Re: PF Awareness- Grass Root Campaign! / Peggy

[Guest guest]

Ms. Peggy,

Where do I send the check?? As would say...GRIN.....

Thank you so much for your kind words. You have no idea how much I miss

everyone....but I am fortunate to have a great job as Executive Director of the

Pulmonary Fibrosis Foundation and can do my small part to help find a cure for

this dreaded disease. Trust me you all are NEVER far from my thoughts and

prayers. If you think about it, you all are the reason I do what I do....God has

blessed me in so many ways.

Jan, we have a local tshirt place that I can contact to see what kind of pricing

we can get for a large qty of blue shirts. If you'd like to send me a design

(not my area of expertise...), I'd be happy to do that when I get back from

vacation August 3. Or if you have a place....

Peggy, I LOVE YOU TOO!

Leanne

>

> Jan I think this is a wonderful idea. Blue is a heavenly color.

> Might I say for all the newbies who haven't spoken with or don't know

> Leanne.. She is one of the most AWESOME people you

> will ever meet. Can you imagine, working for PF Foundation, talking

> to patients and broken hearted family members DAILY

> then to BE A PATIENT HERSELF.. She is the most giving person I have

> ever met. She started this board and was on full time when I started

> a month or so after and we have lost a little spice because this

> rotten monster of a disease keeps her busy.. i MISS her.

>

> Leanne, I love YOU. (((((((((((((((^^))))))))))))))

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> Worry looks around,

> Sorry looks back,

> Faith looks up.

>

>

> 

>

>

>

> Leanne S. and I have talked off and on about raising awareness in

> various ways and some of us in Texas wanted to see, if the rest of

> the country wanted to join in on wearing Blue T-shirts on Fridays?

> With all the other better known disease groups using pink and red and

> every other color, we settled on Blue because of the color our lungs

> become without oxygen.

>

> If enough people are interested we can even design our own shirt or

> just keep it simple and put a " slogan " on it...like 'Pulmonary

> Fibrosis...it takes your breath away'. We are totally open and would

> like your suggestions on this grass roots project....I think it is

> something everyone can do, and sooner or later, when people start

> noticing others in Blue T-Shirts they will start asking us what is

> PF? When we see a pink ribbon on a shirt we just know it is for

> Breast Cancer Awareness....if we all band together we can make Blue

> for PF as well known too:)

>

> We would love to hear your thoughts...What do you think?!

>

> {Leanne, thank you for your support and permission in sharing this

> idea with everyone online! Between the Pulmonary Fibrosis Foundation

> in Chicago, the Coalition for Pulmonary Fibrosis in California and

> the Pulmonary Fibrosis Association in Texas, we can all make a

> difference in helping to raise awareness of a disease that no one

> still hears about.

>

> Jan

>

[Guest guest]

Leanne & Jan, I just this minute thought about a girl that grew up with my daughter that has her own t shirt business. She has done quite a few Major sport team shirts. AND for the first time in probably 8 or 9 years she contacted me to say Hi on facebook. If you are going to bid this t-shirt thing out I'll see what she may do for us. Let me know Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Ms. Peggy, Where do I send the check?? As would say...GRIN..... Thank you so much for your kind words. You have no idea how much I miss everyone....but I am fortunate to have a great job as Executive Director of the Pulmonary Fibrosis Foundation and can do my small part to help find a cure for this dreaded disease. Trust me you all are NEVER far from my thoughts and prayers. If you think about it, you all are the reason I do what I do....God has blessed me in so many ways. Jan, we have a local tshirt place that I can contact to see what kind of pricing we can get for a large qty of blue shirts. If you'd like to send me a design (not my area of expertise...), I'd be happy to do that when I get back from vacation August 3. Or if you have a place.... Peggy, I LOVE YOU TOO! Leanne > > Jan I think this is a wonderful idea. Blue is a heavenly color. > Might I say for all the newbies who haven't spoken with or don't know > Leanne.. She is one of the most AWESOME people you > will ever meet. Can you imagine, working for PF Foundation, talking > to patients and broken hearted family members DAILY > then to BE A PATIENT HERSELF.. She is the most giving person I have > ever met. She started this board and was on full time when I started > a month or so after and we have lost a little spice because this > rotten monster of a disease keeps her busy.. i MISS her. > > Leanne, I love YOU. (((((((((((((((^^)))))))))))))) > > > Love and Prayers, Peggy > IPF 2004, Florida > > Worry looks around, > Sorry looks back, > Faith looks up. > > >  > > > > Leanne S. and I have talked off and on about raising awareness in > various ways and some of us in Texas wanted to see, if the rest of > the country wanted to join in on wearing Blue T-shirts on Fridays? > With all the other better known disease groups using pink and red and > every other color, we settled on Blue because of the color our lungs > become without oxygen. > > If enough people are interested we can even design our own shirt or > just keep it simple and put a "slogan" on it...like 'Pulmonary > Fibrosis...it takes your breath away'. We are totally open and would > like your suggestions on this grass roots project....I think it is > something everyone can do, and sooner or later, when people start > noticing others in Blue T-Shirts they will start asking us what is > PF? When we see a pink ribbon on a shirt we just know it is for > Breast Cancer Awareness....if we all band together we can make Blue > for PF as well known too:) > > We would love to hear your thoughts...What do you think?! > > {Leanne, thank you for your support and permission in sharing this > idea with everyone online! Between the Pulmonary Fibrosis Foundation > in Chicago, the Coalition for Pulmonary Fibrosis in California and > the Pulmonary Fibrosis Association in Texas, we can all make a > difference in helping to raise awareness of a disease that no one > still hears about. > > Jan >

[Guest guest]

Hey! Last Friday I posted a cause on my fb Help Find A Cure For Idiopathic Pulmonary Fibrosis. Last Friday night before I went to bed, I checked and 75 people had signed up. Tonight, we have about 950 signed up. This is raising awaremess and those people have heard the word "pulmonary fibrosis". There have been some who posted on the site, too, who had lost loved ones to the disease. People can also make a contribution to the Pulmonary Fibrosis Foundation and over $231.00 dollars has been contributed. If any of these people hear the word again anywhere, they will know about it.

Bruce, you haven't even joined my cause!

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> > > > Leanne S. and I have talked off and on about raising awareness in > > various ways and some of us in Texas wanted to see, if the rest of > > the country wanted to join in on wearing Blue T-shirts on Fridays? > > With all the other better known disease groups using pink and red and > > every other color, we settled on Blue because of the color our lungs > > become without oxygen.> > > > If enough people are interested we can even design our own shirt or > > just keep it simple and put a "slogan" on it...like 'Pulmonary > > Fibrosis...it takes your breath away'. We are totally open and would > > like your suggestions on this grass roots project....I think it is > > something everyone can do, and sooner or later, when people start > > noticing others in Blue T-Shirts they will start asking us what is > > PF? When we see a pink ribbon on a shirt we just know it is for > > Breast Cancer Awareness....if we all band together we can make Blue > > for PF as well known too:)> > > > We would love to hear your thoughts...What do you think?!> > > > {Leanne, thank you for your support and permission in sharing this > > idea with everyone online! Between the Pulmonary Fibrosis Foundation > > in Chicago, the Coalition for Pulmonary Fibrosis in California and > > the Pulmonary Fibrosis Association in Texas, we can all make a > > difference in helping to raise awareness of a disease that no one > > still hears about.> > > > Jan> >>