Re: Many symptoms but nothing worse than Back Pain??have a ques.

[Guest guest]

Yup, that's me. Back pain/weakness is one of my worst symptoms.

Especially the lower back. I've also had 2 major back operations

where my entire back was opened up but anyway...

How are his temperatures? If he could take his temps about 3 times

a day for a few days he could tell if he has adrenal/thyroid or both.

I took a couple of Isocorts last night and the pain subsided quite a

bit. Isocort is for adrenals. I'm hoping to get back on thyroid meds

soon too. Anyway, hormonal upsets can cause alot of pain.

He could try very low dose pregnenolone (health food store) maybe 5

mgs. and see if that helps.

Val

[Guest guest]

seashell, thanks for responding. Yes his temps are lower than normal.

96.3-97.6 nothing higher since the night sweats stopped in January. I

am in the process of getting an appt. with an MD that treating

's Temp Syndrome and her nurse said that she has alot of

knowledge of adrenal support. I just need some extra help here. When

I get more information from her I'll post about our appt. and what

she is suggesting, in case anyone would be interested.

Carie

>

> Yup, that's me. Back pain/weakness is one of my worst symptoms.

> Especially the lower back. I've also had 2 major back operations

> where my entire back was opened up but anyway...

>

> How are his temperatures? If he could take his temps about 3

times

> a day for a few days he could tell if he has adrenal/thyroid or

both.

> I took a couple of Isocorts last night and the pain subsided quite

a

> bit. Isocort is for adrenals. I'm hoping to get back on thyroid

meds

> soon too. Anyway, hormonal upsets can cause alot of pain.

>

> He could try very low dose pregnenolone (health food store) maybe

5

> mgs. and see if that helps.

>

> Val

>

[Guest guest]

>

> I've posted before under " Husband has kidney pain " With advice from

> all

> of you I lowered his DMSA dose from 100mg to 25mg and he has almost

> no

> kidney pain post chelation days.

>

> Have any of you, out of all your symptoms..have any back pain or just

> pain in general as the most debilitating symptom?

>

Me. For me, pain can be traced back to the mercury as being the

underlying cause. There are lots of things that the mercury did to my

body that eventually led to pain. It took me many years of searching

to finally discover some answers, and I don't have them all yet.

> My husband has back pain (upper,middle,lower)starting at an hour

> after

> he gets up untill he goes to bed. Chelating or not. His pain medicine

> doesn't seem to be working like it used to. Hydros are now

> ineffective. 4 percocets a day with oxycodone 15mg for BT pain is

> where we are now. This is where he can function at work and at home.

> We get worried that because our Doctor doesn't know alot about

> mercury poisioning or how to treat it..the more weird symptoms tim

> gets the more we take a chance on our doctor dropping us.

>

I know exactly how your husband must feel. A person in pain is at the

mercy of the treating physician.

There are a couple of things that you could think about.

Ask for a referral to a pain specialist. Different pain specialists

specialize in different areas of pain management, so it would be

helpful to talk to your doctor about specialists in your area and what

they do. Sometimes information about the pain clinics is available on

the internet.

Much of my back pain had to do with weak and torn spinal ligaments,

that couldn't heal because of adrenal insufficiency and

hypothyroidism. The specialist who helped me treated my spinal

ligaments with prolotherapy. Other treatments that have helped were

acupuncture, gentle Chinese manipulation therapy (not sure exactly

what it's called), cranio-sacral therapy, and myofacial release massage.

Getting the proper replacement of cortisol and thyroid hormone is

essential to healing. In another post you mentioned starting on that

direction with one physician. Be sure that the adrenals are treated

first before the thyroid. A saliva test (4x per day) would help to

see where he's at right now.

> I've been reading about something you all call Dumping phase. His

> vapor

> exposure from cracked filling and improper removal was December. His

> remaining amalgam removal (properly) was in April/May. please tell me

> more about this?

>

There is an initial short period of feeling better soon after all

amalgam has been removed, and then a period of feeling worse at about

3 months after removal. He is right at the feeling worse part.

Chelating at the right doses will help him to feel better (has to be

at the right doses for him).

If you don't think that your doctor will be supportive of chelation,

you don't have to tell him that you are doing it.

> I haven't seen alot of posts on here about pain. Its not neuropathic

> in

> nature because its not intermittent or burning sensations. I don't

> know what it is!! I do know its a part of his mercury poisoning, Im

> afraid i won't be able to explain why to the doctor.

>

After 17 years of pain I still can't explain it all. The doctors

can't explain it either.

> I feel like I need to find someone/physician/expert whether its in my

> town or not that knows about mercury poisoning that will be willing

> to be a consult to my doctor.

>

The best person would be Andy Cutler. If you are interested in

consulting with him you can contact him directly at AndyCutler @

aol.com (without the spaces). Considering the amount of pain that

your husband is experiencing, it would be more than worthwhile. Any

time that is saved finding the right doses and the right treatments is

one more stop towards alleviating the pain.

Pick a physician that your husband is comfortable with to be involved

in the consultation. My GP has consulted to Andy, and the arrangement

has been beneficial to me.

(someone who really knows what pain is like)

> Cause honestly, I read about the symptoms you all have and it seems

> like the symptoms posted that take a couple months to several months

> to a couple years....are similar to my husbands symptoms but he is

> experiencing them in a matter of days or weeks.

>

> Carie

>

[Guest guest]

..

Great Carie.

Troubles with my kidneys was the reason I stopped Frequent dose a

coupel of years ago.. My dose was just too high and they could

not take it. I restarted with low dose of just DMSA first and

after that I noticed my kidneys got better.. I do not have

to take so much kidney support.. I have nettle tea ever

couple of days -- more during chelation and take D-mannose when

it is at its worse..The d-mannose helps with ecoli bacteria

which is what causes the problem in my bladder and thus kidneys

I beleive.

>

> Have any of you, out of all your symptoms..have any back pain or

just

> pain in general as the most debilitating symptom?

>

If it is muslce pain in my expereience it was viral in origin..

You know how we get all achey when down with the flue.. Well

for me it was the simian virus hiding out in my neck and

shoulders adn the polio virus in my legs.. Plus the

endometriosis pain which is I guess smoething different which

goes away with epsom salts..

There is a homeopathic from Kroeger herbs specific for

spinal problems .. I have no expereince with it.. But I do love

her remeidies. . I shall have to look for the website

Nanci

[Guest guest]

Well, this might not be the same thing, but for what it's worth...

I've never had any back pain in my life, but did get some in the

years following my unsafe amalgam removal. I figured out it's my low

DHEA symptom. It was always in my lower back. Felt almost like a

bone pain. A deep ache. Upped the 7-keto dhea and it would go away.

I really feel for those of you who get severe pain. Hang in there....

Jen

> >

> > I've posted before under " Husband has kidney pain " With advice

from

> > all

> > of you I lowered his DMSA dose from 100mg to 25mg and he has

almost

> > no

> > kidney pain post chelation days.

> >

> > Have any of you, out of all your symptoms..have any back pain or

just

> > pain in general as the most debilitating symptom?

> >

>

>

> Me. For me, pain can be traced back to the mercury as being the

> underlying cause. There are lots of things that the mercury did to

my

> body that eventually led to pain. It took me many years of

searching

> to finally discover some answers, and I don't have them all yet.

>

>

>

> > My husband has back pain (upper,middle,lower)starting at an hour

> > after

> > he gets up untill he goes to bed. Chelating or not. His pain

medicine

> > doesn't seem to be working like it used to. Hydros are now

> > ineffective. 4 percocets a day with oxycodone 15mg for BT pain is

> > where we are now. This is where he can function at work and at

home.

> > We get worried that because our Doctor doesn't know alot about

> > mercury poisioning or how to treat it..the more weird symptoms

tim

> > gets the more we take a chance on our doctor dropping us.

> >

>

>

> I know exactly how your husband must feel. A person in pain is at

the

> mercy of the treating physician.

>

> There are a couple of things that you could think about.

>

> Ask for a referral to a pain specialist. Different pain specialists

> specialize in different areas of pain management, so it would be

> helpful to talk to your doctor about specialists in your area and

what

> they do. Sometimes information about the pain clinics is available

on

> the internet.

>

> Much of my back pain had to do with weak and torn spinal ligaments,

> that couldn't heal because of adrenal insufficiency and

> hypothyroidism. The specialist who helped me treated my spinal

> ligaments with prolotherapy. Other treatments that have helped were

> acupuncture, gentle Chinese manipulation therapy (not sure exactly

> what it's called), cranio-sacral therapy, and myofacial release

massage.

>

> Getting the proper replacement of cortisol and thyroid hormone is

> essential to healing. In another post you mentioned starting on

that

> direction with one physician. Be sure that the adrenals are treated

> first before the thyroid. A saliva test (4x per day) would help to

> see where he's at right now.

>

>

>

> > I've been reading about something you all call Dumping phase. His

> > vapor

> > exposure from cracked filling and improper removal was December.

His

> > remaining amalgam removal (properly) was in April/May. please

tell me

> > more about this?

> >

>

>

> There is an initial short period of feeling better soon after all

> amalgam has been removed, and then a period of feeling worse at

about

> 3 months after removal. He is right at the feeling worse part.

> Chelating at the right doses will help him to feel better (has to be

> at the right doses for him).

>

> If you don't think that your doctor will be supportive of chelation,

> you don't have to tell him that you are doing it.

>

>

>

>

> > I haven't seen alot of posts on here about pain. Its not

neuropathic

> > in

> > nature because its not intermittent or burning sensations. I

don't

> > know what it is!! I do know its a part of his mercury poisoning,

Im

> > afraid i won't be able to explain why to the doctor.

> >

>

>

> After 17 years of pain I still can't explain it all. The doctors

> can't explain it either.

>

>

>

>

> > I feel like I need to find someone/physician/expert whether its

in my

> > town or not that knows about mercury poisoning that will be

willing

> > to be a consult to my doctor.

> >

>

>

> The best person would be Andy Cutler. If you are interested in

> consulting with him you can contact him directly at AndyCutler @

> aol.com (without the spaces). Considering the amount of pain that

> your husband is experiencing, it would be more than worthwhile. Any

> time that is saved finding the right doses and the right treatments

is

> one more stop towards alleviating the pain.

>

> Pick a physician that your husband is comfortable with to be

involved

> in the consultation. My GP has consulted to Andy, and the

arrangement

> has been beneficial to me.

>

>

> (someone who really knows what pain is like)

>

>

>

>

> > Cause honestly, I read about the symptoms you all have and it

seems

> > like the symptoms posted that take a couple months to several

months

> > to a couple years....are similar to my husbands symptoms but he

is

> > experiencing them in a matter of days or weeks.

> >

> > Carie

> >

>