Just a quick note...

[Guest guest]

Just touching bases... the best news I have is that Glenn is not in any pain

and I'm still functioning and somewhat sane. He generally feels like

crap... says he " just doesn't feel good " is the best he can describe it;

nothing

hurts, not nauseous. Still having diarrhea, but is able to make it to the

potty without incident. Doesn't seem to matter what he eats or doesn't eat.

He's so weak, he can barely speak and most times it's a whisper...then every

once in a while, he's a little stronger. His blood pressure is slowly dropping

79/46 today, his temperature is 95.5/96 dropping, he's having a little trouble

swallowing, his hands and feet are cool to the touch, as compared to his

body, he's only awake 1-3 hrs. a day... altho he did good over the weekend with

his Mom and brother here, but Hospice Nurse told me to expect him to sleep

the next couple days and he's only been awake an hour this morning.... I miss

him!! The days just keep going by and I hate for each one to end. I'm having

trouble concentrating and remembering, but still functioning the 3 days I'm

at work. The day I'm suppose to work from home, as in today, I find myself

not very disciplined. The days I go to work, I cringe as I walk out the door,

as my heart and tummy just knot up. I probably will have to start staying

home for my benefit, before Glenn actually needs 24/7 care. I'm stretching

it, b/c I need to pay my mortgage, etc. Someone comes each day from Hospice

that I'm not here. A neighbor has a key and my son. Glenn's old Coast Guard

friend is coming again tomorrow from PA to spend the day with him (for me).

A girlfriend is coming from TX next Monday-Fri, so she'll be with him. And

that's as far as we've gotten with any kind of plan... his childhood friend

from ILL hopes to be here the next week....if not, I'll be here.

Love you all... pray for you all every night!!! For those of you that are

new here or just beginning treatments, please don't let this message

discourage you in any way...there is so much hope for Survivors...Glenn has had

many

extenuating circumstances after his first yr when they found mets to the

liver, starting with the infiltration of chemo into his chest cavity ( a big

error

on the nurses part), then the diabetes, then the colon shut-down, then the

horrendous Ascites (fluid build up) and weekly Paracentesis (draining of fluid

taking all the nutrients with it), then the Denver Shunt surgery with a 1-3

odds that he would make it.... he did and I'm sure God had a reason and if it

was to make amends with his Mom and brother, that has been done this past

weekend. So, you see, this is not the " norm " , altho I can't tell you what the

norm might be. Just please keep an open mind and fight this damn disease

with every ounce of energy you have!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn