Guest guest Posted June 12, 2009 Report Share Posted June 12, 2009 Hi Peggy,Pictures really help me keep people straight. I can meet someone once and remember their face and where I met them but not their name usually. I'll try to post more. I have a lot of lovely flowers in the yard at the moment so I'll put them on line as flowers can brighten anyone's day - right?I wonder why anyone would not want to be in a support network. I am going to ask if they have one at UW on my next visit. I am sure it is sad to see your daughter's face be so sad but it would be worse if she showed happiness at that news. Fortunately for her you are a fighter and the two of you have a great relationship. I'm sure you spend time together and that is what is most important. I'm going to put a post about the results of my tests as soon as I get them so that'll be all in one place. I did survive it but I am not one for a lot of invasive procedures. Cheers,Peggycrazy patient, lunatic quilter, tennis duffer, software crasher and generally happy mother, wife, dog lover, 53 year old ILD 2008Hi Peggy,I was just looking around the entire site and saw the newspaper article you put on-line for us all to read. It was great - you're an inspiration. I was thinking about asking about an anti-anxiety med because I was having so much trouble there after the whole Dx thing really sunk in and then I was reading about GERD and what can make that better and anti-anxiety meds can actually exacerbate GERD. There is a whole theory that the stomach acids are being micro inhaled especially when the body is in a more horizontal place and they do incredible damage to the lungs. I'll see if I can get Dr. Raghu to give me some of his research for publication on the site. I'll also mention the site to him and see if he can be a contributor if that is allowed.I just wanted to mention this to you. According to my doctor 40% of all people who have GERD don't know they have it. I certainly did not know I had it and thank God my husband had the courage to ask me if I was making myself vomit (God forbid - no models here) and I casually mentioned it to the doctor and his eyes lit up like a jackpot handle was pulled. He immediately put me on omraprazole and after I told him most of my symptoms went away he weaned me off the inhaled steroids and I am still doing pretty much the same as I was doing before I ever even knew I was sick. Just thought I'd share that. You've probably been down this road but just in case you hadn't. For more info - Google Dr. Ganesh Raghu and his GERD and ILD research.Now for sure I am going to bed cuz I can't have anything now to eat or drink so I might as well sleep.Cheers,Peggy etc. Quote Link to comment Share on other sites More sharing options...
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