Re: We just made our reservations

[Guest guest]

I don't really know... tired. a little upset cause i have been thinkin about not being able to do PFT's anymore.. now that is a bit scary. but I think I am just pooped. It is always harder to breathe after a big day.. From the top Mall shopper of all times... shame. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. I am feeling the need for some gab time with my "air family". How are you feeling tonight Peggy? BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support Sent: Thursday, August 27, 2009 9:37:34 PMSubject: Re: We just made our reservations YEAH Jane, I am glad you are going to stay at the hotel.... more gab time.. Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Eddie & I just made our reservations for the Chattanooga get-together October 30th weekend. I do hope that more people will come. We all have such a great time together! Lots of talking & gabbing & eating & etc......... . Toodles!Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

[Guest guest]

Peggy,

Try not to dwell on your inability to do the PFT's anymore....Drop that rock lady! Who needs it anyhow? It's a miserable test and you no longer have to even think about it.

Think about your friends and family and how much you are loved. God is faithful girlfriend and He is with you.

Love you lots!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thursday, August 27, 2009 9:52:18 PMSubject: Re: We just made our reservations

I don't really know... tired. a little upset cause i have been thinkin about not being able to do PFT's anymore..

now that is a bit scary. but I think I am just pooped. It is always harder to breathe after a big day..

From the top Mall shopper of all times... shame.

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

I am feeling the need for some gab time with my "air family". How are you feeling tonight Peggy?

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 27, 2009 9:37:34 PMSubject: Re: We just made our reservations

YEAH Jane, I am glad you are going to stay at the hotel.... more gab time..

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

Eddie & I just made our reservations for the Chattanooga get-together October 30th weekend. I do hope that more people will come. We all have such a great time together! Lots of talking & gabbing & eating & etc......... .

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

[Guest guest]

I have a PFT tomorrow and another 6-min walk! Last week at my UWMC eval they had me do a 6-min walk test and placed an order for oxygen with my Group Health pulmo doc. He told me today that GH won't pay for the oxygen unless the test is done in their clinic. ugh! I already have a PFT test scheduled for tomorrow in his clinic, so I said how 'bout we do it tomorrow when I'm already there. His clinic is an 80 mile drive for me, so I figure the more appts I can combine when I go the better. But I know I will be suffering when I get home. C_53_Familial IPF_5/09WashingtonTo: Breathe-Support Sent: Thursday, August 27, 2009 8:17:56 PMSubject: Re: We just made our reservations

Peggy/MB

I don't think they comprehend how difficult PFT's are to many of us. I

think at some point too the discomfort and setback for a few days just

exceeds the value. I'm sure the doctors and techs will say they

understand as they've probably done them themselves. Just one huge

difference. They haven't done them in our condition. When I feel they

are more than I want to go through, I will definitely draw the line.

Each test, each procedure, each med, each treatment is a place each of

us has to place our own boundaries. They may not be right for others. If

you're going to put me through it at this point, then tell me what you

hope to gain to make it worthwhile.

I ran into a very good recent example where actually it was the doctor

showing a conservative approach versus the nurse. After 's mothers

open heart surgery she was doing very poorly at first. The nurse in ICU

was pumping us full of her opinion a CT needed to be done to make sure

she didn't have a stroke during the procedure. The doctor first felt

strongly she didn't but more importantly didn't want to subject her

already suffering body to the added trauma involved in giving her a CT.

Furthermore, and this is a greater point, it wasn't going to lead to

anything additional to be done at that time, even if she had suffered

one. Getting her to breathe on her own was the priority. Now she is and

we know there was no stroke. Who knows what seems like very little in

transporting her and moving her and administering a CT might have done.

That might have been just the thing to tax her systems further than they

could stand.

>

>

>

> Eddie & I just made our reservations for the Chattanooga get-together

October 30th weekend. I do hope that more people will come. We all

have such a great time together! Lots of talking & gabbing & eating &

etc......... .

> Toodles!

> Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

>

[Guest guest]

And I thought I was the only one who hated PFT. My last ones were not bad as I

was in pretty good shape, but even then, they are difficult and pput on quite a

strain.

Tom - PA AOSD 04 Asthma 06 NSIP 08

> >

> >

> >

> > Eddie & I just made our reservations for the Chattanooga get-together

> October 30th weekend. I do hope that more people will come. We all

> have such a great time together! Lots of talking & gabbing & eating &

> etc......... .

> > Toodles!

> > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

> >

>

[Guest guest]

yep -- i'm sure not being able to do any more pfts is upsetting -- just reading about it is upsetting

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: We just made our reservationsTo: Breathe-Support Date: Thursday, August 27, 2009, 9:52 PM

I don't really know... tired. a little upset cause i have been thinkin about not being able to do PFT's anymore..

now that is a bit scary. but I think I am just pooped. It is always harder to breathe after a big day..

From the top Mall shopper of all times... shame.

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

I am feeling the need for some gab time with my "air family". How are you feeling tonight Peggy?

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 27, 2009 9:37:34 PMSubject: Re: We just made our reservations

YEAH Jane, I am glad you are going to stay at the hotel.... more gab time..

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

Eddie & I just made our reservations for the Chattanooga get-together October 30th weekend. I do hope that more people will come. We all have such a great time together! Lots of talking & gabbing & eating & etc......... .

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl