Re: Lung Transplant resources in PA

[Guest guest]

Oh Leanne what a tough spot to be in. I thought the transplant co-ordinator helped with that kind of stuff. I'll be prayin for them. He has made it through this far I am sure something will open up for them. Is he at Penn State?Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Hi all, I just received a question that I don't have an answer to. Here it is: My best friend's husband underwent a lung transplant on 6/11/2009 at the University of Pennsylvania. Their home is 2+ hours from the hospital. Are there any resources in terms of hotel vouchers, residences available for families to use when the time comes for rehabilitation? He was the primary breadwinner, they have four children ages 22-12 and unfortunately have financial constraints to stay in hotels even at $100 per night for long term. I would appreciate any feedback or ideas, thank you. PA folks, are there any resources that you are aware of available for this family? Let me know. Thanks. Leanne Storch Executive Director Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60642-2642 www.pulmonaryfibrosis.org P F A cure is just a breath away

[Guest guest]

Peggy,

I thought the same exact thing. He's out of University of PA.

Leanne

>

>

>

> Hi all,

>

> I just received a question that I don't have an answer to. Here it is:

>

> My best friend's husband underwent a lung transplant on 6/11/2009 at

> the University of Pennsylvania. Their home is 2+ hours from the

> hospital. Are there any resources in terms of hotel vouchers,

> residences available for families to use when the time comes for

> rehabilitation? He was the primary breadwinner, they have four

> children ages 22-12 and unfortunately have financial constraints to

> stay in hotels even at $100 per night for long term. I would

> appreciate any feedback or ideas, thank you.

>

> PA folks, are there any resources that you are aware of available for

> this family?

>

> Let me know. Thanks.

> Leanne Storch

> Executive Director

> Pulmonary Fibrosis Foundation

> 1332 N. Halsted, Suite 201

> Chicago, IL 60642-2642

> www.pulmonaryfibrosis.org

> P

> F

>

> A cure is just a breath away

>

[Guest guest]

The site Bruce posted looked like a really good solution. I hope it works. Was he in you support group? I am glad the waiting is behind him. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Peggy, I thought the same exact thing. He's out of University of PA. Leanne > > > > Hi all, > > I just received a question that I don't have an answer to. Here it is: > > My best friend's husband underwent a lung transplant on 6/11/2009 at > the University of Pennsylvania. Their home is 2+ hours from the > hospital. Are there any resources in terms of hotel vouchers, > residences available for families to use when the time comes for > rehabilitation? He was the primary breadwinner, they have four > children ages 22-12 and unfortunately have financial constraints to > stay in hotels even at $100 per night for long term. I would > appreciate any feedback or ideas, thank you. > > PA folks, are there any resources that you are aware of available for > this family? > > Let me know. Thanks. > Leanne Storch > Executive Director > Pulmonary Fibrosis Foundation > 1332 N. Halsted, Suite 201 > Chicago, IL 60642-2642 > www.pulmonaryfibrosis.org > P > F > > A cure is just a breath away >

[Guest guest]

, I can't even find my way to town most of the time...lol NO since of direction. It's terrible to have someone sayYou know the east side just south of XYZ.. i just laugh and call to walk me through.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Peggy and Beth, The Hospital of the Univ. of PA is in Philadelphia (HUP for short) Penn State is in the middle of the state. It does have a good hospital and medical school but that is in Hershey! It's confusing ..sorry! Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!!No, NSIP was not self-inflicted…I never smoked!Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob MarleyVinca Minor-periwinkle is my flower Leanne wrote: Peggy, I thought the same exact thing. He's out of University of PA. Leanne > > > > Hi all, > > I just received a question that I don't have an answer to. Here it is: > > My best friend's husband underwent a lung transplant on 6/11/2009 at > the University of Pennsylvania. Their home is 2+ hours from the > hospital. Are there any resources in terms of hotel vouchers, > residences available for families to use when the time comes for > rehabilitation? He was the primary breadwinner, they have four > children ages 22-12 and unfortunately have financial constraints to > stay in hotels even at $100 per night for long term. I would > appreciate any feedback or ideas, thank you. > > PA folks, are there any resources that you are aware of available for > this family? > > Let me know. Thanks. > Leanne Storch > Executive Director > Pulmonary Fibrosis Foundation > 1332 N. Halsted, Suite 201 > Chicago, IL 60642-2642 > www.pulmonaryfibrosis.org > P > F > > A cure is just a breath away >

[Guest guest]

Hershey....the Great American Chocolate Bar.

And to make it more confusing toss Temple into the middle of the

equation.

> > >

> > >

> > >

> > > Hi all,

> > >

> > > I just received a question that I don't have an answer to. Here it

is:

> > >

> > > My best friend's husband underwent a lung transplant on 6/11/2009

at

> > > the University of Pennsylvania. Their home is 2+ hours from the

> > > hospital. Are there any resources in terms of hotel vouchers,

> > > residences available for families to use when the time comes for

> > > rehabilitation? He was the primary breadwinner, they have four

> > > children ages 22-12 and unfortunately have financial constraints

to

> > > stay in hotels even at $100 per night for long term. I would

> > > appreciate any feedback or ideas, thank you.

> > >

> > > PA folks, are there any resources that you are aware of available

for

> > > this family?

> > >

> > > Let me know. Thanks.

> > > Leanne Storch

> > > Executive Director

> > > Pulmonary Fibrosis Foundation

> > > 1332 N. Halsted, Suite 201

> > > Chicago, IL 60642-2642

> > > www.pulmonaryfibrosis.org

> > > P

> > > F

> > >

> > > A cure is just a breath away

> > >

> >

> >

>

[Guest guest]

leanne

if he is at Penn in Philadelphia, there is a host family program -- they should discuss it with the social worker --

otherwise most people that i am aware of stay in the hotels

there is a lady in the support group who has shopped around re: hotels, but i forget which one she decided on

it will be a couple of years before the facilities for transplant recipients and their families are built -- one at Penn and one at Gift of Life

I don't know what Temple does for their families and recipients

there is one lady from New Orleans who moved here to wait for her transplant, she rented an apartment, had the transplant, and will stay there until after rehab is complete, maybe even longer

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Lung Transplant resources in PATo: Breathe-Support Date: Monday, June 22, 2009, 7:54 PM

Hershey....the Great American Chocolate Bar.And to make it more confusing toss Temple into the middle of theequation.> > >> > >> > >> > > Hi all,> > >> > > I just received a question that I don't have an answer to. Here itis:> > >> > > My best friend's husband underwent a lung transplant on 6/11/2009at> > > the University of Pennsylvania. Their home is 2+ hours from the> > > hospital. Are there any resources in terms of hotel vouchers,> > > residences available for families to use when the time

comes for> > > rehabilitation? He was the primary breadwinner, they have four> > > children ages 22-12 and unfortunately have financial constraintsto> > > stay in hotels even at $100 per night for long term. I would> > > appreciate any feedback or ideas, thank you.> > >> > > PA folks, are there any resources that you are aware of availablefor> > > this family?> > >> > > Let me know. Thanks.> > > Leanne Storch> > > Executive Director> > > Pulmonary Fibrosis Foundation> > > 1332 N. Halsted, Suite 201> > > Chicago, IL 60642-2642> > > www.pulmonaryfibros is.org> > > P> > > F> > >> > > A cure is just a breath away> > >> >>

>>

[Guest guest]

Bruce, Temple is in North

Philly..Penn is in West Philly, Penn State Medical is in Hershey...1

1/2 hours

west of Philly...near burg. I'm a Philadelphia girl through and

through...just live in a suburb NW of the city.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Bruce Moreland wrote:

Hershey....the Great American Chocolate Bar.

And to make it more confusing toss Temple into the middle of the

equation.

> > >

> > >

> > >

> > > Hi all,

> > >

> > > I just received a question that I don't have an answer

to. Here it

is:

> > >

> > > My best friend's husband underwent a lung transplant on

6/11/2009

at

> > > the University of Pennsylvania. Their home is 2+ hours

from the

> > > hospital. Are there any resources in terms of hotel

vouchers,

> > > residences available for families to use when the time

comes for

> > > rehabilitation? He was the primary breadwinner, they

have four

> > > children ages 22-12 and unfortunately have financial

constraints

to

> > > stay in hotels even at $100 per night for long term. I

would

> > > appreciate any feedback or ideas, thank you.

> > >

> > > PA folks, are there any resources that you are aware of

available

for

> > > this family?

> > >

> > > Let me know. Thanks.

> > > Leanne Storch

> > > Executive Director

> > > Pulmonary Fibrosis Foundation

> > > 1332 N. Halsted, Suite 201

> > > Chicago, IL 60642-2642

> > > www.pulmonaryfibrosis.org

> > > P

> > > F

> > >

> > > A cure is just a breath away

> > >

> >

> >

>

[Guest guest]

University of Pennsylvania and Pennsylvania State University are 2 different institutions

University of Pennsylvania is also known as Penn or U Penn

the hospital is also known as HUP -- Hospital of the University of Pennsylvania

Pennsylvania State University is also known as Penn State, it is in the center of the state, i forget the name of the town,

Penn State's Medical center is in Hershey PA, about 2 hours from Penn State

Penn State is known for the Knittany Lions football team, led by Coach Joe Paterno for about 40 years

I know nothing about the pulmonary department at Hershey Medical Center

If you go to Hershey Park (amusement park) -- where chocolate is named for Milton Hershey -- you will pass the medical center

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Lung Transplant resources in PATo: Breathe-Support Date: Monday, June 22, 2009, 11:32 PM

Bruce, Temple is in North Philly..Penn is in West Philly, Penn State Medical is in Hershey...1 1/2 hours west of Philly...near burg. I'm a Philadelphia girl through and through...just live in a suburb NW of the city.

Z 65, fibriotic NSIP/05/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Bruce Moreland wrote:

Hershey....the Great American Chocolate Bar.And to make it more confusing toss Temple into the middle of theequation.> > >> > >> > >> > > Hi all,> > >> > > I just received a question that I don't have an answer to. Here itis:> > >> > >

My best friend's husband underwent a lung transplant on 6/11/2009at> > > the University of Pennsylvania. Their home is 2+ hours from the> > > hospital. Are there any resources in terms of hotel vouchers,> > > residences available for families to use when the time comes for> > > rehabilitation? He was the primary breadwinner, they have four> > > children ages 22-12 and unfortunately have financial constraintsto> > > stay in hotels even at $100 per night for long term. I would> > > appreciate any feedback or ideas, thank you.> > >> > > PA folks, are there any resources that you are aware of availablefor> > > this family?> > >> > > Let me know. Thanks.> > > Leanne Storch> > > Executive Director> > > Pulmonary Fibrosis Foundation> > > 1332

N. Halsted, Suite 201> > > Chicago, IL 60642-2642> > > www.pulmonaryfibros is.org> > > P> > > F> > >> > > A cure is just a breath away> > >> >> >>