Re: PF Awareness- Grass Root Campaign!

[Guest guest]

Jan I think this is a wonderful idea. Blue is a heavenly color.Might I say for all the newbies who haven't spoken with or don't know Leanne.. She is one of the most AWESOME people youwill ever meet. Can you imagine, working for PF Foundation, talking to patients and broken hearted family members DAILYthen to BE A PATIENT HERSELF.. She is the most giving person I have ever met. She started this board and was on full time when I starteda month or so after and we have lost a little spice because this rotten monster of a disease keeps her busy.. i MISS her. Leanne, I love YOU. (((((((((((((((^^)))))))))))))) Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness....if we all band together we can make Blue for PF as well known too:) We would love to hear your thoughts...What do you think?! {Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about. Jan

[Guest guest]

Jan,

I also think this is a terrific idea and it's something most everyone could start doing immediately. Who doesn't have some kind of blue shirt in their wardrobe? When we get printed t-shirts we can wear them but we can also start where we are and tomorrow I will wear a blue t-shirt and get started!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thursday, July 23, 2009 4:06:41 PMSubject: PF Awareness- Grass Root Campaign!

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)We would love to hear your

thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

I think this sounds great and I love the slogan....when it gets to the tee shirt I'll sure by one or two.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

PF Awareness- Grass Root Campaign!

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness....if we all band together we can make Blue for PF as well known too:)We would love to hear your thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

I'd be happy to buy a couple of t-shirts, and proud to wear them!

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Thursday, July 23, 2009 5:11:04 PMSubject: Re: PF Awareness- Grass Root Campaign!

I think this sounds great and I love the slogan....when it gets to the tee shirt I'll sure by one or two.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

PF Awareness- Grass Root Campaign!

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)We would love to hear your

thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

I would also like to lend my support to this, I would get 2-3 t-shirts and wear

them on Fridays. I only do my laundry every 2-3 weeks. Lung Disease is such a

Major Problem Today and Nobody seems to Know About IT... This Is A Great Start.

Good Breathing and Have a Great Day, Tom

>

> Leanne S. and I have talked off and on about raising awareness in various ways

and some of us in Texas wanted to see, if the rest of the country wanted to join

in on wearing Blue T-shirts on Fridays? With all the other better known disease

groups using pink and red and every other color, we settled on Blue because of

the color our lungs become without oxygen.

>

> If enough people are interested we can even design our own shirt or just keep

it simple and put a " slogan " on it...like 'Pulmonary Fibrosis...it takes your

breath away'. We are totally open and would like your suggestions on this grass

roots project....I think it is something everyone can do, and sooner or later,

when people start noticing others in Blue T-Shirts they will start asking us

what is PF? When we see a pink ribbon on a shirt we just know it is for Breast

Cancer Awareness....if we all band together we can make Blue for PF as well

known too:)

>

> We would love to hear your thoughts...What do you think?!

>

> {Leanne, thank you for your support and permission in sharing this idea with

everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the

Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis

Association in Texas, we can all make a difference in helping to raise awareness

of a disease that no one still hears about.

>

> Jan

>

[Guest guest]

I'll do 5 to 10. Love that idea Jan and Leane. I was wanting something special to wear on the bike ride in October.

Jerry/Mississippi/54/IPF/dc A;ril 05Who believes that hard times help us appreciate the good times even more.

Subject: Re: PF Awareness- Grass Root Campaign!To: Breathe-Support Date: Thursday, July 23, 2009, 9:16 PM

I'd be happy to buy a couple of t-shirts, and proud to wear them!

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, July 23, 2009 5:11:04 PMSubject: Re: PF Awareness- Grass Root Campaign!

I think this sounds great and I love the slogan....when it gets to the tee shirt I'll sure by one or two.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

PF Awareness- Grass Root Campaign!

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)We would love to hear your

thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

I want mine NOW.. I have 3 daughters and 3 sons-in-law and 8

grandchildren so I need to order 16 in all the sizes you have LOL

GREAT IDEA!

Dyane Phoenix IPF 02

>

> Leanne S. and I have talked off and on about raising awareness in

various ways and some of us in Texas wanted to see, if the rest of the

country wanted to join in on wearing Blue T-shirts on Fridays? With all

the other better known disease groups using pink and red and every other

color, we settled on Blue because of the color our lungs become without

oxygen.

>

> If enough people are interested we can even design our own shirt or

just keep it simple and put a " slogan " on it...like 'Pulmonary

Fibrosis...it takes your breath away'. We are totally open and would

like your suggestions on this grass roots project....I think it is

something everyone can do, and sooner or later, when people start

noticing others in Blue T-Shirts they will start asking us what is PF?

When we see a pink ribbon on a shirt we just know it is for Breast

Cancer Awareness....if we all band together we can make Blue for PF as

well known too:)

>

> We would love to hear your thoughts...What do you think?!

>

> {Leanne, thank you for your support and permission in sharing this

idea with everyone online! Between the Pulmonary Fibrosis Foundation in

Chicago, the Coalition for Pulmonary Fibrosis in California and the

Pulmonary Fibrosis Association in Texas, we can all make a difference in

helping to raise awareness of a disease that no one still hears about.

>

> Jan

>

[Guest guest]

Jan,I, too will wear blue tomorrow!Great idea.Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

Lady Slipper OrchidSubject: Re: PF Awareness- Grass Root Campaign!To: Breathe-Support Date: Thursday, July 23, 2009, 4:56 PM

 

Jan,

I also think this is a terrific idea and it's something most everyone could start doing immediately. Who doesn't have some kind of blue shirt in their wardrobe?  When we get printed t-shirts we can wear them but we can also start where we are and tomorrow I will wear a blue t-shirt and get started! 

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Jan <Jan3145 (AT) aol (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, July 23, 2009 4:06:41 PMSubject: PF Awareness- Grass Root Campaign! 

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it....like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness.... .if we all band together we can make Blue for PF as well known too:)We would love to hear your

thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

Love the idea of blue and love the slogan, can we use the acorn too? You can

sign me up for a bunch of those shirts, I would sell them at the senior citizens

center and even the grocery store and send the proceeds to either the Chicago

Foundation or one of the many pulmonary centers (my favorites are the Mayo

Clinic and National Jewish, but then we all have our preferences). It needs to

be brought to the forefront. I have already sent letters to the Utah delegates

reviewing the current pulmonary bill in committee.

Stefani

ILD 2/2006, NSIP (cellular) 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

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> Subject: Re: PF Awareness- Grass Root Campaign!

> To: Breathe-Support

> Date: Thursday, July 23, 2009, 9:16 PM

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> I'd be happy to buy a couple of t-shirts, and proud to wear them!

> B

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> Barbara McD

> IPF, Sept 08

> Beautiful Western NC

>  

>  

>  

> Let us not become weary in doing good, for at the proper time we will reap a

harvest if we do not give up.  Galatians 6:9

>  

>

>

>

>

>

>

> From: Sher Bauman <bofus (AT) wbcable (DOT) net>

> To: Breathe-Support@ yahoogroups. com

> Sent: Thursday, July 23, 2009 5:11:04 PM

> Subject: Re: PF Awareness- Grass Root Campaign!

>

>  

>

>

> I think this sounds great and I love the slogan....when it gets to the tee

shirt I'll sure by one or two.

> MamaSher; 70,  IPF 3-06, OR.  

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

>

> PF Awareness- Grass Root Campaign!

>

>  

>

> Leanne S. and I have talked off and on about raising awareness in various ways

and some of us in Texas wanted to see, if the rest of the country wanted to join

in on wearing Blue T-shirts on Fridays? With all the other better known disease

groups using pink and red and every other color, we settled on Blue because of

the color our lungs become without oxygen.

>

> If enough people are interested we can even design our own shirt or just keep

it simple and put a " slogan " on it...like 'Pulmonary Fibrosis...it takes your

breath away'. We are totally open and would like your suggestions on this grass

roots project....I think it is something everyone can do, and sooner or later,

when people start noticing others in Blue T-Shirts they will start asking us

what is PF? When we see a pink ribbon on a shirt we just know it is for Breast

Cancer Awareness... .if we all band together we can make Blue for PF as well

known too:)

>

> We would love to hear your thoughts...What do you think?!

>

> {Leanne, thank you for your support and permission in sharing this idea with

everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the

Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis

Association in Texas, we can all make a difference in helping to raise awareness

of a disease that no one still hears about.

>

> Jan

>

[Guest guest]

SAME HERE...GO BLUE!

        JOE/JOANIE

JOE 60 IPF1/2008 GRIFFIN, GA.

There are only 2 ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.

-- PF Awareness- Grass Root Campaign!

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it....like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness.... .if we all band together we can make Blue for PF as well known too:)We would love to hear your thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

>

> Leanne S. and I have talked off and on about raising awareness in various ways

and some of us in Texas wanted to see, if the rest of the country wanted to join

in on wearing Blue T-shirts on Fridays? With all the other better known disease

groups using pink and red and every other color, we settled on Blue because of

the color our lungs become without oxygen.

>

> If enough people are interested we can even design our own shirt or just keep

it simple and put a " slogan " on it...like 'Pulmonary Fibrosis...it takes your

breath away'. We are totally open and would like your suggestions on this grass

roots project....I think it is something everyone can do, and sooner or later,

when people start noticing others in Blue T-Shirts they will start asking us

what is PF? When we see a pink ribbon on a shirt we just know it is for Breast

Cancer Awareness....if we all band together we can make Blue for PF as well

known too:)

>

> We would love to hear your thoughts...What do you think?!

I think this is a GREAT idea. I would definately buy shirts if you do this.

Last summer I bought 30 of the white bracelets from Pulmonary Fibrosis and sold

them at work, and to friends and family. I still wear my bracelet, never take

it off. My daughter and one of my sons also wear theirs everyday.

I will start wearing blue shirts on Friday. Hope this works out.

Jo Ann 53 MI UIP 9/07

>

> {Leanne, thank you for your support and permission in sharing this idea with

everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the

Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis

Association in Texas, we can all make a difference in helping to raise awareness

of a disease that no one still hears about.

>

> Jan

>

[Guest guest]

"Breathe" Awareness Bracelets

http://store.helpfightpf.com/merchant2/merchant.mvc?Screen=PROD & Store_Code=HLPFGH & Product_Code=SBL & Category_Code=BRCLTS

Here is Tee shirt but I don't really like the design and it is not BLUE

http://store.helpfightpf.com/merchant2/merchant.mvc?Screen=PROD & Store_Code=HLPFGH & Product_Code=PFFTEE & Category_Code=TEES

P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 10 LPM 8/04, PH 3/06, ILL yo 61REMEMBER : All of you on Prednisone'stressed' spelled backwards is 'desserts'

Subject: Re: PF Awareness- Grass Root Campaign!To: Breathe-Support Date: Thursday, July 23, 2009, 6:08 PM

I want mine NOW.. I have 3 daughters and 3 sons-in-law and 8grandchildren so I need to order 16 in all the sizes you have LOL GREAT IDEA!Dyane Phoenix IPF 02>> Leanne S. and I have talked off and on about raising awareness invarious ways and some of us in Texas wanted to see, if the rest of thecountry wanted to join in on wearing Blue T-shirts on Fridays? With allthe other better known disease groups using pink and red and every othercolor, we settled on Blue because of the color our lungs become withoutoxygen.>> If enough people are interested we can even design our own shirt orjust keep it simple and put a "slogan" on it...like

'PulmonaryFibrosis...it takes your breath away'. We are totally open and wouldlike your suggestions on this grass roots project....I think it issomething everyone can do, and sooner or later, when people startnoticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for BreastCancer Awareness... .if we all band together we can make Blue for PF aswell known too:)>> We would love to hear your thoughts...What do you think?!>> {Leanne, thank you for your support and permission in sharing thisidea with everyone online! Between the Pulmonary Fibrosis Foundation inChicago, the Coalition for Pulmonary Fibrosis in California and thePulmonary Fibrosis Association in Texas, we can all make a difference inhelping to raise awareness of a disease that no one still hears about.>>

Jan>

[Guest guest]

here are some quick ideas excel files hope they can be opened P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 10 LPM 8/04, PH 3/06, ILL yo 61REMEMBER : All of you on Prednisone'stressed' spelled backwards is 'desserts'Subject: Re: PF Awareness- Grass Root Campaign!To:

Breathe-Support Date: Thursday, July 23, 2009, 6:08 PM

I want mine NOW.. I have 3 daughters and 3 sons-in-law and 8

grandchildren so I need to order 16 in all the sizes you have LOL

GREAT IDEA!

Dyane Phoenix IPF 02

>

> Leanne S. and I have talked off and on about raising awareness in

various ways and some of us in Texas wanted to see, if the rest of the

country wanted to join in on wearing Blue T-shirts on Fridays? With all

the other better known disease groups using pink and red and every other

color, we settled on Blue because of the color our lungs become without

oxygen.

>

> If enough people are interested we can even design our own shirt or

just keep it simple and put a "slogan" on it...like 'Pulmonary

Fibrosis...it takes your breath away'. We are totally open and would

like your suggestions on this grass roots project....I think it is

something everyone can do, and sooner or later, when people start

noticing others in Blue T-Shirts they will start asking us what is PF?

When we see a pink ribbon on a shirt we just know it is for Breast

Cancer Awareness... .if we all band together we can make Blue for PF as

well known too:)

>

> We would love to hear your thoughts...What do you think?!

>

> {Leanne, thank you for your support and permission in sharing this

idea with everyone online! Between the Pulmonary Fibrosis Foundation in

Chicago, the Coalition for Pulmonary Fibrosis in California and the

Pulmonary Fibrosis Association in Texas, we can all make a difference in

helping to raise awareness of a disease that no one still hears about.

>

> Jan

>

3 of 3 File(s)

breath away.xlsx

breath away-3.xlsx

breath away-2.xlsx

[Guest guest]

That sounds like a good idea to me and I like the slogan.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: PF Awareness- Grass Root Campaign!To: Breathe-Support Date: Thursday, July 23, 2009, 1:06 PM

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen.

If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)

We would love to hear your thoughts...What do you think?!

{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.

Jan