest tube to deliver highest amount of O2. I refer to plastic tubing as my leash. The longer the tubing the less accurate of how many liters you are actually getting.

Ronnie

To: Breathe-Support Sent: Monday, July 27, 2009 11:09:17 AMSubject: Re: Transplant Evaluation!

Ronnie,I've been wondering about that since I use 6-9 at home and I read abouthigh liter stuff and yet no one, Not even my o2 supplier had mentioned amask. It really makes me mad that I have to do their job for them!Dyane Phoenix IPF 02> > > > >>>>>>>>> > > > >>>>>>>> Jan,> > > > >>>>>>>> Congrats - you must be glad this portion is complete.How> > > long is the> > > > >>>>>>>> process? This is going to be my next step after I seethe> > > doctor on>

> > > >>>>>>>8/20.> > > > >>>>>>>>> > > > >>>>>>>> I didn't realize your insurance would choose thefacility> > > that you> > > > >>>>>>>have to> > > > >>>>>>>> go to. Is that because there is not a transplanthospital> > > near you?> > > > >>>>>>>>> > > > >>>>>>>> I will keep you in my prayers for approval by the> > Committee.> > > > >>>>>>>> Dorothy, Fayetteville, GA> > > > >>>>>>>> UIP 7/05> > > > >>>>>>>>> > > > >>>>>>>> _____> > > > >>>>>>>>>

> > > >>>>>>>> From: Breathe-Support@ yahoogroups. com> > > > >>>>>>>> [mailto:Breathe- Support@ yahoogroups. com] On BehalfOf> > Jan> > > > >>>>>>>> Sent: Wednesday, July 15, 2009 11:29 AM> > > > >>>>>>>> To: Breathe-Support@ yahoogroups. com> > > > >>>>>>>> Subject: Transplant Evaluation!> > > > >>>>>>>>> > > > >>>>>>>>> > > > >>>>>>>>> > > > >>>>>>>>> > > > >>>>>>>>> > > > >>>>>>>> I have just completed (I think) testing for transplant> > > >

>>>>>>>eligibility. ..it was> > > > >>>>>>>> very interesting and intense!> > > > >>>>>>>>> > > > >>>>>>>> Due to my insurance we have to go to Dallas foranything> > > related to> > > > >>>>>>>> Transplant. We are patients of the Heart and Lung> > Transplant> > > > >>>>>>>department at> > > > >>>>>>>> UT Southwest. I can't say enough about every single> > employee> > > at the> > > > >>>>>>>hospital> > > > >>>>>>>> and every specialist's office that we have had tovisit.> > They> > > are all> > > >

>>>>>>>very> > > > >>>>>>>> concerned about your comfort, that you do not have to> wait> > > for your> > > > >>>>>>>> appointment and that you always have someone rightthere> to> > > help you> > > > >>>>>>>find> > > > >>>>>>>> whatever you may need ! Even the doctors take theirtime> > and> > > visit> > > > >>>>>>>with you> > > > >>>>>>>> until all your questions are answered. We are very> > impressed.> > > They are> > > > >>>>>>>one> > > > >>>>>>>> of the Centers of Excellence, and we can sure see how> they> > > got

there!> > > > >>>>>>>>> > > > >>>>>>>> Hopefully, my case will be presented to the Committeeon> > > Friday of> > > > >>>>>>>this> > > > >>>>>>>> week...if not then the next week.. It has been> > > fun...interesting and> > > > >>>>>>>the> > > > >>>>>>>> source of greater fatigue, just keeping up with the> > > schedule...lol. ..> > > > >>>>>>>>> > > > >>>>>>>> I hope you all have a great Wednesday today!> > > > >>>>>>>>> > > > >>>>>>>> > > > >>>>>>>> > > >

>>>>>>> > > > >>>>>> > > > >>>>>> > > > >>>>> > > > >>> > > >> > >> >>

[Guest guest]

Ronnie,

You're correct in that you do lose some flow with increased lengths of tubing. Many of us have a "liter meter" that tells us the flow that is coming through.

I currently have 100 feet of tubing connecting me to my concentrator and I have to turn it up about half a liter to get the flow I would have with 50 feet of tubing.

Liter meters can be purchased for something in the $20 to $25 range. Here is one source:

http://www.tinashomecare.com/oxygen_liter_meters.htm

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Monday, July 27, 2009 6:20:15 PMSubject: Re: Re: Transplant Evaluation!

Dyane,

If it was not for a doctor that was on call that explaied so well about mask vs canulla i would not know either. It makes a difference because today I have kept SpO2 in the 90's with no problems. I was also told to use shotest tube to deliver highest amount of O2. I refer to plastic tubing as my leash. The longer the tubing the less accurate of how many liters you are actually getting.

Ronnie

From: dyanebillings <dyane.billings@ ball-mcgraw. com>To: Breathe-Support@ yahoogroups. comSent: Monday, July 27, 2009 11:09:17 AMSubject: Re: Transplant Evaluation!

Ronnie,I've been wondering about that since I use 6-9 at home and I read abouthigh liter stuff and yet no one, Not even my o2 supplier had mentioned amask. It really makes me mad that I have to do their job for them!Dyane Phoenix IPF 02> > > > >>>>>>>>> > > > >>>>>>>> Jan,> > > > >>>>>>>> Congrats - you must be glad this portion is

complete.How> > > long is the> > > > >>>>>>>> process? This is going to be my next step after I seethe> > > doctor on> > > > >>>>>>>8/20.> > > > >>>>>>>>> > > > >>>>>>>> I didn't realize your insurance would choose thefacility> > > that you> > > > >>>>>>>have to> > > > >>>>>>>> go to. Is that because there is not a transplanthospital> > > near you?> > > > >>>>>>>>> > > > >>>>>>>> I will keep you in my prayers for approval by the> > Committee.> > > > >>>>>>>> Dorothy, Fayetteville, GA> > > >

>>>>>>>> UIP 7/05> > > > >>>>>>>>> > > > >>>>>>>> _____> > > > >>>>>>>>> > > > >>>>>>>> From: Breathe-Support@ yahoogroups. com> > > > >>>>>>>> [mailto:Breathe- Support@ yahoogroups. com] On BehalfOf> > Jan> > > > >>>>>>>> Sent: Wednesday, July 15, 2009 11:29 AM> > > > >>>>>>>> To: Breathe-Support@ yahoogroups. com> > > > >>>>>>>> Subject: Transplant Evaluation!> > > > >>>>>>>>> > > > >>>>>>>>> > > > >>>>>>>>> > > >

>>>>>>>>> > > > >>>>>>>>> > > > >>>>>>>> I have just completed (I think) testing for transplant> > > > >>>>>>>eligibility. ..it was> > > > >>>>>>>> very interesting and intense!> > > > >>>>>>>>> > > > >>>>>>>> Due to my insurance we have to go to Dallas foranything> > > related to> > > > >>>>>>>> Transplant. We are patients of the Heart and Lung> > Transplant> > > > >>>>>>>department at> > > > >>>>>>>> UT Southwest. I can't say enough about every single> > employee> > > at the> > > >

>>>>>>>hospital> > > > >>>>>>>> and every specialist's office that we have had tovisit.> > They> > > are all> > > > >>>>>>>very> > > > >>>>>>>> concerned about your comfort, that you do not have to> wait> > > for your> > > > >>>>>>>> appointment and that you always have someone rightthere> to> > > help you> > > > >>>>>>>find> > > > >>>>>>>> whatever you may need ! Even the doctors take theirtime> > and> > > visit> > > > >>>>>>>with you> > > > >>>>>>>> until all your questions are answered. We are very> >

impressed.> > > They are> > > > >>>>>>>one> > > > >>>>>>>> of the Centers of Excellence, and we can sure see how> they> > > got there!> > > > >>>>>>>>> > > > >>>>>>>> Hopefully, my case will be presented to the Committeeon> > > Friday of> > > > >>>>>>>this> > > > >>>>>>>> week...if not then the next week.. It has been> > > fun...interesting and> > > > >>>>>>>the> > > > >>>>>>>> source of greater fatigue, just keeping up with the> > > schedule...lol. ..> > > > >>>>>>>>> > > > >>>>>>>> I hope you

all have a great Wednesday today!> > > > >>>>>>>>> > > > >>>>>>>> > > > >>>>>>>> > > > >>>>>>> > > > >>>>>> > > > >>>>>> > > > >>>>> > > > >>> > > >> > >> >>