Re: just starting out

[Guest guest]

In frequent-dose-chelation ngozi_cathy wrote:

hello every one,

my son just completed his first round of DMSA and ALA this am. it was

uneventful, really-but he did have a mild seizure early this morning

(he is on seizure medication) as well some really mushy and smelly

poops during the round. i started with 12.5 mg of both dmsa and ala

but i was wondering if i should increase the dose of ALA since he

seems to tolerate it so well.

cathy

---------Hi Cathy. No I would not recommend increasing the dosage already.

Especially since this was only your first round, and especially since this is a

child. Does he usually still have seizures, even while on his meds? Or was

this something new, having a seizure after this round? And how old is your

child, and is he verbal? (Sorry, I can't remember if you've told us some of

this already.) You don't want to harm him or make him miserable by trying to

increase the dosages of chelators too fast.

Sometimes it takes a few rounds before people notice problems, so ramping up

too fast is not a good idea. We usually recommend at least 3-4 rounds at one

dose before ramping up. And DeanSA has a good rule of thumb, that you should

have 4 rounds of no symptoms before increasing your dosage. I think it's better

to take it slow and be safe, rather than trying to go too fast. TK had said

many times that that is the biggest mistake he had seen people make, was trying

to go too fast. This is a marathon, not a race, so please take it

slow.-------Jackie

[Guest guest]

Very, very good advice, Jackie, particularly for a child and specifically for a

child with seizures.

Re: just starting out

In frequent-dose-chelation ngozi_cathy wrote:

hello every one,

my son just completed his first round of DMSA and ALA this am. it was

uneventful, really-but he did have a mild seizure early this morning

(he is on seizure medication) as well some really mushy and smelly

poops during the round. i started with 12.5 mg of both dmsa and ala

but i was wondering if i should increase the dose of ALA since he

seems to tolerate it so well.

cathy

---------Hi Cathy. No I would not recommend increasing the dosage already.

Especially since this was only your first round, and especially since this is a

child. Does he usually still have seizures, even while on his meds? Or was this

something new, having a seizure after this round? And how old is your child, and

is he verbal? (Sorry, I can't remember if you've told us some of this already.)

You don't want to harm him or make him miserable by trying to increase the

dosages of chelators too fast.

Sometimes it takes a few rounds before people notice problems, so ramping up

too fast is not a good idea. We usually recommend at least 3-4 rounds at one

dose before ramping up. And DeanSA has a good rule of thumb, that you should

have 4 rounds of no symptoms before increasing your dosage. I think it's better

to take it slow and be safe, rather than trying to go too fast. TK had said many

times that that is the biggest mistake he had seen people make, was trying to go

too fast. This is a marathon, not a race, so please take it slow.-------Jackie

[Guest guest]

Thanks . I'm really not familiar with the seizure aspect, and we don't

deal with the children as much here on FDC, but it just seemed like common sense

advice to me, from all I've learned over the years. In the past, I used to read

over at A-M alot, so feel I have at least some understanding of the kids issues,

but by no means an expert. So glad to see you here, and hopefully you can

answer some more questions, if she has them, especially the seizure

stuff.---------Jackie

In frequent-dose-chelation Ladyshrink111@... wrote:

Very, very good advice, Jackie, particularly for a child and specifically for

a child with seizures.

In frequent-dose-chelation Jackie wrote:

In frequent-dose-chelation ngozi_cathy wrote:

hello every one,

my son just completed his first round of DMSA and ALA this am. it was

uneventful, really-but he did have a mild seizure early this morning

(he is on seizure medication) as well some really mushy and smelly

poops during the round. i started with 12.5 mg of both dmsa and ala

but i was wondering if i should increase the dose of ALA since he

seems to tolerate it so well.

cathy

---------Hi Cathy. No I would not recommend increasing the dosage already.

Especially since this was only your first round, and especially since this is a

child. Does he usually still have seizures, even while on his meds? Or was this

something new, having a seizure after this round? And how old is your child, and

is he verbal? (Sorry, I can't remember if you've told us some of this already.)

You don't want to harm him or make him miserable by trying to increase the

dosages of chelators too fast.

Sometimes it takes a few rounds before people notice problems, so ramping up

too fast is not a good idea. We usually recommend at least 3-4 rounds at one

dose before ramping up. And DeanSA has a good rule of thumb, that you should

have 4 rounds of no symptoms before increasing your dosage. I think it's better

to take it slow and be safe, rather than trying to go too fast. TK had said many

times that that is the biggest mistake he had seen people make, was trying to go

too fast. This is a marathon, not a race, so please take it slow.-------Jackie