Re: PS Marie

December 22, 2005

Oh yes, another thing Marie. You can't worry about the side effects.

Anything that has occurred in others they technically have to warn you about -

it always occurs on a per person basis of course. While neuropathy is rather

common, you will see how it affects you. It is not usually painful - but odd -

cold sensations can be intolerable the days of chemo and after - for some it

goes away in a few days - for others it lasts longer - mine had a cumulative

effect and the more treatments I went through the longer it would last on

subsequent treatments. I was always thirsty then too but yet couldn't drink cold

drinks - I would get ready for my chemo days by having foods to snack on that

weren't cold - and line up bottled drinks at room temperature. My neuropathy

(numbness only in fingers/toes) has lasted until even now (I am 5 months past

end of chemo) and I am a little uncoordinated in fine motor skills. However it

is fading - I do believe it will go away. I know that for some

it can be permanent. BUT, since you don't know how you will be affected - you

should leave that out of your decision. Just trying to help clarify that

aspect.

Take care again, A.M

Love Pat

flytodeb wrote:

Marie, hang in there. Take it one day at a time. You can fight this and

beat it. God help you.

~Deb from KS

" A. M. Werling " wrote:

Dear Ingrid, Thank you for your words of

encouragement; it was just what I needed. It was a

down day today. Prayers do help. I feel God has been

watching and steering me along. That I had the

colonoscopy when I did, that I found the surgeon that

I did, and that I found this group. With your help,

hopefully I will get through this journey.

With grateful hugs,

Marie

> I am so torn. At first my thought was Stage 2 is a

> treatable cancer, save the big guns (Avastin). Then

> I

> read where stage 2 appeared again even with chemo

> but

> without avastin. I am so worried about the

> neuropathy

> with the oxipl (sp?) and also perforations or a hole

> in the bowel with Avastin. And I am worried that

> this

> thing will come back no matter what.

>

> , Please do not worry so much about the

> neuropathy with the

> Oxi. I was on it and yes, there is tingling in the

> hands and

> sometimes feet when touching things cooler then room

> temperature.

> This only lasts for a couple of days after the

> infusion. You will

> only get the drug on your first day of each chemo

> treatment. The

> sensations will and do go away in between the chemo

> treatments. The

> sensations are bearable. They are NOT painful just

> rather a surprised

> sensation. It is a minor inconveniance compared to

> all the good the

> Oxi can do in making sure the cancer does not come

> back.

> I know and understand that you would rather not be

> in this

> situation to begin with. We all feel this way. But

> this is the next

> best step.

> I understand your fears of always thinking that

> the cancer may come

> back. We all have that fear. It is part of the

> roller coaster ride

> that we all go through with this cancer scare. You

> can only put your

> trust in God and Pray!!!

> Your chances of it NOT coming back are very good.

> And more so with

> the chemo!!!! I have heard that in a normal human

> life time 1 in 3

> will get cancer. Think of it this way. You got it

> and it's over with

> so live well and enjoy life. At least now you are in

> doctors care and

> more watchful for it. If it by some small chance

> dose come back it

> will be caught in a early stage that is curable.

> Just stay with us on this group and talk about

> your fears. It

> helps!!!!!

> Praying for YOU!!!!

> Love, Ingrid

__________________________________________________

December 22, 2005

Hi Pat,

I agree with all that you put in this post, but I have

a comment. I am on my 7th infusion and the funniest

thing happened. The day of the infusion (Tuesday) I

started having the return of the neuropathies before

going in to the infusion clinic. Of course that could

not be caused by the chemo, so there must be some

mental process involved that brings it on. Mine is

mostly hands and feet, but I also have a pain that

happens around my jaw and all three of these came back

Tuesday morning. They are actually much better now,

especially if I stay reclined and covered up, warm.

Len

--- MP Ford wrote:

---------------------------------

Oh yes, another thing Marie. You can't worry

about the side effects. Anything that has occurred in

others they technically have to warn you about - it

always occurs on a per person basis of course. While

neuropathy is rather common, you will see how it

affects you. It is not usually painful - but odd -

cold sensations can be intolerable the days of chemo

and after - for some it goes away in a few days - for

others it lasts longer - mine had a cumulative effect

and the more treatments I went through the longer it

would last on subsequent treatments. I was always

thirsty then too but yet couldn't drink cold drinks -

I would get ready for my chemo days by having foods to

snack on that weren't cold - and line up bottled

drinks at room temperature. My neuropathy (numbness

only in fingers/toes) has lasted until even now (I am

5 months past end of chemo) and I am a little

uncoordinated in fine motor skills. However it is

fading - I do believe it will go away. I know that

for some

it can be permanent. BUT, since you don't know how

you will be affected - you should leave that out of

your decision. Just trying to help clarify that