Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 i take one calcium at lunch time and one at bedtime fosamax (spelling?) on monday morning Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: PF And OsteoperosisTo: Breathe-Support Date: Monday, August 10, 2009, 7:48 AM Jerry, Thanks so much for all this information. It's a great reminder for all of us. I am actually having bone mineral density testing done tomorrow. We are all at higher than normal risk for osteoporosis. I've been in the habit of taking all my supplements in the morning after breakfast which is only about an hour or so after taking the omprozole. Duh....thanks for the reminder.... I'm going to switch my supplements taking to lunch time. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Monday, August 10, 2009 2:07:27 AMSubject: PF And Osteoperosis If you haven't been screened for Osteoporosis, remind your doctor on your next visit. In a large study at Emery University Medical School, it was found the chances of a male having Osteoporosis increased five fold when lung disease of any kind was introduced. A male taking steroids for a pulmonary disease has an even higher risk of Osteoporosis of nine fold that of the control group. Chances of a post- menopausal woman from age 60 to 90 developing Osteoporosis are calculated to be around 30%, So if we add add lung disease, and most probably steroids to the equation, we can begin to see the overwhelming risk of undiagnosed Osteoperosis. Now if we further consider that GIRDS can be a problem in PF, we can add even more risk if symptoms are being treated with Proton Pump Inhibitors or Histamine Blockers. As much as a 40% reduction in calcium (as well as other minerals) absorption has been observed for those taking medications for GIRD. The most pronounced decrease in absorption was found in those individuals taking more than one dose daily of such medicines. It follows then that calcium supplementation should be scheduled as far removed from scheduled medication for acid reduction. For most, lunch would appear to be the most practical time to take supplemental calcium. Below is a table of the FDA recommendations for calcium: Table 1: Adequate Intakes (AIs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 6 months 210 mg 210 mg 7-12 months 270 mg 270 mg 1-3 years 500 mg 500 mg 4-8 years 800 mg 800 mg 9-13 years 1,300 mg 1,300 mg 14-18 years 1,300 mg 1,300 mg 1,300 mg 1,300 mg 19-50 years 1,000 mg 1,000 mg 1,000 mg 1,000 mg 50+ years 1,200 mg 1,200 mg Ask your doctor how much calcium is right for you. Vitamin D and Phospherous have been shown to increase calcium absorption. It is likely that a diet need only supplement more than half the RDA for calcium if osteoperosis or osteopenia are not detected in the screening. Very rare instances of kidney problems have been noted with the intake of too much calcium. Here are the upper limits for daily calcium intake: Table 3: Tolerable Upper Intake Levels (ULs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 12 months None established None established 1-13 years 2,500 mg 2,500 mg 14-50 years 2,500 mg 2,500 mg 2,500 mg 2,500 mg 51+ years 2,500 mg 2,500 mg So the evidence is there for all of us to undergo annual screening for osteoperosis, and if found, begin therapy to halt, and hopefully reverse, a problem all of us with IPF could face sooner or later. Jerry/Mississippi/ 54/IPF/dx April 05 Those interested in further reading can consult the below URLs: Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 Jerry,Thank you so much for this information! I just got up from the computer and took two calcium supplements. I've been forgetting about my vitamins and calcium every since my diagnosis. I feel like a pill-popping freak. I've been post menopausal for six years now and didn't know about the lung disease increasing my chances for osteoporosis and the MEDS! I am going to e-mail doctor in the morning and ask for a screening. I have been experiencing foot, leg, hip and hand cramps lately, do you think that is caused from a calcium/Vitamin D deficiency? I figured it was my meds (Prednisone). C_53_IPF_5/09Washington-the-Evergreen-stateTo: Breathe-Support <Breathe-Support >Sent: Sunday, August 9, 2009 11:07:27 PMSubject: PF And Osteoperosis If you haven't been screened for Osteoporosis, remind your doctor on your next visit. In a large study at Emery University Medical School, it was found the chances of a male having Osteoporosis increased five fold when lung disease of any kind was introduced. A male taking steroids for a pulmonary disease has an even higher risk of Osteoporosis of nine fold that of the control group. Chances of a post- menopausal woman from age 60 to 90 developing Osteoporosis are calculated to be around 30%, So if we add add lung disease, and most probably steroids to the equation, we can begin to see the overwhelming risk of undiagnosed Osteoperosis. Now if we further consider that GIRDS can be a problem in PF, we can add even more risk if symptoms are being treated with Proton Pump Inhibitors or Histamine Blockers. As much as a 40% reduction in calcium (as well as other minerals) absorption has been observed for those taking medications for GIRD. The most pronounced decrease in absorption was found in those individuals taking more than one dose daily of such medicines. It follows then that calcium supplementation should be scheduled as far removed from scheduled medication for acid reduction. For most, lunch would appear to be the most practical time to take supplemental calcium. Below is a table of the FDA recommendations for calcium: Table 1: Adequate Intakes (AIs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 6 months 210 mg 210 mg 7-12 months 270 mg 270 mg 1-3 years 500 mg 500 mg 4-8 years 800 mg 800 mg 9-13 years 1,300 mg 1,300 mg 14-18 years 1,300 mg 1,300 mg 1,300 mg 1,300 mg 19-50 years 1,000 mg 1,000 mg 1,000 mg 1,000 mg 50+ years 1,200 mg 1,200 mg Ask your doctor how much calcium is right for you. Vitamin D and Phospherous have been shown to increase calcium absorption. It is likely that a diet need only supplement more than half the RDA for calcium if osteoperosis or osteopenia are not detected in the screening. Very rare instances of kidney problems have been noted with the intake of too much calcium. Here are the upper limits for daily calcium intake: Table 3: Tolerable Upper Intake Levels (ULs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 12 months None established None established 1-13 years 2,500 mg 2,500 mg 14-50 years 2,500 mg 2,500 mg 2,500 mg 2,500 mg 51+ years 2,500 mg 2,500 mg So the evidence is there for all of us to undergo annual screening for osteoperosis, and if found, begin therapy to halt, and hopefully reverse, a problem all of us with IPF could face sooner or later. Jerry/Mississippi/ 54/IPF/dx April 05 Those interested in further reading can consult the below URLs: Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 C, I only say this in a rye-humored way, but do you feel like sometimes we are plugging holes on a sinking ship? Most days are OK and even good, but on days when we go to another new doctor we found out we needed, it makes us wonder. When you ask your doctor for a test, keep in mind that in general, those of us with lung disease loose calcium more from the hip area than does the general population.We are prone to loose calcium elsewhere, but knowing this, your doctor may make sure of how the test is set up. For your cramps are they more a muscle cramp in your leg? And does it go away when you stand on the leg? If so, try eating a banana every day at breakfast time to begin your day with a good first dose of potassium. Lack of salt can bring on these muscle cramps, but our normal diet is more than adequate for supplying adequate sodium. If your joints in your hands, hips, legs and feet are catching, then your test will indicate if the cause is lack of calcium in the bone and joints. Also thinking about your calcium supplements, another way to help slow maintain or increase bone mass is through exercise. Exercise is not always easy for those of us with lung disease. If it can help stave off regression, then I'll do what I can. You made me think; In the morning I'm going to count all my pills and supplements. Jerry/Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Subject: Re: PF And OsteoperosisTo: Breathe-Support Date: Tuesday, August 11, 2009, 2:35 AM Jerry,Thank you so much for this information! I just got up from the computer and took two calcium supplements. I've been forgetting about my vitamins and calcium every since my diagnosis. I feel like a pill-popping freak. I've been post menopausal for six years now and didn't know about the lung disease increasing my chances for osteoporosis and the MEDS! I am going to e-mail doctor in the morning and ask for a screening. I have been experiencing foot, leg, hip and hand cramps lately, do you think that is caused from a calcium/Vitamin D deficiency? I figured it was my meds (Prednisone) . C_53_IPF_5/09Washington-the- Evergreen- state From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Sunday, August 9, 2009 11:07:27 PMSubject: PF And Osteoperosis If you haven't been screened for Osteoporosis, remind your doctor on your next visit. In a large study at Emery University Medical School, it was found the chances of a male having Osteoporosis increased five fold when lung disease of any kind was introduced. A male taking steroids for a pulmonary disease has an even higher risk of Osteoporosis of nine fold that of the control group. Chances of a post- menopausal woman from age 60 to 90 developing Osteoporosis are calculated to be around 30%, So if we add add lung disease, and most probably steroids to the equation, we can begin to see the overwhelming risk of undiagnosed Osteoperosis. Now if we further consider that GIRDS can be a problem in PF, we can add even more risk if symptoms are being treated with Proton Pump Inhibitors or Histamine Blockers. As much as a 40% reduction in calcium (as well as other minerals) absorption has been observed for those taking medications for GIRD. The most pronounced decrease in absorption was found in those individuals taking more than one dose daily of such medicines. It follows then that calcium supplementation should be scheduled as far removed from scheduled medication for acid reduction. For most, lunch would appear to be the most practical time to take supplemental calcium. Below is a table of the FDA recommendations for calcium: Table 1: Adequate Intakes (AIs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 6 months 210 mg 210 mg 7-12 months 270 mg 270 mg 1-3 years 500 mg 500 mg 4-8 years 800 mg 800 mg 9-13 years 1,300 mg 1,300 mg 14-18 years 1,300 mg 1,300 mg 1,300 mg 1,300 mg 19-50 years 1,000 mg 1,000 mg 1,000 mg 1,000 mg 50+ years 1,200 mg 1,200 mg Ask your doctor how much calcium is right for you. Vitamin D and Phospherous have been shown to increase calcium absorption. It is likely that a diet need only supplement more than half the RDA for calcium if osteoperosis or osteopenia are not detected in the screening. Very rare instances of kidney problems have been noted with the intake of too much calcium. Here are the upper limits for daily calcium intake: Table 3: Tolerable Upper Intake Levels (ULs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 12 months None established None established 1-13 years 2,500 mg 2,500 mg 14-50 years 2,500 mg 2,500 mg 2,500 mg 2,500 mg 51+ years 2,500 mg 2,500 mg So the evidence is there for all of us to undergo annual screening for osteoperosis, and if found, begin therapy to halt, and hopefully reverse, a problem all of us with IPF could face sooner or later. Jerry/Mississippi/ 54/IPF/dx April 05 Those interested in further reading can consult the below URLs: Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 C. I have also found that if you are low on magnesium you will have leg cramps,hips, thigh etc. My ortho said to take 1 magnesium(sp) will help A 60 HP PF COPD Osteo 6/15 TN To: Breathe-Support Sent: Monday, August 10, 2009 10:42:01 PMSubject: Re: PF And Osteoperosis C, I only say this in a rye-humored way, but do you feel like sometimes we are plugging holes on a sinking ship? Most days are OK and even good, but on days when we go to another new doctor we found out we needed, it makes us wonder. When you ask your doctor for a test, keep in mind that in general, those of us with lung disease loose calcium more from the hip area than does the general population.We are prone to loose calcium elsewhere, but knowing this, your doctor may make sure of how the test is set up. For your cramps are they more a muscle cramp in your leg? And does it go away when you stand on the leg? If so, try eating a banana every day at breakfast time to begin your day with a good first dose of potassium. Lack of salt can bring on these muscle cramps, but our normal diet is more than adequate for supplying adequate sodium. If your joints in your hands, hips, legs and feet are catching, then your test will indicate if the cause is lack of calcium in the bone and joints. Also thinking about your calcium supplements, another way to help slow maintain or increase bone mass is through exercise. Exercise is not always easy for those of us with lung disease. If it can help stave off regression, then I'll do what I can. You made me think; In the morning I'm going to count all my pills and supplements. Jerry/Mississippi/ 54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. From: worth <hope2thend (AT) yahoo (DOT) com>Subject: Re: PF And OsteoperosisTo: Breathe-Support@ yahoogroups. comDate: Tuesday, August 11, 2009, 2:35 AM Jerry,Thank you so much for this information! I just got up from the computer and took two calcium supplements. I've been forgetting about my vitamins and calcium every since my diagnosis. I feel like a pill-popping freak. I've been post menopausal for six years now and didn't know about the lung disease increasing my chances for osteoporosis and the MEDS! I am going to e-mail doctor in the morning and ask for a screening. I have been experiencing foot, leg, hip and hand cramps lately, do you think that is caused from a calcium/Vitamin D deficiency? I figured it was my meds (Prednisone) . C_53_IPF_5/09Washington-the- Evergreen- state From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Sunday, August 9, 2009 11:07:27 PMSubject: PF And Osteoperosis If you haven't been screened for Osteoporosis, remind your doctor on your next visit. In a large study at Emery University Medical School, it was found the chances of a male having Osteoporosis increased five fold when lung disease of any kind was introduced. A male taking steroids for a pulmonary disease has an even higher risk of Osteoporosis of nine fold that of the control group. Chances of a post- menopausal woman from age 60 to 90 developing Osteoporosis are calculated to be around 30%, So if we add add lung disease, and most probably steroids to the equation, we can begin to see the overwhelming risk of undiagnosed Osteoperosis. Now if we further consider that GIRDS can be a problem in PF, we can add even more risk if symptoms are being treated with Proton Pump Inhibitors or Histamine Blockers. As much as a 40% reduction in calcium (as well as other minerals) absorption has been observed for those taking medications for GIRD. The most pronounced decrease in absorption was found in those individuals taking more than one dose daily of such medicines. It follows then that calcium supplementation should be scheduled as far removed from scheduled medication for acid reduction. For most, lunch would appear to be the most practical time to take supplemental calcium. Below is a table of the FDA recommendations for calcium: Table 1: Adequate Intakes (AIs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 6 months 210 mg 210 mg 7-12 months 270 mg 270 mg 1-3 years 500 mg 500 mg 4-8 years 800 mg 800 mg 9-13 years 1,300 mg 1,300 mg 14-18 years 1,300 mg 1,300 mg 1,300 mg 1,300 mg 19-50 years 1,000 mg 1,000 mg 1,000 mg 1,000 mg 50+ years 1,200 mg 1,200 mg Ask your doctor how much calcium is right for you. Vitamin D and Phospherous have been shown to increase calcium absorption. It is likely that a diet need only supplement more than half the RDA for calcium if osteoperosis or osteopenia are not detected in the screening. Very rare instances of kidney problems have been noted with the intake of too much calcium. Here are the upper limits for daily calcium intake: Table 3: Tolerable Upper Intake Levels (ULs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 12 months None established None established 1-13 years 2,500 mg 2,500 mg 14-50 years 2,500 mg 2,500 mg 2,500 mg 2,500 mg 51+ years 2,500 mg 2,500 mg So the evidence is there for all of us to undergo annual screening for osteoperosis, and if found, begin therapy to halt, and hopefully reverse, a problem all of us with IPF could face sooner or later. Jerry/Mississippi/ 54/IPF/dx April 05 Those interested in further reading can consult the below URLs: Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 Thanks . I was going to mention to Jerry that I do eat a banana almost everyday and I know its not much exercise, but I take a 15min walk with my dog daily. I have a multivitamin with magnesium in it, I just need to get back to taking it regularly. And yes, it is like the cramp is a quick catch and as soon as I turn the area in a different direction or walk on it, it stops cramping. I've always had some cramping in my feet at night when I stretch my foot, but this is an increase C_53_IPF_5/09Washington-the-Evergreen-stateTo: Breathe-Support Sent: Monday, August 10, 2009 8:54:45 PMSubject: Re: PF And Osteoperosis C. I have also found that if you are low on magnesium you will have leg cramps,hips, thigh etc. My ortho said to take 1 magnesium(sp) will help A 60 HP PF COPD Osteo 6/15 TN From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Monday, August 10, 2009 10:42:01 PMSubject: Re: PF And Osteoperosis C, I only say this in a rye-humored way, but do you feel like sometimes we are plugging holes on a sinking ship? Most days are OK and even good, but on days when we go to another new doctor we found out we needed, it makes us wonder. When you ask your doctor for a test, keep in mind that in general, those of us with lung disease loose calcium more from the hip area than does the general population.We are prone to loose calcium elsewhere, but knowing this, your doctor may make sure of how the test is set up. For your cramps are they more a muscle cramp in your leg? And does it go away when you stand on the leg? If so, try eating a banana every day at breakfast time to begin your day with a good first dose of potassium. Lack of salt can bring on these muscle cramps, but our normal diet is more than adequate for supplying adequate sodium. If your joints in your hands, hips, legs and feet are catching, then your test will indicate if the cause is lack of calcium in the bone and joints. Also thinking about your calcium supplements, another way to help slow maintain or increase bone mass is through exercise. Exercise is not always easy for those of us with lung disease. If it can help stave off regression, then I'll do what I can. You made me think; In the morning I'm going to count all my pills and supplements. Jerry/Mississippi/ 54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. From: worth <hope2thend (AT) yahoo (DOT) com>Subject: Re: PF And OsteoperosisTo: Breathe-Support@ yahoogroups. comDate: Tuesday, August 11, 2009, 2:35 AM Jerry,Thank you so much for this information! I just got up from the computer and took two calcium supplements. I've been forgetting about my vitamins and calcium every since my diagnosis. I feel like a pill-popping freak. I've been post menopausal for six years now and didn't know about the lung disease increasing my chances for osteoporosis and the MEDS! I am going to e-mail doctor in the morning and ask for a screening. I have been experiencing foot, leg, hip and hand cramps lately, do you think that is caused from a calcium/Vitamin D deficiency? I figured it was my meds (Prednisone) . C_53_IPF_5/09Washington-the- Evergreen- state From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Sunday, August 9, 2009 11:07:27 PMSubject: PF And Osteoperosis If you haven't been screened for Osteoporosis, remind your doctor on your next visit. In a large study at Emery University Medical School, it was found the chances of a male having Osteoporosis increased five fold when lung disease of any kind was introduced. A male taking steroids for a pulmonary disease has an even higher risk of Osteoporosis of nine fold that of the control group. Chances of a post- menopausal woman from age 60 to 90 developing Osteoporosis are calculated to be around 30%, So if we add add lung disease, and most probably steroids to the equation, we can begin to see the overwhelming risk of undiagnosed Osteoperosis. Now if we further consider that GIRDS can be a problem in PF, we can add even more risk if symptoms are being treated with Proton Pump Inhibitors or Histamine Blockers. As much as a 40% reduction in calcium (as well as other minerals) absorption has been observed for those taking medications for GIRD. The most pronounced decrease in absorption was found in those individuals taking more than one dose daily of such medicines. It follows then that calcium supplementation should be scheduled as far removed from scheduled medication for acid reduction. For most, lunch would appear to be the most practical time to take supplemental calcium. Below is a table of the FDA recommendations for calcium: Table 1: Adequate Intakes (AIs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 6 months 210 mg 210 mg 7-12 months 270 mg 270 mg 1-3 years 500 mg 500 mg 4-8 years 800 mg 800 mg 9-13 years 1,300 mg 1,300 mg 14-18 years 1,300 mg 1,300 mg 1,300 mg 1,300 mg 19-50 years 1,000 mg 1,000 mg 1,000 mg 1,000 mg 50+ years 1,200 mg 1,200 mg Ask your doctor how much calcium is right for you. Vitamin D and Phospherous have been shown to increase calcium absorption. It is likely that a diet need only supplement more than half the RDA for calcium if osteoperosis or osteopenia are not detected in the screening. Very rare instances of kidney problems have been noted with the intake of too much calcium. Here are the upper limits for daily calcium intake: Table 3: Tolerable Upper Intake Levels (ULs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 12 months None established None established 1-13 years 2,500 mg 2,500 mg 14-50 years 2,500 mg 2,500 mg 2,500 mg 2,500 mg 51+ years 2,500 mg 2,500 mg So the evidence is there for all of us to undergo annual screening for osteoperosis, and if found, begin therapy to halt, and hopefully reverse, a problem all of us with IPF could face sooner or later. Jerry/Mississippi/ 54/IPF/dx April 05 Those interested in further reading can consult the below URLs: Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 , A multivitamin has a little magnesium and some other minerals. Some people call me Nut Man because I eat lots of nuts. They are a very good source of magnesium, and protein, potassium and the B vitamins. when I first began prednasone, I had those feelings you are talking about. I don't know how much of how I feel now can be attributed to a decreased dose and how much is a result of just realizing that I will live for a while longer. I never knew I would get this far, and frankly no one else did. Mom and Dad asked me to go to North Carolina some time after my biopsy. Everyone seemed to be trying to say goodbye in their own loving way. I was convinced too. Now here I am 4 years later looking back at the doubting and uncertain person I was. I know how you feel, but it does get better. You may not see much change from one day to the next, but month by month, you will see yourself feeling that you have more control than you thought over this disease. Also I take an antidepressant, because I know I need it. Now I can think like a normal person should think. So many things, including time, can help you feel better. I know it can haoppen. Jerry/Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. From: worth <hope2thend (AT) yahoo (DOT) com>Subject: Re: PF And OsteoperosisTo: Breathe-Support@ yahoogroups. comDate: Tuesday, August 11, 2009, 2:35 AM Jerry,Thank you so much for this information! I just got up from the computer and took two calcium supplements. I've been forgetting about my vitamins and calcium every since my diagnosis. I feel like a pill-popping freak. I've been post menopausal for six years now and didn't know about the lung disease increasing my chances for osteoporosis and the MEDS! I am going to e-mail doctor in the morning and ask for a screening. I have been experiencing foot, leg, hip and hand cramps lately, do you think that is caused from a calcium/Vitamin D deficiency? I figured it was my meds (Prednisone) . C_53_IPF_5/09Washington-the- Evergreen- state From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Sunday, August 9, 2009 11:07:27 PMSubject: PF And Osteoperosis If you haven't been screened for Osteoporosis, remind your doctor on your next visit. In a large study at Emery University Medical School, it was found the chances of a male having Osteoporosis increased five fold when lung disease of any kind was introduced. A male taking steroids for a pulmonary disease has an even higher risk of Osteoporosis of nine fold that of the control group. Chances of a post- menopausal woman from age 60 to 90 developing Osteoporosis are calculated to be around 30%, So if we add add lung disease, and most probably steroids to the equation, we can begin to see the overwhelming risk of undiagnosed Osteoperosis. Now if we further consider that GIRDS can be a problem in PF, we can add even more risk if symptoms are being treated with Proton Pump Inhibitors or Histamine Blockers. As much as a 40% reduction in calcium (as well as other minerals) absorption has been observed for those taking medications for GIRD. The most pronounced decrease in absorption was found in those individuals taking more than one dose daily of such medicines. It follows then that calcium supplementation should be scheduled as far removed from scheduled medication for acid reduction. For most, lunch would appear to be the most practical time to take supplemental calcium. Below is a table of the FDA recommendations for calcium: Table 1: Adequate Intakes (AIs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 6 months 210 mg 210 mg 7-12 months 270 mg 270 mg 1-3 years 500 mg 500 mg 4-8 years 800 mg 800 mg 9-13 years 1,300 mg 1,300 mg 14-18 years 1,300 mg 1,300 mg 1,300 mg 1,300 mg 19-50 years 1,000 mg 1,000 mg 1,000 mg 1,000 mg 50+ years 1,200 mg 1,200 mg Ask your doctor how much calcium is right for you. Vitamin D and Phospherous have been shown to increase calcium absorption. It is likely that a diet need only supplement more than half the RDA for calcium if osteoperosis or osteopenia are not detected in the screening. Very rare instances of kidney problems have been noted with the intake of too much calcium. Here are the upper limits for daily calcium intake: Table 3: Tolerable Upper Intake Levels (ULs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 12 months None established None established 1-13 years 2,500 mg 2,500 mg 14-50 years 2,500 mg 2,500 mg 2,500 mg 2,500 mg 51+ years 2,500 mg 2,500 mg So the evidence is there for all of us to undergo annual screening for osteoperosis, and if found, begin therapy to halt, and hopefully reverse, a problem all of us with IPF could face sooner or later. Jerry/Mississippi/ 54/IPF/dx April 05 Those interested in further reading can consult the below URLs: Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 Thanks Jerry. I needed the encouragement and hope. I have noticed that my breathing is much easier and the coughing attacks are not as severe and it may very well end up being the prednisone that is helping me. I'll find out at my next PFT on the 28th when I see the pulmo doc. It's kind of funny when people ask you how you're feeling (from the disease) its the med side affects I end up talking about, because those symptoms seem bigger than the disease right now. I've bounced back from tough trials before and I know I will get to a place of peace with all this, like you. I received this piece of wisdom from another source tonight, how appropriate.A breakthrough requires a trial to break through. C_53_IPF_5/09Washington-the-Evergreen-stateTo: Breathe-Support Sent: Monday, August 10, 2009 9:24:11 PMSubject: Re: PF And Osteoperosis , A multivitamin has a little magnesium and some other minerals. Some people call me Nut Man because I eat lots of nuts. They are a very good source of magnesium, and protein, potassium and the B vitamins. when I first began prednasone, I had those feelings you are talking about. I don't know how much of how I feel now can be attributed to a decreased dose and how much is a result of just realizing that I will live for a while longer. I never knew I would get this far, and frankly no one else did. Mom and Dad asked me to go to North Carolina some time after my biopsy. Everyone seemed to be trying to say goodbye in their own loving way. I was convinced too. Now here I am 4 years later looking back at the doubting and uncertain person I was. I know how you feel, but it does get better. You may not see much change from one day to the next, but month by month, you will see yourself feeling that you have more control than you thought over this disease. Also I take an antidepressant, because I know I need it. Now I can think like a normal person should think. So many things, including time, can help you feel better. I know it can haoppen. Jerry/Mississippi/ 54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. From: worth <hope2thend (AT) yahoo (DOT) com>Subject: Re: PF And OsteoperosisTo: Breathe-Support@ yahoogroups. comDate: Tuesday, August 11, 2009, 2:35 AM Jerry,Thank you so much for this information! I just got up from the computer and took two calcium supplements. I've been forgetting about my vitamins and calcium every since my diagnosis. I feel like a pill-popping freak. I've been post menopausal for six years now and didn't know about the lung disease increasing my chances for osteoporosis and the MEDS! I am going to e-mail doctor in the morning and ask for a screening. I have been experiencing foot, leg, hip and hand cramps lately, do you think that is caused from a calcium/Vitamin D deficiency? I figured it was my meds (Prednisone) . C_53_IPF_5/09Washington-the- Evergreen- state From: Jerry Brown <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Sunday, August 9, 2009 11:07:27 PMSubject: PF And Osteoperosis If you haven't been screened for Osteoporosis, remind your doctor on your next visit. In a large study at Emery University Medical School, it was found the chances of a male having Osteoporosis increased five fold when lung disease of any kind was introduced. A male taking steroids for a pulmonary disease has an even higher risk of Osteoporosis of nine fold that of the control group. Chances of a post- menopausal woman from age 60 to 90 developing Osteoporosis are calculated to be around 30%, So if we add add lung disease, and most probably steroids to the equation, we can begin to see the overwhelming risk of undiagnosed Osteoperosis. Now if we further consider that GIRDS can be a problem in PF, we can add even more risk if symptoms are being treated with Proton Pump Inhibitors or Histamine Blockers. As much as a 40% reduction in calcium (as well as other minerals) absorption has been observed for those taking medications for GIRD. The most pronounced decrease in absorption was found in those individuals taking more than one dose daily of such medicines. It follows then that calcium supplementation should be scheduled as far removed from scheduled medication for acid reduction. For most, lunch would appear to be the most practical time to take supplemental calcium. Below is a table of the FDA recommendations for calcium: Table 1: Adequate Intakes (AIs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 6 months 210 mg 210 mg 7-12 months 270 mg 270 mg 1-3 years 500 mg 500 mg 4-8 years 800 mg 800 mg 9-13 years 1,300 mg 1,300 mg 14-18 years 1,300 mg 1,300 mg 1,300 mg 1,300 mg 19-50 years 1,000 mg 1,000 mg 1,000 mg 1,000 mg 50+ years 1,200 mg 1,200 mg Ask your doctor how much calcium is right for you. Vitamin D and Phospherous have been shown to increase calcium absorption. It is likely that a diet need only supplement more than half the RDA for calcium if osteoperosis or osteopenia are not detected in the screening. Very rare instances of kidney problems have been noted with the intake of too much calcium. Here are the upper limits for daily calcium intake: Table 3: Tolerable Upper Intake Levels (ULs) for Calcium [1] Age Male Female Pregnant Lactating Birth to 12 months None established None established 1-13 years 2,500 mg 2,500 mg 14-50 years 2,500 mg 2,500 mg 2,500 mg 2,500 mg 51+ years 2,500 mg 2,500 mg So the evidence is there for all of us to undergo annual screening for osteoperosis, and if found, begin therapy to halt, and hopefully reverse, a problem all of us with IPF could face sooner or later. Jerry/Mississippi/ 54/IPF/dx April 05 Those interested in further reading can consult the below URLs: Who believes that hard times help us appreciate the good times even more. Quote Link to comment Share on other sites More sharing options...
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