Re: Medically supervised exercise

[Guest guest]

It doesnt matter its the trying to do it thats important and what I would do is

take some pamplets with you next time or print outs from computer about this

awful IPF that way they will learn.

I also have copd before the IPF came up and I found if I just tried to do more

each time it helped. They told me I would never walk again and I just kept

trying walk two steps then go back then the next time I would walk three and go

back ect got where I could walk to the bathroom without help then we started

around the block...went so far then went back then made it further got where I

could go around the entire long block finnally but took me to long at least I

felt it did. made it much easier when I got my O2...

It really was scary when we had to travel to Phenix and I had ten tanks with us

but we had a rental and we could turn the air where it only went to the back and

it kept that area really cold and we were comfortable...I just got off the phone

from son in Buckeye who is moving today and said it was only 116...at least he

has the five teenagers to help...

Thank you all for being so informed and helpful and letting us new peeps learn

from you...when I was first told about IPF after biopsey I got all the info I

could find but was still in the dark about alot of things..I have to find a new

pulmonary as mine left and the place she is working wont take my insurance ....I

live in Oildale california across the kern river from bakersfield and we are

half way between fresno and lost angels..

hugs and blessings everyone

merry

[Guest guest]

Joyce,

First of all, don't be discouraged by what others may say or appear to think. Take that goal of 1 mile in 6 months and break it down more. Maybe you can do 1/2 mile in 3 months or 4 months. Use step goals that are reasonable, then build on these easier goals. Four years ago I couldn't stand at the sink to brush my teeth following my biopsy. Talk little steps and then look back in 6 months, and you may see some surprising progress.

Also, working out on the treadmill lets you exercise with the least strss on your heart of any other exercise, and it will build your stamina faster, and in a more measurable way than other exercises. Your legs actually help your heart pumb blood throughout your body. Other forms of exertion such as lifting weights may in time build unneeded muscles; I say that because for us with IPF, we need as little extra body mass for our lungs to have to oxygenate. Just to look at the extreme, those big wrestlers and football players are really not healthy for the long haul. Sure they can lift and toss much more than we could ever do, but they have increased their chances of an unhealthy enlarged heart in time. If you do decide to work out using resistance weights or other body-building exercises, make it very minimal. We are like a moon rocket; We don't need that extra weight to have to fuel up for. Use your leg muscles as much as you can in a good

comfortable walk which allows your O2 level to stay above 90% or higher. Start very gradually and don't set goals that push you too much. And don't tire yourself to the point that it keeps you from the usual every-day routine you are used to. Add just a little more to your walk week by week and start slow.

As you walk, occasionally breathe in deeply and then breathe out pursing your lips. Do you at first 4 years when I began walking, I used 5 liters per minute to maintain a good O2 level at 2.5 MPH. I was very discouraged, but stayed with it. And don't even try to spend your life like I do as a gerble, walking 6 miles a day.

Exercise, even if all you do is 1/2 mile daily, helps you mentally as well as physically. Exercise is said to help our brains release indorphins, which helps us feel happier and less worried. And over time as you continue to exercise, your heart will become more efficient, and thus itself requiring less oxygen to do the same job, and that in turn takes the load off your lungs. By choosing to exercise as you have, you will have one more tool to help you stay healthy, inasmuchas it is possible with IPF. Be realistic, and set small achievable goals. Take good care.

Jerry/Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more.

Subject: Medically supervised exerciseTo: "Breathe-Support" <Breathe-Support >Date: Friday, July 31, 2009, 6:47 PM

I just had my first visit to the Pendelton Center which has medically supervised exercises. It is NOT pulmonary rehab but they take your O2 and blood pressure and your blood sugar many times while you are there. They have all sorts of machines...some resistance and some not. They had to stop me on the Treadmill because my oxygen went too low and my heart rate jumped too high. Odd that I had that reaction just to the treadmill. Anyway they wanted some goals for me and I said to "Maintain" what I have and I saw that depressed them so I said "To be able to walk a mile in 6 months." I don't think I will ever reach this goal and didn't know how to explain to them that just maintaining where I am is the realistic goal and that even with exercise it is possible I will get worse...they didn't seem to understand what my problem is. And, I was wondering if people with COPD actually were able to do this...increase their ability to do things

as a result of exercises? Unless my fibrosis goes away I probably will never be able to walk a mile again. So, in a way the encounter depressed me when maintaining what I have was seen as a failure attitude. Joyce Rudy AZ Birds

[Guest guest]

Merry,

One thing I am finding out about this group is that we are all over-achievers. You must be really proud of what you have accomplished.

Jerry?Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more.

Subject: Re: Medically supervised exerciseTo: Breathe-Support Date: Friday, July 31, 2009, 7:22 PM

It doesnt matter its the trying to do it thats important and what I would do is take some pamplets with you next time or print outs from computer about this awful IPF that way they will learn.I also have copd before the IPF came up and I found if I just tried to do more each time it helped. They told me I would never walk again and I just kept trying walk two steps then go back then the next time I would walk three and go back ect got where I could walk to the bathroom without help then we started around the block...went so far then went back then made it further got where I could go around the entire long block finnally but took me to long at least I felt it did. made it much easier when I got my O2...It really was scary when we had to travel to Phenix and I had ten tanks with us but we had a rental and we could turn the air where it only went to the back and it kept that area really cold and we were comfortable. ..I just got off

the phone from son in Buckeye who is moving today and said it was only 116...at least he has the five teenagers to help...Thank you all for being so informed and helpful and letting us new peeps learn from you...when I was first told about IPF after biopsey I got all the info I could find but was still in the dark about alot of things..I have to find a new pulmonary as mine left and the place she is working wont take my insurance ....I live in Oildale california across the kern river from bakersfield and we are half way between fresno and lost angels..hugs and blessings everyonemerry

[Guest guest]

Joyce,

Just one more thing: As always check with your doctor about your over-all health and be sure there are no medical reasons to restrict physical exertion. Have fun.

Jerry/Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more.

Subject: Medically supervised exerciseTo: "Breathe-Support" <Breathe-Support >Date: Friday, July 31, 2009, 6:47 PM

I just had my first visit to the Pendelton Center which has medically supervised exercises. It is NOT pulmonary rehab but they take your O2 and blood pressure and your blood sugar many times while you are there. They have all sorts of machines...some resistance and some not. They had to stop me on the Treadmill because my oxygen went too low and my heart rate jumped too high. Odd that I had that reaction just to the treadmill. Anyway they wanted some goals for me and I said to "Maintain" what I have and I saw that depressed them so I said "To be able to walk a mile in 6 months." I don't think I will ever reach this goal and didn't know how to explain to them that just maintaining where I am is the realistic goal and that even with exercise it is possible I will get worse...they didn't seem to understand what my problem is. And, I was wondering if people with COPD actually were able to do this...increase their ability to do things

as a result of exercises? Unless my fibrosis goes away I probably will never be able to walk a mile again. So, in a way the encounter depressed me when maintaining what I have was seen as a failure attitude. Joyce Rudy AZ Birds

[Guest guest]

Yes, Jerry, I sure am going to have fun! I loved it when I went. Before I got sick I was so active and I very much missed the feeling of my muscles being worked and now I can have it again! Also hoping to lose weight. Joyce Rudy AZ birds

Medically supervised exerciseTo: "Breathe-Support" <Breathe-Support >Date: Friday, July 31, 2009, 6:47 PM

I just had my first visit to the Pendelton Center which has medically supervised exercises. It is NOT pulmonary rehab but they take your O2 and blood pressure and your blood sugar many times while you are there. They have all sorts of machines...some resistance and some not. They had to stop me on the Treadmill because my oxygen went too low and my heart rate jumped too high. Odd that I had that reaction just to the treadmill. Anyway they wanted some goals for me and I said to "Maintain" what I have and I saw that depressed them so I said "To be able to walk a mile in 6 months." I don't think I will ever reach this goal and didn't know how to explain to them that just maintaining where I am is the realistic goal and that even with exercise it is possible I will get worse...they didn't seem to understand what my problem is. And, I was wondering if people with COPD actually were able to do this...increase their ability to do things as a result of exercises? Unless my fibrosis goes away I probably will never be able to walk a mile again. So, in a way the encounter depressed me when maintaining what I have was seen as a failure attitude. Joyce Rudy AZ Birds

[Guest guest]

: Good for you! Long ago, I heard a phrase that has always stayed with me: "The hardest part of exercise is lacing up your shoes." That still holds true for me.

Regards,

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Saturday, August 1, 2009 12:46:28 PMSubject: Re: Re: Medically supervised exercise

Bruce, My treadmill is in the den right next to my recliner!That's an example of opposites isn't it! But it's in my face all the time!When I really can't do the walking it's there to remind me to get better enoughto start over!The "gym rat" title was given to me by my daughter . As a much younger person I really was inactiveexcept for running after 3 kids, taking care of Mike and the house! When I got to about 50, I began being plagued by a bad back.(Sacroiliac) At first the thoughts were.rest,.. sit still, take pain meds,heating pad, and the pain will be less. Then when that reallydidn't work I was sent to my PC's chiropractor who had me start walking slowly around my dining room table in one minute increments. After about two weeks of doing that daily he said.." Ten minutes is all you need to loosen up your jointsbut any

more will really help your health in general..I joined the local "Y". I've been walking ever since..except for the NSIP and all the other medical stuff that's come down the pike in the past 15 years!!!I had to stop going to the "Y" because I kept getting sick from there after the DX in 2005.I use my own stuff at home when ever I can!I do daily stretches from a book I found, I use 1 pound weights and I keep trying every day.That is when my body feels it can.At times it seems as if I'm losing the battle but the treadmill sits in the den and stares at me!!! The one minute at a time is still from the original chiropractor!

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Bruce Moreland wrote:

Oh great for you. It's amazing how most wouldn't think of what you'redescribing as much. But 5 minutes versus 4 is a 25% increase. We sooften do set unreasonable goals for ourselves instead of just doing whatwe can or very slight improvement. My mental health counselor use topush a concept of 1%. Are you 1% better this week than last? Seems solittle but adds up so fast. I was never a gym rat. Hated the treadmilland the concept of walking a mile or two and getting nowhere. But now, Ienjoy it. Whatever I'm able to do on it, I get pleasure from knowing I'mhelping myself and just proving I still can. I'm not comparing myself toanyone else, just doing what I can. My treadmill isn't hidden off in acorner somewhere. It's right here in the family room/dining area behindthe sectional, facing the tv.For those who can't do the treadmill there's still walking. I rememberGwynne doing laps in her

house with her rehab therapist. I remember herbeing so proud she did 12 laps. Well, look at what keeping her body upthe best as she could did for her. So, if you do need to choose to walkoutside or walk around the house even, do it in some accountable way sothat you can both make sure you do it and be proud because you did. Itcould be I'm going to the mall and park at one end, walk to the otherand back, three times per week. If thats it, just make sure you do it.> > >> > > I just had my first visit to the Pendelton Center which has> > medically> > supervised exercises. It is NOT pulmonary rehab but they takeyour O2> > and blood pressure and your blood sugar many times while you are> > there.> > They have all sorts of machines...some resistance and some not.> > They had> > to stop me on the Treadmill because my oxygen went too low andmy> > heart> > rate

jumped too high. Odd that I had that reaction just to the> > treadmill. Anyway they wanted some goals for me and I said to> > "Maintain"> > what I have and I saw that depressed them so I said "To be ableto> > walk> > a mile in 6 months." I don't think I will ever reach this goaland> > didn't know how to explain to them that just maintaining where Iam is> > the realistic goal and that even with exercise it is possible I> > will get> > worse...they didn't seem to understand what my problem is. And,I was> > wondering if people with COPD actually were able to dothis...increase> > their ability to do things as a result of exercises? Unless my> > fibrosis> > goes away I probably will never be able to walk a mile again.So, in a> > way the encounter depressed me when maintaining what I have

was> > seen as> > a failure attitude. Joyce Rudy AZ Birds> > >> >> >>

[Guest guest]

Mine is next to sectional which includes four recliners....lol. But

isn't that appropriate. We do need to get adequate rest and not overdo

while at the same time we need to exercise.

> > > > >

> > > > > I just had my first visit to the Pendelton Center which has

> > > > medically

> > > > supervised exercises. It is NOT pulmonary rehab but they take

> > your O2

> > > > and blood pressure and your blood sugar many times while you are

> > > > there.

> > > > They have all sorts of machines...some resistance and some not.

> > > > They had

> > > > to stop me on the Treadmill because my oxygen went too low and

> > my

> > > > heart

> > > > rate jumped too high. Odd that I had that reaction just to the

> > > > treadmill. Anyway they wanted some goals for me and I said to

> > > > " Maintain "

> > > > what I have and I saw that depressed them so I said " To be able

> > to

> > > > walk

> > > > a mile in 6 months. " I don't think I will ever reach this goal

> > and

> > > > didn't know how to explain to them that just maintaining where I

> > am is

> > > > the realistic goal and that even with exercise it is possible I

> > > > will get

> > > > worse...they didn't seem to understand what my problem is. And,

> > I was

> > > > wondering if people with COPD actually were able to do

> > this...increase

> > > > their ability to do things as a result of exercises? Unless my

> > > > fibrosis

> > > > goes away I probably will never be able to walk a mile again.

> > So, in a

> > > > way the encounter depressed me when maintaining what I have was

> > > > seen as

> > > > a failure attitude. Joyce Rudy AZ Birds

> > > > >

> > > >

> > > >

> > >

> >

> >

>