One more word about my VATS biopsy

[Guest guest]

nne -

Overall, it was not a bad experience. The group had prepared me well for what

to expect (knowledge is power). I took my first shower today and will take it

easy until next Monday when I start the rehab. The University of Utah Pulmonary

Rehab is doing a study on best program adaptations for pulmonary fibrosis

patients. While I was in the hospital I received a flyer inviting me to the

local face-to-face support group in September that I intend to check out. We

had a notable female governor, Olene , who has pulmonary fibrosis. She

gave a talk locally a while back, but I found out about it after the fact. With

some visibility in Utah, there may be some interesting stuff happening here. I

will keep you all posted.

Stefani, age 61

ILD 2/2006, NSIP (cellular) 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

[Guest guest]

Stefani

Glad you were prepared. It's invasive. Doesn't matter that the areas cut

are small. To the surgeon its simple so they tend to understate the pain

and anything after.

I recently ran into this with my ex mother-in-laws open heart surgery.

To the heart surgeon, the heart was working fine after so it was good

and successful. The fact she was on a vent to breathe and not able to

eat or drink or breathe on her own wasn't so significant to him. Her

heart was doing fine. Now, fortunately, she is improving, she is off the

vent and eating and drinking and gradually recovering. However, the

surgeon tended to understate the other issues. The most negative

statement he even made was " well, she's not as far along as we would

have hoped, but her heart is doing well so she'll be fine. " Well, yes,

but you predicted home in 7-10 days and now she's been a month.

My VATS has problems but I'd do it again. However, very glad I was

prepared by this group and not just the surgeon.

>

> nne -

> Overall, it was not a bad experience. The group had prepared me well

for what to expect (knowledge is power). I took my first shower today

and will take it easy until next Monday when I start the rehab. The

University of Utah Pulmonary Rehab is doing a study on best program

adaptations for pulmonary fibrosis patients. While I was in the

hospital I received a flyer inviting me to the local face-to-face

support group in September that I intend to check out. We had a notable

female governor, Olene , who has pulmonary fibrosis. She gave a

talk locally a while back, but I found out about it after the fact.

With some visibility in Utah, there may be some interesting stuff

happening here. I will keep you all posted.

>

> Stefani, age 61

> ILD 2/2006, NSIP (cellular) 6/2009, Diabetes II 2/2006, Sleep Apnea

4/2009

>