Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 So where in Mississippi? I am an old Crystal Springs girl. S, Lubbock, TX NSIP w/PF 12/2006 et al > > > > > > Hello, > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group. > > > > > > Thank you, > > > Annette > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 Really ! When I was in high school, I worked at the old Royal Maid in Hazlehurst. Yes, and I also lived in the old White House for a few months in :83. I walked all over Chrystal Springs. I was a food vendor at the old shirt factory about a block away from the White House. This is getting to be a really small world.:-) Other than a fews people who worked at the factory and who lived in the White House. Jerry/Mississippi!54/IPF/dx April 05 Who believes that hard times help us appreciate the good times even more. Subject: SO Jerryb888To: Breathe-Support Date: Wednesday, August 19, 2009, 3:33 AM So where in Mississippi? I am an old Crystal Springs girl. S, Lubbock, TXNSIP w/PF 12/2006 et al> > >> > > Hello, > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group.> > > > > > Thank you,> > > Annette> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Yes it is a small world. I was actually born at good old Hardy in Hazlehurst. I left CS when I married in 76 but lived in Pearl until 1991 when I became a Texan. My great aunt was a supervisor at the shirt factory until she retired. I don't remember when that was. Got married at the First Baptist Church right down the street. Just never know who you're gonna run into on this Board. There was someone here who was a relative of the Bowman's that had the grocery store. I am terrible with names but maybe Carolyn? Anyway I hope you are having a perfectly lovely day. S, Lubbock, TX NSIP w/PF 12/2006 et al > > > > > > > > Hello, > > > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group. > > > > > > > > Thank you, > > > > Annette > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 My Mom taught at Pearl Mc when I was about 7. My Dad taught . My brother and his family have lived in Pearl for 30 years or more. I shopped at the Big Star, but the Bowman name is very familiar. I knew many people from Hazlehurst who worked at Royal Maid. I ate many delicious meals at Mickey;s there in Hazlehurst. You also have a great day. Sionce we lived there, we know where It is, don't we. Jerry/Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Subject: Re: SO Jerryb888To: Breathe-Support Date: Wednesday, August 19, 2009, 2:24 PM Yes it is a small world. I was actually born at good old Hardy in Hazlehurst. I left CS when I married in 76 but lived in Pearl until 1991 when I became a Texan.My great aunt was a supervisor at the shirt factory until she retired. I don't remember when that was. Got married at the First Baptist Church right down the street.Just never know who you're gonna run into on this Board. There was someone here who was a relative of the Bowman's that had the grocery store. I am terrible with names but maybe Carolyn?Anyway I hope you are having a perfectly lovely day. S, Lubbock, TXNSIP w/PF 12/2006 et al> > > >> > > > Hello, > > > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group.> > > > > > > > Thank you,> > > > Annette> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Far out! It is good to know people who know. Ummm - Mickeys. > > > > > > > > > > Hello, > > > > > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group. > > > > > > > > > > Thank you, > > > > > Annette > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Oh yes, I went to graduate school with Martha West from Chrystal Springs. Also Patty Hood was from around there. Her dad I think was a county supervisor. Have a great afternoon. Jerry/Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more. Subject: Re: SO Jerryb888To: Breathe-Support Date: Wednesday, August 19, 2009, 7:18 PM Far out! It is good to know people who know. Ummm - Mickeys.> > > > >> > > > > Hello, > > > > > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group.> > > > > > > > > > Thank you,> > > > > Annette> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 No way... We went to church with the Hoods. Her dad and my dad were deacons together. Wow what a small world we live in. I don't remember Patty but that's not saying much. I don't remember much of anybody really and I moved away when I was 18. I don't think I knew Martha. The last time we rode through there was in November of 05 right before my body started falling apart. Oh wellll... > > > > > > > > > > > > Hello, > > > > > > > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group. > > > > > > > > > > > > Thank you, > > > > > > Annette > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 That is incredible! I would love to know where they both were.Other than passing the Chrystal Springs exit on our way to Tulane, I haven't been back since the 80s. With those 2 shirt factory closings and probably other jobs leaving the area, times there are probably pretty hard. I understand there is a plant nursery there, and that would be interesting to visit. I lived much of my life in Vicksburg, , and Mathiston, where Dad taught junior college. I hope you are managing to maintain your health in spite of this PF. Where is your main pulmodude/dudette? Can you travel as you used to? Jerry/Mississippi/54/IPF/dx April 05 Who believes that hard times help us appreciate the good times even more. Subject: Re: SO Jerryb888To: Breathe-Support Date: Thursday, August 20, 2009, 2:47 AM No way... We went to church with the Hoods. Her dad and my dad were deacons together. Wow what a small world we live in.I don't remember Patty but that's not saying much. I don't remember much of anybody really and I moved away when I was 18.I don't think I knew Martha.The last time we rode through there was in November of 05 right before my body started falling apart. Oh wellll...> > > > > >> > > > > > Hello, > > > > > > > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group.> > > > > > > > > > > > Thank you,> > > > > > Annette> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 I've seen Mark in Lubbock ever since my stuff started in 2006. I started with double pneumonia that just did not get better. Long story short, I spent a month in Covenant Medical Center here in Lubbock. We did a VATS and a chest tube right before Christmas. Never be encouraged if they say they have to stick a chest tube back in but it's going back in the same hole. Doc is really good and listens to what I tell him I feel. It is hard for somebody to understand what breathing through a sponge feels like. I really don't travel as much now. I don't do a lot of things I used to do but I pretty much do what I want. Most days I don't need the O2 during the day. I work, work out at a gym, shop or whatever. I gave up my work with the Walk to Emmaus Community because a real commitment to that can really take a lot of time and energy. My girls are grown and both live out of state now, one in Shreveport and one in Oklahoma City. I see them when we can work it out but they work and the oldest is working on her masters so she is swamped. Anyway, I miss the river at Vicksburg, dogwood, good smoked barbeque, Hal and Mal's and autumn on the Trace. I don't miss the humidity, constant rain when it sets in, small-mindedness or trying to drive or shop in . S, Lubbock, TX NSIP w/PF 12/2006 et al > > > > > > > > > > > > > > Hello, > > > > > > > > > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > > > > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > > > > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group. > > > > > > > > > > > > > > Thank you, > > > > > > > Annette > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 , If you and your husband come east, I would love to have lunch at Hal And Mal's. I love that place. There is also a little Irish Pub, Fennian's, down on Fortification. When you mentioned Vicksburg and the Mississippi River, it reminded me of when I lived in Vicksburg. my best friend Flo and I would stop off at Krogers and pick out a can of cake frosting and go down to the river and watch the barges going under the bridge and the beautiful sunsets across the water, as we took turns with the spoon. She and her husband are still my very best friends, and I love visiting with them. Flo takes me to Tulane. Glad you are feeling comfortable with Dr. . Being able to talk to a doctor means so much. You probably have that understanding that you can see him most any time. I have that understanding with Dr. Lasky and the people at Tulane. I get a very warm welcome each time I go down there. I hope your PF remains stable for some more good years. I know you want to see grand-babies growing up. Jerry/Mississippi/54/IPF/dx April 05 .. > > > > > > > > > > > > > > > > Hello, > > > > > > > > > > > > > > > > I'm new to the group, my name is Annette and I live in the White Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after they did a right heart cath to confirm a dx of Pulmonary Hypertension. Once they saw my heart and lungs, they discovered I did not have PH but PF. I had never heard of Pulmonary Fibrosis before and immediately started doing research on what this was exactly. To give you a little history, I was dx with asthma about 9+ years ago and have been on every medication there is and none have really helped. After my last attack about 2 months ago they noticed my oxygen wasn't stable and had to put me on oxygen 24/7. At that time they started running all kinds of test to determine what else could be wrong. My pulmonologist sent me to a cardiologist and after many tests and heart/lung cath. they told me I had Pulmonary Fibrosis. > > > > > > > > > > > > > > > > At this point in my life I'm not really able to do much, I'm very limited in my activities of daily living. Will I continue to get worse and my activities even more limited? Also, how quickly have you noticed your symptoms getting worse? For me, I might be able to do something for 3-4 months and than the next day it will knock me on my rear! Sorry for all the questions, but since I've been given a confirmed dx I would like to know as much about this disease as I can. > > > > > > > > > > > > > > > > I appreciate you taking the time to read this and comment..Looking forward to getting to know this group. > > > > > > > > > > > > > > > > Thank you, > > > > > > > > Annette > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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