Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 Thanks for the info Kathy. Did they say what caused the gastroparesis? Why did they originally put you on Reglan? Just curious. Do you have an autoimmune disease? It seems like so many of us have so many health problems, like a big puzzle. But just when I find a piece, the puzzle gets a little bit bigger.PJ in Ohio, 54, IPF '09, Sjogren's '95 Overwhelmed> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I think its all sinking in for me now, the disease, the> > meds, the lifestyle changes, etc. etc. and it’s really starting to overwhelm me> > and I’m having crying spells. > > > > > > > > It seems every week a new side effect pops up and I don’t> > know which med is causing it. I’m on Prednisone, Azathioprine and Acetylcysteine> > (NAC). Last week my blood tests revealed> > an elevated level of Neutrophils (8.07) and low levels of Lmphocytes (1.17),> > just barely above the normal range (1.0). I contacted my doctor’s office and he> > is on vacation until the 24th and the nurse said not to worry about it right> > now. I guess I’ll just see what this> > week’s tests reveal. > > > > > > > I’m experiencing foot, leg, hip and finger cramps. > > > > > > > This week food is not only tasteless, but actually has a bad taste, foods I normally love and then I just can’t eat it. > > > > > > > I’m involved in two big projects with daily deadlines at> > work and the stress keeps me wired-up. I’ve always loved the work I do and the> > pressure, but now it seems to irritate me. > > > > > > > It feels like people look at me different. Most of my> > co-workers know about my disease and some will ask me about it and how I’m> > doing and others ignore everything about me.> > > > > > > Because I’ve been so focused on my disease I’ m falling> > behind in domestic chores, errands, and other appointments that need to be> > done.> > > > > > > Goals and future dreams crushed. My counselor said I need to> > make new dreams. But I can’t seem to do> > that yet. > > > > > > > I do try to focus on my blessings and am thankful for what I> > do have, like my children, friends, this support group, my dog, my home, my> > job, my health insurance and many more.> > > > > > > I guess I just needed to vent.> > > > > > > C_53_IPF_5/09> Washington-the- Evergreen- state> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 --Morning , I was put on the Reglan many years ago after some tests were run because I was having troubles. I take 2 a day......I also take 1 omeprozole in the morning. After I started taking them I have never had any more problems or so I thought.................the Drs. at Shands decided as part of my TX testing to run this test for gastroparesis as an extra one and that is when it showed.........I have no symptoms from it.......they did the test 2x just to make sure. My Pf is related to my RA..that is the decision they have come up with.....I also have High chol.....and Fibromyalgia and Diabetes 2 (which I control by diet)..............I do tak several meds daily.....so will have to add them to the TX pile.\ So how are you doing with your research............ask away on the board..this is a great place. HAve a happy day, kathy...fl PF>...4/07 Wtg for " the call " - In Breathe-Support , Embarq Customer wrote: > > Thanks for the info Kathy. > Did they say what caused the gastroparesis? > Why did they originally put you on Reglan? Just curious. > Do you have an autoimmune disease? > It seems like so many of us have so many health problems, like a big puzzle. But just when I find a piece, the puzzle gets a little bit bigger. > PJ in Ohio, 54, IPF '09, Sjogren's '95 > > > Overwhelmed > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I think its all sinking in for me now, the disease, the > > > > > > > > meds, the lifestyle changes, etc. etc. and it’s really starting to overwhelm me > > > > > > > > and I’m having crying spells. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > It seems every week a new side effect pops up and I don’t > > > > > > > > know which med is causing it. I’m on Prednisone, Azathioprine and Acetylcysteine > > > > > > > > (NAC). Last week my blood tests revealed > > > > > > > > an elevated level of Neutrophils (8.07) and low levels of Lmphocytes (1.17), > > > > > > > > just barely above the normal range (1.0). I contacted my doctor’s office and he > > > > > > > > is on vacation until the 24th and the nurse said not to worry about it right > > > > > > > > now. I guess I’ll just see what this > > > > > > > > week’s tests reveal. > > > > > > > > > > > > > > > > > > > > > > > > > > > > I’m experiencing foot, leg, hip and finger cramps. > > > > > > > > > > > > > > > > > > > > > > > > > > > > This week food is not only tasteless, but actually has a bad taste, foods I normally love and then I just can’t eat it. > > > > > > > > > > > > > > > > > > > > > > > > > > > > I’m involved in two big projects with daily deadlines at > > > > > > > > work and the stress keeps me wired-up. I’ve always loved the work I do and the > > > > > > > > pressure, but now it seems to irritate me. > > > > > > > > > > > > > > > > > > > > > > > > > > > > It feels like people look at me different. Most of my > > > > > > > > co-workers know about my disease and some will ask me about it and how I’m > > > > > > > > doing and others ignore everything about me. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Because I’ve been so focused on my disease I’ m falling > > > > > > > > behind in domestic chores, errands, and other appointments that need to be > > > > > > > > done. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Goals and future dreams crushed. My counselor said I need to > > > > > > > > make new dreams. But I can’t seem to do > > > > > > > > that yet. > > > > > > > > > > > > > > > > > > > > > > > > > > > > I do try to focus on my blessings and am thankful for what I > > > > > > > > do have, like my children, friends, this support group, my dog, my home, my > > > > > > > > job, my health insurance and many more. > > > > > > > > > > > > > > > > > > > > > > > > > > > > I guess I just needed to vent. > > > > > > > > > > > > > > > > > > > > > > > > > > > > C_53_IPF_5/09 > > > > Washington-the- Evergreen- state > > > > > Quote Link to comment Share on other sites More sharing options...
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