Re: Re: Antiques Roadshow/eval/cardiac cath

[Guest guest]

bill

my 3 day eval was august 2006

yes it was very busy

i still have the schedule and copies of the results

my daughter lived in South Philly at the time, so i was able to sleep at her house

i did have to pay for parking every day

the sleep studies that were done last summer were at the Sheraton, near 35th and Chestnut

i forget what parking was over there

don't know what the cost for the room would be as a hotel guest

there is more stuff to walk to from there

like the WAWA and other stuff on Penn's campus

my appts with the transplant doc, Dr. Ahya, varied from every 6 months to every 3 months

his office happens to be next to my pulmonary's office, so they can consult as needed

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Antiques Roadshow/eval/cardiac cathTo: Breathe-Support Date: Saturday, August 15, 2009, 8:28 AM

Hey, Joyce...

The 3-day evaluation was really busy with meetings and tests. The meetings included talks about just how the transplant is done, financial stuff, insurance, etc. The tests included LOTS of blood tests, EKG, Echocardiogram, air/gas, 6 minute walk, everything you can possibly think of. There was some delay because they thought at one point I had blood clots in the lungs but a subsequent test (after prayers!) showed none. The cardiac cath was done in town since I didn't have a driver back from Philly and they won't let you drive for 2 days after, and the results have been sent on to the UPA lung center and I'll go back for the results on Sept.1. And yes, there's a $10 a day parking fee (discounted! ) and Penn Tower at $150 a day doesn't even have internet access. So it was an expensive week! But it's done and over with.

My hope is that they'll say yes, I'm qualified to be listed, but that I'm also too healthy yet, so come back every 3 months and they'll check again. I've heard of that happening with others. I feel good, except for getting winded. I live alone and I'm out and about and still on the Harley and I don't want to give this up for surgery/recovery/ chance of rejection/etc. Later, fine. But not yet.

Bill IPF 10/08

The boonies in NE PA

[Guest guest]

Bill, I'm glad your eval is

done!!!HUP lung center is the place to be

if and when you are ready for the TX. I wish you many years of Harley

rides

until then!

Hopefully you'll be able to meet some of the PA people when we plan

another lunch.

Enjoy your week-end...go Phillies

I;m not even going to mention the stupid Eagles

newest player!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Paradis3@... wrote:

Hey, Joyce...

The 3-day evaluation was really busy with meetings and

tests. The meetings included talks about just how the transplant is

done, financial stuff, insurance, etc. The tests included LOTS of

blood tests, EKG, Echocardiogram, air/gas, 6 minute walk, everything

you can possibly think of. There was some delay because they thought

at one point I had blood clots in the lungs but a subsequent test

(after prayers!) showed none. The cardiac cath was done in town

since I didn't have a driver back from Philly and they won't let you

drive for 2 days after, and the results have been sent on to the UPA

lung center and I'll go back for the results on Sept.1. And yes,

there's a $10 a day parking fee (discounted!) and Penn Tower at

$150 a day doesn't even have internet access. So it was an expensive

week! But it's done and over with.

My hope is that they'll say yes, I'm qualified to be listed,

but that I'm also too healthy yet, so come back every 3 months and

they'll check again. I've heard of that happening with others. I feel

good, except for getting winded. I live alone and I'm out and about

and still on the Harley and I don't want to give this up for

surgery/recovery/chance of rejection/etc. Later, fine. But not

yet.

Bill IPF 10/08

The boonies in NE PA