Guest guest Posted August 5, 2009 Report Share Posted August 5, 2009 Hi nne...just wanted to empathise with you..all that effort, discomfort for no clear result...SUPER AGGRAVATING...i KNOW 'cos i experienced the same outcome! We're a 'Work in Progress'...I had my VATS in 2007...still no closer to understanding what exact form of PF I have in 2009.. A Lesson in 'Accpetance' is the only way I deal with it! Take Care..PUNCH some pillows....HARD... in Oz IPF: Fibrotic NSIP/UIP?????? Raynaud's phenomenon May 2007 >> Hi everybody,> Well I saw my pulmo-dude last week and the surgeon yesterday and my diagnosis is not specifically one thing or another. I'm going to write it all here and maybe someone else had a similar result.> Final Pathologic Diagnosis- Cellular Interstitial Inflammation with numerous fibroblastic foci and mild interstitial fibrosis.> Biopsies show a cellular mixed inflammatory infiltrate of lymphocytes and histiocytes in the alveolar septae. Scattered throughout the alveoli are several small fibroblastic foci in the interstitium. There is mild interstitial fibrosis thickening of the alveolae septae. No dense honeycombing. Findings are consistant with a cellular fibrosing interstitial pneumonitis. Differential diagnosis is a mixed NSIP pattern and UIP. Presence of fibroblastic foci favors UIP but the dense fibrosing associated with UIP is not observed in the samples. A similar histologic picture may be observed in collagen vascular disease, pneumoconoisis, and hypersensitivity pneumonitis. Suggest correlation with clinical and radiologic findings.HUH? This is not how an episode of HOUSE MD ends! Anyway I am being referred by my pulmo-dude to Columbia Presbyterian Medical Center-NYC which has an interstitial lung disease department to be evaluated. I am back at work and so happy to be out of the house. My company is giving me a parking spot closest to the lobby and I also got from Motor Vehicles a handicapped placard since I am on O2 for exertion. - nne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2009 Report Share Posted August 8, 2009 , After reading your description of: A sudden suck in of air, i remember being at Peggy's house and having one of those episodes myself. Peggy told me what it was. Darn, I don't remember how to explain it as she did. I think it meant that I needed to get O2 in the lungs and INHALE. Peggy, please correct me if I am wrong. Give us the definition again please. Thank you. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> > > > >> > > > > >> > > > > > >> > > > > > >> > > > > > > Hi everybody,> > > > > > > Well I saw my pulmo-dude last week and the surgeon yesterday and my> > > > > > > diagnosis is not specifically one thing or another. I'm going to > > > > write it> > > > > > > all here and maybe someone else had a similar result.> > > > > > > Final Pathologic Diagnosis- Cellular Interstitial Inflammation with> > > > > > > numerous fibroblastic foci and mild interstitial fibrosis.> > > > > > > Biopsies show a cellular mixed inflammatory infiltrate of > > > > lymphocytes and> > > > > > > histiocytes in the alveolar septae. Scattered throughout the > > > > alveoli are> > > > > > > several small fibroblastic foci in the interstitium. There is mild> > > > > > > interstitial fibrosis thickening of the alveolae septae. No dense> > > > > > > honeycombing. Findings are consistant with a cellular fibrosing > > > > interstitial> > > > > > > pneumonitis. Differential diagnosis is a mixed NSIP pattern and UIP.> > > > > > > Presence of fibroblastic foci favors UIP but the dense fibrosing > > > > associated> > > > > > > with UIP is not observed in the samples. A similar histologic > > > > picture may be> > > > > > > observed in collagen vascular disease, pneumoconoisis, and > > > > hypersensitivity> > > > > > > pneumonitis. Suggest correlation with clinical and radiologic > > > > findings.HUH?> > > > > > > This is not how an episode of HOUSE MD ends! Anyway I am being > > > > referred by> > > > > > > my pulmo-dude to Columbia Presbyterian Medical Center-NYC which > > > > has an> > > > > > > interstitial lung disease department to be evaluated. I am back > > > > at work and> > > > > > > so happy to be out of the house. My company is giving me a > > > > parking spot> > > > > > > closest to the lobby and I also got from Motor Vehicles a > > > > handicapped> > > > > > > placard since I am on O2 for exertion. - nne> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > > > > --> > > > > > Dyane L. Billings> > > > > > Senior Staff Accountant> > > > > > Ball & McGraw PC> > > > > >> > > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2009 Report Share Posted August 8, 2009 What is NSIP? Joyce Rudy AZ birds Re: results of VATS????? Hi ,Yeah- you're right I know having NSIP is not an illness where you pop a few antibiotics and get "cured". My pulmo-dude is reducing prednisone since he doesn't think it's doing anything, which is why he is referring me to Columbia Presbyterian for a transplant evaluation. I am his first patient with this mish-mosh of a diagnosis so he doesn't want to just keep trying this or that. He said the best you can hope for with a medicine working is that it would slow the progression of the disease, I would still be at the same place I am now- a transplant is the only chance to be normal again. Now I have another question, ever since this nightmare started mid-May of this year, I have been experiencing spasms in my lungs- if my mouth is open, it sounds like a hiccup which is so embarassing but it definitely isn't coming from my stomach. Told drs. about this and they said NOTHING, mentioned it to anesthesiologist at the VATS and I called it a broncho-spasm and he said it wasn't-but he didn't say what is was. Anyone else experience this? Yesterday was really bad and all I was doing was sitting, not talking. It happens whenever and wherever.> > >> > > >> > > > >> > > > >> > > > > Hi everybody,> > > > > Well I saw my pulmo-dude last week and the surgeon yesterday and my> > > > > diagnosis is not specifically one thing or another. I'm going to > > write it> > > > > all here and maybe someone else had a similar result.> > > > > Final Pathologic Diagnosis- Cellular Interstitial Inflammation with> > > > > numerous fibroblastic foci and mild interstitial fibrosis.> > > > > Biopsies show a cellular mixed inflammatory infiltrate of > > lymphocytes and> > > > > histiocytes in the alveolar septae. Scattered throughout the > > alveoli are> > > > > several small fibroblastic foci in the interstitium. There is mild> > > > > interstitial fibrosis thickening of the alveolae septae. No dense> > > > > honeycombing. Findings are consistant with a cellular fibrosing > > interstitial> > > > > pneumonitis. Differential diagnosis is a mixed NSIP pattern and UIP.> > > > > Presence of fibroblastic foci favors UIP but the dense fibrosing > > associated> > > > > with UIP is not observed in the samples. A similar histologic > > picture may be> > > > > observed in collagen vascular disease, pneumoconoisis, and > > hypersensitivity> > > > > pneumonitis. Suggest correlation with clinical and radiologic > > findings.HUH?> > > > > This is not how an episode of HOUSE MD ends! Anyway I am being > > referred by> > > > > my pulmo-dude to Columbia Presbyterian Medical Center-NYC which > > has an> > > > > interstitial lung disease department to be evaluated. I am back > > at work and> > > > > so happy to be out of the house. My company is giving me a > > parking spot> > > > > closest to the lobby and I also got from Motor Vehicles a > > handicapped> > > > > placard since I am on O2 for exertion. - nne> > > > >> > > > >> > > > >> > > >> > > >> > > >> > >> > > > --> > > > Dyane L. Billings> > > > Senior Staff Accountant> > > > Ball & McGraw PC> > > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2009 Report Share Posted August 8, 2009 IT MEANS nonspecific interstitial pneumonia (NSIP)To: Breathe-Support Sent: Saturday, August 8, 2009 12:39:26 PMSubject: Re: Re: results of VATS????? What is NSIP? Joyce Rudy AZ birds Re: results of VATS????? Hi ,Yeah- you're right I know having NSIP is not an illness where you pop a few antibiotics and get "cured". My pulmo-dude is reducing prednisone since he doesn't think it's doing anything, which is why he is referring me to Columbia Presbyterian for a transplant evaluation. I am his first patient with this mish-mosh of a diagnosis so he doesn't want to just keep trying this or that. He said the best you can hope for with a medicine working is that it would slow the progression of the disease, I would still be at the same place I am now- a transplant is the only chance to be normal again. Now I have another question, ever since this nightmare started mid-May of this year, I have been experiencing spasms in my lungs- if my mouth is open, it sounds like a hiccup which is so embarassing but it definitely isn't coming from my stomach. Told drs. about this and they said NOTHING, mentioned it to anesthesiologist at the VATS and I called it a broncho-spasm and he said it wasn't-but he didn't say what is was. Anyone else experience this? Yesterday was really bad and all I was doing was sitting, not talking. It happens whenever and wherever.> > >> > > >> > > > >> > > > >> > > > > Hi everybody,> > > > > Well I saw my pulmo-dude last week and the surgeon yesterday and my> > > > > diagnosis is not specifically one thing or another. I'm going to > > write it> > > > > all here and maybe someone else had a similar result.> > > > > Final Pathologic Diagnosis- Cellular Interstitial Inflammation with> > > > > numerous fibroblastic foci and mild interstitial fibrosis.> > > > > Biopsies show a cellular mixed inflammatory infiltrate of > > lymphocytes and> > > > > histiocytes in the alveolar septae. Scattered throughout the > > alveoli are> > > > > several small fibroblastic foci in the interstitium. There is mild> > > > > interstitial fibrosis thickening of the alveolae septae. No dense> > > > > honeycombing. Findings are consistant with a cellular fibrosing > > interstitial> > > > > pneumonitis. Differential diagnosis is a mixed NSIP pattern and UIP.> > > > > Presence of fibroblastic foci favors UIP but the dense fibrosing > > associated> > > > > with UIP is not observed in the samples. A similar histologic > > picture may be> > > > > observed in collagen vascular disease, pneumoconoisis, and > > hypersensitivity> > > > > pneumonitis. Suggest correlation with clinical and radiologic > > findings.HUH?> > > > > This is not how an episode of HOUSE MD ends! Anyway I am being > > referred by> > > > > my pulmo-dude to Columbia Presbyterian Medical Center-NYC which > > has an> > > > > interstitial lung disease department to be evaluated. I am back > > at work and> > > > > so happy to be out of the house. My company is giving me a > > parking spot> > > > > closest to the lobby and I also got from Motor Vehicles a > > handicapped> > > > > placard since I am on O2 for exertion. - nne> > > > >> > > > >> > > > >> > > >> > > >> > > >> > >> > > > --> > > > Dyane L. Billings> > > > Senior Staff Accountant> > > > Ball & McGraw PC> > > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2009 Report Share Posted August 8, 2009 Joyce Rudy, NSIP is short for Non-Specific Interstitial Pneumenitis..a form of PF. The NS basically means they haven't a clue to the cause....of the inflammation and fibrosis of the tissue between the bronchial tubes. It's fibrosis anyway you call it!!! My NSIP is responsive to Prednisone( fibriotic usually isn't). Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower JOYCE RUDY wrote: What is NSIP? Joyce Rudy AZ birds ----- Original Message ----- From: teddyspenguins To: Breathe-Support Sent: Friday, August 07, 2009 1:17 PM Subject: Re: results of VATS????? Hi , Yeah- you're right I know having NSIP is not an illness where you pop a few antibiotics and get "cured". My pulmo-dude is reducing prednisone since he doesn't think it's doing anything, which is why he is referring me to Columbia Presbyterian for a transplant evaluation. I am his first patient with this mish-mosh of a diagnosis so he doesn't want to just keep trying this or that. He said the best you can hope for with a medicine working is that it would slow the progression of the disease, I would still be at the same place I am now- a transplant is the only chance to be normal again. Now I have another question, ever since this nightmare started mid-May of this year, I have been experiencing spasms in my lungs- if my mouth is open, it sounds like a hiccup which is so embarassing but it definitely isn't coming from my stomach. Told drs. about this and they said NOTHING, mentioned it to anesthesiologist at the VATS and I called it a broncho-spasm and he said it wasn't-but he didn't say what is was. Anyone else experience this? Yesterday was really bad and all I was doing was sitting, not talking. It happens whenever and wherever. > > > > > > > > > > > > > > > > > > > > > > Hi everybody, > > > > > Well I saw my pulmo-dude last week and the surgeon yesterday and my > > > > > diagnosis is not specifically one thing or another. I'm going to > > write it > > > > > all here and maybe someone else had a similar result. > > > > > Final Pathologic Diagnosis- Cellular Interstitial Inflammation with > > > > > numerous fibroblastic foci and mild interstitial fibrosis. > > > > > Biopsies show a cellular mixed inflammatory infiltrate of > > lymphocytes and > > > > > histiocytes in the alveolar septae. Scattered throughout the > > alveoli are > > > > > several small fibroblastic foci in the interstitium. There is mild > > > > > interstitial fibrosis thickening of the alveolae septae. No dense > > > > > honeycombing. Findings are consistant with a cellular fibrosing > > interstitial > > > > > pneumonitis. Differential diagnosis is a mixed NSIP pattern and UIP. > > > > > Presence of fibroblastic foci favors UIP but the dense fibrosing > > associated > > > > > with UIP is not observed in the samples. A similar histologic > > picture may be > > > > > observed in collagen vascular disease, pneumoconoisis, and > > hypersensitivity > > > > > pneumonitis. Suggest correlation with clinical and radiologic > > findings.HUH? > > > > > This is not how an episode of HOUSE MD ends! Anyway I am being > > referred by > > > > > my pulmo-dude to Columbia Presbyterian Medical Center-NYC which > > has an > > > > > interstitial lung disease department to be evaluated. I am back > > at work and > > > > > so happy to be out of the house. My company is giving me a > > parking spot > > > > > closest to the lobby and I also got from Motor Vehicles a > > handicapped > > > > > placard since I am on O2 for exertion. - nne > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > > > > Dyane L. Billings > > > > Senior Staff Accountant > > > > Ball & McGraw PC > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2009 Report Share Posted August 9, 2009 Joyce, I've had much of the evaluation work done also....as you say the "list to be listed". One major obstacle for me is my weight....once again it's the old work in progress. I didn't intend to sound negative about transplant....I don't think I did but forgive me if that was how it came across. The timing is tricky as you alluded to. Sick enough but healthy enough to withstand the rigors of the surgery and the recovery. And of course the downturn can come suddenly when we feel least "prepared" for it. It's easy to become complacent...I think that's part of the reason this group is so important to me. While I have remained stable for over 3 years now, I have watched others deteriorate and be faced with difficult decisions. This is reality and I could be faced with a serious downturn at any time. I don't look at the necessary complications post transplant as the "downside" at all. And again forgive me if that's how it sounded. The meds and the precautions are simply reality and certainly not any worse than what we all live with pre-transplant. It's a trade and one that I may have to make at some point it's just something that I want to postpone as long as possible. I want to get as much use out of my poor old lungs as I can before I trade 'em in for a shiny new pink pair! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Sunday, August 9, 2009 10:22:45 AMSubject: Re: Re: results of VATS????? welcome back mary beth transplant evals at Penn are done as soon as possible i was dx in march, referred to the transplant doc and the eval was july one of the things they look at is whether or not you would be a candidate down the road -- just in case when the time comes.... i have learned that for some people the change comes quite suddenly, and the bulk of the testing has been done at the time my lungs were too healthy, but i would be a potential candidate if necessary i used to say that i was "on the list to be listed" i'm sure there are some people who are ruled out at the time for various reasons, the catch is that your body has to be healthy enough to go thru the operation and recovery, etc, while at the same time your lungs need to bad enough to need replacement then as the transplant doc says, you are trading the disease of pulmonary fibrosis for the "disease of transplant" and everything involved with post transplant issuses since that time we have learned alot about that on this board, with rejection and other kinds of issues most of the post transplant people that i have met, said that they are glad they had the transplants, the longest lung recipient that i met is about 15 years, then i met someone out about 10 years, i have spoken with someone a couple of times who had his 9 years ago there is a lady in the lung tx support group who had a heart/lung tx 6 years ago, she goes to gym 5 times a week yes, i know about the down side of transplant, but i also have to look at the positive side vs the alternative Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: results of VATS?????To: Breathe-Support@ yahoogroups. comDate: Sunday, August 9, 2009, 8:28 AM nne, I think I know precisely what you're talking about....it sounds sort of like a hiccup...feels like a short involuntary miniature gasp....it's definitely respiratory not GI. I've never been able to get a doctor to understand what I was talking about. Since it never happens when I'm in their presence. It happens to me much much less now than it did before I was on oxygen. Only occasionally these days. Once every few days but always at the most inopportune moments....like standing in line at the grocery store....or in church...lol I'm glad you're going to be going to Columbia in NY. I was treated there before I moved to North Carolina and was very happy with the doctors and staff. I didn't realize you were going for transplant evaluation this quickly. Just remember that while transplant does offer the chance to be able to breathe without the oxygen again it comes with it's own set of complications and problems. Take in all the information and make the right decision for you! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: teddyspenguins <teddyspenguins@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, August 7, 2009 4:17:22 PMSubject: Re: results of VATS????? Hi ,Yeah- you're right I know having NSIP is not an illness where you pop a few antibiotics and get "cured". My pulmo-dude is reducing prednisone since he doesn't think it's doing anything, which is why he is referring me to Columbia Presbyterian for a transplant evaluation. I am his first patient with this mish-mosh of a diagnosis so he doesn't want to just keep trying this or that. He said the best you can hope for with a medicine working is that it would slow the progression of the disease, I would still be at the same place I am now- a transplant is the only chance to be normal again. Now I have another question, ever since this nightmare started mid-May of this year, I have been experiencing spasms in my lungs- if my mouth is open, it sounds like a hiccup which is so embarassing but it definitely isn't coming from my stomach. Told drs. about this and they said NOTHING, mentioned it to anesthesiologist at the VATS and I called it a broncho-spasm and he said it wasn't-but he didn't say what is was. Anyone else experience this? Yesterday was really bad and all I was doing was sitting, not talking. It happens whenever and wherever.> > >> > > >> > > > >> > > > >> > > > > Hi everybody,> > > > > Well I saw my pulmo-dude last week and the surgeon yesterday and my> > > > > diagnosis is not specifically one thing or another. I'm going to > > write it> > > > > all here and maybe someone else had a similar result.> > > > > Final Pathologic Diagnosis- Cellular Interstitial Inflammation with> > > > > numerous fibroblastic foci and mild interstitial fibrosis.> > > > > Biopsies show a cellular mixed inflammatory infiltrate of > > lymphocytes and> > > > > histiocytes in the alveolar septae. Scattered throughout the > > alveoli are> > > > > several small fibroblastic foci in the interstitium. There is mild> > > > > interstitial fibrosis thickening of the alveolae septae. No dense> > > > > honeycombing. Findings are consistant with a cellular fibrosing > > interstitial> > > > > pneumonitis. Differential diagnosis is a mixed NSIP pattern and UIP.> > > > > Presence of fibroblastic foci favors UIP but the dense fibrosing > > associated> > > > > with UIP is not observed in the samples. A similar histologic > > picture may be> > > > > observed in collagen vascular disease, pneumoconoisis, and > > hypersensitivity> > > > > pneumonitis. Suggest correlation with clinical and radiologic > > findings.HUH?> > > > > This is not how an episode of HOUSE MD ends! Anyway I am being > > referred by> > > > > my pulmo-dude to Columbia Presbyterian Medical Center-NYC which > > has an> > > > > interstitial lung disease department to be evaluated. I am back > > at work and> > > > > so happy to be out of the house. My company is giving me a > > parking spot> > > > > closest to the lobby and I also got from Motor Vehicles a > > handicapped> > > > > placard since I am on O2 for exertion. - nne> > > > >> > > > >> > > > >> > > >> > > >> > > >> > >> > > > --> > > > Dyane L. Billings> > > > Senior Staff Accountant> > > > Ball & McGraw PC> > > >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 Barbara, I'm a Queens girl too. Born and raised in Richmond Hill next to Ozone Park. What part of Queens are you from? > > >> > > > > >> > > > > > >> > > > > > > >> > > > > > > >> > > > > Hi everybody, > > >> > > > > Well I saw my pulmo-dude last week and the surgeon yesterday and my > > >> > > > > diagnosis is not specifically one thing or another. I'm going to > > >> > write it > > >> > > > > all here and maybe someone else had a similar result. > > >> > > > > Final Pathologic Diagnosis- Cellular Interstitial Inflammation with > > >> > > > > numerous fibroblastic foci and mild interstitial fibrosis. > > >> > > > > Biopsies show a cellular mixed inflammatory infiltrate of > > >> > lymphocytes and > > >> > > > > histiocytes in the alveolar septae. Scattered throughout the > > >> > alveoli are > > >> > > > > several small fibroblastic foci in the interstitium. There is mild > > >> > > > > interstitial fibrosis thickening of the alveolae septae. No dense > > >> > > > > honeycombing. Findings are consistant with a cellular fibrosing > > >> > interstitial > > >> > > > > pneumonitis. Differential diagnosis is a mixed NSIP pattern and UIP. > > >> > > > > Presence of fibroblastic foci favors UIP but the dense fibrosing > > >> > associated > > >> > > > > with UIP is not observed in the samples. A similar histologic > > >> > picture may be > > >> > > > > observed in collagen vascular disease, pneumoconoisis, and > > >> > hypersensitivity > > >> > > > > pneumonitis. Suggest correlation with clinical and radiologic > > >> > findings.HUH? > > >> > > > > This is not how an episode of HOUSE MD ends! Anyway I am being > > >> > referred by > > >> > > > > my pulmo-dude to Columbia Presbyterian Medical Center-NYC which > > >> > has an > > >> > > > > interstitial lung disease department to be evaluated. I am back > > >> > at work and > > >> > > > > so happy to be out of the house. My company is giving me a > > >> > parking spot > > >> > > > > closest to the lobby and I also got from Motor Vehicles a > > >> > handicapped > > >> > > > > placard since I am on O2 for exertion. - nne > > >> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > -- > > >> > > > Dyane L. Billings > > >> > > > Senior Staff Accountant > > >> > > > Ball & McGraw PC > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 it sure does evaporate Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: results of VATS?????To: Breathe-Support Date: Tuesday, August 11, 2009, 5:53 PM You are correct about liquid Beth. You have to fill your tank just before you go and if there is some left when you come home it evaporates by the next day. Joyce Rudy AZ Birds Re: results of VATS????? Beth,First of all, welcome back- it sounds like your vacation was perfect- except for the oxygen tanks! Now about transplant issue- I really think Columbia is just going to evaluate me and then I guess if I qualify they may talk to me about transplant. My pulmo-dude brought the subject up because that really is the only way to achieve normalcy. The drugs, if they work at all, just slow the progression. I guess with my mish-mosh of a diagnosis, he feels a drug option may not be for me. Even the surgeon for VATS was not encouraging about a drug option. In his words, "the drugs wreak havoc on your body." At the pre-VATS appointment he said my pfts were "bad" and he couldn't believe I wasn't on O2 already. Who knows- I'll just wait and see what happens at Columbia.I have a question for you about portable O2. I have a unit about 12 lbs. that was delivered on Friday (not IRON) which I filled while the delivery guy was there, but when I grabbed it this morning there was no O2 in it. My plan had been to fill it night before I was going to use it-I know I must have waited too long since I didn't use it Saturday or Sunday. But if I fill it tonight and then use it when I go out for my lunch hour tomorrow, will the O2 still be there? I have an appointment to get Helios and meet with Respiratory Tech on Wednesday- not sure what Helios is though, but I guess I'll find out. SO many new things to learn!- nne > >> > >> >> > > >> >> > > > >> >> > > > >> >> > > > > Hi everybody,> >> > > > > Well I saw my pulmo-dude last week and the surgeon yesterday and my> >> > > > > diagnosis is not specifically one thing or another. I'm going to > >> > write it> >> > > > > all here and maybe someone else had a similar result.> >> > > > > Final Pathologic Diagnosis- Cellular Interstitial Inflammation with> >> > > > > numerous fibroblastic foci and mild interstitial fibrosis.> >> > > > > Biopsies show a cellular mixed inflammatory infiltrate of > >> > lymphocytes and> >> > > > > histiocytes in the alveolar septae. Scattered throughout the > >> > alveoli are> >> > > > > several small fibroblastic foci in the interstitium. There is mild> >> > > > > interstitial fibrosis thickening of the alveolae septae. No dense> >> > > > > honeycombing. Findings are consistant with a cellular fibrosing > >> > interstitial> >> > > > > pneumonitis. Differential diagnosis is a mixed NSIP pattern and UIP.> >> > > > > Presence of fibroblastic foci favors UIP but the dense fibrosing > >> > associated> >> > > > > with UIP is not observed in the samples. A similar histologic > >> > picture may be> >> > > > > observed in collagen vascular disease, pneumoconoisis, and > >> > hypersensitivity> >> > > > > pneumonitis. Suggest correlation with clinical and radiologic > >> > findings.HUH?> >> > > > > This is not how an episode of HOUSE MD ends! Anyway I am being > >> > referred by> >> > > > > my pulmo-dude to Columbia Presbyterian Medical Center-NYC which > >> > has an> >> > > > > interstitial lung disease department to be evaluated. I am back > >> > at work and> >> > > > > so happy to be out of the house. My company is giving me a > >> > parking spot> >> > > > > closest to the lobby and I also got from Motor Vehicles a > >> > handicapped> >> > > > > placard since I am on O2 for exertion. - nne> >> > > > >> >> > > > >> >> > > > >> >> > > >> >> > > >> >> > > >> >> > >> >> > > > --> >> > > > Dyane L. Billings> >> > > > Senior Staff Accountant> >> > > > Ball & McGraw PC> >> > > >> >> > >> >> >> >> >> >>> >> >> Quote Link to comment Share on other sites More sharing options...
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