Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Hi Alice, I too am a Newby-just found this great "support group". I'm looking forward to meeting in person some of these lovely people & any people with PF-UIP. I've learned so much & have felt some real concern. It been a true blessing! I've learned more in a week than i have since being diagnosed. I mean, things that my own Dr. & PCP couldn't tell me. I plan to go to my nearest support group which is in Houston. And God willing start a support group here in San . Anyway, welcome! Dot 42/SA,Tx/UIP 10/08 Subject: New Member IntroTo: Breathe-Support Date: Sunday, September 6, 2009, 11:51 AM Hello! My name is Alice Lynne and I'm glad to find this group! I'm a 44 yo SAHM from northern Nevada. My lung problems (we know now) started about 10 plus years ago when I started coming down with pneumonia and/or bronchitis that antibiotics never really helped, but would clear up on it's own. Chest x-rays never showed much and so my (ex) doctor was never really concerned. Then in April 2008 I came down with a cold that was going around, but my cough never went away. After two trips to urgent care and both times being told *it's just a cold* I gave up on seeing doctors about it and just let it take it's course. Then in August 2008 I went in for my yearly check up with my family doctor, who sent me directly to the hospital because of extremely low oxygen levels. After a hospital stay, many tests, CAT scans/x-rays, biopsies, blood work, my pulmonologist was able to diagnose me with chronic autoimmune hypersensitivity pneumonitis (we are still trying to find the cause..it's not mold or animal/bird sensitivities that the doctors/tests could detect) that has cause pulmonary fibrosis. Currently I am on no oral medicine. I am on oxygen, between 2 and 6 liters depending on the day and my activity. Take Care Alice Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2009 Report Share Posted September 7, 2009 Welcome to the group Alice Lynne!!! Alice Lynne, Welcome to the "air family"As others have already said...sorry you need us , but glad you've found us.This group has been the best!!!Ask whatever questions you have...someone here will respond!Share what you want with us...we don't tell secrets!!!Laugh and cry with us,...we do that too.I hope your Labor Day week-end is fun!I'm going to play with my two little grand daughterswhile everyone else is making dinner!I've got pictures of my gorgeous little girls in the photo area. Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Alice Lynne wrote: Hello! My name is Alice Lynne and I'm glad to find this group! I'm a 44 yo SAHM from northern Nevada. My lung problems (we know now) started about 10 plus years ago when I started coming down with pneumonia and/or bronchitis that antibiotics never really helped, but would clear up on it's own. Chest x-rays never showed much and so my (ex) doctor was never really concerned. Then in April 2008 I came down with a cold that was going around, but my cough never went away. After two trips to urgent care and both times being told *it's just a cold* I gave up on seeing doctors about it and just let it take it's course. Then in August 2008 I went in for my yearly check up with my family doctor, who sent me directly to the hospital because of extremely low oxygen levels. After a hospital stay, many tests, CAT scans/x-rays, biopsies, blood work, my pulmonologist was able to diagnose me with chronic autoimmune hypersensitivity pneumonitis (we are still trying to find the cause..it's not mold or animal/bird sensitivities that the doctors/tests could detect) that has cause pulmonary fibrosis. Currently I am on no oral medicine. I am on oxygen, between 2 and 6 liters depending on the day and my activity. Take Care Alice Lynne Quote Link to comment Share on other sites More sharing options...
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