Re: Overnight Oximetry--Bruce

[Guest guest]

Bruce,How timely this message was.  I am currently struggling with the results of an overnight sleep study which was the result of my oximetry done LAST August!.  Apparantly my oximetry was filed and neither physician acted on it until I began having severe sleep and fatigue issues a couple of months ago.  My pcp switched my 02 from exertion only to include sleep but nothing further.  2 weeks ago, my pulmodude called and was alarmed that I had not had a sleep study and ordered one immediately.  Those results show sleep apnea with a desaturation index of 18.5 per hour with a total 113 or 4% or greater desaturations.  I had 241.8 minutes or 48.5 % time spent under 90% saturation. My lowest reading was 68.8%. (By the way, they had me do the sleep study on room air, even though I have been sleeping with 02 for several months) The rest of this report is

greek to me; obstructive apneas, central apneas, hypopneas, rera's, and of course all the sleep architecture!Bottom line is a diagnosis of severe REM dependent sleep apnea with severe desaturations. I go next week for Cpap titration and I am not happy!  Just the thought of being hooked up to another machine has me in a dither.Anyway, enough about me...Good suggestion for everyone and thanks!Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

Lady Slipper OrchidSubject: Overnight OximetryTo: Breathe-Support Date: Friday, August 21, 2009, 1:41 PM

 

Sometimes I just like to toss out reminders, not knowing how many new

people we have who haven't seen discussions on such topics.

Everyone with PF should have periodic overnight oximetry tests done.

It's simple. They drop a machine off. You hook up to it when you go to

bed. They pick it up tomorrow. They also can do 24 hour oximetry too.

This is the only way to know your saturation while asleep. It will

change as you progress too. When I was diagnosed and initially checked

over 25% of my sleep time I was below 90%. Think about this. No matter

what I might have done during the day to keep saturated, I was spending

2 hours undersaturated every night. On 2 lpm I am only under 90% less

than 0.1% of the time and only for seconds now. I was just retested and

still good. My PH doctor (the one who found out I don't have PH

thankfully) recommends them every six months. Nothing else you do can

tell you. Not CT's, not PFT's, not checking your oximeter during the

day.

In addition to harming you and putting you at risk for PH, the

undersaturation also greatly worsens your quality of sleep.

[Guest guest]

Roxanne

Regardless of what they do CPAP wise, it would appear you'll still need

oxygen. If you get a CPAP make sure the oxygen can flow into it and then

make sure you repeat an overnight oximetry with the equipment and oxygen

you're using. I quite imagine the sleep center has no concept of your

disease and its nature. But apnea and desaturation are two separate

issues for us and both must be addressed. They may be assuming treating

the apnea will treat the desaturation but it sounds highly unlikely in

your case.

>

> From: brucemoreland brucemoreland@...

> Subject: Overnight Oximetry

> To: Breathe-Support

> Date: Friday, August 21, 2009, 1:41 PM

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> Sometimes I just like to toss out reminders, not

knowing how many new

>

> people we have who haven't seen discussions on such topics.

>

>

>

> Everyone with PF should have periodic overnight oximetry tests done.

>

> It's simple. They drop a machine off. You hook up to it when you go to

>

> bed. They pick it up tomorrow. They also can do 24 hour oximetry too.

>

> This is the only way to know your saturation while asleep. It will

>

> change as you progress too. When I was diagnosed and initially checked

>

> over 25% of my sleep time I was below 90%. Think about this. No matter

>

> what I might have done during the day to keep saturated, I was

spending

>

> 2 hours undersaturated every night. On 2 lpm I am only under 90% less

>

> than 0.1% of the time and only for seconds now. I was just retested

and

>

> still good. My PH doctor (the one who found out I don't have PH

>

> thankfully) recommends them every six months. Nothing else you do can

>

> tell you. Not CT's, not PFT's, not checking your oximeter during the

>

> day.

>

>

>

> In addition to harming you and putting you at risk for PH, the

>

> undersaturation also greatly worsens your quality of sleep.

>

[Guest guest]

Roxanne, I hope you will find, like I did, that using a CPAP machine is a great relief. At least no matter how much I struggle during the day, I know that I will get some restful sleep because of the assistance the CPAP gives me. The adding of O2 to CPAP is just a simple connection, you plug your O2 into your CPAP tubing and as long as your durable medical equipment supplier knows that you are on O2 it should be included in your CPAP package. Good Luck! Margaret

Subject: Overnight OximetryTo: Breathe-Support Date: Friday, August 21, 2009, 1:41 PM

Sometimes I just like to toss out reminders, not knowing how many newpeople we have who haven't seen discussions on such topics.Everyone with PF should have periodic overnight oximetry tests done.It's simple. They drop a machine off. You hook up to it when you go tobed. They pick it up tomorrow. They also can do 24 hour oximetry too.This is the only way to know your saturation while asleep. It willchange as you progress too. When I was diagnosed and initially checkedover 25% of my sleep time I was below 90%. Think about this. No matterwhat I might have done during the day to keep saturated, I was spending2 hours undersaturated every night. On 2 lpm I am only under 90% lessthan 0.1% of the time and only for seconds now. I was just retested andstill good. My PH doctor (the one who found out I don't have PHthankfully) recommends them every six months. Nothing else you do cantell you. Not CT's, not

PFT's, not checking your oximeter during theday.In addition to harming you and putting you at risk for PH, theundersaturation also greatly worsens your quality of sleep.

[Guest guest]

Margaret

Most have a love/hate relationship with their CPAP. Hate putting the

mask on and then love the sleep they get. I've known so many who got

ready to make their first trip after being put on CPAP, maybe just a one

night trip. They would decide not to carry it. Turns out they'd

forgotten how poorly they slept before but they never chose to make

another trip without carrying it along.

>

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> From: brucemoreland brucemoreland@...

> Subject: Overnight Oximetry

> To: Breathe-Support

> Date: Friday, August 21, 2009, 1:41 PM

>

>

>

>

> Sometimes I just like to toss out reminders, not knowing how many new

> people we have who haven't seen discussions on such topics.

>

> Everyone with PF should have periodic overnight oximetry tests done.

> It's simple. They drop a machine off. You hook up to it when you go to

> bed. They pick it up tomorrow. They also can do 24 hour oximetry too.

> This is the only way to know your saturation while asleep. It will

> change as you progress too. When I was diagnosed and initially checked

> over 25% of my sleep time I was below 90%. Think about this. No matter

> what I might have done during the day to keep saturated, I was

spending

> 2 hours undersaturated every night. On 2 lpm I am only under 90% less

> than 0.1% of the time and only for seconds now. I was just retested

and

> still good. My PH doctor (the one who found out I don't have PH

> thankfully) recommends them every six months. Nothing else you do can

> tell you. Not CT's, not PFT's, not checking your oximeter during the

> day.

>

> In addition to harming you and putting you at risk for PH, the

> undersaturation also greatly worsens your quality of sleep.

>