Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 Yes, Joyce it makes sense. I had not been walking outside since my surgery and probably just over did it. I am starting to take 1 dog out for a walk every morning and will start with a quarter of a block, etc. As to the progression of IPF did your transplant doc tell you how long the "usual" was for being stable? Joyce Rudy AZ IPF 08 IPFTo: "Breathe-Support" <Breathe-Support >Date: Sunday, June 14, 2009, 7:56 PM How long does IPF usually stay inactive? Also, I had to walk a block to get to Denny's and it about did me in. Is that normal? I had my oxygen on and it was really hard to walk that block...it was a long block. The doc's said I should use it not on pulse and anywhere from 4 to 6 lpm. If I am using oxygen aren't I supposed to be able to do things like walk with little difficulty? And, if not why not. I am not understanding why if my oxygen is in the 90's I still have such a hard time walking. Joyce Rudy IPF AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 there is no "usual". that is an unknown, it varies for every person some people are never stable, some people are stable for many years zena just wrote that she was diagnosed in her 20's and now she is almost 40 that's close to 20 years with this disease Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: IPFTo: Breathe-Support Date: Monday, June 15, 2009, 10:28 AM Yes, Joyce it makes sense. I had not been walking outside since my surgery and probably just over did it. I am starting to take 1 dog out for a walk every morning and will start with a quarter of a block, etc. As to the progression of IPF did your transplant doc tell you how long the "usual" was for being stable? Joyce Rudy AZ IPF 08 IPFTo: "Breathe-Support" <Breathe-Support@ yahoogroups. com>Date: Sunday, June 14, 2009, 7:56 PM How long does IPF usually stay inactive? Also, I had to walk a block to get to Denny's and it about did me in. Is that normal? I had my oxygen on and it was really hard to walk that block...it was a long block. The doc's said I should use it not on pulse and anywhere from 4 to 6 lpm. If I am using oxygen aren't I supposed to be able to do things like walk with little difficulty? And, if not why not. I am not understanding why if my oxygen is in the 90's I still have such a hard time walking. Joyce Rudy IPF AZ Quote Link to comment Share on other sites More sharing options...
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