Re: New to the group/Dyane

[Guest guest]

Barbara,

I can smell the posole already. Tell your hubby I understand, I will

actually break into a short run (very funny to watch) for a good

machacha beef chimichanga....with guacamole and sour cream.....yum

Dyane Phoenix IPF 02

> >

> > Hello,

> >

> > I'm new to the group, my name is Annette and I live in the White

Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after

they did a right heart cath to confirm a dx of Pulmonary Hypertension.

Once they saw my heart and lungs, they discovered I did not have PH but

PF. I had never heard of Pulmonary Fibrosis before and immediately

started doing research on what this was exactly. To give you a little

history, I was dx with asthma about 9+ years ago and have been on every

medication there is and none have really helped. After my last attack

about 2 months ago they noticed my oxygen wasn't stable and had to put

me on oxygen 24/7. At that time they started running all kinds of test

to determine what else could be wrong. My pulmonologist sent me to a

cardiologist and after many tests and heart/lung cath. they told me I

had Pulmonary Fibrosis.

> >

> > At this point in my life I'm not really able to do much, I'm very

limited in my activities of daily living. Will I continue to get worse

and my activities even more limited? Also, how quickly have you noticed

your symptoms getting worse? For me, I might be able to do something for

3-4 months and than the next day it will knock me on my rear! Sorry for

all the questions, but since I've been given a confirmed dx I would like

to know as much about this disease as I can.

> >

> > I appreciate you taking the time to read this and comment..Looking

forward to getting to know this group.

> >

> > Thank you,

> > Annette

> >

>

[Guest guest]

there ya go again, listing all this good food (i love chimichangas) and i have'nt even had breakfast yet. i just took meds and it'll be another hour till i can eat. torture, torture, torture. LOL

ken

To: Breathe-Support Sent: Wednesday, August 19, 2009 9:07:06 AMSubject: Re: New to the group/Dyane

Barbara,I can smell the posole already. Tell your hubby I understand, I willactually break into a short run (very funny to watch) for a goodmachacha beef chimichanga. ...with guacamole and sour cream.....yumDyane Phoenix IPF 02> >> > Hello,> >> > I'm new to the group, my name is Annette and I

live in the WhiteMountains of Arizona. I was dx with Pulmonary Fibrosis yesterday afterthey did a right heart cath to confirm a dx of Pulmonary Hypertension.Once they saw my heart and lungs, they discovered I did not have PH butPF. I had never heard of Pulmonary Fibrosis before and immediatelystarted doing research on what this was exactly. To give you a littlehistory, I was dx with asthma about 9+ years ago and have been on everymedication there is and none have really helped. After my last attackabout 2 months ago they noticed my oxygen wasn't stable and had to putme on oxygen 24/7. At that time they started running all kinds of testto determine what else could be wrong. My pulmonologist sent me to acardiologist and after many tests and heart/lung cath. they told me Ihad Pulmonary Fibrosis.> >> > At this point in my life I'm not really able to do much, I'm verylimited in my

activities of daily living. Will I continue to get worseand my activities even more limited? Also, how quickly have you noticedyour symptoms getting worse? For me, I might be able to do something for3-4 months and than the next day it will knock me on my rear! Sorry forall the questions, but since I've been given a confirmed dx I would liketo know as much about this disease as I can.> >> > I appreciate you taking the time to read this and comment..Lookingforward to getting to know this group.> >> > Thank you,> > Annette> >>

[Guest guest]

Sorry Ken ! Actually I know how you feel as I am still on my Medifast diet, I just 'drank' my breakfast. Oh well, it is working am down 28 lbs in 12 weeks I believe. I do cheat ever so often, yesterday I had a hot dog for lunch..tasted like ambrosia LOLDyane Phoenix ipf 02> > >> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist and after many tests and heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >> >>

[Guest guest]

Dyane:

Mmmmmm. He laughed!

That sounds WONDERFUL! Hard to get that kinda cooking in the mountains of NC. But........there are many things that make up for it (I guess!)

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, August 19, 2009 12:07:06 PMSubject: Re: New to the group/Dyane

Barbara,I can smell the posole already. Tell your hubby I understand, I willactually break into a short run (very funny to watch) for a goodmachacha beef chimichanga. ...with guacamole and sour cream.....yumDyane Phoenix IPF 02> >> > Hello,> >> > I'm new to the group, my name is Annette and I

live in the WhiteMountains of Arizona. I was dx with Pulmonary Fibrosis yesterday afterthey did a right heart cath to confirm a dx of Pulmonary Hypertension.Once they saw my heart and lungs, they discovered I did not have PH butPF. I had never heard of Pulmonary Fibrosis before and immediatelystarted doing research on what this was exactly. To give you a littlehistory, I was dx with asthma about 9+ years ago and have been on everymedication there is and none have really helped. After my last attackabout 2 months ago they noticed my oxygen wasn't stable and had to putme on oxygen 24/7. At that time they started running all kinds of testto determine what else could be wrong. My pulmonologist sent me to acardiologist and after many tests and heart/lung cath. they told me Ihad Pulmonary Fibrosis.> >> > At this point in my life I'm not really able to do much, I'm verylimited in my

activities of daily living. Will I continue to get worseand my activities even more limited? Also, how quickly have you noticedyour symptoms getting worse? For me, I might be able to do something for3-4 months and than the next day it will knock me on my rear! Sorry forall the questions, but since I've been given a confirmed dx I would liketo know as much about this disease as I can.> >> > I appreciate you taking the time to read this and comment..Lookingforward to getting to know this group.> >> > Thank you,> > Annette> >>

[Guest guest]

Dyane and Ken:

Not to brag - well....... okay, I'm bragging. Went to the rheumy yesterday for a followup due to the new prednisone, and I lost three pounds over the last two weeks. I'm sure I will gain it back and put on more (???), but in the meantime, it's a wonderful thing.

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, August 19, 2009 12:35:41 PMSubject: Re: New to the group/Dyane

Sorry Ken ! Actually I know how you feel as I am still on my Medifast diet, I just 'drank' my breakfast. Oh well, it is working am down 28 lbs in 12 weeks I believe. I do cheat ever so often, yesterday I had a hot dog for lunch..tasted like ambrosia LOLDyane Phoenix ipf 02> >

>> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist and after many tests and

heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >> >>

[Guest guest]

Barbara,So true...I lived in Georgia for 3 years way back when and still have not found anyone who can cook a decent batch of fried okra like my neighbor did! Mine never tastes right either LOLDyane > > >> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist and after many tests and heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >> >>

[Guest guest]

Dyane -

Being a native New Yorker, okra is NOT on my list of things to eat. ;-)

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, August 19, 2009 12:45:33 PMSubject: Re: New to the group/Dyane

Barbara,So true...I lived in Georgia for 3 years way back when and still have not found anyone who can cook a decent batch of fried okra like my neighbor did! Mine never tastes right either LOLDyane > > >> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago

they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist and after many tests and heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and

comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >> >>

[Guest guest]

is a chocolate chip cookie (well maybe 2) with tea cheating?

To: Breathe-Support Sent: Wednesday, August 19, 2009 9:35:41 AMSubject: Re: New to the group/Dyane

Sorry Ken ! Actually I know how you feel as I am still on my Medifast diet, I just 'drank' my breakfast. Oh well, it is working am down 28 lbs in 12 weeks I believe. I do cheat ever so often, yesterday I had a hot dog for lunch..tasted like ambrosia LOLDyane Phoenix ipf 02> >

>> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist and after many tests and

heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >> >>

[Guest guest]

How could that be cheating? Look at all the major food groups you are including. Grain, daily, butter, chocolate. Two is not too many--maybe too few!

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, August 19, 2009 1:24:56 PMSubject: Re: Re: New to the group/Dyane

is a chocolate chip cookie (well maybe 2) with tea cheating?

From: dyanebillings <dyane.billings@ ball-mcgraw. com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 19, 2009 9:35:41 AMSubject: Re: New to the group/Dyane

Sorry Ken ! Actually I know how you feel as I am still on my Medifast diet, I just 'drank' my breakfast. Oh well, it is working am down 28 lbs in 12 weeks I believe. I do cheat ever so often, yesterday I had a hot dog for lunch..tasted like ambrosia LOLDyane Phoenix ipf 02> >

>> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist and after many tests and

heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >> >>

[Guest guest]

Oh my Barb you don't know what your missing.. fried okra.. yummmm. We fry every and anything in the south.. love that fat.. pork rules.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Dyane - Being a native New Yorker, okra is NOT on my list of things to eat. ;-) B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9 From: dyanebillings <dyane.billings (AT) ball-mcgraw (DOT) com>To: Breathe-Support Sent: Wednesday, August 19, 2009 12:45:33 PMSubject: Re: New to the group/Dyane Barbara,So true...I lived in Georgia for 3 years way back when and still have not found anyone who can cook a decent batch of fried okra like my neighbor did! Mine never tastes right either LOLDyane > > >> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist and after many tests and heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >> >>

[Guest guest]

No ken that is not cheating that is survival.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. is a chocolate chip cookie (well maybe 2) with tea cheating? From: dyanebillings <dyane.billings (AT) ball-mcgraw (DOT) com>To: Breathe-Support Sent: Wednesday, August 19, 2009 9:35:41 AMSubject: Re: New to the group/Dyane Sorry Ken ! Actually I know how you feel as I am still on my Medifast diet, I just 'drank' my breakfast. Oh well, it is working am down 28 lbs in 12 weeks I believe. I do cheat ever so often, yesterday I had a hot dog for lunch..tasted like ambrosia LOLDyane Phoenix ipf 02> > >> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist and after many tests and heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >> >>

[Guest guest]

Peggy -

I like SOME fried foods - well...... maybe a LOT of fried foods - but not okra. Not so crazy about fried fish, or chicken fried steak, either. LOVE, love, love fried green tomatoes, and fried chicken.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, August 19, 2009 1:48:49 PMSubject: Re: Re: New to the group/DyaneOh my Barb you don't know what your missing.. fried okra.. yummmm. We fry every and anything in the south.. love that fat.. pork rules..

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

Dyane -

Being a native New Yorker, okra is NOT on my list of things to eat. ;-)

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: dyanebillings <dyane.billings@ ball-mcgraw. com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 19, 2009 12:45:33 PMSubject: Re: New to the group/Dyane

Barbara,So true...I lived in Georgia for 3 years way back when and still have not found anyone who can cook a decent batch of fried okra like my neighbor did! Mine never tastes right either LOLDyane > > >> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago

they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist and after many tests and heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and

comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >> >>

[Guest guest]

Ken,

Obviously you have not been given the correct diet rules.....Anything

with chocolate (calories) taken with a dark calorie free liquid (tea,

even with lemon and sugar and what not) constitues NO CALORIES. They

cancel each other out!....course now I'll be kicked out of the Womans

cave for giving out secrets...LOL LOL

> > > >

> > > > Hello,

> > > >

> > > > I'm new to the group, my name is Annette and I live in the White

> > Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday

after

> > they did a right heart cath to confirm a dx of Pulmonary

Hypertension.

> > Once they saw my heart and lungs, they discovered I did not have PH

but

> > PF. I had never heard of Pulmonary Fibrosis before and immediately

> > started doing research on what this was exactly. To give you a

little

> > history, I was dx with asthma about 9+ years ago and have been on

every

> > medication there is and none have really helped. After my last

attack

> > about 2 months ago they noticed my oxygen wasn't stable and had to

put

> > me on oxygen 24/7. At that time they started running all kinds of

test

> > to determine what else could be wrong. My pulmonologist sent me to a

> > cardiologist and after many tests and heart/lung cath. they told me

I

> > had Pulmonary Fibrosis.

> > > >

> > > > At this point in my life I'm not really able to do much, I'm

very

> > limited in my activities of daily living. Will I continue to get

worse

> > and my activities even more limited? Also, how quickly have you

noticed

> > your symptoms getting worse? For me, I might be able to do something

for

> > 3-4 months and than the next day it will knock me on my rear! Sorry

for

> > all the questions, but since I've been given a confirmed dx I would

like

> > to know as much about this disease as I can.

> > > >

> > > > I appreciate you taking the time to read this and

comment..Looking

> > forward to getting to know this group.

> > > >

> > > > Thank you,

> > > > Annette

> > > >

> > >

> >

>

[Guest guest]

Fried okra, fried green tomatoes fried tomatoes and mashed taters and any left

overs gt made into breakfast cakes the next day....mix all together and fry

serve warm with hmmm what ever..

merry who is going home and eat now that she has made herself hungry...

[Guest guest]

yeah barb

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: New to the group/DyaneTo: Breathe-Support Date: Wednesday, August 19, 2009, 12:44 PM

Dyane and Ken:

Not to brag - well....... okay, I'm bragging. Went to the rheumy yesterday for a followup due to the new prednisone, and I lost three pounds over the last two weeks. I'm sure I will gain it back and put on more (???), but in the meantime, it's a wonderful thing.

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: dyanebillings <dyane.billings@ ball-mcgraw. com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 19, 2009 12:35:41 PMSubject: Re: New to the group/Dyane

Sorry Ken ! Actually I know how you feel as I am still on my Medifast diet, I just 'drank' my breakfast. Oh well, it is working am down 28 lbs in 12 weeks I believe. I do cheat ever so often, yesterday I had a hot dog for lunch..tasted like ambrosia LOLDyane Phoenix ipf 02> > >> > > Hello,> > >> > > I'm new to the group, my name is Annette and I live in the White> Mountains of Arizona. I was dx with Pulmonary Fibrosis yesterday after> they did a right heart cath to confirm a dx of Pulmonary Hypertension.> Once they saw my heart and lungs, they discovered I did not have PH but> PF. I had never heard of Pulmonary Fibrosis before and immediately> started doing research on what this was exactly. To give you a little> history, I was dx with asthma about 9+ years ago and have been on every> medication there is and none have really helped. After my last attack> about 2 months ago they noticed my oxygen wasn't stable and had to put> me on oxygen 24/7. At that time they started running all kinds of test> to determine what else could be wrong. My pulmonologist sent me to a> cardiologist

and after many tests and heart/lung cath. they told me I> had Pulmonary Fibrosis.> > >> > > At this point in my life I'm not really able to do much, I'm very> limited in my activities of daily living. Will I continue to get worse> and my activities even more limited? Also, how quickly have you noticed> your symptoms getting worse? For me, I might be able to do something for> 3-4 months and than the next day it will knock me on my rear! Sorry for> all the questions, but since I've been given a confirmed dx I would like> to know as much about this disease as I can.> > >> > > I appreciate you taking the time to read this and comment..Looking> forward to getting to know this group.> > >> > > Thank you,> > > Annette> > >>

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