Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 My Acetylcysteine comes in a liquid vial and the top cap pops-off and then there is a metal lift that you twist off, sort of like a pop can lid but it twists around and then a 2nd cap that is lifted off. It does smell bad, but I just pour it into some grape juice that over-powers the taste somewhat. No needles, no syringes. C_53_Familial IPF_5/09WashingtonTo: Breathe-Support Sent: Sunday, August 23, 2009 6:12:19 PMSubject: NAC I've been on the oral NAC liquid for about a month and I can vouch for the taste. It's pretty bad alright, but only last a few moments.Couple questions on its use if anyone can help. The liquid comes in a vial with a rubber neck (much like any injectable medication) which can only be extracted with a needle. I'm taking 3ml twice a day and the needle is a 3ml capacity so the measurement works out pretty good.I have a trip coming up next month and assume I'll never get thru security with a needle in carry-on luggage. Has anyone traveled with needles recently and gotten thru security?And is this medication available in a container with a twist-off cap or is it only dispensed in this form? The local pharmacist says it's either this method or the inhaler form which my pulmo says I should not use.Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 Can't you take the capsules? I can't handle liquid medicine. I'm sure that the capsules help me. I used to have a lot of mucous before I started taking it. Now i have very little.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: Re: NACTo: Breathe-Support Date: Sunday, August 23, 2009, 6:43 PM My Acetylcysteine comes in a liquid vial and the top cap pops-off and then there is a metal lift that you twist off, sort of like a pop can lid but it twists around and then a 2nd cap that is lifted off. It does smell bad, but I just pour it into some grape juice that over-powers the taste somewhat. No needles, no syringes. C_53_Familial IPF_5/09WashingtonFrom: Cuyler Griffith <orion404 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sunday, August 23, 2009 6:12:19 PMSubject: NAC I've been on the oral NAC liquid for about a month and I can vouch for the taste. It's pretty bad alright, but only last a few moments.Couple questions on its use if anyone can help. The liquid comes in a vial with a rubber neck (much like any injectable medication) which can only be extracted with a needle. I'm taking 3ml twice a day and the needle is a 3ml capacity so the measurement works out pretty good.I have a trip coming up next month and assume I'll never get thru security with a needle in carry-on luggage. Has anyone traveled with needles recently and gotten thru security?And is this medication available in a container with a twist-off cap or is it only dispensed in this form? The local pharmacist says it's either this method or the inhaler form which my pulmo says I should not use.Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 I've been fortunate. My pharmacy actually puts the medicine into a bottle that I have to keep refrigerated. I have a plastic syringe with a rubber tip with measurements on it, so I just extract out 3ml and mix it with a little bit of OJ. You might also be able to get one of those dispensers that people use with liquid medicine that has a wide mouth but the medicine fills into a cylinder with measurements on it. I'm sorry if my descriptions aren't that great but hopefully you know what I mean. Good Luck! Subject: NACTo: Breathe-Support Date: Monday, August 24, 2009, 1:12 AM I've been on the oral NAC liquid for about a month and I can vouch for the taste. It's pretty bad alright, but only last a few moments.Couple questions on its use if anyone can help. The liquid comes in a vial with a rubber neck (much like any injectable medication) which can only be extracted with a needle. I'm taking 3ml twice a day and the needle is a 3ml capacity so the measurement works out pretty good.I have a trip coming up next month and assume I'll never get thru security with a needle in carry-on luggage. Has anyone traveled with needles recently and gotten thru security?And is this medication available in a container with a twist-off cap or is it only dispensed in this form? The local pharmacist says it's either this method or the inhaler form which my pulmo says I should not use.Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 I have to travel with insulin and needles. I keep them in my purse in a special carrier and I get pulled over everytime and they wand the insulin to make sure its not nitro or something. Never takes more than 3 or 4 minutes and on I go. As long as you expect it its not a big deal. Should be the same thing for the NAC. Dyane Phoenix ipf 02 > > I've been on the oral NAC liquid for about a month and I can vouch for > the taste. It's pretty bad alright, but only last a few moments. > > Couple > questions on its use if anyone can help. The liquid comes in a vial > with a rubber neck (much like any injectable medication) which can only > be extracted with a needle. I'm taking 3ml twice a day and the needle > is a 3ml capacity so the measurement works out pretty good. > > I > have a trip coming up next month and assume I'll never get thru > security with a needle in carry-on luggage. Has anyone traveled with > needles recently and gotten thru security? > > And is this > medication available in a container with a twist-off cap or is it only > dispensed in this form? The local pharmacist says it's either this > method or the inhaler form which my pulmo says I should not use. > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 , Bruce, Beth & al, Thanks for all your input....makes me feel better. Two weeks ago I had a consult with Dr Garrity at the University of Chicago. He agreed with the diagnosis I had received of UIP/IPF. At his suggestion I am going to start taking NAC (ordered from Puritan). He said it would reduce the inflamation in my lungs. He scheduled and I'm awaiting the results of an echogradiogram. If, as he expects, there is no Pulmonary Hypertension, he will prescibe azothioprine. He wants me to try both for 90 days. If we continue beyond depends whether I feel better or not. Right now I am trying to get used to a CPAP mask. To answer you question, Bruce, I had tried a nasal pillow mask with a chin strap to keep my mouth closed. That didn't work...could'nt keep my mouth closed. The new mask has the nasal pillow with a mouth mask. With it I sleep only an hour before it wakes me. During the sleep study, when sleeping on my side, my breathing stopped only 3/4 times in an hour. When on my back, the number was 77 times an hour! I go to sleep on my side and if I remained there all night, there'd be no great problem. I wouldn't need a mask. Going to try a do-it-yourself remedy and sew a tennis ball into the back of my t -shirt. Hope that will keep me off my back and on my side. Finally, I am grateful for all the support and info you all share. Ted, Illinois, 78, IPF/ Sleep Apnea Want what you have; Be who you are, Do what you can. Quote Link to comment Share on other sites More sharing options...
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