Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 Joyce, I'm not certain why your respiratory therapist told you that you don't need and should not do aerobic exercise. Perhaps she's more concerned with stablizing your breathing right now and teaching you how to cope with the new restrictions. There is a definite learning curve to all this and we all go through it. The breathing that she is teaching you (in through the nose, out through the mouth) is something most of us have learned. I find it extremely helpful in bringing my sats back up quickly if they drop for some reason (over-exertion or having my O2 set too low). Your heart rate goes up when you move around for one very simple reason. Your lungs can transfer a limited amount of oxygen to your blood. In order to supply all parts of your body with that oxygen when it's needed (like when you move around) it has to beat faster. One of the advantages of aerobic exercise (when done safely) is that it gets your heart into the best possible condition to be able to get blood to all parts of your body efficiently. My heart rate used to jump like yours does into the 120's and 130's on exertion. Three years of regular, safe aerobic exercise (with lots of supplemental oxygen) have brought that into the 100's to 110. My pulmo is happy, my cardiologist is happy and my heart is probably happy too! Practise the breathing, that's all it's going to take. You have to learn to concentrate, slow down and breathe. Practise, practise, practise. It's a new habit to learn. Many of us (myself included) were very used to rushing everywhere we went, doing things quickly and doing everything for ourselves. Those days are over Joyce. You simply must force yourself to slow down and breathe. It's not easy but one hour, one day at a time you will learn it. My only area of concern is this. I would suggest you discuss with your respiratory therapist the fact that you have a restrictive lung disease and not an obstructive lung disease. Pulmonary fibrosis regardless of the cause is restrictive, we have more trouble inhaling. Obstructive lung diseases are things like emphysema, COPD and asthma. These folks in addition to other issues have difficulty exhaling completely. This makes their concerns about oxygen use very different from yours and most RT's are much much more familiar with obstructive lung disease so just make sure that this person is very familiar with restrictive lung diseases and is giving you accurate information for YOU. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support <Breathe-Support >Sent: Friday, July 3, 2009 3:25:55 PMSubject: puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2009 Report Share Posted July 4, 2009 Thanks mary beth the comments about not doing aerobic exercise didn't make sense to me, since that is what i understand pulmonary rehab to be about i too found that my heart rate on the treadmill is lower than a year ago rudy joyce needs to find out if the therapist is talking about COPD or pulmonary fibrosis issues by the way -- what is the reason for breathing in through your nose and out through your mouth? yes, it does bring my low SAT up question about diaphragmatic (spelling) breathing -- i know that it is important for the COPD group -- does it help the pulmonary fibrosis group? thanks for your answers (just in case i forget to say thank you later) Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: puzzeledTo: Breathe-Support Date: Friday, July 3, 2009, 9:51 PM Joyce, I'm not certain why your respiratory therapist told you that you don't need and should not do aerobic exercise. Perhaps she's more concerned with stablizing your breathing right now and teaching you how to cope with the new restrictions. There is a definite learning curve to all this and we all go through it. The breathing that she is teaching you (in through the nose, out through the mouth) is something most of us have learned. I find it extremely helpful in bringing my sats back up quickly if they drop for some reason (over-exertion or having my O2 set too low). Your heart rate goes up when you move around for one very simple reason. Your lungs can transfer a limited amount of oxygen to your blood. In order to supply all parts of your body with that oxygen when it's needed (like when you move around) it has to beat faster. One of the advantages of aerobic exercise (when done safely) is that it gets your heart into the best possible condition to be able to get blood to all parts of your body efficiently. My heart rate used to jump like yours does into the 120's and 130's on exertion. Three years of regular, safe aerobic exercise (with lots of supplemental oxygen) have brought that into the 100's to 110. My pulmo is happy, my cardiologist is happy and my heart is probably happy too! Practise the breathing, that's all it's going to take. You have to learn to concentrate, slow down and breathe. Practise, practise, practise. It's a new habit to learn. Many of us (myself included) were very used to rushing everywhere we went, doing things quickly and doing everything for ourselves. Those days are over Joyce. You simply must force yourself to slow down and breathe. It's not easy but one hour, one day at a time you will learn it. My only area of concern is this. I would suggest you discuss with your respiratory therapist the fact that you have a restrictive lung disease and not an obstructive lung disease. Pulmonary fibrosis regardless of the cause is restrictive, we have more trouble inhaling. Obstructive lung diseases are things like emphysema, COPD and asthma. These folks in addition to other issues have difficulty exhaling completely. This makes their concerns about oxygen use very different from yours and most RT's are much much more familiar with obstructive lung disease so just make sure that this person is very familiar with restrictive lung diseases and is giving you accurate information for YOU. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Friday, July 3, 2009 3:25:55 PMSubject: puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2009 Report Share Posted July 4, 2009 Joyce, If you ask a respiratory therapist they will tell you that "pursed lip breathing" is just what they call "proper breathing technique". It's a way of breathing slowly and deliberately that makes the most of every breath. It sounds like Joyce Rudy has been told she needs to breathe that way all the time. It does help settle my breathing. A couple of times when I've run short of O2 coming home from somewhere in the car, I've used it to keep my sats up till I got home. Once for about a 1/2 hour! And my sats were 94 when I got home and hooked back up to my oxygen. Diaphragmatic breathing is also an excellent technique. Think of expanding your belly as you inhale rather than your chest and then pulling your belly back towards your backbone as you exhale. It makes the most of your breathing ability and uses your diaphragm to help pull air in and pushi back out rather than your ribcage muscles (your intercostals). This type of breathing is also used in yoga and lots of physical therapists use it. Let me know if something there doesn't make sense. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Saturday, July 4, 2009 12:46:59 PMSubject: Re: puzzeled Thanks mary beth the comments about not doing aerobic exercise didn't make sense to me, since that is what i understand pulmonary rehab to be about i too found that my heart rate on the treadmill is lower than a year ago rudy joyce needs to find out if the therapist is talking about COPD or pulmonary fibrosis issues by the way -- what is the reason for breathing in through your nose and out through your mouth? yes, it does bring my low SAT up question about diaphragmatic (spelling) breathing -- i know that it is important for the COPD group -- does it help the pulmonary fibrosis group? thanks for your answers (just in case i forget to say thank you later) Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: puzzeledTo: Breathe-Support@ yahoogroups. comDate: Friday, July 3, 2009, 9:51 PM Joyce, I'm not certain why your respiratory therapist told you that you don't need and should not do aerobic exercise. Perhaps she's more concerned with stablizing your breathing right now and teaching you how to cope with the new restrictions. There is a definite learning curve to all this and we all go through it. The breathing that she is teaching you (in through the nose, out through the mouth) is something most of us have learned. I find it extremely helpful in bringing my sats back up quickly if they drop for some reason (over-exertion or having my O2 set too low). Your heart rate goes up when you move around for one very simple reason. Your lungs can transfer a limited amount of oxygen to your blood. In order to supply all parts of your body with that oxygen when it's needed (like when you move around) it has to beat faster. One of the advantages of aerobic exercise (when done safely) is that it gets your heart into the best possible condition to be able to get blood to all parts of your body efficiently. My heart rate used to jump like yours does into the 120's and 130's on exertion. Three years of regular, safe aerobic exercise (with lots of supplemental oxygen) have brought that into the 100's to 110. My pulmo is happy, my cardiologist is happy and my heart is probably happy too! Practise the breathing, that's all it's going to take. You have to learn to concentrate, slow down and breathe. Practise, practise, practise. It's a new habit to learn. Many of us (myself included) were very used to rushing everywhere we went, doing things quickly and doing everything for ourselves. Those days are over Joyce. You simply must force yourself to slow down and breathe. It's not easy but one hour, one day at a time you will learn it. My only area of concern is this. I would suggest you discuss with your respiratory therapist the fact that you have a restrictive lung disease and not an obstructive lung disease. Pulmonary fibrosis regardless of the cause is restrictive, we have more trouble inhaling. Obstructive lung diseases are things like emphysema, COPD and asthma. These folks in addition to other issues have difficulty exhaling completely. This makes their concerns about oxygen use very different from yours and most RT's are much much more familiar with obstructive lung disease so just make sure that this person is very familiar with restrictive lung diseases and is giving you accurate information for YOU. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Friday, July 3, 2009 3:25:55 PMSubject: puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Joyce, It does sound like you got some really good pracitical tips from the respiratory therapist who is helping you. I know it's difficult to rearrange your life to meet your new limitations and believe me I understand why it makes you feel like a sick person. I went through the same feelings. Ultimately though when I followed the advice that I was given things got easier. I spent less energy doing everyday chores and then had more energy to do the things I wanted to do. So when she tells you to minimize she's trying to help you save your energy for the fun things in life instead of using it all up on things like grocery shopping, hauling huge bags of dog food, or cooking every day. My son was a vegan for a couple of years. It's a very strict vegetarian diet. No animal products at all. So it's not just no meat, it's no dairy(milk, cheese, yogurt butter etc), no eggs, nothing that has an animal as it's source. Some very strict vegans won't even eat honey as it's made by bees. My son is no longer a vegan....he eats a pretty regular, fairly healthy diet these days. After a couple of years he found it just too limited and difficult and he felt getting enough protein was next to impossible on it. I do know people though who are very happy living on it. It wouldn't be for me but everyone is different. Hope that helps a bit. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Saturday, July 4, 2009 5:46:33 PMSubject: Re: puzzeled Now I understand, B eth. I will try hard to remember to breath correctly. It is hard though. I have found if I open my mouth and place my tongue to the roof when I inhale I can automatically exhale correctly but it is taking a lot of patience. I think part of my problem is that I have been inactive for a couple of months because of the biopsy and now I'm back in the pool and walking the dogs and I think I will get better. Buy at least she understood things like I am eating more sandwich's and TV dinners....She understood and when I told her that sometimes I get busy and cook, cook cook she told me to save the yogurt containers and little containers like that and make a chuck roast in the crock pot and then put some in the little containers and they make a perfect size for a serving and can be frozen. You can use the meat for Taco's or stir fry or just for a meal....That was a useful suggestion because I like taco's and burrito's but cooking the meat is overwhelming and on those days I cannot cook just taking one of these containers out and microwaving it will make a perfect burrito or taco! Also, she says to keep beans around and some shredded cheese because if you are really, really tired. You can take a couple of Tablespoons of black beans (any bean you like) put a bit of shredded cheese on it and microwave it and it is a good nutritious dinner. She suggested that when I can cook, or make things like egg salad and tuna salad, that I make more then what I can eat and keep it in the freezer or in the fridge because the next day I might just not be so able to due it. She also said I will have to relearn shopping. When I go to the store, buy what I need for 3 days and bring it home. I was telling her that when I go to the store I have so much stuff I can barely bring it in and put it away and as a matter of fact in my car right now is a bunch of fruit and vegetable that I have not had the energy to get out of the car and I have groceries in the entry way I just don't have the strength to put away yet. I have to learn not to do that. I will end up going to the store more but it will be easier to handle. She explained to me it is better if I don't bend over....bending over is hard....try to put things up.....or at waist level. She understands pots and pans are usually below but it is very hard for people with lung problems to bend over. Also she said reaching up can be a problem...So, I have to rearrange my kitchen but where can I put these things? Essentially she advises to cook more then I can use when I can cook and freeze it and things like that. She was trying to teach me to better utilize my energy...it made me feel like I was sick! I hate feeling like I am sick! I usually buy my dog food in 40 lb sacks and she said no. I must get a smaller sack...learn to minimize...although why that should be I don't know. At my local JC they have a nutrition and weight loss class with exercise. I am thinking of taking that. The exercise is weight training. I was told the nutrition part is Vegan. I don't know anything about a Vegan diet accept you don't eat anything that has a mother and a father. I have no idea how such a diet would work with lung problems. I know our diets must be healthy but I don't understand a Vegan diet at all. So far I've had a wonderful 4th of July. Downtown they had booths and crafts and such and I went this morning with a friend and then went shopping..came home about 1 PM and was plenty tired but had so much fun! Tonight the City will shoot off fireworks and I can see them from my back patio and my young dog gets very upset by the noise so I sit and hold him and we watch the fire works together while my older dogs stay inside and cuddle up with a bone. Hope you and everyone else has had a wonderful 4th too! Joyce Rudy, AZ Birds puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Joyce and MB, Don't know why I thought you two might want this little doggy tip. to remove hair from furniture or clothes use a rubber glove. just rub and bingo it just rolls up. Cool when they get on furniture. Your Welcome... ;)Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Joyce, It does sound like you got some really good pracitical tips from the respiratory therapist who is helping you. I know it's difficult to rearrange your life to meet your new limitations and believe me I understand why it makes you feel like a sick person. I went through the same feelings. Ultimately though when I followed the advice that I was given things got easier. I spent less energy doing everyday chores and then had more energy to do the things I wanted to do. So when she tells you to minimize she's trying to help you save your energy for the fun things in life instead of using it all up on things like grocery shopping, hauling huge bags of dog food, or cooking every day. My son was a vegan for a couple of years. It's a very strict vegetarian diet. No animal products at all. So it's not just no meat, it's no dairy(milk, cheese, yogurt butter etc), no eggs, nothing that has an animal as it's source. Some very strict vegans won't even eat honey as it's made by bees. My son is no longer a vegan....he eats a pretty regular, fairly healthy diet these days. After a couple of years he found it just too limited and difficult and he felt getting enough protein was next to impossible on it. I do know people though who are very happy living on it. It wouldn't be for me but everyone is different. Hope that helps a bit. BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@q.com>To: Breathe-Support Sent: Saturday, July 4, 2009 5:46:33 PMSubject: Re: puzzeled Now I understand, B eth. I will try hard to remember to breath correctly. It is hard though. I have found if I open my mouth and place my tongue to the roof when I inhale I can automatically exhale correctly but it is taking a lot of patience. I think part of my problem is that I have been inactive for a couple of months because of the biopsy and now I'm back in the pool and walking the dogs and I think I will get better. Buy at least she understood things like I am eating more sandwich's and TV dinners....She understood and when I told her that sometimes I get busy and cook, cook cook she told me to save the yogurt containers and little containers like that and make a chuck roast in the crock pot and then put some in the little containers and they make a perfect size for a serving and can be frozen. You can use the meat for Taco's or stir fry or just for a meal....That was a useful suggestion because I like taco's and burrito's but cooking the meat is overwhelming and on those days I cannot cook just taking one of these containers out and microwaving it will make a perfect burrito or taco! Also, she says to keep beans around and some shredded cheese because if you are really, really tired. You can take a couple of Tablespoons of black beans (any bean you like) put a bit of shredded cheese on it and microwave it and it is a good nutritious dinner. She suggested that when I can cook, or make things like egg salad and tuna salad, that I make more then what I can eat and keep it in the freezer or in the fridge because the next day I might just not be so able to due it. She also said I will have to relearn shopping. When I go to the store, buy what I need for 3 days and bring it home. I was telling her that when I go to the store I have so much stuff I can barely bring it in and put it away and as a matter of fact in my car right now is a bunch of fruit and vegetable that I have not had the energy to get out of the car and I have groceries in the entry way I just don't have the strength to put away yet. I have to learn not to do that. I will end up going to the store more but it will be easier to handle. She explained to me it is better if I don't bend over....bending over is hard....try to put things up.....or at waist level. She understands pots and pans are usually below but it is very hard for people with lung problems to bend over. Also she said reaching up can be a problem...So, I have to rearrange my kitchen but where can I put these things? Essentially she advises to cook more then I can use when I can cook and freeze it and things like that. She was trying to teach me to better utilize my energy...it made me feel like I was sick! I hate feeling like I am sick! I usually buy my dog food in 40 lb sacks and she said no. I must get a smaller sack...learn to minimize...although why that should be I don't know. At my local JC they have a nutrition and weight loss class with exercise. I am thinking of taking that. The exercise is weight training. I was told the nutrition part is Vegan. I don't know anything about a Vegan diet accept you don't eat anything that has a mother and a father. I have no idea how such a diet would work with lung problems. I know our diets must be healthy but I don't understand a Vegan diet at all. So far I've had a wonderful 4th of July. Downtown they had booths and crafts and such and I went this morning with a friend and then went shopping..came home about 1 PM and was plenty tired but had so much fun! Tonight the City will shoot off fireworks and I can see them from my back patio and my young dog gets very upset by the noise so I sit and hold him and we watch the fire works together while my older dogs stay inside and cuddle up with a bone. Hope you and everyone else has had a wonderful 4th too! Joyce Rudy, AZ Birds puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Thank you, Beth. I didn't realize a Vegan diet was so extreme...but, if I can lose weight on it it would be worth it....I don't know if once I lost a hundred pounds I would stay on it though. Did your son get really thin? What did you feed him? I don't understand why the prohibition on Milk and eggs and cheese. The eggs aren't fertile and the milk has to be gotten or the cow will die and cheese is a by product of milk and cream. I would think it would be impossible to get enough protein. When I was very young I was a vegetarian for a few years and ended up quite sick. I had NO iron in my body! I ended up in the hospital. My doctor kept telling me that I was NOT a Whale...I could not live by only eating plankton! So, I had to go back to a regular diet...and in fact I had to eat a cheese burger and a malt and a large french Fries at least once a day to maintain my weight after my years as a vegetarian. I was thin to begin with and only got a lot thinner as a vegetarian. But, I am old now and don't know if I can keep this much weight on me much longer. I have got to get at lest 80 pounds off me as soon as possible. If being a Vegan can do it and do it swiftly I would try but it would be very very hard. Joyce Rudy AZ birds puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 A damp sponge works really well, too! B Barbara McD IPF, Sept 08 Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9 To: Breathe-Support Sent: Sunday, July 5, 2009 2:09:43 PMSubject: Re: puzzeledJoyce and MB, Don't know why I thought you two might want this little doggy tip. to remove hair from furniture or clothes use a rubber glove. just rub and bingo it just rolls up. Cool when they get on furniture. Your Welcome... Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Joyce, It does sound like you got some really good pracitical tips from the respiratory therapist who is helping you. I know it's difficult to rearrange your life to meet your new limitations and believe me I understand why it makes you feel like a sick person. I went through the same feelings. Ultimately though when I followed the advice that I was given things got easier. I spent less energy doing everyday chores and then had more energy to do the things I wanted to do. So when she tells you to minimize she's trying to help you save your energy for the fun things in life instead of using it all up on things like grocery shopping, hauling huge bags of dog food, or cooking every day. My son was a vegan for a couple of years. It's a very strict vegetarian diet. No animal products at all. So it's not just no meat, it's no dairy(milk, cheese, yogurt butter etc), no eggs, nothing that has an animal as it's source. Some very strict vegans won't even eat honey as it's made by bees. My son is no longer a vegan....he eats a pretty regular, fairly healthy diet these days. After a couple of years he found it just too limited and difficult and he felt getting enough protein was next to impossible on it. I do know people though who are very happy living on it. It wouldn't be for me but everyone is different. Hope that helps a bit. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support@ yahoogroups. comSent: Saturday, July 4, 2009 5:46:33 PMSubject: Re: puzzeled Now I understand, B eth. I will try hard to remember to breath correctly. It is hard though. I have found if I open my mouth and place my tongue to the roof when I inhale I can automatically exhale correctly but it is taking a lot of patience. I think part of my problem is that I have been inactive for a couple of months because of the biopsy and now I'm back in the pool and walking the dogs and I think I will get better. Buy at least she understood things like I am eating more sandwich's and TV dinners....She understood and when I told her that sometimes I get busy and cook, cook cook she told me to save the yogurt containers and little containers like that and make a chuck roast in the crock pot and then put some in the little containers and they make a perfect size for a serving and can be frozen. You can use the meat for Taco's or stir fry or just for a meal....That was a useful suggestion because I like taco's and burrito's but cooking the meat is overwhelming and on those days I cannot cook just taking one of these containers out and microwaving it will make a perfect burrito or taco! Also, she says to keep beans around and some shredded cheese because if you are really, really tired. You can take a couple of Tablespoons of black beans (any bean you like) put a bit of shredded cheese on it and microwave it and it is a good nutritious dinner. She suggested that when I can cook, or make things like egg salad and tuna salad, that I make more then what I can eat and keep it in the freezer or in the fridge because the next day I might just not be so able to due it. She also said I will have to relearn shopping. When I go to the store, buy what I need for 3 days and bring it home. I was telling her that when I go to the store I have so much stuff I can barely bring it in and put it away and as a matter of fact in my car right now is a bunch of fruit and vegetable that I have not had the energy to get out of the car and I have groceries in the entry way I just don't have the strength to put away yet. I have to learn not to do that. I will end up going to the store more but it will be easier to handle. She explained to me it is better if I don't bend over....bending over is hard....try to put things up.....or at waist level. She understands pots and pans are usually below but it is very hard for people with lung problems to bend over. Also she said reaching up can be a problem...So, I have to rearrange my kitchen but where can I put these things? Essentially she advises to cook more then I can use when I can cook and freeze it and things like that. She was trying to teach me to better utilize my energy...it made me feel like I was sick! I hate feeling like I am sick! I usually buy my dog food in 40 lb sacks and she said no. I must get a smaller sack...learn to minimize...although why that should be I don't know. At my local JC they have a nutrition and weight loss class with exercise. I am thinking of taking that. The exercise is weight training. I was told the nutrition part is Vegan. I don't know anything about a Vegan diet accept you don't eat anything that has a mother and a father. I have no idea how such a diet would work with lung problems. I know our diets must be healthy but I don't understand a Vegan diet at all. So far I've had a wonderful 4th of July. Downtown they had booths and crafts and such and I went this morning with a friend and then went shopping..came home about 1 PM and was plenty tired but had so much fun! Tonight the City will shoot off fireworks and I can see them from my back patio and my young dog gets very upset by the noise so I sit and hold him and we watch the fire works together while my older dogs stay inside and cuddle up with a bone. Hope you and everyone else has had a wonderful 4th too! Joyce Rudy, AZ Birds puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009  What a neat tip! Thank you, Peggy! I will indeed do that. Joyce Rudy, AZ birds puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Joyce, Yes my son got extremely thin when he was following a vegan diet. He was only living at home about 6 months out of the time he was following this diet and it was a nightmare. Lists of ingredients had to be scrutinized in the grocery store so that I didn't buy something for him that he ended up not being able to eat. It was insane. Things like whey protein, or casein (by products of milk) are in everything you can imagine. Something as simple as a box of crackers which should have been easy to purchase took me forever because I had to find a brand that had no offensive ingredients. The reasoning behind it is that animals used in food production are exploited and kept in inhumane conditions so he chose not to eat anything that had ingredients that came from any animal source. As I said he could not keep it up indefinitely. I remember the day he came to me and said, "Mom I just can't do it anymore. Can I have some chicken?" I celebrated!! He ate 4 chicken cutlets, a baked potato and brocolli that night for supper. He's now at a healthy weight and eats some meat, not a lot but enough to get the protein he needs. It is a tough diet to follow for any length of time. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Sunday, July 5, 2009 2:18:02 PMSubject: Re: puzzeled Thank you, Beth. I didn't realize a Vegan diet was so extreme...but, if I can lose weight on it it would be worth it....I don't know if once I lost a hundred pounds I would stay on it though. Did your son get really thin? What did you feed him? I don't understand why the prohibition on Milk and eggs and cheese. The eggs aren't fertile and the milk has to be gotten or the cow will die and cheese is a by product of milk and cream. I would think it would be impossible to get enough protein. When I was very young I was a vegetarian for a few years and ended up quite sick. I had NO iron in my body! I ended up in the hospital. My doctor kept telling me that I was NOT a Whale...I could not live by only eating plankton! So, I had to go back to a regular diet...and in fact I had to eat a cheese burger and a malt and a large french Fries at least once a day to maintain my weight after my years as a vegetarian. I was thin to begin with and only got a lot thinner as a vegetarian. But, I am old now and don't know if I can keep this much weight on me much longer. I have got to get at lest 80 pounds off me as soon as possible. If being a Vegan can do it and do it swiftly I would try but it would be very very hard. Joyce Rudy AZ birds puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 I don't think a strict vegan diet is necessary. Years ago I was urged to fast three days, drinking only liquids, mostly juices, and then trying different foods to see the effect on me. My first food was meat, probably beef. It made feel as though I had a ball of lead in my stomach, a hard thing to carry around. Cucumbers gave me heart burn. It's been many years and I don't remember the other effects. Ever since I have eaten what is basically a vegatable/fruit diet. For example, breakfast is one banana, one organge, a handful of grapes, half a toasted wheat muffin with cream cheese, and a cup of tea (earl grey) with honey as a sweetner. My other meals are a hodge pod of chicken/turkey baked, no frying, tuna, salmon, shrimp, haddock, the only fish I can really like. With these are various vegetables, not all at the same time, but limited to the ones I like best and which have proved to be healthful: potatoes in any fashion except fried, sweet potatoes, all beans, peas, all the green stuff, etc. I believe, and my doctors agree, that this diet has kept me healthy thorugh the years. Until I was diagnosed with IPF five years ago, I have never been ill except for a rare cold or touch of the flu. Even today, the pulmo's believe that my underlyhing good health has kept the IPF stable. And I have made it to 80 years. I'm not advising any one to try my diet, but I do offer it for consideration. In essence, I just don't think red meat is healthy. I believe the same about tobacco and alchohol. Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Sunday, July 5, 2009 1:29:50 PMSubject: Re: puzzeled Joyce, It does sound like you got some really good pracitical tips from the respiratory therapist who is helping you. I know it's difficult to rearrange your life to meet your new limitations and believe me I understand why it makes you feel like a sick person. I went through the same feelings. Ultimately though when I followed the advice that I was given things got easier. I spent less energy doing everyday chores and then had more energy to do the things I wanted to do. So when she tells you to minimize she's trying to help you save your energy for the fun things in life instead of using it all up on things like grocery shopping, hauling huge bags of dog food, or cooking every day. My son was a vegan for a couple of years. It's a very strict vegetarian diet. No animal products at all. So it's not just no meat, it's no dairy(milk, cheese, yogurt butter etc), no eggs, nothing that has an animal as it's source. Some very strict vegans won't even eat honey as it's made by bees. My son is no longer a vegan....he eats a pretty regular, fairly healthy diet these days. After a couple of years he found it just too limited and difficult and he felt getting enough protein was next to impossible on it. I do know people though who are very happy living on it. It wouldn't be for me but everyone is different. Hope that helps a bit. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support@ yahoogroups. comSent: Saturday, July 4, 2009 5:46:33 PMSubject: Re: puzzeled Now I understand, B eth. I will try hard to remember to breath correctly. It is hard though.. I have found if I open my mouth and place my tongue to the roof when I inhale I can automatically exhale correctly but it is taking a lot of patience. I think part of my problem is that I have been inactive for a couple of months because of the biopsy and now I'm back in the pool and walking the dogs and I think I will get better. Buy at least she understood things like I am eating more sandwich's and TV dinners....She understood and when I told her that sometimes I get busy and cook, cook cook she told me to save the yogurt containers and little containers like that and make a chuck roast in the crock pot and then put some in the little containers and they make a perfect size for a serving and can be frozen. You can use the meat for Taco's or stir fry or just for a meal....That was a useful suggestion because I like taco's and burrito's but cooking the meat is overwhelming and on those days I cannot cook just taking one of these containers out and microwaving it will make a perfect burrito or taco! Also, she says to keep beans around and some shredded cheese because if you are really, really tired. You can take a couple of Tablespoons of black beans (any bean you like) put a bit of shredded cheese on it and microwave it and it is a good nutritious dinner. She suggested that when I can cook, or make things like egg salad and tuna salad, that I make more then what I can eat and keep it in the freezer or in the fridge because the next day I might just not be so able to due it. She also said I will have to relearn shopping. When I go to the store, buy what I need for 3 days and bring it home. I was telling her that when I go to the store I have so much stuff I can barely bring it in and put it away and as a matter of fact in my car right now is a bunch of fruit and vegetable that I have not had the energy to get out of the car and I have groceries in the entry way I just don't have the strength to put away yet. I have to learn not to do that. I will end up going to the store more but it will be easier to handle.. She explained to me it is better if I don't bend over....bending over is hard....try to put things up.....or at waist level. She understands pots and pans are usually below but it is very hard for people with lung problems to bend over. Also she said reaching up can be a problem...So, I have to rearrange my kitchen but where can I put these things? Essentially she advises to cook more then I can use when I can cook and freeze it and things like that. She was trying to teach me to better utilize my energy...it made me feel like I was sick! I hate feeling like I am sick! I usually buy my dog food in 40 lb sacks and she said no. I must get a smaller sack...learn to minimize...although why that should be I don't know. At my local JC they have a nutrition and weight loss class with exercise. I am thinking of taking that. The exercise is weight training. I was told the nutrition part is Vegan. I don't know anything about a Vegan diet accept you don't eat anything that has a mother and a father. I have no idea how such a diet would work with lung problems. I know our diets must be healthy but I don't understand a Vegan diet at all. So far I've had a wonderful 4th of July. Downtown they had booths and crafts and such and I went this morning with a friend and then went shopping..came home about 1 PM and was plenty tired but had so much fun! Tonight the City will shoot off fireworks and I can see them from my back patio and my young dog gets very upset by the noise so I sit and hold him and we watch the fire works together while my older dogs stay inside and cuddle up with a bone. Hope you and everyone else has had a wonderful 4th too! Joyce Rudy, AZ Birds puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Beth, Thanks for that info. Tell me though, what is the hand weight routine you do? I really need to get busy doing exercises because I seem to be getting shorter of breath since I no longer do pulmonary rehab. I also saw that you (atleast I think it was you) said that bending down and reaching up high can cause me to breathe harder. Is that correct? Adrienne From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: puzzeledTo: Breathe-Support@ yahoogroups. comDate: Saturday, July 4, 2009, 1:51 AM Joyce, I'm not certain why your respiratory therapist told you that you don't need and should not do aerobic exercise. Perhaps she's more concerned with stablizing your breathing right now and teaching you how to cope with the new restrictions. There is a definite learning curve to all this and we all go through it. The breathing that she is teaching you (in through the nose, out through the mouth) is something most of us have learned. I find it extremely helpful in bringing my sats back up quickly if they drop for some reason (over-exertion or having my O2 set too low). Your heart rate goes up when you move around for one very simple reason. Your lungs can transfer a limited amount of oxygen to your blood. In order to supply all parts of your body with that oxygen when it's needed (like when you move around) it has to beat faster. One of the advantages of aerobic exercise (when done safely) is that it gets your heart into the best possible condition to be able to get blood to all parts of your body efficiently. My heart rate used to jump like yours does into the 120's and 130's on exertion. Three years of regular, safe aerobic exercise (with lots of supplemental oxygen) have brought that into the 100's to 110. My pulmo is happy, my cardiologist is happy and my heart is probably happy too! Practise the breathing, that's all it's going to take. You have to learn to concentrate, slow down and breathe. Practise, practise, practise. It's a new habit to learn. Many of us (myself included) were very used to rushing everywhere we went, doing things quickly and doing everything for ourselves. Those days are over Joyce. You simply must force yourself to slow down and breathe. It's not easy but one hour, one day at a time you will learn it. My only area of concern is this. I would suggest you discuss with your respiratory therapist the fact that you have a restrictive lung disease and not an obstructive lung disease. Pulmonary fibrosis regardless of the cause is restrictive, we have more trouble inhaling. Obstructive lung diseases are things like emphysema, COPD and asthma. These folks in addition to other issues have difficulty exhaling completely. This makes their concerns about oxygen use very different from yours and most RT's are much much more familiar with obstructive lung disease so just make sure that this person is very familiar with restrictive lung diseases and is giving you accurate information for YOU. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Friday, July 3, 2009 3:25:55 PMSubject: puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Jack, yes that is a diet I can live with. I am not so certain about a Vegan diet. I want to talk to the instructor. I too find that beef lies heavy on my stomach and I have a hard time digesting it. I tend to eat mostly eggs and cheese. Chicken and salmon because I have found I can eat salmon. I like potato but cannot eat much of it because I am diabetic. I do love beans..any kind of beans and have a recipe for white bean stew which I adore! I was just hoping this Vegan diet would make me lose weight. I just can't seem to lose weight! But, I agree with you, your diet has probably kept you well all these years. Joyce Rudy AZ birds puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Adrienne, The routine that I learned in rehab is a series of 10 simple arm movements while holding 1 or 2 pound hand weights. 10 reps each movement and then the entire 10x10 cycle done 6 times for a total of 600 reps. This takes about 20 minutes to complete and I need my O2 at about 6-7 liters to be able to do it and keep my sats up. After that there's a series of other lifting exercises with heavier weights. The whole thing is intended to strengthen our upper bodies to make it easier for us to breathe. Lung patients use practically all our upper body muscles to pull air in and push it out while healthy people merely need their diaphragm and rib (intercostal muscles). I've been doing the same routine now for nearly 3 years. I'm curious to see what I'll learn in the pulmonary rehab at Duke. I go for my evaluation tomorrow morning. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Sunday, July 5, 2009 4:57:14 PMSubject: Re: puzzeled Beth, Thanks for that info. Tell me though, what is the hand weight routine you do? I really need to get busy doing exercises because I seem to be getting shorter of breath since I no longer do pulmonary rehab. I also saw that you (atleast I think it was you) said that bending down and reaching up high can cause me to breathe harder. Is that correct? Adrienne From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: puzzeledTo: Breathe-Support@ yahoogroups. comDate: Saturday, July 4, 2009, 1:51 AM Joyce, I'm not certain why your respiratory therapist told you that you don't need and should not do aerobic exercise. Perhaps she's more concerned with stablizing your breathing right now and teaching you how to cope with the new restrictions. There is a definite learning curve to all this and we all go through it. The breathing that she is teaching you (in through the nose, out through the mouth) is something most of us have learned. I find it extremely helpful in bringing my sats back up quickly if they drop for some reason (over-exertion or having my O2 set too low). Your heart rate goes up when you move around for one very simple reason. Your lungs can transfer a limited amount of oxygen to your blood. In order to supply all parts of your body with that oxygen when it's needed (like when you move around) it has to beat faster. One of the advantages of aerobic exercise (when done safely) is that it gets your heart into the best possible condition to be able to get blood to all parts of your body efficiently. My heart rate used to jump like yours does into the 120's and 130's on exertion. Three years of regular, safe aerobic exercise (with lots of supplemental oxygen) have brought that into the 100's to 110. My pulmo is happy, my cardiologist is happy and my heart is probably happy too! Practise the breathing, that's all it's going to take. You have to learn to concentrate, slow down and breathe. Practise, practise, practise. It's a new habit to learn. Many of us (myself included) were very used to rushing everywhere we went, doing things quickly and doing everything for ourselves. Those days are over Joyce. You simply must force yourself to slow down and breathe. It's not easy but one hour, one day at a time you will learn it. My only area of concern is this. I would suggest you discuss with your respiratory therapist the fact that you have a restrictive lung disease and not an obstructive lung disease. Pulmonary fibrosis regardless of the cause is restrictive, we have more trouble inhaling. Obstructive lung diseases are things like emphysema, COPD and asthma. These folks in addition to other issues have difficulty exhaling completely. This makes their concerns about oxygen use very different from yours and most RT's are much much more familiar with obstructive lung disease so just make sure that this person is very familiar with restrictive lung diseases and is giving you accurate information for YOU. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Friday, July 3, 2009 3:25:55 PMSubject: puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2009 Report Share Posted July 5, 2009 Here are some wed sites for exercises. My pasting has the idea to leave extra spaces so delete them before you copy and pasthttp://home.vicnet.net.au/~huffpuff/exercise2.htmhttp://www.perf2ndwind.org/html/exercise.htmlhttp://weboflife.nasa.gov/exerciseandaging/toc.html P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 10 LPM 8/04, PH 3/06, ILL yo 61REMEMBER : All of you on Prednisone'stressed' spelled backwards is 'desserts' From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: puzzeledTo: Breathe-Support@ yahoogroups. comDate: Saturday, July 4, 2009, 1:51 AM Joyce, I'm not certain why your respiratory therapist told you that you don't need and should not do aerobic exercise. Perhaps she's more concerned with stablizing your breathing right now and teaching you how to cope with the new restrictions. There is a definite learning curve to all this and we all go through it. The breathing that she is teaching you (in through the nose, out through the mouth) is something most of us have learned. I find it extremely helpful in bringing my sats back up quickly if they drop for some reason (over-exertion or having my O2 set too low). Your heart rate goes up when you move around for one very simple reason. Your lungs can transfer a limited amount of oxygen to your blood. In order to supply all parts of your body with that oxygen when it's needed (like when you move around) it has to beat faster. One of the advantages of aerobic exercise (when done safely) is that it gets your heart into the best possible condition to be able to get blood to all parts of your body efficiently. My heart rate used to jump like yours does into the 120's and 130's on exertion. Three years of regular, safe aerobic exercise (with lots of supplemental oxygen) have brought that into the 100's to 110. My pulmo is happy, my cardiologist is happy and my heart is probably happy too! Practise the breathing, that's all it's going to take. You have to learn to concentrate, slow down and breathe. Practise, practise, practise. It's a new habit to learn. Many of us (myself included) were very used to rushing everywhere we went, doing things quickly and doing everything for ourselves. Those days are over Joyce. You simply must force yourself to slow down and breathe. It's not easy but one hour, one day at a time you will learn it. My only area of concern is this. I would suggest you discuss with your respiratory therapist the fact that you have a restrictive lung disease and not an obstructive lung disease. Pulmonary fibrosis regardless of the cause is restrictive, we have more trouble inhaling. Obstructive lung diseases are things like emphysema, COPD and asthma. These folks in addition to other issues have difficulty exhaling completely. This makes their concerns about oxygen use very different from yours and most RT's are much much more familiar with obstructive lung disease so just make sure that this person is very familiar with restrictive lung diseases and is giving you accurate information for YOU. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support <Breathe-Support@ yahoogroups. com>Sent: Friday, July 3, 2009 3:25:55 PMSubject: puzzeled I went to see the respitory therapist yesterday afternoon and she gave me a few tests and I found out some interesting things. First, I found out why you must breathe IN thru your nose and out thru your mouth. Important to do that. I am having a very hard time doing that. Then I found out that on room air if I am talking my 02 drops to 87 when it used to be at 91-92. Next she took me for a walk with air. She told me the reason I start to pant when I walk is not because my stats are dropping below 90 but my heart rate at rest is 82 and when I walk 5-10 feet at a slow rate it jumps to 138. she told me I do not need aerobic exercise! She said I get aerobic exercise just walking from the bedroom to the living room. she said she didn't know how I was doing aquafit. She said I have to learn to breath right and I just can't seem to co-ordinate this- and to do things slower. Very slow. Well, now I understand why even though I have a 93 o2 I am still panting. I wonder why my heart is speeding so much. I don't have heart disease. She says my stats are up when I walk because I am hyperventilating In order to do it. I am really confused as to how my heart rate could be so high and my stats up....Joyce Rudy AZ Birds Quote Link to comment Share on other sites More sharing options...
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