Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009  Probably Aug or more likely Sept. Just about the time I will get an appt for UWMC in Seattle of course! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009  Peggy C ...thanks for answering. There have been a limited few times when we were out and stopped 'for just a minute' and I ended up walking more than I had planned on and did feel very sob and no o2. Guess I"ll have to stop doing that and use the o2. It's always been my dilemma tho' that my sats are ok but I'm sob. Clear back to dx. I fell into the habit of not using o2 much 'cause my sats were always ok when I checked. re: PeggyE...guess I 'read between the lines' due to her extensive medical experience. Now I too will start claiming 'OD' . lol I'm anxious to go to Seattle to the MC. Pulmodude tells me, "Well, there's something in there" ...grinning, when I question him about my slow progression. He and other docs confirm it IS PF. Of course I'm grateful it progresses so slowly but I still want answers. Although the 13 days on prednisone (for tendonitis)let me breathe easier and I had more energy, doc and I decided NOT to do even a low dosage on a regular basis. We'll save it for a back up should I need it sometime again. Have a good weekend...hello to . MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: Sher Sher, all I know is when I went from using 02 just at night to daytime use. I was told to ALWAYS use it when I was up walking around even on minimal setting. It can creep up on you and if you don't have it with you you could get into serious trouble. Once we begin using 02 we should always have it available. It can cause PH. It is not worth the chance.� I am not sure Peggy E. is a nurse. She did work a lot in the medical field but didn't notice her saying she was..� Love and Prayers, Peggy �� IPF �2004, �Florida Worry looks around, �Sorry looks back, ��Faith looks up. Hope you won't mind my question below Joy... � I'm going to use Joy as the reason for my question. I know�sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to�the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I�do always�use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. � MamaSher; 70,� IPF 3-06, OR.���NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Peggy Sher i don't know Kathy, but i did notice that Brett Browser has not posted in a long time Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: SherTo: Breathe-Support Date: Saturday, June 13, 2009, 12:03 PM Hi Sher, I was just looking through the photo albums and in the "Get Together" one is a picture ( the last one in the album) I just realized we haven't heard anything from Kathy.. Have you heard from her?? Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Peggy E did a lot of stuff in the medical field, but she isn't a nurse Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: SherTo: Breathe-Support Date: Saturday, June 13, 2009, 12:54 PM Sher, all I know is when I went from using 02 just at night to daytime use. I was told to ALWAYS use it when I was up walking around even on minimal setting. It can creep up on you and if you don't have it with you you could get into serious trouble. Once we begin using 02 we should always have it available. It can cause PH. It is not worth the chance. I am not sure Peggy E. is a nurse. She did work a lot in the medical field but didn't notice her saying she was.. Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 Sher, HOW ARE YOU ??? how is the moving-- I know you are pooped. I do hope you are ok. It is not like you not to post a hello...I wanna hear from you Ladybug........... Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 Peggy i was thinking about sher yesterday -- she hasn't posted since before the move Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: SherTo: Breathe-Support Date: Saturday, August 22, 2009, 5:15 PM Sher, HOW ARE YOU ??? how is the moving-- I know you are pooped. I do hope you are ok. It is not like you not to post a hello... I wanna hear from you Ladybug........... Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Quote Link to comment Share on other sites More sharing options...
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