Re: Re: Overnight Oximetry-- S

[Guest guest]

Thanks I haven't had the titration yet but I'll remember the moleskin.  My mother had such a small face that nothing worked for her.  We tried padding, tape, gauze, kleenex and of course several masks but nothing helped..It was painful for her and for us .Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

Lady Slipper OrchidSubject: Re: Overnight Oximetry--Bruce and MargaretTo: Breathe-Support Date: Friday, August 21, 2009, 10:35 PM

 

I don't know if you have full-face mask or a nose mask or what but my home health respiratory therapist recommended moleskin to make my face mask fit better. Otherwise it leaks at the bridge of my nose and blows air at my eyes. No good. Hope that helps a little. It is soft and does not rub.

S, Lubbock, TX

NSIP w/PF 12/2006 et al

>

>

> From: brucemoreland <brucemoreland@ gmail.com>

> Subject: Overnight Oximetry

> To: Breathe-Support@ yahoogroups. com

> Date: Friday, August 21, 2009, 1:41 PM

>

>

>  

>

> Sometimes I just like to toss out reminders, not knowing how many new

> people we have who haven't seen discussions on such topics.

>

> Everyone with PF should have periodic overnight oximetry tests done.

> It's simple. They drop a machine off. You hook up to it when you go to

> bed. They pick it up tomorrow. They also can do 24 hour oximetry too.

> This is the only way to know your saturation while asleep. It will

> change as you progress too. When I was diagnosed and initially checked

> over 25% of my sleep time I was below 90%. Think about this. No matter

> what I might have done during the day to keep saturated, I was spending

> 2 hours undersaturated every night. On 2 lpm I am only under 90% less

> than 0.1% of the time and only for seconds now. I was just retested and

> still good. My PH doctor (the one who found out I don't have PH

> thankfully) recommends them every six months. Nothing else you do can

> tell you. Not CT's, not

> PFT's, not checking your oximeter during the

> day.

>

> In addition to harming you and putting you at risk for PH, the

> undersaturation also greatly worsens your quality of sleep.

>