Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Ok yall, I called the oncologist about Joe's ct scan and asked if he couldnt give them a look over, I absolutely have no faith whatsover in our primary. Onc. said nothing to be alarmed about no cancer, that the stuff in mediastinum is thickening of tissue, that we will keep an eye out on next exam in feb, but as for right now everything looks great So we aint gonna worry about it then!!!!!!!!!!! Sorry I havent replied sooner , our darn puter died after an update from dell, after 5 days of talking to tech support on phone and having a guy come out and replace motherboard and memory they are sending us a new one! We had only had it for 6 months and all was still warrantied Dani goes in for an MRI on Sunday at 6am, she has been having dizzy spells , and tremendous shoulder/arm pain , and headaches again so not sure what exactly is going on there, we know its somehow connected to either the Chiari or the syrinx in spine but unsure of which is causing it. More importantly not sure how to make it stop!She is bumming she says " I had brain surgery and it didnt even help " poor baby. We HAVE GOT TO put up our Christmas tree tomorrow!!! We are ALL DONE shopping , wrapping and even got stocking stuffers done!! But no tree or decorations around house up lol. Hope all is well with everyone Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Deb, I am happy that Joe has some good news. Now to find out what is causing all the problems. The poor man. I am Praying for him. I feel so bad for Dani. So young and has already gone through more then she should of. Praying hard that they can get her some relief. Hopefully it will be something minor. You are going through so much yourself Deb. Hope you are doing good things for yourself and getting lots of rest. So sorry you are having to deal with all this at once. God will get you and your family through this. Love, Ingrid > > Ok yall, I called the oncologist about Joe's ct scan and asked if he couldnt give them a look over, I absolutely have no faith whatsover in our primary. > Onc. said nothing to be alarmed about no cancer, > that the stuff in mediastinum is thickening of tissue, that we will keep an eye out on next exam in feb, but as for right now everything looks great > So we aint gonna worry about it then!!!!!!!!!!! > Sorry I havent replied sooner , our darn puter died after an update from dell, after 5 days of talking to tech support on phone and having a guy come out and replace motherboard and memory they are sending us a new one! > We had only had it for 6 months and all was still warrantied > Dani goes in for an MRI on Sunday at 6am, she has been having dizzy spells , and tremendous shoulder/arm pain , and headaches again so not sure what exactly is going on there, we know its somehow connected to either the Chiari or the syrinx in spine but unsure of which is causing it. More importantly not sure how to make it stop!She is bumming she says " I had brain surgery and it didnt even help " poor baby. > > We HAVE GOT TO put up our Christmas tree tomorrow!!! > We are ALL DONE shopping , wrapping and even got stocking stuffers done!! > But no tree or decorations around house up lol. > > > Hope all is well with everyone > Deb > > > 33yrold husband Joe, was diagnosed with CC in Sept, > resection on Sept 27th 2004 > found mets to the abdominal wall lining 3 lymph nodes involved > open wound from infection until Jan 2005 > Ileostomy reversal Dec 7th 2004 > Chemo regiment begun Jan 2005 > 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines > Calcium Magnesium added for the Tingles Feb 28 2005 > Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found > April 1 2005 PET scan done awaiting results > April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > May 9 Plateletts are low 75,000 > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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