Re: Overnight Oximetry--Bruce and Margaret

[Guest guest]

Thanks to you both...I'm sure it (Cpap) will help me sleep better but I'm still not happy to have to get it.  I know that most of my reluctance is from watching my poor mother struggle with an ill fitting mask for the last month of her life and not being able to get help for her.Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

Lady Slipper Orchid

From: brucemoreland <brucemoreland@ gmail.com>Subject: Overnight OximetryTo: Breathe-Support@ yahoogroups. comDate: Friday, August 21, 2009, 1:41 PM

 

Sometimes I just like to toss out reminders, not knowing how many newpeople we have who haven't seen discussions on such topics..Everyone with PF should have periodic overnight oximetry tests done.It's simple. They drop a machine off. You hook up to it when you go tobed. They pick it up tomorrow. They also can do 24 hour oximetry too.This is the only way to know your saturation while asleep. It willchange as you progress too. When I was diagnosed and initially checkedover 25% of my sleep time I was below 90%. Think about this. No matterwhat I might have done during the day to keep saturated, I was spending2 hours undersaturated every night. On 2 lpm I am only under 90% lessthan 0..1% of the time and only for seconds now. I was just retested andstill good. My PH doctor (the one who found out I don't have PHthankfully) recommends them every six months. Nothing else you do cantell you. Not CT's, not

PFT's, not checking your oximeter during theday.In addition to harming you and putting you at risk for PH, theundersaturation also greatly worsens your quality of sleep.

[Guest guest]

I don't know if you have full-face mask or a nose mask or what but my home

health respiratory therapist recommended moleskin to make my face mask fit

better. Otherwise it leaks at the bridge of my nose and blows air at my eyes.

No good. Hope that helps a little. It is soft and does not rub.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

>

>

> From: brucemoreland <brucemoreland@ gmail.com>

> Subject: Overnight Oximetry

> To: Breathe-Support@ yahoogroups. com

> Date: Friday, August 21, 2009, 1:41 PM

>

>

>  

>

> Sometimes I just like to toss out reminders, not knowing how many new

> people we have who haven't seen discussions on such topics.

>

> Everyone with PF should have periodic overnight oximetry tests done.

> It's simple. They drop a machine off. You hook up to it when you go to

> bed. They pick it up tomorrow. They also can do 24 hour oximetry too.

> This is the only way to know your saturation while asleep. It will

> change as you progress too. When I was diagnosed and initially checked

> over 25% of my sleep time I was below 90%. Think about this. No matter

> what I might have done during the day to keep saturated, I was spending

> 2 hours undersaturated every night. On 2 lpm I am only under 90% less

> than 0.1% of the time and only for seconds now. I was just retested and

> still good. My PH doctor (the one who found out I don't have PH

> thankfully) recommends them every six months. Nothing else you do can

> tell you. Not CT's, not

> PFT's, not checking your oximeter during the

> day.

>

> In addition to harming you and putting you at risk for PH, the

> undersaturation also greatly worsens your quality of sleep.

>

[Guest guest]

, where do you find moleskin masks ? My husband is needing a new one and that sounds interesting. He has problems with leaking now and then also.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. I don't know if you have full-face mask or a nose mask or what but my home health respiratory therapist recommended moleskin to make my face mask fit better. Otherwise it leaks at the bridge of my nose and blows air at my eyes. No good. Hope that helps a little. It is soft and does not rub. S, Lubbock, TX NSIP w/PF 12/2006 et al > > > From: brucemoreland <brucemoreland@ gmail.com> > Subject: Overnight Oximetry > To: Breathe-Support@ yahoogroups. com > Date: Friday, August 21, 2009, 1:41 PM > > > > > Sometimes I just like to toss out reminders, not knowing how many new > people we have who haven't seen discussions on such topics. > > Everyone with PF should have periodic overnight oximetry tests done. > It's simple. They drop a machine off. You hook up to it when you go to > bed. They pick it up tomorrow. They also can do 24 hour oximetry too. > This is the only way to know your saturation while asleep. It will > change as you progress too. When I was diagnosed and initially checked > over 25% of my sleep time I was below 90%. Think about this. No matter > what I might have done during the day to keep saturated, I was spending > 2 hours undersaturated every night. On 2 lpm I am only under 90% less > than 0.1% of the time and only for seconds now. I was just retested and > still good. My PH doctor (the one who found out I don't have PH > thankfully) recommends them every six months. Nothing else you do can > tell you. Not CT's, not > PFT's, not checking your oximeter during the > day. > > In addition to harming you and putting you at risk for PH, the > undersaturation also greatly worsens your quality of sleep. >

[Guest guest]

,Moleskin as in Dr. Scholls moleskin? I never thought of that...hummmmDyane Phoenix ipf 02> > > > > > From: brucemoreland <brucemoreland@ gmail.com>> > Subject: Overnight Oximetry> > To: Breathe-Support@ yahoogroups. com> > Date: Friday, August 21, 2009, 1:41 PM> > > > > > > > > > Sometimes I just like to toss out reminders, not knowing how many new> > people we have who haven't seen discussions on such topics.> > > > Everyone with PF should have periodic overnight oximetry tests done.> > It's simple. They drop a machine off. You hook up to it when you go to> > bed. They pick it up tomorrow. They also can do 24 hour oximetry too.> > This is the only way to know your saturation while asleep. It will> > change as you progress too. When I was diagnosed and initially checked> > over 25% of my sleep time I was below 90%. Think about this. No matter> > what I might have done during the day to keep saturated, I was spending> > 2 hours undersaturated every night. On 2 lpm I am only under 90% less> > than 0.1% of the time and only for seconds now. I was just retested and> > still good. My PH doctor (the one who found out I don't have PH> > thankfully) recommends them every six months. Nothing else you do can> > tell you. Not CT's, not> > PFT's, not checking your oximeter during the> > day.> > > > In addition to harming you and putting you at risk for PH, the> > undersaturation also greatly worsens your quality of sleep.> >>

[Guest guest]

Exactly! I think I even bought the generic Walgreens brand.

> > >

> > >

> > > From: brucemoreland <brucemoreland@ gmail.com>

> > > Subject: Overnight Oximetry

> > > To: Breathe-Support@ yahoogroups. com

> > > Date: Friday, August 21, 2009, 1:41 PM

> > >

> > >

> > >

> > >

> > > Sometimes I just like to toss out reminders, not knowing how many

> new

> > > people we have who haven't seen discussions on such topics.

> > >

> > > Everyone with PF should have periodic overnight oximetry tests done.

> > > It's simple. They drop a machine off. You hook up to it when you go

> to

> > > bed. They pick it up tomorrow. They also can do 24 hour oximetry

> too.

> > > This is the only way to know your saturation while asleep. It will

> > > change as you progress too. When I was diagnosed and initially

> checked

> > > over 25% of my sleep time I was below 90%. Think about this. No

> matter

> > > what I might have done during the day to keep saturated, I was

> spending

> > > 2 hours undersaturated every night. On 2 lpm I am only under 90%

> less

> > > than 0.1% of the time and only for seconds now. I was just retested

> and

> > > still good. My PH doctor (the one who found out I don't have PH

> > > thankfully) recommends them every six months. Nothing else you do

> can

> > > tell you. Not CT's, not

> > > PFT's, not checking your oximeter during the

> > > day.

> > >

> > > In addition to harming you and putting you at risk for PH, the

> > > undersaturation also greatly worsens your quality of sleep.

> > >

> >

>

[Guest guest]

Most people find the blue gel masks work well and they come in multiple

sizes. I know thats what Sher uses and that is also what uses.

> >

> >

> > From: brucemoreland <brucemoreland@ gmail.com>

> > Subject: Overnight Oximetry

> > To: Breathe-Support@ yahoogroups. com

> > Date: Friday, August 21, 2009, 1:41 PM

> >

> >

> >

> >

> > Sometimes I just like to toss out reminders, not knowing how many

new

> > people we have who haven't seen discussions on such topics.

> >

> > Everyone with PF should have periodic overnight oximetry tests done.

> > It's simple. They drop a machine off. You hook up to it when you go

to

> > bed. They pick it up tomorrow. They also can do 24 hour oximetry

too.

> > This is the only way to know your saturation while asleep. It will

> > change as you progress too. When I was diagnosed and initially

checked

> > over 25% of my sleep time I was below 90%. Think about this. No

matter

> > what I might have done during the day to keep saturated, I was

spending

> > 2 hours undersaturated every night. On 2 lpm I am only under 90%

less

> > than 0.1% of the time and only for seconds now. I was just retested

and

> > still good. My PH doctor (the one who found out I don't have PH

> > thankfully) recommends them every six months. Nothing else you do

can

> > tell you. Not CT's, not

> > PFT's, not checking your oximeter during the

> > day.

> >

> > In addition to harming you and putting you at risk for PH, the

> > undersaturation also greatly worsens your quality of sleep.

> >

>

[Guest guest]

Peggy,I think she's referring to moleskin patches which are in the "foot" stuff at the store. If I'm wrong, I'm sure she'll correct me.Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

Lady Slipper Orchid   I don't know if you have full-face mask or a nose mask or what but my home health respiratory therapist recommended moleskin to make my face mask fit better. Otherwise

it leaks at the bridge of my nose and blows air at my eyes. No good. Hope that helps a little. It is soft and does not rub. S, Lubbock, TX NSIP w/PF 12/2006 et al > > > From: brucemoreland <brucemoreland@ gmail.com> > Subject: Overnight Oximetry > To: Breathe-Support@ yahoogroups. com > Date: Friday, August 21, 2009, 1:41 PM > > >   > > Sometimes I just like to toss out reminders, not knowing how many new > people we have who haven't seen discussions on such topics. > > Everyone with PF should have periodic overnight oximetry tests done. > It's simple. They drop a machine off. You hook up to it when you go to > bed. They pick it up tomorrow. They also can do 24 hour oximetry too. > This is the only way to know your saturation while

asleep. It will > change as you progress too. When I was diagnosed and initially checked > over 25% of my sleep time I was below 90%. Think about this. No matter > what I might have done during the day to keep saturated, I was spending > 2 hours undersaturated every night. On 2 lpm I am only under 90% less > than 0.1% of the time and only for seconds now. I was just retested and > still good. My PH doctor (the one who found out I don't have PH > thankfully) recommends them every six months. Nothing else you do can > tell you. Not CT's, not > PFT's, not checking your oximeter during the > day. > > In addition to harming you and putting you at risk for PH, the > undersaturation also greatly worsens your quality of sleep. >

[Guest guest]

> > >

> > >

> > > From: brucemoreland <brucemoreland@ gmail.com>

> > > Subject: Overnight Oximetry

> > > To: Breathe-Support@ yahoogroups. com

> > > Date: Friday, August 21, 2009, 1:41 PM

> > >

> > >

> > >

> > >

> > > Sometimes I just like to toss out reminders, not knowing how many

> new

> > > people we have who haven't seen discussions on such topics.

> > >

> > > Everyone with PF should have periodic overnight oximetry tests done.

> > > It's simple. They drop a machine off. You hook up to it when you go

> to

> > > bed. They pick it up tomorrow. They also can do 24 hour oximetry

> too.

> > > This is the only way to know your saturation while asleep. It will

> > > change as you progress too. When I was diagnosed and initially

> checked

> > > over 25% of my sleep time I was below 90%. Think about this. No

> matter

> > > what I might have done during the day to keep saturated, I was

> spending

> > > 2 hours undersaturated every night. On 2 lpm I am only under 90%

> less

> > > than 0.1% of the time and only for seconds now. I was just retested

> and

> > > still good. My PH doctor (the one who found out I don't have PH

> > > thankfully) recommends them every six months. Nothing else you do

> can

> > > tell you. Not CT's, not

> > > PFT's, not checking your oximeter during the

> > > day.

> > >

> > > In addition to harming you and putting you at risk for PH, the

> > > undersaturation also greatly worsens your quality of sleep.

> > >

> >

>

I am 6 weeks into using CPAP and not improvinmg at all. I am on my second mask

- full face called Liberty. I fall asleep ok but only sleeep an hour or two. I

wake up feeling like I am smothering even though I have O2 connected. I'm not

sucessful in getting back to sleep so I remove the mask. If the quality of my

sleeping doesn't improve in 6 more weeks, I'm giving up.

Ted, IL, IPF, Sleep Apenea,

[Guest guest]

That is what mine is as well. I really like my CPAP mask, it just leaks a

little around the bridge of my nose without the moleskin.

Hope you are having a good day Bruce.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

> > >

> > >

> > > From: brucemoreland <brucemoreland@ gmail.com>

> > > Subject: Overnight Oximetry

> > > To: Breathe-Support@ yahoogroups. com

> > > Date: Friday, August 21, 2009, 1:41 PM

> > >

> > >

> > >

> > >

> > > Sometimes I just like to toss out reminders, not knowing how many

> new

> > > people we have who haven't seen discussions on such topics.

> > >

> > > Everyone with PF should have periodic overnight oximetry tests done.

> > > It's simple. They drop a machine off. You hook up to it when you go

> to

> > > bed. They pick it up tomorrow. They also can do 24 hour oximetry

> too.

> > > This is the only way to know your saturation while asleep. It will

> > > change as you progress too. When I was diagnosed and initially

> checked

> > > over 25% of my sleep time I was below 90%. Think about this. No

> matter

> > > what I might have done during the day to keep saturated, I was

> spending

> > > 2 hours undersaturated every night. On 2 lpm I am only under 90%

> less

> > > than 0.1% of the time and only for seconds now. I was just retested

> and

> > > still good. My PH doctor (the one who found out I don't have PH

> > > thankfully) recommends them every six months. Nothing else you do

> can

> > > tell you. Not CT's, not

> > > PFT's, not checking your oximeter during the

> > > day.

> > >

> > > In addition to harming you and putting you at risk for PH, the

> > > undersaturation also greatly worsens your quality of sleep.

> > >

> >

>

[Guest guest]

Ted

Don't give up. Insist on another mask, another fitting. Relook at the

results of your test and see if there are other issues or have another

doctor look. Get retested. Don't settle for inadequate sleep. There are

so many factors that can cause it but get it addressed. Maybe its apnea,

maybe oxygen, maybe movement, maybe mood, maybe an unknown cause helped

by meds. But its too important to not battle to get it corrected. Step

one to me would be insist on other masks to try. Why did you go with

full face? Have you tried a Respironics Comfort Gel?

> > > >

> > > >

> > > > From: brucemoreland <brucemoreland@ gmail.com>

> > > > Subject: Overnight Oximetry

> > > > To: Breathe-Support@ yahoogroups. com

> > > > Date: Friday, August 21, 2009, 1:41 PM

> > > >

> > > >

> > > >

> > > >

> > > > Sometimes I just like to toss out reminders, not knowing how

many

> > new

> > > > people we have who haven't seen discussions on such topics.

> > > >

> > > > Everyone with PF should have periodic overnight oximetry tests

done.

> > > > It's simple. They drop a machine off. You hook up to it when you

go

> > to

> > > > bed. They pick it up tomorrow. They also can do 24 hour oximetry

> > too.

> > > > This is the only way to know your saturation while asleep. It

will

> > > > change as you progress too. When I was diagnosed and initially

> > checked

> > > > over 25% of my sleep time I was below 90%. Think about this. No

> > matter

> > > > what I might have done during the day to keep saturated, I was

> > spending

> > > > 2 hours undersaturated every night. On 2 lpm I am only under 90%

> > less

> > > > than 0.1% of the time and only for seconds now. I was just

retested

> > and

> > > > still good. My PH doctor (the one who found out I don't have PH

> > > > thankfully) recommends them every six months. Nothing else you

do

> > can

> > > > tell you. Not CT's, not

> > > > PFT's, not checking your oximeter during the

> > > > day.

> > > >

> > > > In addition to harming you and putting you at risk for PH, the

> > > > undersaturation also greatly worsens your quality of sleep.

> > > >

> > >

> >

> I am 6 weeks into using CPAP and not improvinmg at all. I am on my

second mask - full face called Liberty. I fall asleep ok but only

sleeep an hour or two. I wake up feeling like I am smothering even

though I have O2 connected. I'm not sucessful in getting back to sleep

so I remove the mask. If the quality of my sleeping doesn't improve in

6 more weeks, I'm giving up.

> Ted, IL, IPF, Sleep Apenea,

>