Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Hi Marie I haven't responded to any of your requests, because there are SO many people on here with wealths of knowledge - way more than me. I was so devastated when I was diagnosed and started with treatment right away (like the next day - Stage 3 invasive) that I was just like a sleepwalker. They communicated with my husband, not me - I wasn't absorbing anything. I commend your strength and participation in this journey I just wanted to say, when we were offered a study - we agonized over it - called the docs back - tried to see what was best - it was just overwhelming to decide what to do. My husband and I talked it over - and we decided NOT to participate. I just wanted to share this opinion and tell you why - not that it would be the best thing for you - you can make that decision - but to give you another perspective. We decided if they added something " new " or let's say - unproved as to additional benefits for my staging, there could be some " possible " benefit - but unknown to us. Also, we would NOT know which " arm " of the study we would be in. Yet the " new " treatment that is being trialed - the doctor has the option to use anyway, right (because they are always FDA approved to even be in the study.) I/we decided - although it may be selfish on our part - we wanted the doctor to decide how SHE wanted to treat me - and obviously she would use the best known treatment to her. I wanted the doc to be the final decision on the treatment as she would know best at that point in time. Just another perspective for you. We sure agonized and were confused at that point in time. good luck, you seem like a very strong woman. Way better than me at that stage of the game. Keep busy - and keep your mind busy - try to rest. Happy Holidays. God Bless, Pat flytodeb wrote: Marie, hang in there. Take it one day at a time. You can fight this and beat it. God help you. ~Deb from KS " A. M. Werling " wrote: Dear Ingrid, Thank you for your words of encouragement; it was just what I needed. It was a down day today. Prayers do help. I feel God has been watching and steering me along. That I had the colonoscopy when I did, that I found the surgeon that I did, and that I found this group. With your help, hopefully I will get through this journey. With grateful hugs, Marie > I am so torn. At first my thought was Stage 2 is a > treatable cancer, save the big guns (Avastin). Then > I > read where stage 2 appeared again even with chemo > but > without avastin. I am so worried about the > neuropathy > with the oxipl (sp?) and also perforations or a hole > in the bowel with Avastin. And I am worried that > this > thing will come back no matter what. > > , Please do not worry so much about the > neuropathy with the > Oxi. I was on it and yes, there is tingling in the > hands and > sometimes feet when touching things cooler then room > temperature. > This only lasts for a couple of days after the > infusion. You will > only get the drug on your first day of each chemo > treatment. The > sensations will and do go away in between the chemo > treatments. The > sensations are bearable. They are NOT painful just > rather a surprised > sensation. It is a minor inconveniance compared to > all the good the > Oxi can do in making sure the cancer does not come > back. > I know and understand that you would rather not be > in this > situation to begin with. We all feel this way. But > this is the next > best step. > I understand your fears of always thinking that > the cancer may come > back. We all have that fear. It is part of the > roller coaster ride > that we all go through with this cancer scare. You > can only put your > trust in God and Pray!!! > Your chances of it NOT coming back are very good. > And more so with > the chemo!!!! I have heard that in a normal human > life time 1 in 3 > will get cancer. Think of it this way. You got it > and it's over with > so live well and enjoy life. At least now you are in > doctors care and > more watchful for it. If it by some small chance > dose come back it > will be caught in a early stage that is curable. > Just stay with us on this group and talk about > your fears. It > helps!!!!! > Praying for YOU!!!! > Love, Ingrid __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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