Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 Barbara, I just sent a reply to your email. Thanks! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Friday, July 3, 2009 5:41:40 PMSubject: Beth Just wondering -- did you receive the email I sent to you directly yesterday? Sometimes my email isn't reliable with sending and/or receiving, so just checking... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 Got it! Thanks. B Barbara McD IPF, Sept 08 Beautiful Western NC Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9 To: Breathe-Support Sent: Friday, July 3, 2009 6:49:40 PMSubject: Re: Beth Barbara, I just sent a reply to your email. Thanks! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Barbara <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, July 3, 2009 5:41:40 PMSubject: Beth Just wondering -- did you receive the email I sent to you directly yesterday? Sometimes my email isn't reliable with sending and/or receiving, so just checking... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2009 Report Share Posted September 11, 2009 Peggy, Yup rehab Monday thru Friday 12:30-4:30. Don't think I'll be stupid smacking anyone though dear. LOL They've been doing this at Duke for 25 years and it's intended to be challenging. But it's also safe. We are very closely monitored and we have plenty of opportunities to sit and rest, have a drink, have a snack if we want etc. Also not all that time is exercise. There is a strong educational component. We have a short 'class' every day with some type of information on lung disease, medications, breathing techniques etc etc. Starting next week I can also get in the pool on Tuesdays and Thursdays for the 'water walking' class. That's walking in the water not on it by the way. Don't worry about me, I can handle it. There is an 87 year old woman from my church in class with me and she's coping. They customize all the different exercise components to each individuals ability so it works pretty well for all of us. And honestly as hard as it is, I'm loving it. I walk out exhausted but I know I've done something very good for myself. Please don't worry, I will be fine. I promise! Hugs, Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Friday, September 11, 2009 9:48:01 PMSubject: Beth Hi tired one.. Question-- do you do rehab everyday 12 to 4 ??? and I were talking about that today and I just hope not. If so you need to stupid smack someone.. your body can't take all that. I got so tired thinking about you working that hard I had to go take a nap. Seriously how is it going ? I know you are glad the week-end is here. You just may need to come catch some porch time.. It is getting close. 16 eggs a day.. all my neighbors are going to have very high cholesterol. Everyone leaving this house takes eggs.. lol Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 I am so glad you are enjoying the class. I know you can handle it. When I think about being your age and watch and the things y'all can do I know I deserve a good rest. I was quite active at one point. I still do a lot in my head so after a while of dream running, swimming and biking I have to take a nap. lol You are gonna LOVE the water walking. I had a pool in Tampa just for exercise 4' deep X 25' long. I did a lot of mileagein that pool and the grandkids made sure it was well used. I won't worry. I just hope I remember not to call you in class.. OOOOPPPS. ; } Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Peggy, Yup rehab Monday thru Friday 12:30-4:30. Don't think I'll be stupid smacking anyone though dear. LOL They've been doing this at Duke for 25 years and it's intended to be challenging. But it's also safe. We are very closely monitored and we have plenty of opportunities to sit and rest, have a drink, have a snack if we want etc. Also not all that time is exercise. There is a strong educational component. We have a short 'class' every day with some type of information on lung disease, medications, breathing techniques etc etc. Starting next week I can also get in the pool on Tuesdays and Thursdays for the 'water walking' class. That's walking in the water not on it by the way. Don't worry about me, I can handle it. There is an 87 year old woman from my church in class with me and she's coping. They customize all the different exercise components to each individuals ability so it works pretty well for all of us. And honestly as hard as it is, I'm loving it. I walk out exhausted but I know I've done something very good for myself. Please don't worry, I will be fine. I promise! Hugs, BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support Sent: Friday, September 11, 2009 9:48:01 PMSubject: Beth Hi tired one.. Question-- do you do rehab everyday 12 to 4 ??? and I were talking about that today and I just hope not. If so you need to stupid smack someone.. your body can't take all that. I got so tired thinking about you working that hard I had to go take a nap. Seriously how is it going ? I know you are glad the week-end is here. You just may need to come catch some porch time.. It is getting close. 16 eggs a day.. all my neighbors are going to have very high cholesterol. Everyone leaving this house takes eggs.. lol Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 Peggy, Don't worry about calling me while I'm at rehab. The phone is in my bag, in my locker so it's not bothering anyone. How are you feeling today? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Saturday, September 12, 2009 10:38:48 AMSubject: Re: Beth I am so glad you are enjoying the class. I know you can handle it. When I think about being your age and watch and the things y'all can do I know I deserve a good rest. I was quite active at one point. I still do a lot in my head so after a while of dream running, swimming and biking I have to take a nap. lol You are gonna LOVE the water walking. I had a pool in Tampa just for exercise 4' deep X 25' long. I did a lot of mileage in that pool and the grandkids made sure it was well used. I won't worry. I just hope I remember not to call you in class.. OOOOPPPS. ; } Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Peggy, Yup rehab Monday thru Friday 12:30-4:30. Don't think I'll be stupid smacking anyone though dear. LOL They've been doing this at Duke for 25 years and it's intended to be challenging. But it's also safe. We are very closely monitored and we have plenty of opportunities to sit and rest, have a drink, have a snack if we want etc. Also not all that time is exercise. There is a strong educational component. We have a short 'class' every day with some type of information on lung disease, medications, breathing techniques etc etc. Starting next week I can also get in the pool on Tuesdays and Thursdays for the 'water walking' class. That's walking in the water not on it by the way. Don't worry about me, I can handle it. There is an 87 year old woman from my church in class with me and she's coping. They customize all the different exercise components to each individuals ability so it works pretty well for all of us. And honestly as hard as it is, I'm loving it. I walk out exhausted but I know I've done something very good for myself. Please don't worry, I will be fine. I promise! Hugs, Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Friday, September 11, 2009 9:48:01 PMSubject: Beth Hi tired one.. Question-- do you do rehab everyday 12 to 4 ??? and I were talking about that today and I just hope not. If so you need to stupid smack someone.. your body can't take all that. I got so tired thinking about you working that hard I had to go take a nap. Seriously how is it going ? I know you are glad the week-end is here. You just may need to come catch some porch time.. It is getting close. 16 eggs a day.. all my neighbors are going to have very high cholesterol. Everyone leaving this house takes eggs.. lol Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 I am good. playing on the puter and reading in a few. have you read any good books lately ? my brain goes blank when i go to look. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Peggy, Don't worry about calling me while I'm at rehab. The phone is in my bag, in my locker so it's not bothering anyone. How are you feeling today? BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support Sent: Saturday, September 12, 2009 10:38:48 AMSubject: Re: Beth I am so glad you are enjoying the class. I know you can handle it. When I think about being your age and watch and the things y'all can do I know I deserve a good rest. I was quite active at one point. I still do a lot in my head so after a while of dream running, swimming and biking I have to take a nap. lol You are gonna LOVE the water walking. I had a pool in Tampa just for exercise 4' deep X 25' long. I did a lot of mileage in that pool and the grandkids made sure it was well used. I won't worry. I just hope I remember not to call you in class.. OOOOPPPS. ; } Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Peggy, Yup rehab Monday thru Friday 12:30-4:30. Don't think I'll be stupid smacking anyone though dear. LOL They've been doing this at Duke for 25 years and it's intended to be challenging. But it's also safe. We are very closely monitored and we have plenty of opportunities to sit and rest, have a drink, have a snack if we want etc. Also not all that time is exercise. There is a strong educational component. We have a short 'class' every day with some type of information on lung disease, medications, breathing techniques etc etc. Starting next week I can also get in the pool on Tuesdays and Thursdays for the 'water walking' class. That's walking in the water not on it by the way. Don't worry about me, I can handle it. There is an 87 year old woman from my church in class with me and she's coping. They customize all the different exercise components to each individuals ability so it works pretty well for all of us. And honestly as hard as it is, I'm loving it. I walk out exhausted but I know I've done something very good for myself. Please don't worry, I will be fine. I promise! Hugs, BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Friday, September 11, 2009 9:48:01 PMSubject: Beth Hi tired one.. Question-- do you do rehab everyday 12 to 4 ??? and I were talking about that today and I just hope not. If so you need to stupid smack someone.. your body can't take all that. I got so tired thinking about you working that hard I had to go take a nap. Seriously how is it going ? I know you are glad the week-end is here. You just may need to come catch some porch time.. It is getting close. 16 eggs a day.. all my neighbors are going to have very high cholesterol. Everyone leaving this house takes eggs.. lol Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 sounds like a great program when in the water , how is the o2 hooked up? Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: BethTo: Breathe-Support Date: Friday, September 11, 2009, 10:24 PM Peggy, Yup rehab Monday thru Friday 12:30-4:30. Don't think I'll be stupid smacking anyone though dear. LOL They've been doing this at Duke for 25 years and it's intended to be challenging. But it's also safe. We are very closely monitored and we have plenty of opportunities to sit and rest, have a drink, have a snack if we want etc. Also not all that time is exercise. There is a strong educational component. We have a short 'class' every day with some type of information on lung disease, medications, breathing techniques etc etc. Starting next week I can also get in the pool on Tuesdays and Thursdays for the 'water walking' class. That's walking in the water not on it by the way. Don't worry about me, I can handle it. There is an 87 year old woman from my church in class with me and she's coping. They customize all the different exercise components to each individuals ability so it works pretty well for all of us. And honestly as hard as it is, I'm loving it. I walk out exhausted but I know I've done something very good for myself. Please don't worry, I will be fine. I promise! Hugs, Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Friday, September 11, 2009 9:48:01 PMSubject: Beth Hi tired one.. Question-- do you do rehab everyday 12 to 4 ??? and I were talking about that today and I just hope not. If so you need to stupid smack someone.. your body can't take all that. I got so tired thinking about you working that hard I had to go take a nap. Seriously how is it going ? I know you are glad the week-end is here. You just may need to come catch some porch time.. It is getting close. 16 eggs a day.. all my neighbors are going to have very high cholesterol. Everyone leaving this house takes eggs.. lol Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 Joyce, 50 foot (or more) lengths of tubing hooked up to either E tanks or Helios Marathons. I won't get in the water till Tuesday so I'm not certain how it works logistically with 4 or 5 of us in the water at once but they have assured me they do it all the time. I'm very curious! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Saturday, September 12, 2009 12:07:46 PMSubject: Re: Beth sounds like a great program when in the water , how is the o2 hooked up? Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: BethTo: Breathe-Support@ yahoogroups. comDate: Friday, September 11, 2009, 10:24 PM Peggy, Yup rehab Monday thru Friday 12:30-4:30. Don't think I'll be stupid smacking anyone though dear. LOL They've been doing this at Duke for 25 years and it's intended to be challenging. But it's also safe. We are very closely monitored and we have plenty of opportunities to sit and rest, have a drink, have a snack if we want etc. Also not all that time is exercise. There is a strong educational component. We have a short 'class' every day with some type of information on lung disease, medications, breathing techniques etc etc. Starting next week I can also get in the pool on Tuesdays and Thursdays for the 'water walking' class. That's walking in the water not on it by the way. Don't worry about me, I can handle it. There is an 87 year old woman from my church in class with me and she's coping. They customize all the different exercise components to each individuals ability so it works pretty well for all of us. And honestly as hard as it is, I'm loving it. I walk out exhausted but I know I've done something very good for myself. Please don't worry, I will be fine. I promise! Hugs, Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Friday, September 11, 2009 9:48:01 PMSubject: Beth Hi tired one.. Question-- do you do rehab everyday 12 to 4 ??? and I were talking about that today and I just hope not. If so you need to stupid smack someone.. your body can't take all that. I got so tired thinking about you working that hard I had to go take a nap. Seriously how is it going ? I know you are glad the week-end is here. You just may need to come catch some porch time.. It is getting close. 16 eggs a day.. all my neighbors are going to have very high cholesterol. Everyone leaving this house takes eggs.. lol Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 Beth, What a trooper you are! My rehab is Tuesday and Thursday from 1 to 2:15. I've already missed 2 classes. The first time I was home sick coughing up some " aspirated crumbs, " the second was just this past Thursday and frankly, I just fell asleep. I get tired just thinking about it! We're given plenty of time to rest between exercises and drink our water. I just get absolutely exhausted. Rehab Tuesday, sleep ALL day Wednesday and on and on. I keep giving myself those mental pep talks, telling myself I asked for the rx and it is meant to help me. God bless ya lady! Seeing your bootcamp like itenerary gives me a more positive outlook of my meager rehab schedule. Your strength and positivity is quite encouraging. 34 FL IPF dx 1/06 > > > Peggy, > Yup rehab Monday thru Friday 12:30-4:30. Don't think I'll be stupid > smacking anyone though dear. LOL They've been doing this at Duke for > 25 years and it's intended to be challenging. But it's also safe. We > are very closely monitored and we have plenty of opportunities to sit > and rest, have a drink, have a snack if we want etc. Also not all > that time is exercise. There is a strong educational component. We > have a short 'class' every day with some type of information on lung > disease, medications, breathing techniques etc etc. > Starting next week I can also get in the pool on Tuesdays and > Thursdays for the 'water walking' class. That's walking in the water > not on it by the way. > > Don't worry about me, I can handle it. There is an 87 year old woman > from my church in class with me and she's coping. They customize all > the different exercise components to each individuals ability so it > works pretty well for all of us. > > And honestly as hard as it is, I'm loving it. I walk out exhausted > but I know I've done something very good for myself. Please don't > worry, I will be fine. I promise! > > Hugs, > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > To: Breathe-Support > Sent: Friday, September 11, 2009 9:48:01 PM > Subject: Beth > > > Hi tired one.. Question-- do you do rehab everyday 12 to 4 ??? > and I were talking about that today and I > > just hope not. If so you need to stupid smack someone.. your body > can't take all that. I got so tired thinking about you > working that hard I had to go take a nap. Seriously how is it going ? > I know you are glad the week-end is here. > You just may need to come catch some porch time.. It is getting > close. 16 eggs a day.. all my neighbors are going to > have very high cholesterol. Everyone leaving this house takes eggs.. lol > > > > Love & Prayers, Peggy > Florida, IPF/UIP 2004 > > " I believe that friends are quiet angels who lift us to our feet, > when our wings have trouble remembering how to fly. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 Beth, As much as I like my rehab I wish I could go 5 days a week. It makes me feel good. I have so much more stamina since starting rehab. I am allowed to go 3 days a week. I use the NuStep, arm bike, weights, treadmill, and walk. My favorite is the NuStep. I wish I could have one at home. Wow, I wish I could go in the pool. Let me know how it feels. The last time I went into the pool I was pregnant and there was too much pressure on my lungs. I wonder what it be like now. Good luck to you... Miranda LA / 28 yrs old IPF 05 > > > > > > Peggy, > > Yup rehab Monday thru Friday 12:30-4:30. Don't think I'll be stupid > > smacking anyone though dear. LOL They've been doing this at Duke for > > 25 years and it's intended to be challenging. But it's also safe. We > > are very closely monitored and we have plenty of opportunities to sit > > and rest, have a drink, have a snack if we want etc. Also not all > > that time is exercise. There is a strong educational component. We > > have a short 'class' every day with some type of information on lung > > disease, medications, breathing techniques etc etc. > > Starting next week I can also get in the pool on Tuesdays and > > Thursdays for the 'water walking' class. That's walking in the water > > not on it by the way. > > > > Don't worry about me, I can handle it. There is an 87 year old woman > > from my church in class with me and she's coping. They customize all > > the different exercise components to each individuals ability so it > > works pretty well for all of us. > > > > And honestly as hard as it is, I'm loving it. I walk out exhausted > > but I know I've done something very good for myself. Please don't > > worry, I will be fine. I promise! > > > > Hugs, > > > > Beth > > > > Moderator > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > From: Peggy <pac1773@> > > To: Breathe-Support > > Sent: Friday, September 11, 2009 9:48:01 PM > > Subject: Beth > > > > > > Hi tired one.. Question-- do you do rehab everyday 12 to 4 ??? > > and I were talking about that today and I > > > > just hope not. If so you need to stupid smack someone.. your body > > can't take all that. I got so tired thinking about you > > working that hard I had to go take a nap. Seriously how is it going ? > > I know you are glad the week-end is here. > > You just may need to come catch some porch time.. It is getting > > close. 16 eggs a day.. all my neighbors are going to > > have very high cholesterol. Everyone leaving this house takes eggs.. lol > > > > > > > > Love & Prayers, Peggy > > Florida, IPF/UIP 2004 > > > > " I believe that friends are quiet angels who lift us to our feet, > > when our wings have trouble remembering how to fly. " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2009 Report Share Posted September 12, 2009 sounds exciting Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: BethTo: Breathe-Support Date: Saturday, September 12, 2009, 12:21 PM Joyce, 50 foot (or more) lengths of tubing hooked up to either E tanks or Helios Marathons. I won't get in the water till Tuesday so I'm not certain how it works logistically with 4 or 5 of us in the water at once but they have assured me they do it all the time. I'm very curious! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Saturday, September 12, 2009 12:07:46 PMSubject: Re: Beth sounds like a great program when in the water , how is the o2 hooked up? Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: BethTo: Breathe-Support@ yahoogroups. comDate: Friday, September 11, 2009, 10:24 PM Peggy, Yup rehab Monday thru Friday 12:30-4:30. Don't think I'll be stupid smacking anyone though dear. LOL They've been doing this at Duke for 25 years and it's intended to be challenging. But it's also safe. We are very closely monitored and we have plenty of opportunities to sit and rest, have a drink, have a snack if we want etc. Also not all that time is exercise. There is a strong educational component. We have a short 'class' every day with some type of information on lung disease, medications, breathing techniques etc etc. Starting next week I can also get in the pool on Tuesdays and Thursdays for the 'water walking' class. That's walking in the water not on it by the way. Don't worry about me, I can handle it. There is an 87 year old woman from my church in class with me and she's coping. They customize all the different exercise components to each individuals ability so it works pretty well for all of us. And honestly as hard as it is, I'm loving it. I walk out exhausted but I know I've done something very good for myself. Please don't worry, I will be fine. I promise! Hugs, Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Friday, September 11, 2009 9:48:01 PMSubject: Beth Hi tired one.. Question-- do you do rehab everyday 12 to 4 ??? and I were talking about that today and I just hope not. If so you need to stupid smack someone.. your body can't take all that. I got so tired thinking about you working that hard I had to go take a nap. Seriously how is it going ? I know you are glad the week-end is here. You just may need to come catch some porch time.. It is getting close. 16 eggs a day.. all my neighbors are going to have very high cholesterol. Everyone leaving this house takes eggs.. lol Love & Prayers, Peggy Florida, IPF/UIP 2004 "I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
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