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Peggy,

I'm glad you are back home to rest after such a long day. I'm glad you won't

have to go throught the agony of another PFT. But I'm also upset that it's

gotten so bad that you can't do them anymore. I worry about you and pray for

good news on your echo.

Please make sure to get plenty of rest. It sometimes takes me a good week to

recoup after a PFT. Mine was 2 weeks ago and I had the mean lady again. I

thought I might knock her in the head with my o2 tank if she didn't stop

complaining about my coughing.(I used alot of 4 letter words that day!)She and I

will never be in a room alone together again

Take care of you and keep us up to date when you can.

34 FL

IPF dx 1/06

>

> Hi group, I got back from my Dr. around 7PM sure a long day. I was

> unable to do the PFT's. I knew I didn't have that kind of air

> anymore.. The DLCO was just impossible. I have coughed today until I

> am aching like crazy. But

> I did it. I am to have an echo ASAP. they will call me with the

> appointment. You know I am not looking forward to that with my fiber-

> cystic problem.. Anyhow I am not doing anymore PFT's. YEAHHHH I think.

> My lungs have all sorts of noises going on. I will get more info when

> I have the echo.

>

> If you want to do some interesting searching google UF Pulmonary

> Dept. My Drs pic is there ( not a very good one ) lol but they are

> building the web site. There is a Dr. Ibrahim Faruqi, M.D., MPH. He

> is starting a IPF clinic at UF. Dr Antony is very excited about it .

> He is already working on it. They will have a full clinic

> with support group and every kind of a Dr. IPF patients may need.

> Sounds amazing.

>

> I am to tired to think straight right now so if I think of anything

> else---later.

>

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> Worry looks around,

> Sorry looks back,

> Faith looks up.

>