Clinacal Trial

[Guest guest]

Hi gang. Just a note to say I had my first infusion yesterday afternoon. It was

a longggggg day in hospital 8am till 4:30pm. Still hate those PFT's. Told

pulmodoc, guy who invented that machine is a sadist. I gave enough blood to feed

Dracula, his kids, and grandbats for yrs. They took 12 vials at 8:30 2 more at

1pm and the last 2 at 4pm. Ten minutes into infusion pulmodoc walks in and says

" You're still alive, that's a good sign " I couldn't answer cause I had

thermometer in my mouth. He had a smile from ear to ear and shook my hand and

congratulated me. Also signed up for DNA testing for markers. Give more blood

next 2 weeks. All in all time went pretty quick. My wife was with me through

everything and she knows now why we love the PFT. She gave me strength. Very

tired when I got home only to have message my cousin passed away. After I came

home from that I got the chills, temp went up to 100.9 and was very weak.They

did warn me that could happen. I went to work today but was dragging my butt all

day. Am going to have a glass or 2 of wine and crash. I dont post much but read

everyday so sorry for rambling.

Merf 61 IPF 05

[Guest guest]

Merf,Thanks for doing what your doing. I would guess you got the good stuff if your running a fever. Take much care.Dyane Phoenix ipf 02>> Hi gang. Just a note to say I had my first infusion yesterday afternoon. It was a longggggg day in hospital 8am till 4:30pm. Still hate those PFT's. Told pulmodoc, guy who invented that machine is a sadist. I gave enough blood to feed Dracula, his kids, and grandbats for yrs. They took 12 vials at 8:30 2 more at 1pm and the last 2 at 4pm. Ten minutes into infusion pulmodoc walks in and says "You're still alive, that's a good sign" I couldn't answer cause I had thermometer in my mouth. He had a smile from ear to ear and shook my hand and congratulated me. Also signed up for DNA testing for markers. Give more blood next 2 weeks. All in all time went pretty quick. My wife was with me through everything and she knows now why we love the PFT. She gave me strength. Very tired when I got home only to have message my cousin passed away. After I came home from that I got the chills, temp went up to 100.9 and was very weak.They did warn me that could happen. I went to work today but was dragging my butt all day. Am going to have a glass or 2 of wine and crash. I dont post much but read everyday so sorry for rambling.> Merf 61 IPF 05>

[Guest guest]

merf

thanks for participating

good luck to you

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Clinacal TrialTo: Breathe-Support Date: Friday, September 4, 2009, 7:01 PM

Hi gang. Just a note to say I had my first infusion yesterday afternoon. It was a longggggg day in hospital 8am till 4:30pm. Still hate those PFT's. Told pulmodoc, guy who invented that machine is a sadist. I gave enough blood to feed Dracula, his kids, and grandbats for yrs. They took 12 vials at 8:30 2 more at 1pm and the last 2 at 4pm. Ten minutes into infusion pulmodoc walks in and says "You're still alive, that's a good sign" I couldn't answer cause I had thermometer in my mouth. He had a smile from ear to ear and shook my hand and congratulated me. Also signed up for DNA testing for markers. Give more blood next 2 weeks. All in all time went pretty quick. My wife was with me through everything and she knows now why we love the PFT. She gave me strength. Very tired when I got home only to have message my cousin passed away. After I came home from that I got the chills, temp went up to 100.9 and was very weak.They did warn me that could happen.

I went to work today but was dragging my butt all day. Am going to have a glass or 2 of wine and crash. I dont post much but read everyday so sorry for rambling.Merf 61 IPF 05