Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Donnelle Well it has been a long haul for you and Glenn. Surely hope he continues to feel a bit better each day, and hopefully getting him out of the house today will help as well. Golly the poor guy he can't afford to lose any more weight. Sorry that you picked up the bug.. Sounds like some major nasty stuff. Do you use that alcohol gel stuff like Germ X too. I noticed when I was in hospital - they are very conscientious about washing hands but also has they leave the room the reach up on the wall and get a couple squirts of the Germ X like gel as well. There is big sign up in hospital this past week that it being Infection prevention week or month.. Well in a bit have to call Judy and reschedule my scope.. What an idiot I was .. Swear I am going senile sometimes. Why would I schedule something like that during T Day week.. Dumb dumb dumb.. You are are continually in my prayers... Hugs and Stuff Jolene _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Dear Donelle, So glad things are a bit better for you two. Hope you can go out a little bit. Maybe going to the cinema will help both to distract. Love you, my prayers to both of you. Lydia Grandmommyandme@... wrote: Hi everyone!! Well, it's been a " crappy " long 7 wks....but I think, " I THINK " , he's getting better from the anti-biotic related Colitis (also called C-Diff...which is the short name for a really long one). Remember, the anti-biotic kills off the " good " bacteria as well as the " bad " . The diarrhea is down to 1-3 times a day instead of 20-30-40 times a day AND night. This last rx was so expensive that the GI Spec. gave us 40 sample packs... because the co-pay on the last one was $187 and he knew this script would be even higher co=pay. It is a new anti=biotic called Xifaxan... Glenn is not feeling " well " , but he is definitely feeling better just in the last couple days, than the last 7 weeks plus. He's lost another 13 lbs. in the last few weeks. Just to show you the difference in a sick body and an almost well body....C-Diff is highly contagious. I didn't contract it the last time he had it about 6 mos. ago. I've used a different bathroom and been EXTREMELY careful in any cleaning up I've done for Glenn. Cleaning floors, scrubbing carpet, picking up his soiled briefs and washing them, etc. but didn't wear rubber gloves. I've washed my hands more in the last few weeks than in my whole life!! At any rate, I still picked up the germ....I figure my resistance is low anyway...and more so since I had severe bronchitis/ sinusitis infection. But, I did not get diarrhea, b/c as soon as I noticed a mucous-y discharge rectally, I started taking Glenn's Flagyl that they gave him 7 wks. ago that didn't even begin to touch it for him. I was on a cough syrup with codeine, which had me bound up a little, so I was going often, but not diarrhea. You feel like you have to go all the time....and if you are having diarrhea, you DO go all the time!!! I'm still taking the Flagyl and will finish the rx. I've been a little sluggish, but able to function, go to work, eat, etc. But, it's amazing to me how my body responded so quickly to the meds and how long it's taken for many different meds to even make a dent for Glenn!! Guess we are progressing here....but I feel like I'm waiting for the bomb to drop... and wondering what will happen next for my sweetie?? It's a terrible feeling...I try to stay positive, but he is so negative...so depressed...so sad. He's having trouble sleeping at night and it may be this new rx....he thinks/dreams about dying. Once he gets a little stronger, we will get some depression meds. I'm off work tomorrow, b/c I worked Friday, so I will try to get him out of the house for a bit. He's only been out 2 times in 7 wks. and that was drs. and hospital visit. Well, it's really been pretty boring around here lately... with Glenn sleeping so much, seems like all I do is go to work, come home, clean up around the house, wash dirty clothes, work on my webstore, go to bed and do it all over again the next day. Actually I guess I've been doing that for quite a while now...like a year...LOL My niece got married yesterday...and all 5 of my little grandchildren were in the wedding and my older granddaughter was the Maid of Honor. They were all gorgeous, of course. I'm really mad at myself for not taking more closeups of individuals. But, I'm making a wedding album for my niece, so got some nice group photos for her album. Everyone take care....Love you all, Donelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 In a message dated 10/24/2005 8:36:00 AM Eastern Standard Time, milyandtheworld@... writes: Dear Donelle, So glad things are a bit better for you two. Hope you can go out a little bit. Maybe going to the cinema will help both to distract. Love you, my prayers to both of you. Lydia Trying to get out for a bit....thanks for the prayers!! Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 In a message dated 10/24/2005 8:40:11 AM Eastern Standard Time, jehret@... writes: Donnelle Well it has been a long haul for you and Glenn. Surely hope he continues to feel a bit better each day, and hopefully getting him out of the house today will help as well. Golly the poor guy he can't afford to lose any more weight. Sorry that you picked up the bug.. Sounds like some major nasty stuff. Do you use that alcohol gel stuff like Germ X too. I noticed when I was in hospital - they are very conscientious about washing hands but also has they leave the room the reach up on the wall and get a couple squirts of the Germ X like gel as well. There is big sign up in hospital this past week that it being Infection prevention week or month.. Well in a bit have to call Judy and reschedule my scope.. What an idiot I was .. Swear I am going senile sometimes. Why would I schedule something like that during T Day week.. Dumb dumb dumb.. You are are continually in my prayers... Hugs and Stuff Jolene Thanks Jolene for the prayers!!! Well, he's gotten a shower....now napping... we might get out the door before dark...trying to go to BJ's or Sam's Club...he loves those warehouse type stores!! I HATE shopping of any kind...unless it's online!! But, I'd like to get him " out of the compound " for a bit... Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 In a message dated 10/24/2005 11:41:18 AM Eastern Standard Time, brencolinmom@... writes: Donelle: Please get him on probiotics. When you are on antibiotics (not to mention chemo), all of the beneficial bacteria in the colon is killed right along with all the bad stuff. You can ask for a live brand with millions of those active little guys at your health food store. Do you have Whole Foods where you live? ...exactly what is probiotics?? Is it a pill or powder or liquid?? And why don't drs. tell us these things are available?? I did know the anti-b kill all the bacteria, but for 7 wks we've tried all kinds of prescriptions....and almost anything mentioned here (except for yogurt... he wouldn't do that) Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 That should do the trick if you can get him out for bit. Even just a little bit. Hugs and stuff Jolene Re: Quick Update/Glenn... In a message dated 10/24/2005 8:40:11 AM Eastern Standard Time, jehret@... writes: Donnelle Well it has been a long haul for you and Glenn. Surely hope he continues to feel a bit better each day, and hopefully getting him out of the house today will help as well. Golly the poor guy he can't afford to lose any more weight. Sorry that you picked up the bug.. Sounds like some major nasty stuff. Do you use that alcohol gel stuff like Germ X too. I noticed when I was in hospital - they are very conscientious about washing hands but also has they leave the room the reach up on the wall and get a couple squirts of the Germ X like gel as well. There is big sign up in hospital this past week that it being Infection prevention week or month.. Well in a bit have to call Judy and reschedule my scope.. What an idiot I was .. Swear I am going senile sometimes. Why would I schedule something like that during T Day week.. Dumb dumb dumb.. You are are continually in my prayers... Hugs and Stuff Jolene Thanks Jolene for the prayers!!! Well, he's gotten a shower....now napping... we might get out the door before dark...trying to go to BJ's or Sam's Club...he loves those warehouse type stores!! I HATE shopping of any kind...unless it's online!! But, I'd like to get him " out of the compound " for a bit... Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
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