Re: Re: Prednisone and the other stinky med!

[Guest guest]

when first diagnosed i coughed up lots of stuff

eventually that stopped

i used to thnk it was because of theprednisone

since learningthat nac might be used in nebulizers

i wonder if its the nac that got rid of the stuff that i used to cough up;

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Prednisone and the other stinky med!To: Breathe-Support Date: Wednesday, July 22, 2009, 9:00 PM

Joyce,

It's actually not a vitamin, it's an amino acid. (amino acids are the building blocks of protein) There has been some limited research that has shown some benefit to pulmonary fibrosis patients. There is controversy about whether the benefit is from the NAC or from the drugs that are most often given with it.

One thing that is not controversial is this. NAC can help to liquify any phelgm that's hanging out in your lungs so that you can cough it up easily. It's also a great anti-oxidant and can help protect your body from the damage that can be done to to treatment with steroids or things like Imuran.

Many of us have been told it's fine to take it. It might help and it can't hurt to try. Some people (like me) can't take it because it can be tough on the stomach, especially if you already have problems with reflux (as I do). If you take it it's probably a good idea to do so on a full stomach.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, July 22, 2009 8:38:43 PMSubject: Re: Re: Prednisone and the other stinky med!

What exactly is NAC? I was told to buy it by my new pulmodude but then Dr. Cosgrove from Jewish said I don't need it. I don't understand what it is..I know it is a vitamin but don't understand what it is supposed to do with our lungs. Joyce Rudy A birds

Re: Prednisone and the other stinky med!

CSher's point wasn't just price. The non-prescription pills are notcovered by insurance but are available reasonably and without the tasteof the liquid. You can also get pills formulated by a compoundingpharmacy. Some insurance does and some insurance doesn't cover that.> > > > >> > > > > Good morning,> > > > > I've been on 40mg prednisone for over a week now and didn'tmind> > how> > > > > it made me feel, like I was well again! But what are

wesupposed> > to> > > > > do about sleep?> > > > >> > > > > Thanks,> > > > > C 53 IPF 5/09> > > > >> > > >> > >> >>

[Guest guest]

when the prescription plan refused to pay forthe liquid, the pulmonary doc told me to contacgt the vitamin shoppe or gnc

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Prednisone and the other stinky med!To: Breathe-Support Date: Wednesday, July 22, 2009, 1:39 PM

. .... the pill form (I'm not sure about the liquid) of NAC can also be purchased at www.Puritan. com for a very reasonable price.

Many here order from there.

I had to stop NAC pills due to severe stomach pain. Be sure and take with food!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Prednisone and the other stinky med!

CNAC is available in pill form from health food stores and suppliers toavoid the liquid rotten egg taste.> > >> > > Good morning,> > > I've been on 40mg prednisone for over a week now and didn't mindhow> > > it made me feel, like I was well again! But what are we supposedto> > > do about sleep?> > >> > > Thanks,> > > C 53 IPF 5/09> > >> >>

[Guest guest]

Pink, Actually I have gone through the coughing up "STUFF" about three times and it lasts for at least a few week. Then seems I get a break for a few months.Odd thing is I didn't have a cough at all until 2 or 3 years after diagnosis. I can't do the NAC for tummy trouble but I do take sudafed, pearls and anything else to dry up my nose. netti pot helps too. My sinuses are my biggest challenge. I am right now going through times (3 or 4 a day) of such a hard coughing FIT. my back and ribs are like a root canal. That alone wears me out.I don't know how strong I am until something comes up that I get to GOOOO.. LOL I so enjoyed myself yesterday. Slept really well last night too. HAd Elisa's puppy on my mind all evening. I know I would be devastated if that were me. Wow I am gabby today..lolLove and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. when first diagnosed i coughed up lots of stuff eventually that stopped i used to thnk it was because of theprednisone since learningthat nac might be used in nebulizers i wonder if its the nac that got rid of the stuff that i used to cough up; Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- On Wed, 7/22/09, Beth <mbmurtha (AT) yahoo (DOT) com> wrote: From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: Prednisone and the other stinky med!To: Breathe-Support Date: Wednesday, July 22, 2009, 9:00 PM Joyce, It's actually not a vitamin, it's an amino acid. (amino acids are the building blocks of protein) There has been some limited research that has shown some benefit to pulmonary fibrosis patients. There is controversy about whether the benefit is from the NAC or from the drugs that are most often given with it. One thing that is not controversial is this. NAC can help to liquify any phelgm that's hanging out in your lungs so that you can cough it up easily. It's also a great anti-oxidant and can help protect your body from the damage that can be done to to treatment with steroids or things like Imuran. Many of us have been told it's fine to take it. It might help and it can't hurt to try. Some people (like me) can't take it because it can be tough on the stomach, especially if you already have problems with reflux (as I do). If you take it it's probably a good idea to do so on a full stomach. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, July 22, 2009 8:38:43 PMSubject: Re: Re: Prednisone and the other stinky med! What exactly is NAC? I was told to buy it by my new pulmodude but then Dr. Cosgrove from Jewish said I don't need it. I don't understand what it is..I know it is a vitamin but don't understand what it is supposed to do with our lungs. Joyce Rudy A birds Re: Prednisone and the other stinky med! CSher's point wasn't just price. The non-prescription pills are notcovered by insurance but are available reasonably and without the tasteof the liquid. You can also get pills formulated by a compoundingpharmacy. Some insurance does and some insurance doesn't cover that.> > > > >> > > > > Good morning,> > > > > I've been on 40mg prednisone for over a week now and didn'tmind> > how> > > > > it made me feel, like I was well again! But what are wesupposed> > to> > > > > do about sleep?> > > > >> > > > > Thanks,> > > > > C 53 IPF 5/09> > > > >> > > >> > >> >>

[Guest guest]

I mix my mine with Orange Juice. I loved what you said about the smell and you are right.

Subject: Re: Prednisone and the other stinky med!To: Breathe-Support Date: Wednesday, July 22, 2009, 1:25 AM

I'll tell you what that NAC is some nasty stuff. The smell alone could clear a room of skunks! What do you mix yours with? I've been using grape juice.C> >> > Good morning,> > I've been on 40mg prednisone for over a week now and didn't mind how> > it made me feel, like I was well again! But what are we supposed to> > do about sleep?> >> > Thanks,> > C 53 IPF 5/09>

>>

[Guest guest]

I just moved from a large two-story house with full basement and a walk-up attic buiilt in 1915. I was the second owner because the builder's daughter lived in the house until her death at 96. That was when I bought it.

The five years plus that I lived in the house I had long wracking coughing fits daily, sometimes up to four times, and a constantly running nose. This was both in summer and winter. Each left me with an explosive headache

and a weakened condition.

I have lived in my apartment for nearly a month now and guess what? I rarely cough, and if I do it is short

and soft. My nose no longer runs. The apartment is in what used to be the city's high school, built around 1930. The exterior walls are about three feet thick of stone. Why have I suddenly stopped coughing and

gave up my drippy nose?

When the house was empty, one could see the masses of dust that were hidden by the furniture, rugs, etc.

It was every where, including the narrow crevices cut into the wood work. It wasn't very visible to the

casual eye, and although we cleaned frequently it accumulated.

I have no doubt that this accumulated dust was the culprit. From now on I will have my residence pro-

fessional cleaned at least once a month and everything will be removed - books from the cases, paintings from the wall, etc., so no dust can accumulate.

I hope my little story will help some of you. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support@...Sent: Thursday, July 23, 2009 10:50:36 AMSubject: Re: Re: Prednisone and the other stinky med!

when first diagnosed i coughed up lots of stuff

eventually that stopped

i used to thnk it was because of theprednisone

since learningthat nac might be used in nebulizers

i wonder if its the nac that got rid of the stuff that i used to cough up;

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: Prednisone and the other stinky med!To: Breathe-Support@ yahoogroups. comDate: Wednesday, July 22, 2009, 9:00 PM

Joyce,

It's actually not a vitamin, it's an amino acid. (amino acids are the building blocks of protein) There has been some limited research that has shown some benefit to pulmonary fibrosis patients. There is controversy about whether the benefit is from the NAC or from the drugs that are most often given with it.

One thing that is not controversial is this. NAC can help to liquify any phelgm that's hanging out in your lungs so that you can cough it up easily. It's also a great anti-oxidant and can help protect your body from the damage that can be done to to treatment with steroids or things like Imuran.

Many of us have been told it's fine to take it. It might help and it can't hurt to try. Some people (like me) can't take it because it can be tough on the stomach, especially if you already have problems with reflux (as I do). If you take it it's probably a good idea to do so on a full stomach.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, July 22, 2009 8:38:43 PMSubject: Re: Re: Prednisone and the other stinky med!

What exactly is NAC? I was told to buy it by my new pulmodude but then Dr. Cosgrove from Jewish said I don't need it. I don't understand what it is..I know it is a vitamin but don't understand what it is supposed to do with our lungs. Joyce Rudy A birds

Re: Prednisone and the other stinky med!

CSher's point wasn't just price. The non-prescription pills are notcovered by insurance but are available reasonably and without the tasteof the liquid. You can also get pills formulated by a compoundingpharmacy. Some insurance does and some insurance doesn't cover that.> > > > >> > > > > Good morning,> > > > > I've been on 40mg prednisone for over a week now and didn'tmind> > how> > > > > it made me feel, like I was well again! But what are wesupposed> > to> > > > > do about sleep?> > > > >> > > > > Thanks,> > > > > C 53 IPF 5/09> > > > >> > > >> > >>

>>

[Guest guest]

Jack,

That is very very interesting. I'm so glad you're feeling better and it's amazing how something so simple that one doesn't even notice on a day to day basis can affect us.

I think you're solution of getting someone in to clean thoroughly is a good one. We've got someone great down here that comes in once every two weeks to do the heavy cleaning that neither I nor my Mom can do anymore.

So glad you're feeling better!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thursday, July 23, 2009 5:39:33 PMSubject: Re: Re: Prednisone and the other stinky med!

I just moved from a large two-story house with full basement and a walk-up attic buiilt in 1915. I was the second owner because the builder's daughter lived in the house until her death at 96. That was when I bought it.

The five years plus that I lived in the house I had long wracking coughing fits daily, sometimes up to four times, and a constantly running nose. This was both in summer and winter. Each left me with an explosive headache

and a weakened condition.

I have lived in my apartment for nearly a month now and guess what? I rarely cough, and if I do it is short

and soft. My nose no longer runs. The apartment is in what used to be the city's high school, built around 1930. The exterior walls are about three feet thick of stone. Why have I suddenly stopped coughing and

gave up my drippy nose?

When the house was empty, one could see the masses of dust that were hidden by the furniture, rugs, etc.

It was every where, including the narrow crevices cut into the wood work. It wasn't very visible to the

casual eye, and although we cleaned frequently it accumulated.

I have no doubt that this accumulated dust was the culprit. From now on I will have my residence pro-

fessional cleaned at least once a month and everything will be removed - books from the cases, paintings from the wall, etc., so no dust can accumulate.

I hope my little story will help some of you. Jack79/IPF - UIP/dx06/05 Maine

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. .comSent: Thursday, July 23, 2009 10:50:36 AMSubject: Re: Re: Prednisone and the other stinky med!

when first diagnosed i coughed up lots of stuff

eventually that stopped

i used to thnk it was because of theprednisone

since learningthat nac might be used in nebulizers

i wonder if its the nac that got rid of the stuff that i used to cough up;

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: Prednisone and the other stinky med!To: Breathe-Support@ yahoogroups. comDate: Wednesday, July 22, 2009, 9:00 PM

Joyce,

It's actually not a vitamin, it's an amino acid. (amino acids are the building blocks of protein) There has been some limited research that has shown some benefit to pulmonary fibrosis patients. There is controversy about whether the benefit is from the NAC or from the drugs that are most often given with it.

One thing that is not controversial is this. NAC can help to liquify any phelgm that's hanging out in your lungs so that you can cough it up easily. It's also a great anti-oxidant and can help protect your body from the damage that can be done to to treatment with steroids or things like Imuran.

Many of us have been told it's fine to take it. It might help and it can't hurt to try. Some people (like me) can't take it because it can be tough on the stomach, especially if you already have problems with reflux (as I do). If you take it it's probably a good idea to do so on a full stomach.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, July 22, 2009 8:38:43 PMSubject: Re: Re: Prednisone and the other stinky med!

What exactly is NAC? I was told to buy it by my new pulmodude but then Dr. Cosgrove from Jewish said I don't need it. I don't understand what it is..I know it is a vitamin but don't understand what it is supposed to do with our lungs. Joyce Rudy A birds

Re: Prednisone and the other stinky med!

CSher's point wasn't just price. The non-prescription pills are notcovered by insurance but are available reasonably and without the tasteof the liquid. You can also get pills formulated by a compoundingpharmacy. Some insurance does and some insurance doesn't cover that.> > > > >> > > > > Good morning,> > > > > I've been on 40mg prednisone for over a week now and didn'tmind> > how> > > > > it made me feel, like I was well again! But what are wesupposed> > to> > > > > do about sleep?> > > > >> > > > > Thanks,> > > > > C 53 IPF 5/09> > > > >> > > >> > >>

>>