Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 What is her name? Sorry no brains today LOL In a message dated 12/22/2005 5:28:02 PM Eastern Standard Time, debbied31@... writes: Ok yall , my daughter is in need of prayers again , we just got the MRI results back and they said her syrinx in spinal canal has grown , and the doc just called and said he wants to see her on the 6th of Jan , because it looks like the Chiari is back What does this mean more surgery??? no idea will let you know more when we find out In the meantime could you say a prayer for her, she is in daily pain , poor baby , says she hasnt felt " well " in over 7months. I just want her pain to go away dang it Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 --------------------------------- Yahoo! for Good - Make a difference this year. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Ok yall , my daughter is in need of prayers again , we just got the MRI results back and they said her syrinx in spinal canal has grown , and the doc just called and said he wants to see her on the 6th of Jan , because it looks like the Chiari is back What does this mean more surgery??? no idea will let you know more when we find out In the meantime could you say a prayer for her, she is in daily pain , poor baby , says she hasnt felt " well " in over 7months. I just want her pain to go away dang it Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 --------------------------------- Yahoo! for Good - Make a difference this year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Deb, this is awful for her....we want her pain to go away also. You guys will be in my prayers....hugs and prayers ~~ donna deb vamdembos wrote: Ok yall , my daughter is in need of prayers again , we just got the MRI results back and they said her syrinx in spinal canal has grown , and the doc just called and said he wants to see her on the 6th of Jan , because it looks like the Chiari is back What does this mean more surgery??? no idea will let you know more when we find out In the meantime could you say a prayer for her, she is in daily pain , poor baby , says she hasnt felt " well " in over 7months. I just want her pain to go away dang it Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 --------------------------------- Yahoo! for Good - Make a difference this year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Deb, I just checked in to find this at the top of the list on the board. I'll pray very hard tonight for her, poor sweet girl, what a lot to have to handle so young.And for you too. Do take care of yourself if you can, if even in small ways. Love, Fran > > Ok yall , my daughter is in need of prayers again , we just got the MRI results back and they said her syrinx in spinal canal has grown , and the doc just called and said he wants to see her on the 6th of Jan , because it looks like the Chiari is back > What does this mean more surgery??? no idea will let you know more when we find out > In the meantime could you say a prayer for her, she is in daily pain , poor baby , says she hasnt felt " well " in over 7months. > I just want her pain to go away dang it > > Deb > > > 33yrold husband Joe, was diagnosed with CC in Sept, > resection on Sept 27th 2004 > found mets to the abdominal wall lining 3 lymph nodes involved > open wound from infection until Jan 2005 > Ileostomy reversal Dec 7th 2004 > Chemo regiment begun Jan 2005 > 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines > Calcium Magnesium added for the Tingles Feb 28 2005 > Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found > April 1 2005 PET scan done awaiting results > April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > May 9 Plateletts are low 75,000 > > > > > > --------------------------------- > Yahoo! for Good - Make a difference this year. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Deb, My heart goes out to poor Dani!!! I am sending strong prayers up for her as well as Joe and your whole family. God Bless that poor little girl and all she has had to endure. Love, Ingrid > > Ok yall , my daughter is in need of prayers again , we just got the MRI results back and they said her syrinx in spinal canal has grown , and the doc just called and said he wants to see her on the 6th of Jan , because it looks like the Chiari is back > What does this mean more surgery??? no idea will let you know more when we find out > In the meantime could you say a prayer for her, she is in daily pain , poor baby , says she hasnt felt " well " in over 7months. > I just want her pain to go away dang it > > Deb > > > 33yrold husband Joe, was diagnosed with CC in Sept, > resection on Sept 27th 2004 > found mets to the abdominal wall lining 3 lymph nodes involved > open wound from infection until Jan 2005 > Ileostomy reversal Dec 7th 2004 > Chemo regiment begun Jan 2005 > 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines > Calcium Magnesium added for the Tingles Feb 28 2005 > Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found > April 1 2005 PET scan done awaiting results > April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > May 9 Plateletts are low 75,000 > > > > > > --------------------------------- > Yahoo! for Good - Make a difference this year. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Her name is le but she goes by Dani , always has , I suspect she always will How are you and the boys doing hun? Deb flipper759@... wrote: What is her name? Sorry no brains today LOL In a message dated 12/22/2005 5:28:02 PM Eastern Standard Time, debbied31@... writes: Ok yall , my daughter is in need of prayers again , we just got the MRI results back and they said her syrinx in spinal canal has grown , and the doc just called and said he wants to see her on the 6th of Jan , because it looks like the Chiari is back What does this mean more surgery??? no idea will let you know more when we find out In the meantime could you say a prayer for her, she is in daily pain , poor baby , says she hasnt felt " well " in over 7months. I just want her pain to go away dang it Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! May 9 Plateletts are low 75,000 --------------------------------- Yahoo! for Good - Make a difference this year. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
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