Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 .... I live South of Ptld and will go to UWMC in Oct... Is this where you go? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: Good News for Hi ,My name is worth and I just joined this group yesterday! I was reading your message about the transplant evaluation you're having at the UWMC and wanted to let you know that this hospital ranked 12th this year in the "America's Best Hospitals: 2009-10 Honor Roll". I'll be interested to hear about your progress with them since I live across the water from Seattle, a ferry-ride away. Here is the link:http://health.msn.com/health-topics/articlepage.aspx?cp-documentid=100241997C IPF 5/09 WA>> Hi guys,> > Yesterday was my first anniversary for being in the Bosentan Study program. My PFT's have remained the same during the year with the exception of my DLCO, it has been in a virtual slow decline for the last two years. The best recorded reading of my DLCO was May '07, it was 69% and the worst was in March '09--it was 49%. Yesterday my DLCO reading was 63%, both Pulmonoligists that I met with yesterday were suprised at the drastic increase, so we decided to do it again today, I did it 3 different times and they all came back confirming the big increase!!!!!!! The Doc says I don't know what you are doing --but keep doin' it.> > My Pulmonoligist has scheduled a transplant evaluation at the Univerisity of Washington Medical Center for me and the UWMC has already contacted us about the process. We are currently waiting for our appointment date. We did find out that they have done 33 transplants so far this year and it sounds like they are "chomping at the bits" to do some more--LOL. > > We asked about age limits for transplants and they said it is 65, IF the patient has any underlying complications such as diabetes, etc. but, it is 70 if there are no other problems. I did explain that I felt I was a few years away from a transplant (I hope), so was concerned about doing an evaluation to early, but they were eager to do the evaluation, so when they give me a date, I will go and interview the transplant team and see if I want them to do it when the time comes--LOL.> > G. UIP/IPF 5/07 AZ.> > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.