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adrienne

rent some small tanks to bring with you

call your supplier

figure out the size you can handle and how long they will lastat your lpms so you know how many to ask for

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Travel TroublesTo: Breathe-Support Date: Monday, August 10, 2009, 2:23 PM

Hi Folks,

I have a dilemma. I am planning to go to Washington, DC and my Oxygen company can only find one company that can supply me with Liquid O2 and they do not deliver on the days that I will be there. They can give me a concentrator, but that won't help me to go out and about. I plan to go on a Saturday and the company only delivers on Wednesday, so I'm going to call the hotel to see if they'd be willing to accept the O2 4 days earlier than my arrival. I'm amazed that a a city Like Washington, DC does not have an oxygen company that provides better service. I may be making a mountain out of a mole hill, but I'm very angry because it this does not work out I will miss a great opportunity to go to the White House.

Does anyone have any ideas? I'd appreciate any comments.

Thanks,

Adrienne

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Adrienne

How are you traveling?

>

> Hi Folks,

> I have a dilemma. I am planning to go to Washington, DC and my Oxygen

company can only find one company that can supply me with Liquid O2 and

they do not deliver on the days that I will be there. They can give me

a concentrator, but that won't help me to go out and about. I plan to

go on a Saturday and the company only delivers on Wednesday, so I'm

going to call the hotel to see if they'd be willing to accept the O2 4

days earlier than my arrival. I'm amazed that a a city Like

Washington, DC does not have an oxygen company that provides better

service. I may be making a mountain out of a mole hill, but I'm very

angry because it this does not work out I will miss a great opportunity

to go to the White House.

> Does anyone have any ideas? I'd appreciate any comments.

> Thanks,

> Adrienne

>

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Bruce..

try nearby cities or suburbs in different states..Arlington,VA, Bethesda, Md. etc

andy

Subject: Re: Travel TroublesTo: Breathe-Support Date: Monday, August 10, 2009, 9:08 PM

AdrienneHow are you traveling?>> Hi Folks,> I have a dilemma. I am planning to go to Washington, DC and my Oxygencompany can only find one company that can supply me with Liquid O2 andthey do not deliver on the days that I will be there. They can give mea concentrator, but that won't help me to go out and about. I plan togo on a Saturday and the company only delivers on Wednesday, so I'mgoing to call the hotel to see if they'd be willing to accept the O2 4days earlier than my arrival. I'm amazed that a a city LikeWashington, DC does not have an oxygen company that provides betterservice. I may be making a mountain out of a

mole hill, but I'm veryangry because it this does not work out I will miss a great opportunityto go to the White House.> Does anyone have any ideas? I'd appreciate any comments.> Thanks,> Adrienne>

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Adrienne

If you're traveling by car, the answer is for them to loan you a small

reservoir and put it in your car. As to only one supplier in Washington

and they only deliver once per week, I'm sorry but I don't believe them.

First, while most suppliers have a set day to each area, they all do

exceptions. My supplier would meet you at the airport if you were flying

in here or deliver to your hotel and doesn't matter what day. I think

your supplier is talking about one within a group with whom they

participate.

I know Lincare serves DC from Lofton, VA and also has offices in

Gaithersburg, MD and Beltsville, MD. Home Medical serves DC from

Germantown, MD. Respicare serves DC from Springfield, VA or Columbia,

MD.

> >

> > Hi Folks,

> > I have a dilemma. I am planning to go to Washington, DC and my

Oxygen

> company can only find one company that can supply me with Liquid O2

and

> they do not deliver on the days that I will be there. They can give me

> a concentrator, but that won't help me to go out and about. I plan to

> go on a Saturday and the company only delivers on Wednesday, so I'm

> going to call the hotel to see if they'd be willing to accept the O2 4

> days earlier than my arrival. I'm amazed that a a city Like

> Washington, DC does not have an oxygen company that provides better

> service. I may be making a mountain out of a mole hill, but I'm very

> angry because it this does not work out I will miss a great

opportunity

> to go to the White House.

> > Does anyone have any ideas? I'd appreciate any comments.

> > Thanks,

> > Adrienne

> >

>

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call them yourself and tell the problem if they wont then see if anyone there

could pick them up for you...that is what I did hope this helps hate to see

anyones vacation ruined we had two of them done that way..never again..

Merry

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Bruce,

Thanks for the information. I shared it with my oxygen company and was told that Lincare only deals with their own customers and doesn't deliver to DC anymore. Since writing about my troubles they did find a company that will help me. It was suggested that I just not travel to DC anymore. Boy oh boy. This disease does limit our spontanity.

Adrienne

Subject: Re: Travel TroublesTo: Breathe-Support Date: Tuesday, August 11, 2009, 1:31 PM

AdrienneIf you're traveling by car, the answer is for them to loan you a smallreservoir and put it in your car. As to only one supplier in Washingtonand they only deliver once per week, I'm sorry but I don't believe them.First, while most suppliers have a set day to each area, they all doexceptions. My supplier would meet you at the airport if you were flyingin here or deliver to your hotel and doesn't matter what day. I thinkyour supplier is talking about one within a group with whom theyparticipate.I know Lincare serves DC from Lofton, VA and also has offices inGaithersburg, MD and Beltsville, MD. Home Medical serves DC fromGermantown, MD. Respicare serves DC from Springfield, VA or Columbia,MD.> >>

> Hi Folks,> > I have a dilemma. I am planning to go to Washington, DC and myOxygen> company can only find one company that can supply me with Liquid O2and> they do not deliver on the days that I will be there. They can give me> a concentrator, but that won't help me to go out and about. I plan to> go on a Saturday and the company only delivers on Wednesday, so I'm> going to call the hotel to see if they'd be willing to accept the O2 4> days earlier than my arrival. I'm amazed that a a city Like> Washington, DC does not have an oxygen company that provides better> service. I may be making a mountain out of a mole hill, but I'm very> angry because it this does not work out I will miss a greatopportunity> to go to the White House.> > Does anyone have any ideas? I'd appreciate any comments.> > Thanks,> > Adrienne>

>>

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Adrienne, When we first traveled with 02 was nervous about me running out so we loaded the trunk with E tanks and putmy concentrator in the back seat.. lol It is like they just want us to breathe when it's convenient for them.. I don't do well with that.. I get a funny blue color. lol Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Bruce, Thanks for the information. I shared it with my oxygen company and was told that Lincare only deals with their own customers and doesn't deliver to DC anymore. Since writing about my troubles they did find a company that will help me. It was suggested that I just not travel to DC anymore. Boy oh boy. This disease does limit our spontanity. Adrienne From: Bruce Moreland <brucemoreland (AT) gmail (DOT) com>Subject: Re: Travel TroublesTo: Breathe-Support Date: Tuesday, August 11, 2009, 1:31 PM AdrienneIf you're traveling by car, the answer is for them to loan you a smallreservoir and put it in your car. As to only one supplier in Washingtonand they only deliver once per week, I'm sorry but I don't believe them.First, while most suppliers have a set day to each area, they all doexceptions. My supplier would meet you at the airport if you were flyingin here or deliver to your hotel and doesn't matter what day. I thinkyour supplier is talking about one within a group with whom theyparticipate.I know Lincare serves DC from Lofton, VA and also has offices inGaithersburg, MD and Beltsville, MD. Home Medical serves DC fromGermantown, MD. Respicare serves DC from Springfield, VA or Columbia,MD.> >> > Hi Folks,> > I have a dilemma. I am planning to go to Washington, DC and myOxygen> company can only find one company that can supply me with Liquid O2and> they do not deliver on the days that I will be there. They can give me> a concentrator, but that won't help me to go out and about. I plan to> go on a Saturday and the company only delivers on Wednesday, so I'm> going to call the hotel to see if they'd be willing to accept the O2 4> days earlier than my arrival. I'm amazed that a a city Like> Washington, DC does not have an oxygen company that provides better> service. I may be making a mountain out of a mole hill, but I'm very> angry because it this does not work out I will miss a greatopportunity> to go to the White House.> > Does anyone have any ideas? I'd appreciate any comments.> > Thanks,> > Adrienne> >>

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I forgot to mention that I'm traveling by train so I can't carry a lot of tanks. There has got to be an easier way.

Subject: Re: Travel TroublesTo: Breathe-Support Date: Tuesday, August 11, 2009, 1:31 PM

AdrienneIf you're traveling by car, the answer is for them to loan you a smallreservoir and put it in your car. As to only one supplier in Washingtonand they only deliver once per week, I'm sorry but I don't believe them.First, while most suppliers have a set day to each area, they all doexceptions. My supplier would meet you at the airport if you were flyingin here or deliver to your hotel and doesn't matter what day. I thinkyour supplier is talking about one within a group with whom theyparticipate.I know Lincare serves DC from Lofton, VA and also has offices inGaithersburg, MD and Beltsville, MD. Home Medical serves DC fromGermantown, MD. Respicare serves DC from Springfield, VA or Columbia,MD.> >>

> Hi Folks,> > I have a dilemma. I am planning to go to Washington, DC and myOxygen> company can only find one company that can supply me with Liquid O2and> they do not deliver on the days that I will be there. They can give me> a concentrator, but that won't help me to go out and about. I plan to> go on a Saturday and the company only delivers on Wednesday, so I'm> going to call the hotel to see if they'd be willing to accept the O2 4> days earlier than my arrival. I'm amazed that a a city Like> Washington, DC does not have an oxygen company that provides better> service. I may be making a mountain out of a mole hill, but I'm very> angry because it this does not work out I will miss a greatopportunity> to go to the White House.> > Does anyone have any ideas? I'd appreciate any comments.> > Thanks,> > Adrienne>

>>__________________________________________________

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see if lincare has a small portable concentrator that they could loan you rent

you or??? I know the place I get my service has a portable concentrator they

loan out for traveling you just need a prescription from your doctor...I also

called my insurance company and made sure that they would cover things and they

said all they need is a prescription from the doctor (you should also have a

copy of them to carry with you just in case you might need them) I keep one in

the glove compartment of our truck and it came in handy when we had a wreck.

cops were kinda snotty but hey where else was I susposed to carry my tank lol I

killed them with my smile and my jokes.

If I lived closer would send mine your way...

Does anyone know if they make the portables that go over five lpm?

hugs and thanks everyone for all the love and support here

merry

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adrienne

did you consider a portable oxygen concentrator?

you might have to rent one

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Travel TroublesTo: Breathe-Support Date: Tuesday, August 11, 2009, 3:01 PM

Bruce,

Thanks for the information. I shared it with my oxygen company and was told that Lincare only deals with their own customers and doesn't deliver to DC anymore. Since writing about my troubles they did find a company that will help me. It was suggested that I just not travel to DC anymore. Boy oh boy. This disease does limit our spontanity.

Adrienne

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Travel TroublesTo: Breathe-Support@ yahoogroups. comDate: Tuesday, August 11, 2009, 1:31 PM

AdrienneIf you're traveling by car, the answer is for them to loan you a smallreservoir and put it in your car. As to only one supplier in Washingtonand they only deliver once per week, I'm sorry but I don't believe them.First, while most suppliers have a set day to each area, they all doexceptions. My supplier would meet you at the airport if you were flyingin here or deliver to your hotel and doesn't matter what day. I thinkyour supplier is talking about one within a group with whom theyparticipate.I know Lincare serves DC from Lofton, VA and also has offices inGaithersburg, MD and Beltsville, MD. Home Medical serves DC fromGermantown, MD. Respicare serves DC from Springfield, VA or Columbia,MD.> >> > Hi Folks,> > I have a dilemma. I am planning to go to Washington, DC and myOxygen> company can only find one company that can supply

me with Liquid O2and> they do not deliver on the days that I will be there. They can give me> a concentrator, but that won't help me to go out and about. I plan to> go on a Saturday and the company only delivers on Wednesday, so I'm> going to call the hotel to see if they'd be willing to accept the O2 4> days earlier than my arrival. I'm amazed that a a city Like> Washington, DC does not have an oxygen company that provides better> service. I may be making a mountain out of a mole hill, but I'm very> angry because it this does not work out I will miss a greatopportunity> to go to the White House.> > Does anyone have any ideas? I'd appreciate any comments.> > Thanks,> > Adrienne> >>

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definigtely the poc

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Travel TroublesTo: Breathe-Support Date: Tuesday, August 11, 2009, 3:10 PM

I forgot to mention that I'm traveling by train so I can't carry a lot of tanks. There has got to be an easier way.

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Travel TroublesTo: Breathe-Support@ yahoogroups. comDate: Tuesday, August 11, 2009, 1:31 PM

AdrienneIf you're traveling by car, the answer is for them to loan you a smallreservoir and put it in your car. As to only one supplier in Washingtonand they only deliver once per week, I'm sorry but I don't believe them.First, while most suppliers have a set day to each area, they all doexceptions. My supplier would meet you at the airport if you were flyingin here or deliver to your hotel and doesn't matter what day. I thinkyour supplier is talking about one within a group with whom theyparticipate.I know Lincare serves DC from Lofton, VA and also has offices inGaithersburg, MD and Beltsville, MD. Home Medical serves DC fromGermantown, MD. Respicare serves DC from Springfield, VA or Columbia,MD.> >> > Hi Folks,> > I have a dilemma. I am planning to go to Washington, DC and myOxygen> company can only find one company that can supply

me with Liquid O2and> they do not deliver on the days that I will be there. They can give me> a concentrator, but that won't help me to go out and about. I plan to> go on a Saturday and the company only delivers on Wednesday, so I'm> going to call the hotel to see if they'd be willing to accept the O2 4> days earlier than my arrival. I'm amazed that a a city Like> Washington, DC does not have an oxygen company that provides better> service. I may be making a mountain out of a mole hill, but I'm very> angry because it this does not work out I will miss a greatopportunity> to go to the White House.> > Does anyone have any ideas? I'd appreciate any comments.> > Thanks,> > Adrienne> >>____________ _________ _________ _________ _________ __

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Adrienne

Call a Lincare office near where you're going directly. Tell them your

situation. Also, my understanding is that you can carry a liquid

reservoir on a train. Double check with Amtrak and then talk to your

supplier if thats the case. Last time I checked was over a year ago and

you could carry either a 25 lb reservoir or a 50 lb reservoir up to half

full as the limit was a total weight of 75 pounds.

I wish I could remember the company that will coordinate oxygen in other

places, but I can't. My old oxygen supplier who is local only did

participate in their program and they found me oxygen on the coast on

NC, in Chattanooga and anywhere else I needed. If your oxygen supplier

isn't familiar, I can give you the number of my old supplier and I'm

sure they'd give you the phone number. The service was free if your

supplier was a member but a charge if not. Now, you did have to pay for

the oxygen.

> > >

> > > Hi Folks,

> > > I have a dilemma. I am planning to go to Washington, DC and my

> Oxygen

> > company can only find one company that can supply me with Liquid O2

> and

> > they do not deliver on the days that I will be there. They can give

me

> > a concentrator, but that won't help me to go out and about. I plan

to

> > go on a Saturday and the company only delivers on Wednesday, so I'm

> > going to call the hotel to see if they'd be willing to accept the O2

4

> > days earlier than my arrival. I'm amazed that a a city Like

> > Washington, DC does not have an oxygen company that provides better

> > service. I may be making a mountain out of a mole hill, but I'm very

> > angry because it this does not work out I will miss a great

> opportunity

> > to go to the White House.

> > > Does anyone have any ideas? I'd appreciate any comments.

> > > Thanks,

> > > Adrienne

> > >

> >

>

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Adrienne and others

In the future, please don't let oxygen providers keep you from doing as

you want. Talk to the managers, not the customer service reps or

drivers. Ask for their assistance. Face to face is even better, but make

them see there's a person needing help not a stop on the oxygen run.

Don't take no because there is a way somehow. Sometimes it may involve

some cost. For instance using a local provider as I did and Beth

does you may have to pay at a travel location. I wish I could say its

easy and we didn't have to fight for ourselves. Sometimes if we can we

have to even switch providers. Unfortunately the providers don't seem

very creative in coming up with solutions.

> > > >

> > > > Hi Folks,

> > > > I have a dilemma. I am planning to go to Washington, DC and my

> > Oxygen

> > > company can only find one company that can supply me with Liquid

O2

> > and

> > > they do not deliver on the days that I will be there. They can

give

> me

> > > a concentrator, but that won't help me to go out and about. I plan

> to

> > > go on a Saturday and the company only delivers on Wednesday, so

I'm

> > > going to call the hotel to see if they'd be willing to accept the

O2

> 4

> > > days earlier than my arrival. I'm amazed that a a city Like

> > > Washington, DC does not have an oxygen company that provides

better

> > > service. I may be making a mountain out of a mole hill, but I'm

very

> > > angry because it this does not work out I will miss a great

> > opportunity

> > > to go to the White House.

> > > > Does anyone have any ideas? I'd appreciate any comments.

> > > > Thanks,

> > > > Adrienne

> > > >

> > >

> >

>

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the first one I had was from www.airsep.com. I got it from my supplier and got

a nice price on it cause it had been a rental. I can carry it on my shoulder

and so can dh I usulaly put it in a shopping cart when we are out grocery or

other shopping works great. I also have a cart to drag it behind me like the

tanks with a place for the battery charger that carries four other batteries

that I can also with a chord hook up to my concentrator in the cart and use

those batteries when the other one runs out or I can just change out the

batteries when they run down..

Just do a google search for " portable concentrators " . Thats what I did to find

out all I could on them and this IPF.

hope this helps if not let me know

merry

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