Re: Way to Go Betty!!! Way to Go Gordon!!

[Guest guest]

That is a great idea.

Any chance you would be willing to pull the stories together and then I'll ask

each person individually if they will grant permission...

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or save

thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Re: Way to Go Betty!!! Way to Go Gordon!!

Hi Priscilla,

I have just thought reading " Our Updated Stories " that maybe we could make a

book to raise some money. We are so many in this group, and even if we all have

the same problem, each of our story is unique. I have learned much more from the

group than from any other place. Our stories are written in a very simple way,

but they also carry our human way of being. Most (not all of course) of the

emails on the web, could be transfered to paper and then sold. It could

encourage other people and they can learn from others experience. You can carry

your book to work, read on the bus...It's different from a computer.

Well, Just a thought !

Love, Lydia

.

Priscilla Savary wrote:

Way to Go Betty and Gordon! I heard you on Vital Options " The Group Room "

Getting the message out and asking great questions!

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or

save thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

[Guest guest]

And the people who already passed away? Should we try and then ask a permission

to their relatives?

I can start from the begining, when the group has just been formed. I can look

up for those mails that are more important. Mail that has to do with medical

answers and mail that has to do with the emotional side of our stories. I think

it would be nice to gather about 200 pages if we can. We could also add some

pictures to the pages that are too short. Pictures of nature with out having to

compromising any one.

Also it would be nice to have a folder on the web, where to file all this work.

And also it would be nice if other people would like to help. Even new stories

could be added. I loved Deb Vamdembos story. It had a lot about the treatment

information, but also, very importan was her way of relating her emotions

towards her situation. And this is a part where you don't easily find in books.

We all relate to our problems in a different way and this group has so many

different cases that can be used just for the sake of helping others.

Also, dear friends, Maybe I should have asked you in the first place - What do

you think of this idea?

Maybe together we could make a nice job. People who doesn't want their name out,

could use an another name. What's important is the inside of the story.

All my love to everyone, Lydia

Priscilla Savary wrote:

That is a great idea.

Any chance you would be willing to pull the stories together and then I'll ask

each person individually if they will grant permission...

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or save

thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Re: Way to Go Betty!!! Way to Go Gordon!!

Hi Priscilla,

I have just thought reading " Our Updated Stories " that maybe we could make a

book to raise some money. We are so many in this group, and even if we all have

the same problem, each of our story is unique. I have learned much more from the

group than from any other place. Our stories are written in a very simple way,

but they also carry our human way of being. Most (not all of course) of the

emails on the web, could be transfered to paper and then sold. It could

encourage other people and they can learn from others experience. You can carry

your book to work, read on the bus...It's different from a computer.

Well, Just a thought !

Love, Lydia

.

Priscilla Savary wrote:

Way to Go Betty and Gordon! I heard you on Vital Options " The Group Room "

Getting the message out and asking great questions!

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or

save thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

[Guest guest]

Sounds like a great idea Lydia, a real challenge though. good luck.. Jolene

Re: Way to Go Betty!!! Way to Go Gordon!!

And the people who already passed away? Should we try and then ask a

permission to their relatives?

I can start from the begining, when the group has just been formed. I can

look up for those mails that are more important. Mail that has to do with

medical answers and mail that has to do with the emotional side of our

stories. I think it would be nice to gather about 200 pages if we can. We

could also add some pictures to the pages that are too short. Pictures of

nature with out having to compromising any one.

Also it would be nice to have a folder on the web, where to file all this

work. And also it would be nice if other people would like to help. Even new

stories could be added. I loved Deb Vamdembos story. It had a lot about the

treatment information, but also, very importan was her way of relating her

emotions towards her situation. And this is a part where you don't easily

find in books.

We all relate to our problems in a different way and this group has so many

different cases that can be used just for the sake of helping others.

Also, dear friends, Maybe I should have asked you in the first place - What

do you think of this idea?

Maybe together we could make a nice job. People who doesn't want their name

out, could use an another name. What's important is the inside of the story.

All my love to everyone, Lydia

Priscilla Savary wrote:

That is a great idea.

Any chance you would be willing to pull the stories together and then I'll

ask each person individually if they will grant permission...

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or

save thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Re: Way to Go Betty!!! Way to Go Gordon!!

Hi Priscilla,

I have just thought reading " Our Updated Stories " that maybe we could make

a book to raise some money. We are so many in this group, and even if we all

have the same problem, each of our story is unique. I have learned much more

from the group than from any other place. Our stories are written in a very

simple way, but they also carry our human way of being. Most (not all of

course) of the emails on the web, could be transfered to paper and then

sold. It could encourage other people and they can learn from others

experience. You can carry your book to work, read on the bus...It's

different from a computer.

Well, Just a thought !

Love, Lydia

.

Priscilla Savary wrote:

Way to Go Betty and Gordon! I heard you on Vital Options " The Group

Room "

Getting the message out and asking great questions!

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or

save thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

[Guest guest]

I love the idea. And I hope that some of you will too. As always, no one's

information will be used without your expressed permission. One of the things

that I like is that it does present a more whole picture of colon cancer.

Mostly the books out there are one person's experience. And sometimes I feel

like its too much about that one person. Sometimes not. Individual short

stories are easy to digest and remember.

How's this for a dedication (I know...we don't even have a book and I'm writing

dedications....as the Spirit moves eh?):

" Dedicated to Altman, the founder of the Colon_cancer_support@...

listserv. Whose guidance and caring have helped thousands. And to all of the

brave souls who are members of the list who share every day with one another

from their hearts and experiences. Bravery and compassion has never known

better. "

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or save

thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Re: Way to Go Betty!!! Way to Go Gordon!!

Hi Priscilla,

I have just thought reading " Our Updated Stories " that maybe we could make a

book to raise some money. We are so many in this group, and even if we all have

the same problem, each of our story is unique. I have learned much more from the

group than from any other place. Our stories are written in a very simple way,

but they also carry our human way of being. Most (not all of course) of the

emails on the web, could be transfered to paper and then sold. It could

encourage other people and they can learn from others experience. You can carry

your book to work, read on the bus...It's different from a computer.

Well, Just a thought !

Love, Lydia

.

Priscilla Savary wrote:

Way to Go Betty and Gordon! I heard you on Vital Options " The Group Room "

Getting the message out and asking great questions!

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or

save thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

[Guest guest]

Priscilla the idea to dedicate the book to Altman couldn't be any better.

He started this group and he gave us the oportunity to be together today. Not so

alone in our sorrows.

I thought that we may start putting together different stories: That is his, for

example Altman story all together, at first, then start other peoples

stories, but each story all together in bundles (?) Has any one more experience

or different ideas?

Love Lydia

Priscilla Savary wrote:

I love the idea. And I hope that some of you will too. As always, no one's

information will be used without your expressed permission. One of the things

that I like is that it does present a more whole picture of colon cancer.

Mostly the books out there are one person's experience. And sometimes I feel

like its too much about that one person. Sometimes not. Individual short

stories are easy to digest and remember.

How's this for a dedication (I know...we don't even have a book and I'm writing

dedications....as the Spirit moves eh?):

" Dedicated to Altman, the founder of the Colon_cancer_support@...

listserv. Whose guidance and caring have helped thousands. And to all of the

brave souls who are members of the list who share every day with one another

from their hearts and experiences. Bravery and compassion has never known

better. "

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or save

thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Re: Way to Go Betty!!! Way to Go Gordon!!

Hi Priscilla,

I have just thought reading " Our Updated Stories " that maybe we could make a

book to raise some money. We are so many in this group, and even if we all have

the same problem, each of our story is unique. I have learned much more from the

group than from any other place. Our stories are written in a very simple way,

but they also carry our human way of being. Most (not all of course) of the

emails on the web, could be transfered to paper and then sold. It could

encourage other people and they can learn from others experience. You can carry

your book to work, read on the bus...It's different from a computer.

Well, Just a thought !

Love, Lydia

.

Priscilla Savary wrote:

Way to Go Betty and Gordon! I heard you on Vital Options " The Group Room "

Getting the message out and asking great questions!

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or

save thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

[Guest guest]

So far all the posts have been only first name.

Narice

In a message dated 10/25/2005 12:35:51 PM Eastern Standard Time,

grogclan@... writes:

Great ideas!!!

Maybe you just want to use FIRST names, to solve the anonymity problem.

Marty

On 10/24/2005 9:54:18 PM, colon_cancer_support wrote:

> Thank you, Narice and Ingrid,

>

> I'm so glad you like the idea. It will probably take some time, but if I

> could share the work it should go much faster. Actually this is a job for

> a lot of people. Maybe we could get organized well and split our work.

> First we should learn how to organize everything. What I mean is this: We

> should decide how to plan the book, but to do this we should see which

> material we can use, and how many emails we can use. To do this we or just

> I would have to read all the e-mails and sort them out. Maybe the book

> could be divided in two parts. Half would be like " Our Stories " and half

> maybe taken right from the web side. I really would apreciate to have

> other by my side. It would make us all happy to work for a good cause.

> Wouldn't

> it.

>

> Also if there would be a way to take our names away, especially for those

> who

> wouldn't want to apear on the book. Just to use the first names. I really

> believe that our stories can be very important to other people and as

> Pricilla said there are so many different stories for people to identify

> with them. They are short and easy to digest. But we need to find some

> order. It can't

> be all scramble up.

>

> Love to all and ple

[Guest guest]

Thank YOU!!!!!

Marty

(also a NASCAR fan,I'm impressed with you famous guys!)

On 10/25/2005 6:22:35 PM, colon_cancer_support wrote:

> Yes, Marty - FIRST - names are good einough for people who wish to do

> this.

> . No body really cares for last names.

> It's our story, our own experiences that counts.

>

> By the way thank you for sharing your picture with us. It's

> nice !!!

>

> Love,

>

> Lydia

>

>

>

>

> Marty and Ellen Grogin wrote:

> Great ideas!!!

>

> Maybe you just want to use FIRST names, to solve the anonymity problem.

[Guest guest]

Thank you.

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or save

thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Re: Way to Go Betty!!! Way to Go Gordon!!

Priscilla, I love the dedication. You have a wonderful way with

words. Love, Ingrid

> Way to Go Betty and Gordon! I heard you on Vital Options " The

Group Room "

>

> Getting the message out and asking great questions!

>

> Priscilla A. Savary

> Executive Director

> Colorectal Cancer Network

> PO Box 182, Kensington MD 20895

>

> psavary@c...

> www.colorectal-cancer.net

> _________

> Screening for All. Colon Cancer for None.

> ProjectMARCH -- rarely in life do you get a chance to make

major change or save thousands of lives. March 6, 2006 you can.

> http://www.colorectal-cancer.net/projectmarch.htm

>

>

>