Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Hi guys, I live in Southern Cali also. Near Pasadena. Trying to be listed at USC. I would love to meet others around here also. Miranda LA/ IPF 05 > > > > > > > > > > > > hi carroll > > my name is ken overman and i live in lompoc. i would like to meet others in this group and this area. where do you live? > > ken o. > > > > > > From: Carroll Brissette <cabrissette@ gmail.com> > To: Breathe-Support@ yahoogroups. com > Sent: Monday, July 6, 2009 1:39:08 PM > Subject: Southern California > > > > Does anyone on the board live here? I am hoping to get on the lung > transplant list at Cedars Sinai Hospital in Los Angeles. I have IPF. > Carroll > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Hi Miranda and Ken and Carol It would be nice if we could do a West Coast thing...I can't get to NC and its really disappointing but CA is a definitely doable. Maybe we can all get together sometime. Also talked to a Research doctor at Nat Jewish today and was amazed at how gracious she was (I had " signed up " for a genetic study on Familial IPF only yesterday) I am definitely going to get an eval there. I told them how everyone sings their praises. She was very pleased. Dyane, Phoenix IPF 02 > > > > > > > > > > > > > > > > > > > > > > > > hi carroll > > � > > my name is ken overman and i live in lompoc. i would like to meet others in this group and this area. where do you live? > > � > > ken o. > > > > > > > > > > > > From:�Carroll Brissette <cabrissette@ gmail.com> > > To:�Breathe-Support@ yahoogroups. com > > Sent:�Monday, July 6, 2009 1:39:08 PM > > Subject:� Southern California > > > > > > > > Does anyone on the board live here? I am hoping to get on the lung� > > transplant list at Cedars Sinai Hospital in Los Angeles. I have IPF.� > > Carroll > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 I live in Buena park. 714 739-4291, Carroll Brissette, I am hoping to have a transplant done at Cedars Sinai, would love to meet others with same PF.Hi Miranda and Ken and CarolIt would be nice if we could do a West Coast thing...I can't get to NCand its really disappointing but CA is a definitely doable. Maybe wecan all get together sometime.Also talked to a Research doctor at Nat Jewish today and was amazed athow gracious she was (I had "signed up" for a genetic study on FamilialIPF only yesterday) I am definitely going to get an eval there. I toldthem how everyone sings their praises. She was very pleased.Dyane, Phoenix IPF 02> >> >> >> >> >> >> >> >> >> >> >> > hi carroll> > �> > my name is ken overman and i live in lompoc. i would like to meetothers in this group and this area. where do you live?> > �> > ken o.> >> >> >> >> >> > From:�Carroll Brissette <cabrissette@ gmail.com>> > To:�Breathe-Support@ yahoogroups. com> > Sent:�Monday, July 6, 2009 1:39:08 PM> > Subject:� Southern California> >> >> >> > Does anyone on the board live here? I am hoping to get on thelung�> > transplant list at Cedars Sinai Hospital in Los Angeles. I haveIPF.�> > Carroll> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Goodness gracious i think we have a lot of interest in a possible weekend get together on the west coast. any suggestions; anaheim, palm springs, lake havasu, san deigo, san francisco, seattle,? maybe early spring next yr. or even someplace this yr.? ken overman To: Breathe-Support ; dyanebillings Sent: Friday, July 17, 2009 4:58:55 PMSubject: Re: Re: Carol and Southern California I live in Buena park. 714 739-4291, Carroll Brissette, I am hoping to have a transplant done at Cedars Sinai, would love to meet others with same PF. Hi Miranda and Ken and CarolIt would be nice if we could do a West Coast thing...I can't get to NCand its really disappointing but CA is a definitely doable. Maybe wecan all get together sometime.Also talked to a Research doctor at Nat Jewish today and was amazed athow gracious she was (I had "signed up" for a genetic study on FamilialIPF only yesterday) I am definitely going to get an eval there. I toldthem how everyone sings their praises. She was very pleased.Dyane, Phoenix IPF 02> >> >> >> >> >> >> >> >> >> >> >> > hi carroll> > �> > my name is ken overman and i live in lompoc. i would like to meetothers in this group and this area. where do you live?> > �> > ken o.> >> >> >> >> >> > From:�Carroll Brissette <cabrissette@ gmail.com>> > To:�Breathe-Support@ yahoogroups. com> > Sent:�Monday, July 6, 2009 1:39:08 PM> > Subject:� Southern California> >> >> >> > Does anyone on the board live here? I am hoping to get on thelung�> > transplant list at Cedars Sinai Hospital in Los Angeles. I haveIPF.�> > Carroll> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 Anaheim or Palm SpringsGoodness gracious i think we have a lot of interest in a possible weekend get together on the west coast. any suggestions; anaheim, palm springs, lake havasu, san deigo, san francisco, seattle,? maybe early spring next yr. or even someplace this yr.? ken overmanFrom: Carroll Brissette <cabrissette (AT) gmail (DOT) com>To: Breathe-Support ; dyanebillings <dyane.billings (AT) ball-mcgraw (DOT) com>Sent: Friday, July 17, 2009 4:58:55 PMSubject: Re: Re: Carol and Southern California I live in Buena park. 714 739-4291, Carroll Brissette, I am hoping to have a transplant done at Cedars Sinai, would love to meet others with same PF.Hi Miranda and Ken and CarolIt would be nice if we could do a West Coast thing...I can't get to NCand its really disappointing but CA is a definitely doable. Maybe wecan all get together sometime.Also talked to a Research doctor at Nat Jewish today and was amazed athow gracious she was (I had "signed up" for a genetic study on FamilialIPF only yesterday) I am definitely going to get an eval there. I toldthem how everyone sings their praises. She was very pleased.Dyane, Phoenix IPF 02> >> >> >> >> >> >> >> >> >> >> >> > hi carroll> > �> > my name is ken overman and i live in lompoc. i would like to meetothers in this group and this area. where do you live?> > �> > ken o.> >> >> >> >> >> > From:�Carroll Brissette <cabrissette@ gmail.com>> > To:�Breathe-Support@ yahoogroups. com> > Sent:�Monday, July 6, 2009 1:39:08 PM> > Subject:� Southern California> >> >> >> > Does anyone on the board live here? I am hoping to get on thelung�> > transplant list at Cedars Sinai Hospital in Los Angeles. I haveIPF.�> > Carroll> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2009 Report Share Posted July 18, 2009 Ken ......West Coast get-together.... We live in Oregon and made one fun trip to Olympia, near Seattle, for a member-meeting. It would be doable for us if it's not tooooo far south (from here). There are some of us scattered in the PNW...BJ is in Idaho, close to the OR border. I'll at least put our name in the hat and we'll see what location falls out! If it's tooooo far south for us it would be too far to drive for just a weekend and I don't fly with all the O2 hurdles to jump. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Southern California> >> >> >> > Does anyone on the board live here? I am hoping to get on thelung�> > transplant list at Cedars Sinai Hospital in Los Angeles. I haveIPF.�> > Carroll> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Ke n you are correct, I would think if we did mid CA around say San Fran we could interest the ones up in Portland too? Sounds like it would be fun!. Dyane phoenix IPF 2002 > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > hi carroll > >> > � > >> > my name is ken overman and i live in lompoc. i would like to meet > >others in this group and this area. where do you live? > >> > � > >> > ken o. > >> > > >> > > >> > > >> > > >> > > >> > From:�Carroll Brissette <cabrissette@ gmail.com> > >> > To:�Breathe-Support@ yahoogroups. com > >> > Sent:�Monday, July 6, 2009 1:39:08 PM > >> > Subject:� Southern California > >> > > >> > > >> > > >> > Does anyone on the board live here? I am hoping to get on the > >lung� > >> > transplant list at Cedars Sinai Hospital in Los Angeles. I have > >IPF.� > >> > Carroll > >> > > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 looks like we've got a lot of interest in a west coast get-together. just FYI let me give you me schedule. i will be in san jose august 14-16 for the antiques road show and will meet with joan who lives there. on sept. 10-13 its reno for a moose convention at the atlastis hotel, with an over night stop at my nephews in sacramento (rio linda) on the 9th. and then its back to reno march 25-28 for another moose convention, incase anyone is in those areas, or, sometime in oct. might be good but that might conflict with the tenn. groups get-together as some in that group might like to make it to the west. so, i might suggest some time in apr. or may in the bay area, sacramento, reno or las vegas, i can work with just about any place and date everyone agrees on. ken overman To: Breathe-Support Sent: Monday, July 20, 2009 9:31:13 AMSubject: Re: Carol and Southern California Ke n you are correct, I would think if we did mid CA around say San Franwe could interest the ones up in Portland too? Sounds like it would befun!.Dyane phoenix IPF 2002> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> > hi carroll> >> > �> >> > my name is ken overman and i live in lompoc. i would like to meet> >others in this group and this area. where do you live?> >> > �> >> > ken o..> >> >> >> >> >> >> >> >> >> >> >> > From:�Carroll Brissette <cabrissette@ gmail.com>> >> > To:�Breathe-Support@ yahoogroups. com> >> > Sent:�Monday, July 6, 2009 1:39:08 PM> >> > Subject:� Southern California> >> >> >> >> >> >> >> > Does anyone on the board live here? I am hoping to get on the> >lung�> >> > transplant list at Cedars Sinai Hospital in Los Angeles. I have> >IPF.�> >> > Carroll> >> >> >>> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 BJ... whoops, wrong border! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Southern California> >> >> >> > Does anyone on the board live here? I am hoping to get on thelung�> > transplant list at Cedars Sinai Hospital in Los Angeles. I haveIPF.�> > Carroll> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 Sher, Ihaven't made an appointment yet. I had to find out when hunting season is. Bob can't take me then because he has several friends coming to hunt on his property. I'm thinking of calling Monday. My pulmo dude is supposed to call me Monday. I am progressing and he may put me on Imuran. I appreciate any information you have as you go. I hope that you have a smooth move. I know that it will be hard.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho Hi Miranda and Ken and CarolIt would be nice if we could do a West Coast thing...I can't get to NCand its really disappointing but CA is a definitely doable. Maybe wecan all get together sometime.Also talked to a Research doctor at Nat Jewish today and was amazed athow gracious she was (I had "signed up" for a genetic study on FamilialIPF only yesterday) I am definitely going to get an eval there. I toldthem how everyone sings their praises. She was very pleased.Dyane, Phoenix IPF 02> >> >> >> >> >> >> >> >> >> >> >> > hi carroll> > �> > my name is ken overman and i live in lompoc. i would like to meetothers in this group and this area. where do you live?> > �> > ken o.> >> >> >> >> >> > From:�Carroll Brissette <cabrissette@ gmail.com>> > To:�Breathe-Support@ yahoogroups. com> > Sent:�Monday, July 6, 2009 1:39:08 PM> > Subject:� Southern California> >> >> >> > Does anyone on the board live here? I am hoping to get on thelung�> > transplant list at Cedars Sinai Hospital in Los Angeles. I haveIPF.�> > Carroll> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 Ken, Sacramento would be great, always wanted to get that far north in CA. April would be great for me too, trying to get to National Jewish this year will tax the budget. I'm in for April. Thanks Ken, I'm a lousy chief on this things but a great helper, I can give one person a ride from Phoenix or on the way as long as we can get help putting stuff like concentrators in and out of the truck LOL. Dyane PHoenix, IPF 02 > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > hi carroll > >>>>>>> > � > >>>>>>> > my name is ken overman and i live in lompoc. i would like to meet > >>>>>>others in this group and this area. where do you live? > >>>>>>> > � > >>>>>>> > ken o. > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > From:�Carroll Brissette <cabrissette@�gmail.com> > >>>>>>> > To:�Breathe-Support@ yahoogroups. com > >>>>>>> > Sent:�Monday, July 6, 2009 1:39:08 PM > >>>>>>> > Subject:� Southern California > >>>>>>> > > >>>>>>> > > >>>>>>> > > >>>>>>> > Does anyone on the board live here? I am hoping to get on the > >>>>>>lung� > >>>>>>> > transplant list at Cedars Sinai Hospital in Los Angeles. I have > >>>>>>IPF.� > >>>>>>> > Carroll > >>>>>>> > > >>>>>>> > >>>>>> > >>>>>> > >>>>> > >>>>> > >>>>> > >>>>> > >>>> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 Ken.... we've been there, done that, (the Space Needle in Seattle). You will enjoy it. Seattle is a beautiful city and we would join in . MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Southern California> >> >> >> > Does anyone on the board live here? I am hoping to get on thelung�> > transplant list at Cedars Sinai Hospital in Los Angeles. I haveIPF.�> > Carroll> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 Ken April sounds good to me Sac is a nice area good for almonds and olives. Walt on Whidbey IPF,Nsip.Uip. 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Subject: Re: Carol and Southern CaliforniaTo: Breathe-Support Date: Monday, July 27, 2009, 10:10 AM Ken,Sacramento would be great, always wanted to get that far north in CA. April would be great for me too, trying to get to National Jewish thisyear will tax the budget. I'm in for April. Thanks Ken, I'm a lousychief on this things but a great helper, I can give one person a ridefrom Phoenix or on the way as long as we can get help putting stuff likeconcentrators in and out of the truck LOL.Dyane PHoenix, IPF 02> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> > hi carroll> >>>>>>> > �> >>>>>>> > my name is ken overman and i live in lompoc. i would like tomeet> >>>>>>others in this group and this area. where do you live?> >>>>>>> > �> >>>>>>> > ken o.> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> > From:�Carroll Brissette <cabrissette@�gmail.com>> >>>>>>> > To:�Breathe-Support@ yahoogroups. com> >>>>>>> > Sent:�Monday, July 6, 2009 1:39:08 PM> >>>>>>> > Subject:� Southern California> >>>>>>> >> >>>>>>> >> >>>>>>> >> >>>>>>> > Does anyone on the board live here? I am hoping to get onthe> >>>>>>lung�> >>>>>>> > transplant list at Cedars Sinai Hospital in Los Angeles. Ihave> >>>>>>IPF.�> >>>>>>> > Carroll> >>>>>>> >> >>>>>>>> >>>>>>> >>>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 i really do want to go to seattle and have dinner in the space needle, and if there is any way i can save $$ i'll get there, as i also have an email pen pal who lives in canada just accross the boarder and would love to meet her and her family i'll keep everyone informed ken To: Breathe-Support Sent: Monday, July 27, 2009 7:08:59 PMSubject: Re: Re: Carol and Southern California I've been ther and done that, too, but it would be a lot easier for me to meet someone in Seattle than Sacramento. I'll have to think about Sacramento and see if I can get a ride.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho Hi Miranda and Ken and CarolIt would be nice if we could do a West Coast thing....I can't get to NCand its really disappointing but CA is a definitely doable. Maybe wecan all get together sometime.Also talked to a Research doctor at Nat Jewish today and was amazed athow gracious she was (I had "signed up" for a genetic study on FamilialIPF only yesterday) I am definitely going to get an eval there. I toldthem how everyone sings their praises. She was very pleased.Dyane, Phoenix IPF 02> >> >> >> >> >> >> >> >> >> >> >> > hi carroll> > �> > my name is ken overman and i live in lompoc. i would like to meetothers in this group and this area. where do you live?> > �> > ken o.> >> >> >> >> >> > From:�Carroll Brissette <cabrissette@ gmail.com>> > To:�Breathe-Support@ yahoogroups. com> > Sent:�Monday, July 6, 2009 1:39:08 PM> > Subject:� Southern California> >> >> >> > Does anyone on the board live here? I am hoping to get on thelung�> > transplant list at Cedars Sinai Hospital in Los Angeles. I haveIPF.�> > Carroll> >> Quote Link to comment Share on other sites More sharing options...
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