Colon cancer & pain

[Guest guest]

Yes, colon cancer and metastatic disease can be extremely painful, but

burning pain. I don't think I've ever heard of that. Is that a 22 1/2 cm tumor

OUCH!!!!! Yes, that would cause lots of pain and blockage. Now with that big a

tumor he could have some serious hemorrhoid problems That would of course be a

burning kind of pain and cause unbearable pressure in the rectum. And by the

way tumors press on nerves so for them to say no way it is that is kind of

crazy. But it is hard to say whether or not it was the colonoscopy or the

cancer that has damaged the nerve.

In the meantime whatever the cause he needs pain relief. If he is on

Oxicodene and that doesn't work ask your doctor about a Fentanyl patch. Ativan

is

another drug that can help with both pain and anxiety. Just be aware that

Ativan will make him very tired as it is the active ingredient from most

sleeping

pills. But if he needs that much relief it is worth it.

For the record he can't become addicted if he is in pain. Only if you use a

drug when you no longer need it.

I think I'm rambling a little but hopefully this helps.

Take Care

Narice

In a message dated 12/16/2005 1:03:24 PM Eastern Standard Time,

kidsncritters123@... writes:

I have a question regarding colon cancer & pain. My father-in-law is stage

4 & was diagnosed approx. four months ago. My sister-in-law said his doctor

told her that colon cancer is very painful. I would like to know is it the

colon tumor itself that causes the pain or is it from met's to the bone that

is so painful? He also has involvement in the abdomen, lungs & liver. The

only pain he has is a severe burning coming from the rectum. It started on

the day he had his colonoscopy & has not gone away since. It has not gotten

any better or worse since the day it started four months ago. The week

following the test he was diagnosed with stage 4 colon cancer. His colon tumor

at

that time was approx. 2-21/2 cm. His colon was not blocked as he could still

pass stool, but doctor recommended a colostomy be put in as a preventive.

Do you think a tumor of this size could be the cause of the severe burning?

He no longer passes stool past the tumor yet the burning remains even after

the colostomy surgery. I explained in an earlier post that my father-in-law

believes that a nerve was damaged during the colonoscopy test as he felt

pain during the test & tried to pull away. He has not been the same since that

day & has become depressed because the doctors keep telling him the pain is

from the tumor not nerve damage. I have since found a support group on line

of other people with the same burning pain & all the same triggers for the

pain that my FIL has & they do not have cancer. They have a condition called

PNE pundendal nerve entrapement. If anyone knows if this type of pain is to

be expected from colon cancer or not I would appreciate hearing from you. It

would help FIL accept that his doctor is right & he needs to find a way to

cope. On the other hand if this is not common for colon cancer, it would be

valuable information for FIL to be able to demand they search further for the

cause of this unbearable burning. Thanks to all for any info you can

provide us.

Strongs,

Trase

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[Guest guest]

I have a question regarding colon cancer & pain. My father-in-law is stage 4 &

was diagnosed approx. four months ago. My sister-in-law said his doctor told

her that colon cancer is very painful. I would like to know is it the colon

tumor itself that causes the pain or is it from met's to the bone that is so

painful? He also has involvement in the abdomen, lungs & liver. The only pain

he has is a severe burning coming from the rectum. It started on the day he had

his colonoscopy & has not gone away since. It has not gotten any better or

worse since the day it started four months ago. The week following the test he

was diagnosed with stage 4 colon cancer. His colon tumor at that time was

approx. 2-21/2 cm. His colon was not blocked as he could still pass stool, but

doctor recommended a colostomy be put in as a preventive. Do you think a tumor

of this size could be the cause of the severe burning? He no longer passes

stool past the tumor yet the burning remains even after

the colostomy surgery. I explained in an earlier post that my father-in-law

believes that a nerve was damaged during the colonoscopy test as he felt pain

during the test & tried to pull away. He has not been the same since that day &

has become depressed because the doctors keep telling him the pain is from the

tumor not nerve damage. I have since found a support group on line of other

people with the same burning pain & all the same triggers for the pain that my

FIL has & they do not have cancer. They have a condition called PNE pundendal

nerve entrapement. If anyone knows if this type of pain is to be expected from

colon cancer or not I would appreciate hearing from you. It would help FIL

accept that his doctor is right & he needs to find a way to cope. On the other

hand if this is not common for colon cancer, it would be valuable information

for FIL to be able to demand they search further for the cause of this

unbearable burning. Thanks to all for any info you can

provide us.

Strongs,

Trase

__________________________________________________

[Guest guest]

Hi Narice,

Thank you for your reply. The tumor in my father-in-laws colon was 2 or 2 1/2

cm when he was diagnosed (not 22 1/2cm ouch!) Do you think a tumor of this size

would cause the burning pain I mentioned. The pain has not changed one bit in

four months. It has been the same intensity since the day it started. I have

no idea how large the tumor might be now as they have not done a follow up scan

of the colon since the original scan was done. He also has a colostomy so dont

know if the tumor is blocking anything at this point. Thanks again.

Trase

flipper759@... wrote:

Yes, colon cancer and metastatic disease can be extremely painful, but

burning pain. I don't think I've ever heard of that. Is that a 22 1/2 cm tumor

OUCH!!!!! Yes, that would cause lots of pain and blockage. Now with that big a

tumor he could have some serious hemorrhoid problems That would of course be a

burning kind of pain and cause unbearable pressure in the rectum. And by the

way tumors press on nerves so for them to say no way it is that is kind of

crazy. But it is hard to say whether or not it was the colonoscopy or the

cancer that has damaged the nerve.

In the meantime whatever the cause he needs pain relief. If he is on

Oxicodene and that doesn't work ask your doctor about a Fentanyl patch. Ativan

is

another drug that can help with both pain and anxiety. Just be aware that

Ativan will make him very tired as it is the active ingredient from most

sleeping

pills. But if he needs that much relief it is worth it.

For the record he can't become addicted if he is in pain. Only if you use a

drug when you no longer need it.

I think I'm rambling a little but hopefully this helps.

Take Care

Narice

In a message dated 12/16/2005 1:03:24 PM Eastern Standard Time,

kidsncritters123@... writes:

I have a question regarding colon cancer & pain. My father-in-law is stage

4 & was diagnosed approx. four months ago. My sister-in-law said his doctor

told her that colon cancer is very painful. I would like to know is it the

colon tumor itself that causes the pain or is it from met's to the bone that

is so painful? He also has involvement in the abdomen, lungs & liver. The

only pain he has is a severe burning coming from the rectum. It started on

the day he had his colonoscopy & has not gone away since. It has not gotten

any better or worse since the day it started four months ago. The week

following the test he was diagnosed with stage 4 colon cancer. His colon tumor

at

that time was approx. 2-21/2 cm. His colon was not blocked as he could still

pass stool, but doctor recommended a colostomy be put in as a preventive.

Do you think a tumor of this size could be the cause of the severe burning?

He no longer passes stool past the tumor yet the burning remains even after

the colostomy surgery. I explained in an earlier post that my father-in-law

believes that a nerve was damaged during the colonoscopy test as he felt

pain during the test & tried to pull away. He has not been the same since that

day & has become depressed because the doctors keep telling him the pain is

from the tumor not nerve damage. I have since found a support group on line

of other people with the same burning pain & all the same triggers for the

pain that my FIL has & they do not have cancer. They have a condition called

PNE pundendal nerve entrapement. If anyone knows if this type of pain is to

be expected from colon cancer or not I would appreciate hearing from you. It

would help FIL accept that his doctor is right & he needs to find a way to

cope. On the other hand if this is not common for colon cancer, it would be

valuable information for FIL to be able to demand they search further for the

cause of this unbearable burning. Thanks to all for any info you can

provide us.

Strongs,

Trase

__________________________________________________

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[Guest guest]

Trase, I am so sorry that your FIL is going through so much pain. And

you are so wonderful to be so supportive to him and doing all this

research.

I cannot answer a lot of your questions. But I can tell you that as

far as I know that this is not common to colon cncer. I hope that

someone here has some answers for you. I will remember to Pray for

your Father-In-Law and for you who seems to be so caring. Love, Ingrid

>

> I have a question regarding colon cancer & pain. My father-in-law

is stage 4 & was diagnosed approx. four months ago. My sister-in-law

said his doctor told her that colon cancer is very painful. I would

like to know is it the colon tumor itself that causes the pain or is

it from met's to the bone that is so painful? He also has

involvement in the abdomen, lungs & liver. The only pain he has is a

severe burning coming from the rectum. It started on the day he had

his colonoscopy & has not gone away since. It has not gotten any

better or worse since the day it started four months ago. The week

following the test he was diagnosed with stage 4 colon cancer. His

colon tumor at that time was approx. 2-21/2 cm. His colon was not

blocked as he could still pass stool, but doctor recommended a

colostomy be put in as a preventive. Do you think a tumor of this

size could be the cause of the severe burning? He no longer passes

stool past the tumor yet the burning remains even after

> the colostomy surgery. I explained in an earlier post that my

father-in-law believes that a nerve was damaged during the

colonoscopy test as he felt pain during the test & tried to pull

away. He has not been the same since that day & has become depressed

because the doctors keep telling him the pain is from the tumor not

nerve damage. I have since found a support group on line of other

people with the same burning pain & all the same triggers for the

pain that my FIL has & they do not have cancer. They have a

condition called PNE pundendal nerve entrapement. If anyone knows if

this type of pain is to be expected from colon cancer or not I would

appreciate hearing from you. It would help FIL accept that his

doctor is right & he needs to find a way to cope. On the other hand

if this is not common for colon cancer, it would be valuable

information for FIL to be able to demand they search further for the

cause of this unbearable burning. Thanks to all for any info you can

> provide us.

> Strongs,

> Trase

>

> __________________________________________________

>

[Guest guest]

Narice, thank you for explaining the Oxycodone and the Fentanyl patch not being

addictive if it is used for pain. My DH is worried about that. He was getting

too drowsy and so he went from the 50 size patch to the 25 and hopes to stop

taking it in a couple of weeks. I hope Sam doesn't have nerve damage.

Praying for everyone. Thanks for sticking around Narice. We love you.

~Deb from KS

flipper759@... wrote:

Yes, colon cancer and metastatic disease can be extremely painful, but

burning pain. I don't think I've ever heard of that. Is that a 22 1/2 cm tumor

OUCH!!!!! Yes, that would cause lots of pain and blockage. Now with that big a

tumor he could have some serious hemorrhoid problems That would of course be a

burning kind of pain and cause unbearable pressure in the rectum. And by the

way tumors press on nerves so for them to say no way it is that is kind of

crazy. But it is hard to say whether or not it was the colonoscopy or the

cancer that has damaged the nerve.

In the meantime whatever the cause he needs pain relief. If he is on

Oxicodene and that doesn't work ask your doctor about a Fentanyl patch. Ativan

is

another drug that can help with both pain and anxiety. Just be aware that

Ativan will make him very tired as it is the active ingredient from most

sleeping

pills. But if he needs that much relief it is worth it.

For the record he can't become addicted if he is in pain. Only if you use a

drug when you no longer need it.

I think I'm rambling a little but hopefully this helps.

Take Care

Narice

In a message dated 12/16/2005 1:03:24 PM Eastern Standard Time,

kidsncritters123@... writes:

I have a question regarding colon cancer & pain. My father-in-law is stage

4 & was diagnosed approx. four months ago. My sister-in-law said his doctor

told her that colon cancer is very painful. I would like to know is it the

colon tumor itself that causes the pain or is it from met's to the bone that

is so painful? He also has involvement in the abdomen, lungs & liver. The

only pain he has is a severe burning coming from the rectum. It started on

the day he had his colonoscopy & has not gone away since. It has not gotten

any better or worse since the day it started four months ago. The week

following the test he was diagnosed with stage 4 colon cancer. His colon tumor

at

that time was approx. 2-21/2 cm. His colon was not blocked as he could still

pass stool, but doctor recommended a colostomy be put in as a preventive.

Do you think a tumor of this size could be the cause of the severe burning?

He no longer passes stool past the tumor yet the burning remains even after

the colostomy surgery. I explained in an earlier post that my father-in-law

believes that a nerve was damaged during the colonoscopy test as he felt

pain during the test & tried to pull away. He has not been the same since that

day & has become depressed because the doctors keep telling him the pain is

from the tumor not nerve damage. I have since found a support group on line

of other people with the same burning pain & all the same triggers for the

pain that my FIL has & they do not have cancer. They have a condition called

PNE pundendal nerve entrapement. If anyone knows if this type of pain is to

be expected from colon cancer or not I would appreciate hearing from you. It

would help FIL accept that his doctor is right & he needs to find a way to

cope. On the other hand if this is not common for colon cancer, it would be

valuable information for FIL to be able to demand they search further for the

cause of this unbearable burning. Thanks to all for any info you can

provide us.

Strongs,

Trase

__________________________________________________

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[Guest guest]

I love you all too and that's why I stay. It is painful sometimes but Phil

and I so wanted to see this damned cancer end for him for you and for those in

the future.

Merry Christmas & Happy Hanukah to all of you

Narice

In a message dated 12/16/2005 11:05:57 PM Eastern Standard Time,

flytodeb@... writes:

Narice, thank you for explaining the Oxicodene and the Fentanyl patch not

being addictive if it is used for pain. My DH is worried about that. He was

getting too drowsy and so he went from the 50 size patch to the 25 and hopes to

stop taking it in a couple of weeks. I hope Sam doesn't have nerve damage.

Praying for everyone. Thanks for sticking around Narice. We love you.

~Deb from KS

flipper759@... wrote:

Yes, colon cancer and metastatic disease can be extremely painful, but

burning pain. I don't think I've ever heard of that. Is that a 22 1/2 cm

tumor

OUCH!!!!! Yes, that would cause lots of pain and blockage. Now with that

big a

tumor he could have some serious hemorrhoid problems That would of course

be a

burning kind of pain and cause unbearable pressure in the rectum. And by

the

way tumors press on nerves so for them to say no way it is that is kind of

crazy. But it is hard to say whether or not it was the colonoscopy or the

cancer that has damaged the nerve.

In the meantime whatever the cause he needs pain relief. If he is on

Oxicodene and that doesn't work ask your doctor about a Fentanyl patch.

Ativan is

another drug that can help with both pain and anxiety. Just be aware that

Ativan will make him very tired as it is the active ingredient from most

sleeping

pills. But if he needs that much relief it is worth it.

For the record he can't become addicted if he is in pain. Only if you use a

drug when you no longer need it.

I think I'm rambling a little but hopefully this helps.

Take Care

Narice

In a message dated 12/16/2005 1:03:24 PM Eastern Standard Time,

kidsncritters123@... writes:

I have a question regarding colon cancer & pain. My father-in-law is

stage

4 & was diagnosed approx. four months ago. My sister-in-law said his

doctor

told her that colon cancer is very painful. I would like to know is it the

colon tumor itself that causes the pain or is it from met's to the bone

that

is so painful? He also has involvement in the abdomen, lungs & liver.

The

only pain he has is a severe burning coming from the rectum. It started on

the day he had his colonoscopy & has not gone away since. It has not

gotten

any better or worse since the day it started four months ago. The week

following the test he was diagnosed with stage 4 colon cancer. His colon

tumor at

that time was approx. 2-21/2 cm. His colon was not blocked as he could

still

pass stool, but doctor recommended a colostomy be put in as a preventive.

Do you think a tumor of this size could be the cause of the severe burning?

He no longer passes stool past the tumor yet the burning remains even after

the colostomy surgery. I explained in an earlier post that my

father-in-law

believes that a nerve was damaged during the colonoscopy test as he felt

pain during the test & tried to pull away. He has not been the same since

that

day & has become depressed because the doctors keep telling him the pain

is

from the tumor not nerve damage. I have since found a support group on

line

of other people with the same burning pain & all the same triggers for the

pain that my FIL has & they do not have cancer. They have a condition

called

PNE pundendal nerve entrapement. If anyone knows if this type of pain is

to

be expected from colon cancer or not I would appreciate hearing from you.

It

would help FIL accept that his doctor is right & he needs to find a way to

cope. On the other hand if this is not common for colon cancer, it would

be

valuable information for FIL to be able to demand they search further for

the

cause of this unbearable burning. Thanks to all for any info you can

provide us.

Strongs,

Trase

__________________________________________________

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Tired of spam? Yahoo! Mail has the best spam protection around

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[Non-text portions of this message have been removed]

[Guest guest]

Dear Joyce,

Thank you for responding to my post & sharing your moving & personal account

of what you & your husband went through searching for answers to his unbearable

pain. I am so sorry for the loss of your husband. I can not imagine the pain

of loosing ones partner & best friend. You must look at life in a completely

different way now. Your life will never be the same & you may always long for

what you lost. As time passes you will not forget or get over the loss, but you

will be able to look back & smile remembering that you were very blessed to have

shared your lives together for whatever length of time it was. The love you

shared lives on & you must honor it by living your life to the fullest. It is

because of that love that you have become who you are today. I know that it

would be so easy to just give in to despair & withdraw from the world, but you

have not chosen to do that. You have turned that pain around and are using it

to help others on this journey. God bless you.

Sincerely,

Trase

Joyce wrote:

Trace,

My husband had a similar pain as your father in law. He complained

constantly and we could not get anyone to pay a lot of attention to

him.

The surgeon had advised a colostomy at the time of the original

surgery to remove the tumor. , refused and paid the price for

3 years. He finally got so sick and the pain was uncontrollable

even with morphine and the pain patch. It finally got so bad that

on Thanksgiving Day we had to help him to my car and lay him down to

get him to the hospital. He almost died and had to have

transfusions and finally the dreaded colostomy.

He sailed along for a few months and we thought we had the pain

licked. We were wrong, it was back with a vengance.

He had to be admitted again and this time they found what was

causing the pain. He had developed a fistula and a abscess.

He battled the fistula for two more years until his death.

The only real relief he got was to use a sitz bath and he would do

that day and night. The problem was that once he got off the sitz

the paid was immedately back.

I am going to make a long story short, after several admissions, the

radiologist went in and guided a tube into the badly abscessed part

and put a tube in so that it could drain it and relieve the

pressure. He had a tube about 12 " long and a bulb hanging off of

that. They taught me how to empty the bulb and inject saline water

up into the fistula to clean it out. We did this four times a day.

We had to go to the hospital every 2 weeks and they would put him

out for about five minutes and replace the tube.

We did this for about 9 months. We were there so much they called

us frequent fliers.

They finally got it to a point where it quit draining and he got it

removed. I felt so sorry for him because he could not get

comfortable. His colostomy was on the left side and the drain and

bulb on the right side. There was just not a good way for him to

lay down and get a good nights sleep.

Unfortunately we lost him two months after the drain was removed.

This may not be your FIL's problem but I would insist that his

doctor talk to the Radiologist and run some test's to see if this is

what he may have going on.

I don't know if you have ever had a boil, but they fill up and hurt

until you get them lanced. The fistula is very similar, except that

they can form many tunnels off of each other.

Long story short, the drain was a pain in the neck, but at least it

relieved the pressure.

I don't know if I am making any sense right now because this is my

first Christmas without my Best Friend and Husband and I am not

dealing with it as well as I thought I would.

I would be happy to answer any question you might have. It may not

even be a abscess of fistula but it is worth asking his doctors

about.

Best Wishes,

Joyce

>

> I have a question regarding colon cancer & pain. My father-in-law

is stage 4 & was diagnosed approx. four months ago. My sister-in-

law said his doctor told her that colon cancer is very painful. I

would like to know is it the colon tumor itself that causes the pain

or is it from met's to the bone that is so painful? He also has

involvement in the abdomen, lungs & liver. The only pain he has is

a severe burning coming from the rectum. It started on the day he

had his colonoscopy & has not gone away since. It has not gotten

any better or worse since the day it started four months ago. The

week following the test he was diagnosed with stage 4 colon cancer.

His colon tumor at that time was approx. 2-21/2 cm. His colon was

not blocked as he could still pass stool, but doctor recommended a

colostomy be put in as a preventive. Do you think a tumor of this

size could be the cause of the severe burning? He no longer passes

stool past the tumor yet the burning remains even after

> the colostomy surgery. I explained in an earlier post that my

father-in-law believes that a nerve was damaged during the

colonoscopy test as he felt pain during the test & tried to pull

away. He has not been the same since that day & has become

depressed because the doctors keep telling him the pain is from the

tumor not nerve damage. I have since found a support group on line

of other people with the same burning pain & all the same triggers

for the pain that my FIL has & they do not have cancer. They have a

condition called PNE pundendal nerve entrapement. If anyone knows

if this type of pain is to be expected from colon cancer or not I

would appreciate hearing from you. It would help FIL accept that

his doctor is right & he needs to find a way to cope. On the other

hand if this is not common for colon cancer, it would be valuable

information for FIL to be able to demand they search further for the

cause of this unbearable burning. Thanks to all for any info you can

> provide us.

> Strongs,

> Trase

>

> __________________________________________________

>