Re: Re: Jack

[Guest guest]

Peggy: So THAT'S what did it......

;-)

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Thursday, July 23, 2009 6:12:05 PMSubject: Re: JackWOW Jack I can not imagine life without a drippy nose. Good for you. My house is only 5 years old but I do know I would love to have a DEEP cleaning done. Maybe I'll hit the lottery one of these days.. LOL these days cleaning ladies want huge amounts of money to get to play with our dirt.. My daughter is coming up for a week before long so It will get done..

Congrats on your new dust free home. I have always wondered where all the dirt comes from right after I have dusted.. made me nuts..

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

I just moved from a large two-story house with full basement and a walk-up attic buiilt in 1915. I was the second owner because the builder's daughter lived in the house until her death at 96. That was when I bought it.

The five years plus that I lived in the house I had long wracking coughing fits daily, sometimes up to four times, and a constantly running nose. This was both in summer and winter. Each left me with an explosive headache

and a weakened condition.

I have lived in my apartment for nearly a month now and guess what? I rarely cough, and if I do it is short

and soft. My nose no longer runs. The apartment is in what used to be the city's high school, built around 1930. The exterior walls are about three feet thick of stone. Why have I suddenly stopped coughing and

gave up my drippy nose?

When the house was empty, one could see the masses of dust that were hidden by the furniture, rugs, etc.

It was every where, including the narrow crevices cut into the wood work. It wasn't very visible to the

casual eye, and although we cleaned frequently it accumulated.

I have no doubt that this accumulated dust was the culprit. From now on I will have my residence pro-

fessional cleaned at least once a month and everything will be removed - books from the cases, paintings from the wall, etc., so no dust can accumulate.

I hope my little story will help some of you. Jack79/IPF - UIP/dx06/05 Maine

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. .comSent: Thursday, July 23, 2009 10:50:36 AMSubject: Re: Re: Prednisone and the other stinky med!

when first diagnosed i coughed up lots of stuff

eventually that stopped

i used to thnk it was because of theprednisone

since learningthat nac might be used in nebulizers

i wonder if its the nac that got rid of the stuff that i used to cough up;

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: Prednisone and the other stinky med!To: Breathe-Support@ yahoogroups. comDate: Wednesday, July 22, 2009, 9:00 PM

Joyce,

It's actually not a vitamin, it's an amino acid. (amino acids are the building blocks of protein) There has been some limited research that has shown some benefit to pulmonary fibrosis patients. There is controversy about whether the benefit is from the NAC or from the drugs that are most often given with it.

One thing that is not controversial is this. NAC can help to liquify any phelgm that's hanging out in your lungs so that you can cough it up easily. It's also a great anti-oxidant and can help protect your body from the damage that can be done to to treatment with steroids or things like Imuran.

Many of us have been told it's fine to take it. It might help and it can't hurt to try. Some people (like me) can't take it because it can be tough on the stomach, especially if you already have problems with reflux (as I do). If you take it it's probably a good idea to do so on a full stomach.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, July 22, 2009 8:38:43 PMSubject: Re: Re: Prednisone and the other stinky med!

What exactly is NAC? I was told to buy it by my new pulmodude but then Dr. Cosgrove from Jewish said I don't need it. I don't understand what it is..I know it is a vitamin but don't understand what it is supposed to do with our lungs. Joyce Rudy A birds

Re: Prednisone and the other stinky med!

CSher's point wasn't just price. The non-prescription pills are notcovered by insurance but are available reasonably and without the tasteof the liquid. You can also get pills formulated by a compoundingpharmacy. Some insurance does and some insurance doesn't cover that.> > > > >> > > > > Good morning,> > > > > I've been on 40mg prednisone for over a week now and didn'tmind> > how> > > > > it made me feel, like I was well again! But what are wesupposed> > to> > > > > do about sleep?> > > > >> > > > >

Thanks,> > > > > C 53 IPF 5/09> > > > >> > > >> > >> >>