Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 I've been on the oral NAC liquid for about a month and I can vouch for the taste. It's pretty bad alright, but only last a few moments.Couple questions on its use if anyone can help. The liquid comes in a vial with a rubber neck (much like any injectable medication) which can only be extracted with a needle. I'm taking 3ml twice a day and the needle is a 3ml capacity so the measurement works out pretty good.I have a trip coming up next month and assume I'll never get thru security with a needle in carry-on luggage. Has anyone traveled with needles recently and gotten thru security?And is this medication available in a container with a twist-off cap or is it only dispensed in this form? The local pharmacist says it's either this method or the inhaler form which my pulmo says I should not use.Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 And carry a copy of your prescription. Always. Anywhere. In today's world even if you're traveling by car its best to as you never know when it might come in handy. > > > > I've been on the oral NAC liquid for about a month and I can vouch for > > the taste. It's pretty bad alright, but only last a few moments. > > > > Couple > > questions on its use if anyone can help. The liquid comes in a vial > > with a rubber neck (much like any injectable medication) which can > only > > be extracted with a needle. I'm taking 3ml twice a day and the needle > > is a 3ml capacity so the measurement works out pretty good. > > > > I > > have a trip coming up next month and assume I'll never get thru > > security with a needle in carry-on luggage. Has anyone traveled with > > needles recently and gotten thru security? > > > > And is this > > medication available in a container with a twist-off cap or is it only > > dispensed in this form? The local pharmacist says it's either this > > method or the inhaler form which my pulmo says I should not use. > > > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 I don't know if I get the capsules through my Group Health pharmacy. If I could, I'm sure my doc would have ordered it that way, less work and odor. I only pay a $5 copay on my meds, so I'm willing to accept whatever form that comes in. I'm used to mixing and smelling it now. C_53_Familial IPF_5/09WashingtonTo: Breathe-Support Sent: Sunday, August 23, 2009 10:12:40 PMSubject: Re: NAC Can't you take the capsules? I can't handle liquid medicine. I'm sure that the capsules help me. I used to have a lot of mucous before I started taking it. Now i have very little.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia IdahoFrom: worth <hope2thend (AT) yahoo (DOT) com>Subject: Re: NACTo: Breathe-Support@ yahoogroups. comDate: Sunday, August 23, 2009, 6:43 PM My Acetylcysteine comes in a liquid vial and the top cap pops-off and then there is a metal lift that you twist off, sort of like a pop can lid but it twists around and then a 2nd cap that is lifted off. It does smell bad, but I just pour it into some grape juice that over-powers the taste somewhat. No needles, no syringes. C_53_Familial IPF_5/09WashingtonFrom: Cuyler Griffith <orion404 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sunday, August 23, 2009 6:12:19 PMSubject: NAC I've been on the oral NAC liquid for about a month and I can vouch for the taste. It's pretty bad alright, but only last a few moments.Couple questions on its use if anyone can help. The liquid comes in a vial with a rubber neck (much like any injectable medication) which can only be extracted with a needle. I'm taking 3ml twice a day and the needle is a 3ml capacity so the measurement works out pretty good.I have a trip coming up next month and assume I'll never get thru security with a needle in carry-on luggage. Has anyone traveled with needles recently and gotten thru security?And is this medication available in a container with a twist-off cap or is it only dispensed in this form? The local pharmacist says it's either this method or the inhaler form which my pulmo says I should not use.Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 Hi Ted,I too have Sleep Apnea. While sleeping on my side my breathing stopped 10x per hour and on my back 33x per hour. I didn't even think I slept on my back. I just started using CPAP in July and use a full face mask. I can fall asleep easily with it, but then I wake up about 4-5 hours later and I just want it off. I don't think I've slept more than 6 hours with it on yet.I take the combination drugs too, Prednisone, Azathioprine and NAC, the doctors think it is the combination of the drugs working together. Try not to focus too much on how the medicines may you feel, better or not. They are powerful drugs treatment for reducing or hopefully stopping the inflammation and growth of any further scarring to cells in our lungs. The side effects are terrible, but won't kill us, on-the-other hand, we know the prognosis for IPF. I'm learning to focus my goal in treatment to do whatever it takes to stop IPF it in its tracks!Take care, C_53_Familial IPF_5/09WashingtonFrom: TED KOULBACK To: Breathe-Support Sent: Monday, August 24, 2009 2:11:04 PMSubject: NAC , Bruce, Beth & al, Thanks for all your input....makes me feel better. Two weeks ago I had a consult with Dr Garrity at the University of Chicago. He agreed with the diagnosis I had received of UIP/IPF. At his suggestion I am going to start taking NAC (ordered from Puritan). He said it would reduce the inflamation in my lungs. He scheduled and I'm awaiting the results of an echogradiogram. If, as he expects, there is no Pulmonary Hypertension, he will prescibe azothioprine. He wants me to try both for 90 days. If we continue beyond depends whether I feel better or not. Right now I am trying to get used to a CPAP mask. To answer you question, Bruce, I had tried a nasal pillow mask with a chin strap to keep my mouth closed. That didn't work...could' nt keep my mouth closed. The new mask has the nasal pillow with a mouth mask. With it I sleep only an hour before it wakes me. During the sleep study, when sleeping on my side, my breathing stopped only 3/4 times in an hour. When on my back, the number was 77 times an hour! I go to sleep on my side and if I remained there all night, there'd be no great problem. I wouldn't need a mask. Going to try a do-it-yourself remedy and sew a tennis ball into the back of my t -shirt. Hope that will keep me off my back and on my side. Finally, I am grateful for all the support and info you all share. Ted, Illinois, 78, IPF/ Sleep Apnea Want what you have; Be who you are, Do what you can. Quote Link to comment Share on other sites More sharing options...
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